Thanks Mishy. Sorry to hear about your spine issues - that sounds really scary and challenging. Is your surgery imminent?
If you are below retirement age can you apply for PIP?
As I put in my post below to Oldspice, I was lucky that I was already retired so had my pension and didn't need to worry about sick pay like so many on here, but I would have used up all my occupational sick pay with the BC treatment and now my forthcoming hip replacement if I were still working. So I do feel on others' behalf that the higher retirement age is all wrong.
Maybe the proposed merger of BCC and Breast Cancer Now will be helpful as they seem to have quite a campaigning remit and may be able to raise government awareness of the cost of cancer. x
Ah you are in Wales, not sure what they do the prescription exemption for. I'll just do a little search. Well, the Wales Gov 'free prescriptions'....
...in the paragraph at the bottom, seems to link to this page...
Which if you go to the 'who can apply' section, lists cancer, cancer treatments and ongoing meds needed for the effects of cancer.
So, def worth asking your bcn.
I think you are right, you have highlighted an area where provision seems to be low for bc sufferers; working people on low incomes.
Here is a link to a page where you can make contact, not sure if it comes under 'general' or 'give feedback', but have a look and see which you think is the most appropriate ?
Great post Optimissy.
I don't have hugely much that is helpful to add except a few thoughts. Did you know/do you have an NHS exemtion for medication? Anyone who has had a cancer diagnosis and treatment can get an exemption card, ask your GP or BC Nurse for the form.
Also, I don't think you need lots of money to keep healthy and active. There will be subsidised/free exercise classes in your area, yet again ask at the GP surgery. Walking is the cheapest and best way to exercise, as its safe and doesn't stress the body hugely - add in some slower paces and faster paces. Pop into your local library, or community centre where you will find lots of information about groups/clubs/classes which may not cost anything to join.
sorry things seems so s**t for you. I certainly realised the financial cost of having cancer with my diagnosis - even stuff like buying vest tops/sports bras - and the travel costs to radiotherapy etc. etc. and heating the house immediately post-op during the day when i might otherwise have been out gardening or walking for longer. There are many costs that no-one even considers.
I don't think everyone on here is affluent by any means, but it may be the demographic that we are more likely to get cancer as we age, so many of us were already retired when diagnosed, as i was, so thankfully didn't have to face the financial worry of being unable to have a wage. I know that I would have found my previous 10 hour day and daily 2 hour round trip commute very difficult if i had had to work through radiotherapy and beyond as many folk on here have had to do for financial reasons.
I think you are so right about the need for more support for low-income people who have cancer. I appreciate that you don't have time to start a campaign, but maybe your post will kick-start something for BCC to take on?
I think the raising of the retirement age is a real killer and completely short-sighted from a practical point of view, as I was only yesterday wondering how on earth people will survive working till 68. (These thoughts were prompted by my reduced mobility and the probability of my having a hip replacement after Christmas, 2 years after my bc diagnosis, and I was thinking that actually it isn't fair on employers to have to cope with staff who may need to be off sick for more periods that when they were 10 years younger, as well as unfair for the staff member who is sick of course. Not all companies have a decent sick pay scheme so statutory sick pay is a joke and not something that would pay the rent or mortgage.)
Sorry can't offer any suggestions, but wanted to not pass your post by. Maybe the workers on this forum will respond - they may have been working too, so not had time to respond to you. X