Thanks Jane for the book recommendation, I have just ordered it, waiting for it to arrive.It's good to know its normal to have these worries like all the rest of you lovely ladies I wish sometimes I could switch my brain off.
Hi all. I have really been struggling lately worrying about every ache and pain. For the last month or so I have had a back ache, of course our minds go into overdrive and think its the cancer back, even though I have previously suffered with back pain and probably is related to work. It is really good to see that you are all the same . Hopefully time will make it better I finished my treatment a year ago this month and I worry more now than when I was first diagnosed. The chance it will return is constantly on my mind, I'm now even getting worried about booking future holidays. Doesn't matter how many times you tell yourself not to be silly and be positive it still doesn't help. Sorry I have been such a worry guts , hopefully airing my feelings on here will help.
Thanks for reply. Very glad you sorted out the cause of your stomach issues and hope you are feeling very well.
Not freaking out about the hip leg pain. I detailed my last meltdown in another post which seemed to be due to a combination and culmination of things, but the persistant pain was probably the bleeding last thing needed .
I have had lots of differing pains and effects since going through treatment and feel that I have taken them in my stride as usually there is a simple explanation for them and I have not felt the need to contact or see medical staff. I get frustrated when I don't know the reason for something!
I think it is a bit different after you have had a cancer diagnosis rather than pre cancer days and one of the things you are experiencing is on the "get it checked out if it persists list". Anyway, whatever the reason for the situation, I would rather be in the know about it. Just wished the BCN had maybe arranged a more detailed check when I saw her a couple of weeks ago (not specifically for the hip) but can't undo that.
Best wishes to you x
I am also having a bit of a fear moment at this time due to pain in my leg possibly coming from lower back/hip and that is not going away anytime soon. Will get it checked out again more thoroughly next week so fingers crossed and all that.
Cazbo04 - Just seen your post below. Just wanted to say I can identify somewhat with your surgical experience, the leeches and the loss of the "same" boob for the second time so to speak. It's like having a double mastectomy on the same side. It really stinks doesn't it and just more physical and emotional truama to get your head around as if we need anymore.
I found the leeches a bit nippy at times. I even got the nurse to take a pic of them as they were enjoying their meal on me. I know - maybe a bit wierd but there you go.
Wishing you all the best and hope your headaches have reduced x
Hello lovely to hear from you and that they have identified what the problem is. Easy to say dont stress though!! I remember when I was having my pre op and my bp was high the nurse told me to relax otherwise if my bp didnt come I couldnt have the op, and that really helped to bring it down, NOT!!
Now I know this might sound a bit mad!! When was the last time you changed your mattress? The only reason I ask is that since we changed ours on news years eve, I have been having the best and longest nights sleep I have had in absolutely ages.
Sending you hugs
Pila Pala, thanks for the update, it’s reassuring for you and guess also for us worryguts. I think for me now sleep is something of a luxury, hey ho, I can live with that, when i get a few hours of uninterrupted sleep it’s like a win on the lottery,at least I havent got to get up at 6am for work aanymore so that’s a bo us, always a silver lining if you look hard Enough. So relieved for you and hope that you can find some peace of mind now and relax, we’ll as much as those of those affected by BC can xx.
Hi all, sorry for taking so long to reply. After carrying out very thorough bood tests (6 bottles in all), they all came back negative which was such a relief. Following this my GP went back to original diagnosis of gastritis and doubled my Omeprazole. Lucky for me, it has now all cleared and I'm ok. I understand that me stressing about it was making it worse which in turn made me stress more! When tests came back clear though I was at last able to relax about it and the pain eased off. To be honest, I think that stress caused it in the first place.
Where sleep is concerned...I am still struggling, despite trying various pills off my GP. She has now told me that I need to accept that that is how things are for me as there's not much else she can offer.
Meant to say, Cazbo, my sympathies, I am a fellow headache and migraine sufferers. I suffer from daily chronic headaches and although they’ve been going on for years, long before the BC they have got worse since so I know where you’re coming from. When your head hurts so much you do start thinking the worse. I just tell myself that they’ve been going on for 20 years now but when it’s raging you can’t stop yourself xx
just noticed thread and its made me feel better. I regularly post on another thread where a group of us went through treatment more or less at the same time and rely on each other for comfort, support and laughs. I too (although I don’t Mention it) am lately getting more and more anxious about it coming back, every ache, pain and twinge anywhere in my body fills me with a sick feeling of dread. Got my second mammogram coming up in a couple of weeks and am so worried about it, whereas I wasnt last year. It’s good to know that a lot of us feel this way, it means it’s completely normal and to be expected. Once again this site had reassured me xx
Hi pili pala and everyone...sounds like we’ve had a similar experience, WLE, rads and now I’m on infusions for 3 years....reading everyones comments is really helpful...nice to know you’re not the only one living in fear and dreading that every little niggle and pain is bad news....still learning to cope with that. I think sleep is a great healer and if you can sort that out then it gives you the strength to cope with everything else.
I had lots of stomach problems too this time last year and wasn’t sleeping well either, after a massive weight loss had lots of tests done but nothing conclusive was found, but was taking all kinds of meds for stomach and trying out food-elimination etc..... in the middle of all these tests got the BC dx...it just floored me! Doctor suggested Mirtazapine to help sleep which I resisted....Did a lot of googling, read reviews and fixated on the negative ones (!) and didn’t take it for 4 weeks, worrying about the side effects. At yet another blood test appointment I was in pieces, crying, shaky, nauseous, exhausted....a lovely nurse said “ take half a tablet, take it on a Monday so if you have a bad reaction you can call us, no point starting on a weekend when we’re closed! If you don’t like it stop it....but prepare yourself and treat sleep like a job!” So prepped my son to get up early to sort the dog, had a bath, milky drink, lavender oil, half a tablet and woke up 10 hours later! Felt a little woozy during the day but only for a couple of weeks. Saw gastroenterologist to follow up tests but stomach had settled down by then. He said the stomach is like the body’s real brain, it reacts to everything especially anxiety..... I still do have problems, mostly around appointments, tests etc then it calms down again. I’m still on half a tablet at night and sleep is so much better. It’s a vicious cycle I’m afraid and the more you worry the more stress your stomach will react to.....I know it’s not for everyone and believe me I resisted but the Mirtazapine really helped the stomach problems and all the anxiety that went with it, just makes it a bit easier to cope with everything. I hope you’ve had some positive results back from all your tests and you start to feel better soon. xx
Glad I have been able to be of some help. I am sure your Onc will put your mind at rest, and you will be able to get reassurance.
I had been booked on one but unfortunately I had to cancel because of other commitments at the same time but i know that a lot of ladies on here have attended them and have only had very positive comments about them, so on this one you will have to let me know how you get on 🙂
Thanks for all your advice on here. I've been reading them avidly as I too am petrified it will come back. I see my Oncologist on 27th March so hopefully will put my mind at rest - a bit. I am the world's worse worrier anyway.
I noticed on an earlier thread that you went to the Moving Forward course. I am attending one early May and wondered what you thought of it and what it entailed.
Unfortunattely every little ache and pain does send us into free fall and we think that there is something seriously wrong and that the cancer has returned. That too is totally natural, but it does get better.
Let us know how you get on with your Onc on 27th. I am just about to have my first mammogram post surgery and see my oncologist again at the end of April.
Hello and lovely to hear from you again.
It is totally normal to have the fear of it returning again. It does get easier with time, I am 18 months post diagnosis and it no longer the first and last thing I think of in a day honestly xx
Have you had a follow up with your oncologist post rads finishing? If not I would suggest that you give your bcn a call and ask if this should have been done, it is always possible that this has been missed. I know I saw mine in March last year 8 weeks after I finished rads
Hi all, I haven't been on here for a while. I was diagnosed with grade 3 stage 2 back in July. I then had a lumpectomy to remove two tumors, where a seed of another was later found, and radiotherapy followed in November for 3 weeks. I assume I am now all clear but not been told this or anything else. Lately, however, I can't stop thinking that the cancer will return and not necessarily in the breast this time. I am so scared of this happening and can't shake it off. Does anyone else share the same fear? Please tell me this is normal.