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To work or not to work?

8 REPLIES 8
Member

Re: To work or not to work?

Hi Everyone

Glad i found this little thread. I had my diagnosis 2 weeks ago, was scheduled for a mastectomy last Friday but it was postponed as they didnt have my HER2 result. its just came back today, meaning rescheduled op for this Friday is now postponed until i have had chemo.

I too am planning to try and keep working, but am fully aware that i have no idea how i am going to react or deal with the fatigue etc Trying to make some plans at work, but its so difficult, so many unknown factors.

Seeing my oncologist on Friday so hopefully i'll get some definite answers/treatment plan information. Feel like a kite in the wind at the moment!!

Jane x

Member

Re: To work or not to work?

PIP isn’t about your diagnosis, it’s about how it affects you, and also how long it affects you for.

So you can’t claim until you actually get major problems, and those problems are expected to last for months. As an example, if you break a leg and are in plaster for six weeks you can’t claim PIP, as that would be expected to be temporary. If your leg didn’t heal properly and you ended up with permanent problems walking then you might possibly be able to claim — but even then its difficult to get an award. Most breast cancer treatment side effects are temporary, so unless you have other conditions too you’re unlikely to be able to get PIP.

Member

Re: To work or not to work?

Just found out employer has to register you as disabled.  Does anyone know on here if you are entitled to any benefits other than ssp if you can’t work has anyone tried claiming pipp and was successful x

Member

Re: To work or not to work?

thanks jay bro for the reply.

i know this is going to be tough and not trying to kid myself I know I’ll have bad days and really bad days but my plan is to take these as they come.  
didn’t realise they have to register you as disabled at work I learn something new on here everyday

hope to keep in touch x

Member

Re: To work or not to work?

Hi Jojo

I love how positive you are being, in spite of the shock of a b-c diagnosis. I also truly admire (no, I’m awe-struck) at how Lou has moved through chemo and how you hope to. Go girls!

Just to put a damper on things, I’d suggest you have a back-up plan ready with your employer (who is obliged by law - The Equalities Act - to register you as disabled now, which impacts on your employment rights). No one knows how they are going to react to chemotherapy. The same treatment plan affects different women in different ways. Speaking from the perspective of someone reduced to zombie status, just have some alternatives ready (working from home, reduced hours, flexi-time, whatever) and make sure your employer appreciates how unpredictable this all is in case you’re one of the unlucky ones.

I hope you remain upbeat and cope well. It’s not easy physically or emotionally and, as I said, it’s unpredictable so just allow for a little flexibility and please don’t beat yourself up if you fall short of your expectations. I wish you all the best x

Member

Re: To work or not to work?

Hi

That sounds a plan.

My co were supportive (they'd never had anyone with cancer before) but it was an unknown journey for everyone and we agreed we would see how it went.

Mentally working helped me but the days I couldnt concentrate, I gave in.

I was just honest all the way through.

No right or wrong and our journeys are all different.

Best of luck - am with you

xx

Member

Re: To work or not to work?

Hi Lou 

thanks for the reply.

i have always worked like you I am single and need to pay the bills, unfortunately they don’t stop for cancer.  I also feel I need the distraction.  I guess I don’t know how I’m going to feel.  Work have been great, so at the moment my plan is probably take the treatment week off and try to go back on the recovery weeks.

its all in the air at the moment, that’s the worrying part about this the uncertainty.

great news you’re coming to the end of you’re journey.  Wish you well and a speedy getting back to normal xx

Member

Re: To work or not to work?

Hi

I have just finished my journey - jan to sept - chemo, surgery and radio and worked throughout.

I work for a small co and SSP would not have paid my mortgage but tbh the whole co worked from home in lockdown so I did the same.

The days I needed to rest I did but mentally I needed the distraction as I am single.

Do what is right for you.

Good luck xx

Member

To work or not to work?

Just had my first meeting with the oncology team today.

I am having chemo first then surgery.

I know its going to be hard but trying to stay positive.  I live alone, but have a great support network with my sister although I think she's got me selling the house and moving in with them already lol?

I have tried to tell her I need to handle this my way and do as much as I can, think its the only thing that will keep me going, although she is being very negative saying I wont be able to work through this.  I realise the treatment week is going to be hard but am I being unrealistic about going to work if feeling ok on the recovery weeks, or am I just going to feel permanently crap for the next 6 months?