Hi Mary, if you don't mind, can I share on your thread as what you are saying is exactly how I have been feeling. My anxiety is overwhelming sometimes that I feel nauseous, palpitations, cold sweat, sad, crying, etc. I have spoken to my surgeon, oncologist and endocrinologist and they all said the same..... after chemotherapy and now, Tamoxifen..... had taken away my hormones and this causes the low mood / depression. When I first started on Tamoxifen, my joints ached, night sweats, hot flushes like 20 times a day.... these seem to be easier to handle than my anxiety. All the doctors said is to give my body time to get used to the menopause and in the mean time, prescribed me with antidepressants, which I am not making a habit of taking!! It feels so horrible to be getting anxiety attacks almost on a daily basis...... can't shake off the blues!! Really appreciate if anyone could share or advise. Sorry for being such a wimp!!
Well done you, yesterday for me was only possible because of my OH couldn't have done it on my own, every step we take big or small is one in the right direction so give yourself a pat on the back and be proud of your achievement.
Have you made a decision re your tablets yet or started acupuncture, I am going to wait until I see my Onc at the end of August and if still feeling the same will give them a go then, will carry on with the swimming and keep fit in the meantime.
Enjoy the rest of the weekend
Good is slightly cold day at the races yesterday, won money in every race except the last , back home went had drinks and dinner in our local, very nice and then hubby and I even managed a Miranda Hart gallop down the road on our way home, a lovely finish to a brilliant day just wish I had managed to catch my OH on camera doing it
Going to rest today, enjoy the sunshine and my upbeat mood while it last's, hope everyone has a good day as well
Goodwood it is, only 25 mins on the train, just hope the weather is ok.
A quick fix would be great wouldn't it but hopefully we can keep moving forward and make sure we enjoy the good days
Saw my GP this morning who talked through my concerns re the tablets this helped to put my fears about taking them into perspective, still undecided but a lot more at ease with them as an option, she also promised to chase up the counselling for me,
She checked out the red marks on my mastectomy scar and is certain it is my psoriasis rather than anything sinister, if it gets any worse then she said to ring the breast clinic or if it is still there when I see the Onc at the end of Aug to get him to have a look for my own peace of mind,but otherwise not to worry, huge sigh of relief when I left the surgery together with a prescription for creams etc to try.
Wish me luck at the races tomorrow
Hugs and Best Wishes
Awesome group hug Guys. It does help to know you are not alone, but I am so sorry about how hard it has been for you all.
Jill, after all you've been through you are such a star for being able to support us on here.
And hi Debbie. Did you get your walk in the sunshine yesterday?
Crikey Jill, you have been through it. No wonder you're struggling!
I'm sure gp is right re. post traumatic stress but that doesn't really help now when you're trying to cope with symptoms. I'm sure you've looked into this, but do you have aftercare resources near you like McMillan or a Moving forward course that they do on here? I have one near me that offers acupuncture etc. If that is what works for you, is there someone else you can go to just for this week?
Sue c don't worry about hijacking the thread, all input gratefully recieved, will keep fingers crossed re your referral, I have a couple of raised red marks on the end of my mastectomy scar on my chest wall that have been there for almost two weeks now so when I see my GP on Thursday will get her to look and see what see thinks, I have psoriasis that has flared up due to the anxiety so at the moment sensible head is saying it could be that, will let you know.
OH is taking me to Goodwood on Friday so a lovely day is planned, eating, a few drinks and hopefully back the right horse and win some money
Thanks Jill. Gp did also mention could be a cyst. Will be seen within 2 weeks.
I'm trying to stay calm!
I think life eventually grounds me....back to a pile of ironing and sorting out the kids lol xx
Saw gp and now got a referral back to the breast clinic. It was really painful when she examined me, so she suggested getting it checked. Panicking again! Hate having to keep going through this 😢
Tension headaches Jill. They were brilliant.
I had migraines a few years back, which brought on anxiety and panic attacks, so they increased the dose, but unfortunately it didn't make a difference. Then the gp mentioned aspirin, so I gave that a go and now very rarely get them!
Also, when I saw the oncologist who put me on letrozole, he mentioned that amitriptyline was good with dealing with side effects and he would have recommended taking them if I wasn't already on them. Xx
I haven't had any side effects from taking amitriptyline. They do make you feel abit sleepy, so I take them in the evening and that ensures I get a good nights sleep. Maybe worth a try? I think with all these things, it takes a couple of weeks to make a difference.
I'm going for a check up this afternoon with gp because I'm having my usual worries re. breast. Anxiety levels creeping up again!!
Im sat at home recovering after my op, everyone in the house at work, it so easy for me at the moment to feel down, and alone , and feel useless, but then i come on the forum and read about all of you ladys and how strong everyone is and each and everyone of us are suffering in our own ways, you all make me feel so much stronger and i certainleyley dont feel alone, what would we all do without this forum,
Big hugs to you all, and fortunatley the sun is shining today, so i think a nice walk could be in order today.
I've just read your original post. What you discribe is how I often feel and I think lots of others do too. What you / we have been through is totally traumatic and life changing. I feel very different about my self now, not so young at heart, not so sexy, no longer invincible, ah the optimism of being young. And when I had a recent worrying blip I feel like I totally melted down.
What I really want to say is - you are not alone, nor are you being a wimp. Group hug anyone?
Just wanted to thank you all for your lovely replys, I am sure that with the support of each other we will all get there in the end, we will begin a new normal and eventually be able to put BC where it belongs, locked away in our own internal memory jar.
I cant walk by without giving all you brave ladies a BIG HUG each !!!!! You have all given me such comfort during the past few weeks, i cannot thank you enough. I am ok at the moment, just one more hurdle - a small op to remove the papilloma and biopsies, just to confirm diagnosis.
Love, thanks and hugs xxx
Hi Mary. What a lovely thing for your friend to do. Very thoughtful and caring. I think it is all an emotional roller coaster and you shouldn't under estimate what we have all been through. Personally I find I am doing OK and then you have a check up or don't feel great and then your head is all over the place jumping to all sort of conclusions!! I am 3 years post BC and then this had ovaries and tubes removed another worrying time. Everything turned out to be OK...good couple months...now have to change from tamoxifen so now worrying about what side effects that will bring on. Anyway going off track now!! All I would say is on good days make the most of every min but on the bad days don't be so hard on yourself and take some time out to relax and recover. Sending you big hugs...xxx
Thank you for the reply and sorry to hear you are feeling the same, i agree about the time to recover and deal with the impact this "thing" has had on all our lives. Post traumatic stress sounds just about right, it's like i have two heads one is sensible and can reason the other just goes into panic mode.
Last night a very good friend came to see me and handed me a jar, notelets and a pencil and explained that it is a " memory jar good or bad " she suggested that when I am struggling I write down why and also when something happens that makes me smile I do the same and then put them in the jar, and then when I reach the end of the tunnel I can read them or get rid of them, whatever makes sense at the time, after i had finished crying her visit and timely gift was the first memory that went into the jar.
I will see my GP again on Thursday maybe she can chase up the counselling, as you say hopefully we will both be better soon
Hugs and Best Wishes
I have been using the forums since I was diagnosed in July 2016 and have found everyone to be so supportive (even at 3am ), I have also been able to offer support to others over the course of my treatment, I have made sure that I was completely involved in all decisions regarding my options, researched everything I could, questioned the medical team and honestly was a bit of a pain in the bum, but at least I maintained some control over what was happening, I finished active treatment at the end of March (mastectomy,chemo,radiotherapy) and began taking Hormone tabs and Ibandronic acid, these were stopped in June due to SE's including complete loss of appetite which is causing drastic weight loss, I will see my Onc at the end of August to discuss medication options again.
I went on the Moving Forward Course, I am swimming exercising and to the outside world getting back on track, however I am really struggling with my emotions and anxiety at the moment and not sure what to do. I have been referred for counselling and my GP prescribed antidepressents but left it up to me weather or not I take them which I haven't yet, my family is very supportive but are all advising me to take them just for a little while but I am concerned that they can be addictive and take a while to come off them, ideally I would rather see the counseller and then decide after about the tablets.
My life at the moment just seems to be joyless and sad and I hate the way it is affecting everything around me, sorry for rambling would really appreciate any wise words, are the pills the short term answer, am I just being silly, I am usually a very upbeat in control sort of person and I know there is light at the end of the tunnel it just seems so very far away at the moment.
Hugs and Best Wishes