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Post treatment

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Re: Post treatment

 
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Re: Post treatment

 
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Re: Post treatment

Hi Lucy51

I am exactly the same. I do everything 100 miles an hour and want everything done now. That's why I've struggled ( if that's the word ) with mindfulness. 

I do need to be kinder to myself though. I was told that in the taster session yesterday.

Julie xx

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Thanks Philippa

I really appreciate it.

Julie xx

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Hi Lucy51

I finished treatment a while ago and that's when I hit a brick wall. I felt as if I had no support but now everything is coming at once. I'm finding it difficult to fit it all in.

I think I need to be kinder to myself and put myself first. It is difficult though when I have so much to contend with besides BC.

xx

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Hi Julie, 

 

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Hi Juliewulie

Thinking of you too , keep chatting on here , we will get through this xxxx 

sending a big hug x

love Philippa 

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Hi Ladies, I hope you don't  mind me joining in but just wanted to say I feel exactly the same as you all. Not a day goes by when it's not on my mind. It's  ruling my life.

I did go to a taster mindfulness session today and I have a taster Counselling session in September.  I've has both before but hoping this time it will work for me. 

Like Lucy51 said I'm  so glad I'm  not on my own feeling like this.

Take Care All.

Xx

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Hi Philippa, 

 

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Hi KJ,

sorry for late reply ! It's 4.30 in the morning and for some reason have woken up thinking about everything!!! Had a couple of really good days too so not sure why this is happening !! 

The cancer charity Force phoned yesterday when I was out but sounds like I may not get counselling until October unless I can do the 60 mile round trip to Exeter each week ! Think I may have to as want to get back to normal ! I hope it helps ! I am not crying constantly but have it on my mind the majority of the time ! Think it's because my boob that has been reconstructed is a constant reminder as still swelling ! I am sure I will get there !

Please don't feel embarrassed , your feelings are very normal , you have been through a lot !

Everyones treatment is different but still equally tough !

I feel I am making lots of new friends on here x Its a shame that I will probably not ever meet any of you but at least this is here for chatting and advice x

chat again soon 

love Philippa x

 

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Hi Treeze

youre right after treatment, they only concentrate on the medical side, I think they just assume you’re ok and off you go. I’ve found that information isn’t very forthcoming either, it’s been talking to other people that has been most helpful. The other thing I did was the Hope course with Macmillan but I know they don’t run very many of them. If you’re still finding things hard try your GP, it’s worth asking. The other thing is the breast Cancer Care someone like me service. I’ve found talking to people in the same situation just as helpful.  I really hope you find some help and that you’re ok xx 

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Re: Post treatment

Hi and thanks for your reply.No, no Maggie's centre round here..no one.mentioned counselling but I got through my treatment still smiling and everyone thought..and was amazed actually..that I coped well.Have found it much harder post treatment with rebuilding my life with anastrozole aches and pains and working again.Managed to find a job and start 2 months after finishing radiotherapy.Just do 23 hours a week but it's all physical stuff as I'm a cleaner and also do special needs. Luckily my outgoings are small as I live in a small flat and dont own a car so can get awsy with not working full time.P ost treatment I find oncs are only asking about whether you're managing to take your meds, no questions then about how you feel. Understandable I guess.Thanks for taking the time to post.x

 

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Hi Treeze 

The CBT counselling I had through my husband’s health insurance and while it’s been helpful with some things I haven’t talked about what has happened. 

My BCN referred me for counselling through the hospital and was told it would be 8-12 weeks.

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Re: Post treatment

Hi Lucy. Was wondering how you went about getting counselling? I was never offered any..I remember having to tick boxes on a form very early on after diagnosis about how I was feeling 1-10 but I was reeling with all the info and had my daughter with me so I would have played down how I was feeling anyway. Couldn't go to moving on course as by then I was working again.Being single I had to as soon as I could. Diagnosed 3 years ago with breast cancer 6 weeks later diagnosed with kidney cancer too. Chemo lumpectomy node removal kidney removal and 5 weeks radiotherapy followed by anastrozole. Very painful joints etc now.

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Hi Philippa thank you for your reply, 

i can relate to the comments on how well you look and being told I'm cancer free now, as if to say why are you still so down??  I spoke to a friend I spoke to a couple of days ago told me to just focus on that and I'll feel better, she was meaning to upset me, I don't suppose she knew what else to say. 

 

I held so much in before my surgery and as soon as I had the op the tears started.  The longer it's gone on the harder it has been as really I should be past this now. I feel embarrassed that I haven't coped considering what I've actually had done when others have had to go through so much. 

 

I'm waiting on some counselling but will be a bit of a wait. I did the moving forward course which I found really helpful but after it ended I was back to square one and no one kept in touch. 

I hope you are recovering well and things start to improve for you especially when the counselling starts. Id love to know how you get on 

 

 

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Hi Lucy,

i finished radiotherapy on 23rd July , was diagnosed in January and am finding it really hard now that treatment is ended ! I am still recovering from the last operation three months ago ( mastectomy with reconstruction) and get very tearful still ! I have been told by the breast care nurses it's very normal to be feeling like this ! I have been offered counselling which is being arranged and am going to attend a moving on course in January ! I have good days and bad days and frequently come to the forum to talk to others via these messages ! It's a big help.

hardest thing is people saying how well I look and I should be happy that the surgeons have managed to get the cancer ! There is always the 'what if ' though ! 

We are all in this together and I am glad this forum is here !

good luck with everything and big hugs 

love Philippa xx

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Hi Lucy

Thanks for your kind wishes and reply. I hope chatting helps you, I know it helps me to know I'm not alone with the "fear goblins" (a phrase pinched from another chat that sums it up perfectly). 

Hugs, Evie xx

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Hi Evie, 

thank you for you’re really helpful and supportive reply. It’s so nice to know other people understand especially when I’ve struggled to myself! 

I hope you’re well and it’s lovely to chat xx

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Hi Lucy

Yes, it's a shock isn't it that you don't just go back to normal again after diagnosis and treatment - it takes time to come to terms with it, the "why me" and "will it come back" questions too. Unless friends have been through the experience themselves I think they find it hard to know what to say or how to handle it. I found some wanted to know every detail, and every time I met them asked me about it (obviously in a very caring way), then there were others who thought I was "mended" and should move on. I actually don't like it when people raise the subject with me, I prefer it if I can talk about it as and when I want to and I have explained that to close friends and family so that they now know best how to help me. Otherwise I would find myself out socially and someone would spoil the happy moment by raising diagnosis or treatment. So perhaps gently explain to friends how best they can help support you? You may want to talk to them, it's a very personal thing. But you will definitely get there, take one day at a time and be gentle on yourself (I'm sure your counsellor has also told you that).

I'm also very happy to continue chatting on here or on private message if you prefer. You really are not alone, this forum is a wonderful source of support.

Hugs, Evie xx

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Hi Evie, 

thank you for taking the time to reply and yes it has been really helpful. The last few months have been really difficult, I really thought I would have my op and if nothing else needed I would be back to normal. I didn't realise the impact a cancer diagnosis has on you. 

I did the moving forward course which I found very helpful. Meeting other ladies who have been through the same as me was reassuring but since that has finished I feel as though I'm back on my own. I'm still struggling with anxiety and as I said I'm thinking about it a lot and still find some of it upsetting. 

i don't know how you found other people after treatment finished, but I have 3 very close supportive friends and apart from them I feel people don't understand why I'm still struggling with things. I'll get there in the end I'm sure and thank you once again Evie xx 

 

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Hi Lucy

I think everyone is different and so there is no real answer to your question. I really doubt that everyone else has moved on though, so don't be hard on yourself that you haven't "got back to normal" or your pre-diagnosis state. If you search on this forum you will see plenty of threads with people talking about how they struggle mentally after treatment.

 

I was warned that the time immediately after treatment could be hard as you no longer have the medical team supporting you as regularly - and I found that was very true. I am now about 2 years post treatment (I had the lot!) and I have ups and downs. Sometimes people will bring up the subject when I don't want to talk about it and that can bring memories flooding back. It is a cliche to say that you need to give yourself time, but it is true. It's great that you are seeing a counsellor - I did too and I found that very helpful. It really does take time to process what you have gone through, but you have already noticed that you are improving so that's a really good sign. 

 

Talking can really help, especially on here when everyone understands, so if you feel that would help do chat away on here. I don't know if any of that is any help, but I wanted to reassure you that what you are feeling is very very normal.

Sending you hugs and best wishes for your continued recovery

Evie xx

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Post treatment

Hi

i just wanted to ask after treatment how long it was before you started to feel you were getting back to normal? I’m 3 months post op, didn’t need chemo or radiotherapy and have just started Anastrozole. 

I can see that I’m improving but still think about the cancer/treatment a lot and still get upset about things. I am seeing a counsellor and have attended the moving forward course which have helped. 

I understand that post treatment can be a very emotional time and you need to give yourself time to come to terms with everything. I just wondered how long that might take. Everyone else has moved on and I’m finding it hard to do the same just yet xx