Need Hug or Kick up the Backside

[Moijan]

Oh JILL, inn so glad your soh has not desertedyou! Did you -and the rest of you lot watch the wedding? 

Jill sorry your legs don’t work! Don’t they work at all? Scary stuff...mine are stiff after each chemo, but I manage to coax them back into line more of less......I find my chiropractor is very good....sciatica is the bane of my life tho....I have to sit on extra cushions! Will be pm ing you laterxx

oh is coping...just. His op is 1/6 now. Xx

oh and our house is moth infested! Which is a complete joy.....oh yesterday Jill. I got cross with my done said the s**t word...Siri heard me and said’i Hope you don’t kiss your mother with that mouth’

made Me smile....wonder what the f word would provoke him to Say?

[ladybowler]

Jill

Oh mate I feel for you,  yes it is another challenge for you but you can do it my friend xxx

[Jill1998]

Thanks Mishy .Yes inflammation certainly affects all sorts of things .Maybe a long period of stress and hormonal changes have an impact too .Hoping it will settle down soon cos at the moment it is very disabling .Hope you feel better soon too .

[Jill1998]

Thanks Helena ,I just seem to keep adding ailments to the list at the moment to make life a bit of a challenge .

[ladybowler]

Jill

good to hear that the anxiety has improved, hopefully they will be able to sort out your joint problem very soon xxx

[ladybowler]

Morning Moijan

Just put my washing out, it is glorious here today, I am hoping to spend the day in the garden 🙂

How are you getting on with the chemo xx

I am waiting to have my hysteroscopy date as I have to go in to have it done under a general, the joys of getting old, post menopausal and an old op meant he could not do it on Wednesday, so hey ho.

xxxx

[Mishy18]

Hi just noticed you are camping out for the big day how lovely i hope you enjoy it Jill i have psoriasis which in the past has affected my joints anyway it had really improved barely gave me any problems i stopped the meds i was on (methotrexate) as the SE were giving me more problems than the joints but to cut to the chase i finished chemo Nov gone and rads Jan my joints really been playing up bone scan was fine but over the last last week my psoriasis has come back with a vengeance, im wondering if after bc treatment it can cause a huge flare up in these type of inflammatory things once the Drugs etc have completely left your body??!
Good luck at rheumatology i hope they can sort you out Enjoy the wedding ⚭

[Jill1998]

I'm just getting out of my tent and unravelling my Union Jack !! I am still plodding on M ,anxiety a little better but physically not very good at all- legs still don't work and now being referred to rheumatology for further investigations as all my joints are now stiff and very painful - add that to the list !!! How are you surviving your chemo ? How is your OH ?

[Moijan]

Coo, it’s as quiet as a church on here....where is everyone?  I wonder if you are all camping out at Windsor or something......M

[Moijan]

Well have a coldnow so just hoping it doesn’t escalatexx

but glad things are improving a little with youxx

hugs

Mx

[Jill1998]

Still here - plodding on M !! Anxiety better than it was but still making life difficult.How are you managing with your treatment ?

[Moijan]

Hello ladies, very quiet on the thread just now...hope everyone is ok?

M🤗😘

[Jill1998]

Hi Delly , yes we are lucky enough to be able to have a view right across Morecambe bay to the Lake District .Love the lakes but it's better at this time of year than in the summer when it's so crowded .Glad you had a better day Delly - it really is so unpredictable I find - not always any logic to good and bad days /weeks. Into week 3 of taking 5 HTP - still can't say it has had any impact on mood .Acupuncture does help for a couple of days after treatment but impact wears off .Have you tried acupuncture ?

[delly]

Hey Jill girl

What? You mean to say you didn't go out last time the cleaners were in. Hold on, isn't there some kind of naughty or weird reference to "having the cleaners in". Struck some kinda chord with me - mmm yeh in that case, probably something naughty or dodgy somehow!! Lock all your precious items up and come have a sneaky Sloe gin with me . Let 'em get on with it 

I love the Lakes. used to go up 2-3 times a year for strenuous fell walking breaks with my then partner. Plus a number of wonderful Xmas's with my Mum, after we lost Dad 2003, to be amongst good company in a beautiful situation. Stayed at the Keswick Hotel, 6 Xmas' on the trot. Was amazing value in those days, considering fantastic food, staff, service. Became like a home from home. Well worn, relaxed, comfey, nothing posh, totally unpretentious. Good entertainment too. Our intro was me taking Mum for a Mothers Day lunch first. Totally fell in love with the place and booked for Xmas there and then (yeh, had their brochures out for already from the end of that March). Awww, so spesh, lovely memories. Don't know what their costs are like now tho', as they were gradually refurbing out the "well worn-ness".  Go and have lunch there with hubby sometime Jill. Lovely dining room, as well as all of the above plusses. Used to also have the  loveliest Manageress - Stephanie. Also went up with my girlfriend to celebrate my 50th, the last Stephanie saw of me. I sadly haven't been up to the Lakes since I split with said partner, and then went into the Delly Doldrums. Not because of, but other probs. Didn't help tho'.

Fancy being able to look at the lakeland fells from your house! Am I right remembering that? Am now wondering if it was you who stated  you had a liking for Sloe gin? Am I right there too?!!

For some reason, I've had a better day today. Just wish I knew why, I could then maybe catch it and pocket it for future uses. Still need to get them there Melatonin tabs, Jill. Look at the time! I didn't have any sleep last night, that's now the night beFORE, and I'm still up. Gonna crash soon - I hope.

Where's that Belle Belle. You okay flower, if you're looking in

Nitey Nite lovelies.

Lotsa love to all of youhoos, DellyWellyDooDaah xxxxxxxx

[Jill1998]

Hi Delly , yes sleep is still better on 5 HTP - I'm not waking up nearly as often but dreams are very vivid and surreal !! Wouldn't say it is helping with low mood as yet will give it another week at a slightly higher dose - started on the very lowest amount . Yes ,I may have to park my pride and get the cleaner in again - maybe go out this time so I'm not around for the humiliation !!!

[delly]

Hi Girlywhirlys

Moijan - Sorry you're having such a tough and rough time. Keep kicking it where it hurts - yeh it's male, so you know where I mean!!
Jill - I'd stuff the cleaning embarrassment if it's getting you down. You might have to give up the not-so-fast gin for a while to pay for it, but I'll slip you a few sneeky, crafty ones. Well, I can't have you going short can I. Besides, it's not much fun on my own. Is your sleep still better on the 5HTP??
Loadsa love to everyone xxxxxx

[Jill1998]

Frustrating isn't it Sue - if it is ME / CFS I'm afraid there are no magic solutions just learning how to pace yourself and what foods /medications /allergens affect you and trying to limit their impact .

[Sue C]

Jill, I have good days and bad days. It's still a challenge! Went on a fatigue management course, which was fine, but mainly common sense. Still waiting for my individual assessment, which should be next month some time. Xx

[ladybowler]

Jill

Its my pleasure xxx

[Jill1998]

Thank you Helena - means a lot to get some encouragement and recognition for progress made .

[Jill1998]

How are you doing with the fatigue Sue ?

[Jill1998]

Fingers crossed this cycle is kinder too you M .

[Moijan]

Well this was day 2 and I had a priority lined up for sorting the bedroom, but oh suggested something else and distracted me...so bedroom still a tip...side effects usually kick in on day 3, hoping not too bad this week. Myperipheral neuropathy was very sore till day before chemo...not too bad just now prob due to the steroids.. but we’ll see how it goes,

mx

[ladybowler]

Jill

Do you know you have just made my day reading your post well done you lady, I am so very proud of you xxxx

[Sue C]

Hi Ladies

Well I went to work this afternoon........far too hot for teaching gym!  What is going on with the weather?!

Suexx

[Jill1998]

M - I am getting out and about - through gritted teeth a lot of the time but managing to get a bit further from home .Been to Lake District today ,lovely views in the sunshine .Bumpy ride a lot of the time but keep putting one foot in front of the other and hoping for better days .How are you doing with your treatment - hope you are having some better days ?

[Jill1998]

That's great Helena - glad he is enjoying the sunshine .

[ladybowler]

Moijan

Welllllll I have spent the day in the garden and I can actually see the plants rather than all the weeds ) 🙂 about as exciting as it gets for me at the moment, but I am so pleased to report that Colin has spent the last two days sitting on the patio which is fabulous. xxx

[Moijan]

So laDIES, WOTS NEW AND EXCITING TODAY PLEASE

[Jill1998]

I got someone in to do a deep clean in November Delly intending to then keep on top of it - but didn't !! Do I admit defeat again - would be a bit embarrassing !! 5 HTP not made any impact on low mood as yet ,was taking the absolute minimum dose as was wary of side effects , so have now doubled it and will give it another couple of weeks.

[delly]

Whoops - sorry for that Jill !! Did NOT think about that one.
On the house front - I beat your one year by another 3. Can't get a hoover round even if I wanted to, things are in such overawing disarray. If I ever do get to sort/clear, I intend to pay a team of cleaners to come in and just "bottom" the place. You thought about getting cleaner(s) in?, even if it's just the once. Give you a bit of a lift, instead of looking at and getting down about. It's so hard when you can't find the Oooomph, just don't feel up to things. I used to be so tidy - honest!! xxx

[Jill1998]

Well Delly as I haven't got a womb that would be a bit of a miracle - could get myself on day time tv with that ...😳

[delly]

Jill - You sure the morning nausea is due to the HTP tabs and not something else you havn't been telling us about?!!!! Am teasing 😉 xxx

[Jill1998]

Hi Delly ,yes I can totally empathise with the lack of motivation to get things done - lack of sleep and low mood certainly don't help with this at all. I have been off work for a year but my house is a pit - just sit looking at the dust !! Maybe worth trying the Melatonin supplements - get them ordered today !!!

[delly]

Hello Jill, 

Yeh - 5 HTP. That's what 'I'valso tried for a while. And yeh, at night, as isn't just to help produce Serotonin, but Melatonin as well (me badly need ). Isn't it weird then, how it can help you, and didn't me. Exacerbated my sleep, in fact. However - I'm so flippin glad for "you"!!!! As said, I've yet to try an actual Melatonin supplement, as oppo something that helps increase Melatonin production. My reason being the above ref 5 HTP, plus if you don't have the adequate bodily building blocks to produce Melatonin, then better to just try put it in in there in the first place. As you would extra Vit C, A or D, if that makes sense. Another however with me being, . . . due to my Bi-P, it takes me bloomin ages to get round to just doing ANYthing about ANYthing. then if/when do, it's often difficult to maintain it or owt! Have very occasional, very brief and short lived positive bursts. Hey Hooooo.

Glad you're feeling a bit better, flower. xxx

How's you Belle???

Love to all of youhoos

Doolally xxxxxxxxxxx    

[Jill1998]

Hi Delly .so far I have noticed I am sleeping better than I have done for a couple of years .Been taking it for 5 days at low dose (100mg) - too early to tell if is helping with anxiety/depression .You can take up to 300mg a day for depression- you can't take it alongside anti- depressants or St Johns Wort or Tramodol .Ive been taking it before bed.You are only supposed to take it short -term but may help give someone a leg up on the way to recovery I suppose .Only side effect so far is nausea in the morning .I will let you know how I get on.

[delly]

Hi lovelies,

Haven't caught up on all the thread since my last visit,. But noticed 5HTP being mentioned recently.

It's only my own personal experience of, and am very interested to anyone elses. It's a supplement to hopefully "create" Melatonin production "from it", as oppo a direct melatonin supplement, if that makes sense. I've tried it, but it failed with me. Actually kept me "awake"!! Doesn't mean it'd be the same with you. I've tried sooo many natural sleep aids now. The ONLY one I haven't yet tried is "Melatonin" itself.

Shall send this, then catch up further on you all.

Much love to you all xxxxxxx

[Moijan]

glad it didn’t...very apt word....sums up things perfectlyxx

[Jill1998]

Thought it would bleep that !!

[Jill1998]

Glad you are feeling better .Keep kicking arse M!!

[ladybowler]

Moijan

Great to hear that you are feeling better.  I think the a*** kickers is a great description 🙂 🙂   xx

[Moijan]

Dear Jill and Helen...yes...beginning to feel better....so grateful for even a few days of a liftxx

thank you so much for askingxx. You are a wonderful gang, flock of sheep, flotilla pillows, Etc was going to say a*** kickers

[rubycat]

Hugs to all you lovely ladies - am so glad I found the cause of my hot flushes!xxx

[Jill1998]

How are you doing M - are side effects any more manageable ?

[ladybowler]

Well hopefully the dehydration will settle down, and thats got to be a plus that the flushes have improved xxx

[Jill1998]

So far just making me dehydrated - it did the that last time I started wearing it too - hot flushes have def been a lot worse since I lost the last one - it isn't a miracle cure but def helps reduce the number of flushes .

[ladybowler]

Jill

Hows the lady magnet going?  xx

[Jill1998]

Still here !!

[ladybowler]

Booooo  🙂 🙂 xxxx

[Moijan]

Wow....everything has gone quiet....../