I am 5 years free, tnbc with 2 node involvement. The main concern I have is that I am now on the routine 3 year screening. Oncologist said they won’t do it every year now as I am basically cured. It bothers me that some nasty cells could grow and spread in the 3 years till next mammogram. She told me that if I found anything unusual I can get referred back etc. But I never found a lump the first time, it was only visible on the first mammogram I had just before I was 50. But on the whole I feel fine, working full time. Had hip replaced recently which was a doddle! I know that surviving 5 years with tnbc is meant to mean reduced chance of coming back, so I try to be positive. X
Nobody wants to have BC I am sure, but I do feel I have grown since then. I have found a lot of support and frienship. We have raised over £700 for cancer charities so far, for instance, I live a much healthier life - most of the time anyway (started Karate recently 🙂 ) and I know more what I think is important in my life - used to be quite a workaholic and can be still, but my priorities have definitely changed!
I was diagnosed with breast and oral cancer in September and October 2004, during the tests the hospital got the guide wire stuck in me and I acquired MRSA, which delayed my surgery, I underwent the surgery for the oral cancer first. The waiting time drove me to despair, we sold our home and I went the private route. 6 years later the implants capsulated, we could not afford me to go the private route again, so I learned from Daily Mail Elaine Sassoon was one of the best, my GP arranged for me to see her at NNUH in Norfolk, she put HUGE IMPLANTS into me and caused me severe back problems for several years, I returned to my GP and refused to return to NNUH, then the fun started, the plastic surgeons all told me I could not have the DIEP because I am too slim, I was also told I could end up with NO BREASTS and was verbally abused by another surgeon who I learned is a friend of Ms Sassoon, I saw two private surgeons and they said thy could do the DIEP, approx.£55,000. I researched Belgium and went to ANTWERP and boy am I happy - delighted , thrilled. My scan was done on the day I went to the hospital £200, here I was quoted £2000 yes two thousand, the consultant charged me £25 for his consultation and he personally spent one hour with me, I paid £250 plus plus for the provate consultations here . My surgery in Belgium cost £20,000 I had the DIEP performed by a fantastic surgeon, Steven Colpaert, he is a really caring doctor and his work is FANTASTIC, it is one year ago this week he performed the surgery and you can hardly see the scars, I had the nipples reconstricted in January he did the tattoos 6 weeks later. He also had to remove the skin cancer which occured again, I learned this week it returned because they used cream rather than surgically removing it! . It took me a long time but I am THRILLED, plus I have a wash board stomach, so you have your good happy story
Ooh that's interesting. Since chemo I have not grown any hair in armpits, a positive part of the treatment for sure
Having lost friends to breast cancer, I find it very hard to hear someone say it is a positive thing. Maybe what she meant to say was that there can be positives sides to it? I think many of us could identify with that. ie you find out who your friends really are, it gives you a different perspective on life, maybe you don't sweat the small stuff so much, it gives you permission to put yourself first some of the time, you can appreciate the little things in life more. I could go on....
Well here's a positive (outlook) story. Just reading through the papers and have come across a story about a woman who had breast cancer who states that she is glad that she had breast cancer.. This is the second similar story about this person that I have seen over the months stating this. Again the general gist of the article is that she is glad because it has made her feel empowered to help others.
Each to their own and all that - but seriously glad for the breast cancer? I wonder if that would be the case if treatment had left her more disfigured, debilitated or at an incurable stage etc. It's great to use your experience to help others and be positive but I don't think I will ever be grateful for the breast cancer.
Mind you I did think of some positives from Chemo. Apart from the total pathological response and medical benefits, I have never needed to wear deodorant since chemo ended (yes chemo not radio), and I grew a set of toenails that are much nicer than the previous set, I suppose you can look for the positives in anything.
Regards and positive vibes to all x
I'm also tnbc diagnosed January 2017 . Had a mastectomy and chemo which finished last May. Thought I was doing good until I starting getting a back ache and hip pain , now waiting for a ct scan on Saturday. It is so nice to read a positive story. I also consulted Dr Google not a good idea.
What a wonderful positive post and thank you for coming back to share it with us 😊 It is so important for others to see that this can be the outcome for many of us. Always lovely to hear how well Others are doing , long may it continue!
My post below was written befre I read yours. I was as I said diagnosed in Novemberf 2012 with Grade 1 Invasive Triple Negative Cancer fortunately with no node invasion. I was told that because \i was Triple Negative I wouldn't need any medications after treatment which I thought was great until I consulted Dr. Google and realised that Triple Negative was the worst kind to have. However the rest of my story is below and 5.5 years since treatment ended I am clear having an annual mammogram and ultrasound scan to prover it. Life is good.
I was diagnosed in November 2012 and it hit me like a sledge hammer. I was convinced I was going to die and the thought of losing my hair was almost worse than the disease. I just knew my life as I knew it was finished and any future life I may have would be cancer stricken.
A friend's husband has just been diagnosed with lung cancer and it got me thinking of that awful time between diagnosis and treatment, and that in turn made me remember the wonderful help I got fro this forum. I told no one about my cancer apart from my husband, children and my brother, and I cold capped so that as far as the world was concerned I didn't look like a cancer patient. But on this forum I could be myself and voice me fears and anxieties of which here were many. It's hearing about my friend that made me return to this forum tonight.
I had a lumpectomy, 6 FEC and 3 weeks of rads. My tumor was triple negative so I didn't have to take any drugs afterwards to restrict hormones. I am now 5.5 years since my treatment finished and life is good - wonderful in fact and whilst I have made it a practise to check myself every night when I take my bath I rarely give cancer a thought. The only time I become anxious and fearful is when my annual mammogram and ultrasound scan is due. I am aware that one day it may return but as each year passes the thoughts of cancer recede.
Cancer and the treatment altered me at the time. I lost all my confidence and really wanted to lock myself away from the outside world until it was all over. I confess my confidence took some time to return but in general my life is back to normal and I have become more appreciative of the little things in life and nature possibly because I thought they were all going to be taken away from me.
There is life after diagnosis. The horror stories are there for all to read but it's the people like me who have come through it successfully that should get on this forum to encourage those currently suffering.
So glad I decided to come on this forum tonight. Good luck ladies - the light at the end of the tunnel gets brighter every single day.
I was 49 on diagnosis. It's such a shock and very very hard not to let your mind race away - easier said than done to take one day at a time. The BC nurses are a good source of support too. xx
Aimee - one of the best pieces of advice I received was to take one day at a time and sometimes even one hour at a time. xx
Hi Aimee - really sorry that you have found yourself on here, but you have done the best thing by reaching out to this forum. I was diagnosed in December 2016 had chemo, then a mx and radiotherapy. I'd definitely agree with Helena's recommendation to join the chemo group. I joined the chemo group when I was going through it and that group was my lifeline and kept me going at the toughest points. We all were going through it at the same time and could compare notes. There is always someone who can help with any questions. You are throwing everything possible at this and your oncologist is positive about the outcome. Happy to answer any questions if I can.
Big hugs and wishing you all the best for starting chemo on Thursday.
Hello and welcome to the forum where you will meet lots of lovely ladies to give you help and support.
There are lots of positive stories on here from ladies who have been diagnosed with bc and successfully completed their treatment with their lives going back to normal.
There is a chemo monthly thread if you click on the link below it will take you to it and you will find loads of support on there
My own story is that I was diagnosed in Sept 2016, grade 1, tubular 17mm, hormone receptor positive, I had my op in October 16, finished radiotherapy in Jan 2017 and have just had my first mammogram post op which was all clear. Life has gone back to normal, okay it is a different sort of normal but I am still here.
Sending you hugs
Aw thanks Delly for the welcome too 😊😊😊
i did indeed have reconstruction. I had it at the same time as I was having the mastectomy. I had an implant and had a nipple sparing reconstruction. The surgeon did a great job in fairness and it has healed very well. The odd little itch every now and then but it eventually settles down.
The birthday is not until the end of next month, but I’ll put my order in now...glass of bubbles all the way please 😋! We’d need a few magnum sized bottles to share among all the lovely people on here.
Hello and a very warm welcome to the forum. I promise we will be very gentle on you 🙂 🙂
Yep one thing we advise ladies on here is to stay very clear of Dr Google, as you have found out.
Well you will find lots of good news stories on here. I was diagnosed in Sept 2016, op Oct 16 and I finished active treatment in Jan 2017. I am just waiting the results of my first post op mammo and hopefully I will be joiing you as well in June to celebrate a second birthday cancer free xx
We have a thread on the Going through treatment section where although it says going through it covers a lot and here is a link to the one that you might like to bob into just click on the link, we laugh, cry, rant , rave but most of all support each through the good and not so good times.
First post ever on the forums...be gentle
i was diagnosed on the 1st June 2016 with Stage 1, Grade 3 Triple Negative BC. I had chemo (taxol, carboplatin and then a/c). I also had a mastectomy. I responded very well to treatment. When I got diagnosed I went looking for online support and also to look up “facts”. I didn’t know about good places like here and instead ended up getting terrible misinformation that absolutely scared me and made me believe it was the end for me. Luckily I went running to my breast care nurse and oncologist who put me straight.
it does seem that there are more bad outcome stories out there, especially in relation to the likes of triple negative BC. Dr Google can be a dangerous minefield, that’s for sure! As many of you have already said, a lot of the stuff out there is out of date and/or pseudoscience with no proper evidence based research to support its findings.
It’s promising to hear new breakthroughs in cancer treatments and for any of you that need a good story with triple negative BC, here you go and I know a few others that have had successful treatment outcomes with it also. I was 34 getting my biopsy and a few days later I turned 35 and got diagnosed. Not a great birthday. Next month I turn 37. My second birthday being cancer free. And while I do of course feel that fear everyday and some days are better than others, I’ll definitely be looking forward to many more birthday kisses and hugs from my two kids. It’s lovely to have found this forum and I wish you all continued good health.xxx
apologies for late reply, I've not logged on!
I got my degree BSC Hons Complementary Therapies, at the bold age of 45, went on to do a masters but only managed 1 year and left with Post Grad in Autism (my son is on the spectrum with epilepsy so studies took a back seat)
Delley - I'm gutted I didn't see original post 😉 😉
Im not saying everyday is easy, now I'm 50 well into the throws of my second menopause, there are days I don't want to get out of bed, especially when hormones are raging (mine not my son's lmao)
walking helps, plugged into Eckhart Tolle, or Richard Miller/I Rest, or similar......
take care ladies, speak soon! X
Some helpful and positive stories. There has been so much progress with hormone receptive and her2 positive with herception. I am not sure what progress has been made with triple negative. If anyone has a positive story about triple negative it would be good to hear. Thanks
I had 5cm of squatter, stage 3, her2+ and er+, diag 2013. neo-adjuvant treatment with chemo, then surgery, then rads. Now on tamoxifen. I was 29 when it started. I came out of it cancer-free with 2 boobs that I grew myself; I now am being treated for anxiety and depression but have found solace in my career and my daughter, though it gets pretty difficult sometimes with the anxiety.
I started writing my story last year, chapter by chapter, and I was the same as you - it felt like there was nothing positive being said. I did get through it and have had scans every year that are clear, but every year since I've been scared by every new lump and bump that appears. I am seeing the oncologist on Monday about the latest lump but to date he's always said it's fat necrosis as a result of all the treatment. I am however considering just getting rid, for my own sanity - that's in response to my anxiety though.
Not every story is a horror story. Come and read mine if it will help (that's why I wrote it). www.alwaysablezard.com - click on Cancer and you'll see 11 chapters. Ignore all the other stuff if you want x
Oooops, smacked wrist from Charys. I was joking, just being naughtily mischievous. Have edited that post ! xxxx
Here's another one for this thread, this was written by Beth123, and posted on the forum in a different place, but it is perfect to add here.
For the the first time since my surgery September 2016 I am pain free. I can finally sleep on my BC side and I have so much energy. I really feel that I have turned a corner and that I’m ready to fight the world again......albeit on a slightly smaller scale than before lol. I have now lost 3st 7.5lbs and am loving being able to by smaller clothes, although hubby would argue against the effect on our bank balance 😁😁, and I attended my first Zumba class on Monday night. It was an absolute scream and I was useless with no sense of coordination, and developed a pattern of going against the flow of direction 🤣 but I LOVED it and can’t wait to go back next week. I genuinely feel like me again.
Interview tomorrow 😱😱😱. Weirdly looking forward to it. Not holding my breath about gettzing it but if nothing else it’ll be good practice for the next one whenever that may be.
So, for all those out there struggling, feeling like things will never be the same again - and I was the biggest one of these.... IT WILL. There is a new normal and it is what you make it. Yes we have limitations but we can adapt around them and live a full life. Keep going, you’ll get there I promise.
Well, Corrrr, Ffffflip Ilift - I see where your name comes from. That's absobloominlutely amazing!! What did you get your degree and post grad in?? as you speak of you own therapy clinic?? All fantastic. Good for you. Ilift
14 years for me.
diagnosed age 36, whilst breast feeding my son who was 10 months at the time.
bi lateral mastectomy, recon 4 years later - beckers. Chemo tamoxifen, 4 operations. Widespread DCIS 6 X 6, 1.4 tumor, stage 2 grade 2. Lymph clearance.
so diagnosed at 36, divorced at 38 😉 went to Uni, got a degree, then a post grad. Now have my own little therapies clinic 🙂 my son is now 14, autistic, epileptic, and in army cadets 🙂
but to me my success has been keeping fit, I've run 10ks post cancer, not anymore though. And I lift weights - heavy ones 🙂 I can do full body push-ups even with implants, neuropathy to upper chest wall and down both arms and cording to axilla. I can't do a pull up yet!
Some days are easier than others, just keep pushing through 🙂 xxx
I was diagnosed in Feb 2007 at 44: 2.7cm lump, grade 3, ER+, PR+, HER2+. I had a mastectomy (and delayed LD recon three years later), 4 x FEC, 4 x Tax, rads, herceptin, 10 yrs tamoxifen. When I was diagnosed the 10 year survival stats relevant to my diagnosis on the CRUK website were 22-40%. However by a lot of Google research I realised how out of date this was - the realistic stats for me were more like 80%, ignoring the effect of herceptin, for which I could find no stats. That shows you how much improvement there has been in survival rates, and how treatments are improving all the time. And as it turns out, my very own 10 year survival rate is 100%!
It would be great to keep this thread going to help new users.....so that anyone who has long since moved on, and pops back, can add their story. It doesn't even have to be positive to the level of 'I've never had one single scare and no recurrence since', just demonstrating the fact that they are here and writing and have got through is helpful in itself.
Thanks Sam !
We might be able to snag some of those thousands who have been successfully treated and moved on in life, somehow, to add some words.
I was diagnosed in Feb 2011, aged 41, with stage 2, grade 2, 3.5cm cancer + 2 lymph nodes were also affected. I also found out I carry the BRCA2 gene mutation. I had neo-adjuvant chemo, bilateral mastectomy, rads, ovaries taken out, and hormonal treatent (tamoxifen at first switched to Letrozole). I have had no evidence of disease since. I think about my cancer every day and I have to manage my anxiety of a return of the illness. My twins were only 3 when I was diagnosed and I don't want them to lose their mummy too soon. Also, I had loads of other medical procedures unrelated to the cancer and I really dread being put thorugh surgery and harsch treatments again ... but so far so good, and may it continue.
I'm also loving some of your names - Hellesbelles, Frazzledfifty!! - Somewahat late but hope you enjoyed your 62nd birthday Frazzledfifty - should that now be Supasixtytwo-a ! xxx
Sam - What a brilliant, bloomin fantastic thread you've started woman!!! Loads of positive stories.
Wishing you, everyone who's already posted and any future postees or readers, a very Happy and Healthy New Year
I'd also like to thank all the lovely ladies who have taken the time to share their positve stories with us all on here. You are all an inspiration and I can't tell you how much your stories help me.