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Portacath discomfort

7 REPLIES 7
Evie-S
Community Champion

Re: Portacath discomfort

Hi Alice - I do remember the early days feeling like the pain would never go, but then suddenly it did. I also had my port fitted just a short time before my next chemo, and all was fine - just get that numbing cream. Actually I don’t know what it would be like without the cream as I always made sure I put some on. It’s good that all seems to be healing and no sign of infection.

I wish you all the very best with the rest of your treatment - but please let me know if I can help with any more questions, about this or anything else. Evie xx

Leftygurl
Member

Re: Portacath discomfort

Hi Evie-S,

Thank you for caring and checking up on me.

Well it’s better but I still have to take paracetamol 3 times a day and a Co-codamol at night, it feels worse lying down weirdly, it feels like I have a ricked neck. I had a shower yesterday and changed the dressing and all looked fine, no infection.

I’m hoping that things will settle down and that the incisions heal as I have my 2nd chemo cycle next Thursday but I suppose they can use the site even if it hasn’t healed. I’ll definitely be asking for the emla cream that’s for sure!

Alice xx

Evie-S
Community Champion

Re: Portacath discomfort

Hi Alice - I just wanted to check in with you to see if the pain has eased yet? I do hope so. Evie xx

Leftygurl
Member

Re: Portacath discomfort

Hi FionaMac,

It was all quite traumatic tbh and everyone says I’m quite a laidback person, I can see why it would be worth doing though so I’ll keep taking the painkillers and pray that the pain becomes less and my sleep pattern comes back.

I just wonder why the local anaesthetic would make everything uncomfortable tbh as general anaesthetics only seem to stay in my system for 24 hrs afterwards and do the opposite, make me very sleepy.

Alice x

Leftygurl
Member

Re: Portacath discomfort

Thanks Evie-S,

I managed to get to sleep last night at last at about 2 after taking a co-codamol  and then woke up at 7.15am groggy from it but in pain too! 
I wasn’t told that I might not be able to sleep because of the effects of the local anaesthetic no, but it explains a lot. Hopefully the pain will get better every day as you say Evie-S, fingers crossed 🤞 😊

Alice x

Evie-S
Community Champion

Re: Portacath discomfort

Hi Alice (Leftygurl) - I’m sorry to read that you are in such pain. I had a portacath too when I had chemo. I remember it was painful for maybe up to a week, getting better each day, but it was worth it as it made chemo so much easier. When it came to chemo day I was given some cream (possibly Emla?) to put on the port site about an hour before to numb it - because I’m not brave with needles and pain. 

I really hope your pain goes away quickly but do speak to your team if the pain is unbearable and they will be able to advise on better pain relief. Evie xx

FionaMac
Member

Re: Portacath discomfort

Hi Alice,

Sorry to hear that. I had a port put in in Dec. I was given enough local anaesthetic to knock out a mammoth and warned that this in itself would make me feel uncomfortable for a while - possibly weeks. It kept me awake for several nights. When it's healed and the dressings are off, it will be better. 

 

Fiona

Leftygurl
Member

Portacath discomfort

Just wondering how other people have got on with their portacath as I had the procedure done yesterday and my night’s sleep has not been comfortable at all even with paracetamol throughout the night.

The procedure was really painful too. Not too bad at first then the doctor said, this could be uncomfortable and to brace myself. No idea what he did but OMG it hurt so bad I think I screamed and they had to stop and give me more local anaesthetic. I can honestly say it made me cry and everyone says I’m a toughie in general 😳

Has anyone got any advice or tips on sleeping as I found that lying flat was horrible and painful and it felt better being propped up but at the point that it was the most comfortable (nearly upright) I can’t possibly sleep in that position and my husband wasn’t enjoying me shifting about all night too, poor love! And I’m writing this at 6.20am after giving up trying to sleep at 5.30am. 
Hopefully this will get better after a couple of days?

In the long run I’m glad that I had the procedure as it will be easier than a picc line but also I’m hoping this is not the first in quite a few disturbed nights sleep too 😓

Alice x