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Where are the positive stories?

ladybowler
Community Champion

Re: Where are the positive stories?

frazzledfifty

 

Thank you for your inspiring post, it helps all us ladies who are post active treatment and those who are currently going through/about to embark on it, to hear such wonderful stories xxx

frazzledfifty
Member

Re: Where are the positive stories?

Hello ladies

 

I don't post often but I remember that there are never as many positive tales as there are problems so hope this helps

 

My story is dx at 48 with grade 2, 34mm tumour, vascular invasion, 2 nodes positive and a nodule in skin also no clear posterior margin

I had mx and chemo. rads then 2.5 yrs tamoxifen and 2.5 yrs Arimidex

 

I developed Lymphodeoma and have had a few other health issues along the way but am still here getting ready to celebrate my 62nd birthday on Monday

 

So although my onc classed me as high risk that was all back in 2004  and I'm still  here over 13 yrs later

 

So here's hoping that some of you recently diagnosed who are having a tough time will be back on here in many years to come saying "I'm still here"

So best of luck to all

ladybowler
Community Champion

Re: Where are the positive stories?

eileen

 

Thank you so much for your inspiring and positive post xxx

Charys
Community Champion

Re: Where are the positive stories?

Eileen, thanks SO SO much for coming on and adding this post! Smiley Very Happy

eileen765
Member

Re: Where are the positive stories?

I was 56 large lump 4 lymph nodes vascular invasion. i had the works breast off chemo rads and herceptin. I was convinced and resigned to my fate because I am drama queen. I am still here at 67 had nine grandchildren since and still work. I haven't been on here for quite long time because I forget that I ever had bc. You will too. It's only normal at the moment to feel scared. I was too. Take care xx

Janey2
Member

Re: Where are the positive stories?

Hi Sam

My positive story is my Mum who was diagnosed and treated 30 years ago.  She was one of the women to trial zoladex and tamoxifen and is still doing well and produced a fabulous Christmas dinner for 12 of us, refusing all offers of support!  She had a mastectomy, with node clearance; and I was lucky to have a lumpectomy and sentinel node biopsy, which I think is testament to the advances being made, supported by Charys' stats.

Good luck and keep posting x

Charys
Community Champion

Re: Where are the positive stories?

Hey Sam,

'

You are right, the positive stories are all out there living their lives Smiley Very Happy  I know you will have read these stats - 'Survival' (its a horrible word, but the one used of course) for 5 years for women with breast cancer is on AVERAGE 90% In 2010 the average 10 years 'survival' was about 80 percent. That's the average, and doesn't take into account treatment regimes (some people have none!), recent changes in treatments (ever changing and progressing), stage at time of diagnosis and various other factors like age at diagnosis (some very old), other health conditions at diagnosis etc. So, thats a lot of women, the vast majority, who are getting on with their lives after treatment. Those women are also tracked, monitored and checked regularly - thus hugely raising the chances of a recurrence being found very early - that's good news. So, why do I bring this all up, the standard stats for 'this is a treatable/beatable thing' for a majority of women.....to prove to you that they are out there...on your road, at your workplace, at the supermarket even if you don't know it!

I'm not in the '10 years since' group, I am very nearly in the 'two years since diagnosis' group. You are right, often on forums there is a self-selecting group who are still having issues, or are close to the diagnosis, and an absence of long term recoverers. This is natural, as your life feels even more valuable and you move on and bc becomes a distant memory. So, in one way, its good news those women aren't here Smiley Wink You might be surprised that people come out the woodwork once they know you are being treated and start talking about their friends, colleagues or family who also had bc, but it wasn't mentioned before as its the past.

As others have said, don't read the horror stories, they are written because  the vast minority, sadly, are still unwell. You could beat yourself with those sticks for the rest of you life, and be absolutely fine. x

SamH87
Member

Re: Where are the positive stories?

Hey Delly! It’s so nice to hear the positive stories from those who are still on the forums! I totally understand why people don’t log on after treatment and just want normality... but for those that do, it gives us newbies such comfort!! It’s what we need to hear!!! 😘😘xxx
delly
Member

Re: Where are the positive stories?

Hey SamH87 - I'm still here after two mastectomies 2006 and 2007, both with total node clearance. I've been a regular on this Forum, sadly for only 3 1/2 yrs, simply due to not knowing of it's existence prior to. Can assure you - there are loads of we "long survivors" !!! Please let that be of some support to you, as it's really the main reason I post on this wonderful Forum. That I'm amongst many other women much further down the line - who want to just give support and "Hope" to others who are earlier in their diagnosis. This is just the right night to do that too. 

I hate hearing of, and get sooo upset hearing of ANY other woman being diagnosed by this bleepin bleep disease. If nowt (Northern expression) else - it's given me a huge compassion towards others going through it. But you will come across many others on here. Please take and draw hope from that.

Much love to you

Dellypoos xxxxxx

delly
Member

Re: Where are the positive stories?

 
TypicalMe
Member

Re: Where are the positive stories?

Hi Clairep read your reply with interest as I had aggressive grade three in nodes and although older than you diagnosed at 48 am struggling emotionally to get on with life. I really don't want to be ruled by cancer. Just wondering have you had any recurrence scares in this time and any tips for recurrence fears. So pleased you've done so well x

Clairep
Member

Re: Where are the positive stories?

Hi, I was diagnosed in 2008 with BC which was aggressive and had spread to my lymph nodes at the age of 28 and found out half an hour later that I was 6 weeks pregnant with with second child

I’ve been clear since. You never lose the worry but you learn to live with it and also to enjoy each day

You are not a statistic your journey will be different to everyone else’s so don’t listen to others or research worst case scenarios. You need to fight, to beat it and refuse to let it take over your life. Your Drs and nurses will play their part to help you but it needs to come from you too

x


Peace
Member

Re: Where are the positive stories?

HelloSam I have also felt the same but I'm 10 years I will not say it has been easy but what I've learnt is take all the help you can and always talk x
SamH87
Member

Re: Where are the positive stories?

Thank you so much ladies ... you have helped to reassure me today 🙂 — Helena, that picture is amazing! I hope that will be me out celebrating like you all did this time next year 🙂 xx
ladybowler
Community Champion

Re: Where are the positive stories?

Sam

 

Just wanted to welcome you to the forum where you can see you will get loads of help and support from the wonderful ladies on here.

 

What you are feeling is totally normal and you really do need to keep away from Dr Google, very misleading.  There is lots of very good information on here in the information section at the front page of the website. 

 

If you want a bit of success stories click on the link below, that is 14 of us who had different diagnosis and treatment and we met up on 2 December to celebrate being 12 months at least down the line:

 

https://forum.breastcancercare.org.uk/t5/Diagnosed-with-breast-cancer/14-Ladies-One-Year-on/m-p/1173...

 

Sending you hugs

 

Helena xxx

Jobey68
Member

Re: Where are the positive stories?

Sam it's normal to feel like this in the early days of diagnosis, its almost impossible to convince your brain that you can get through this! I had lost my mum to breast cancer so of course I wrote myself of when I was also diagnosed, I traumatised myself reading stats and heart wrenching stories and was in a dark place for a while but as the weeks went on and I was doing ok I began to feel I could do this and come out the other side.

I won't pretend I had an awful time of it with treatment because I didn't , I had no chemo only radiotherapy but I still had cancer and no amount of reassurance from those looking after me did much to help in the beginning, but you won't stay in this mindset for ever, your brain will get over the shock and your rational thoughts will return , we have no choice but to deal with the cards we've been handed but we have every right to believe we will be ok! Xx Jo 

ollisj6
Member

Re: Where are the positive stories?

Hi Sam just thought I would reply back to your post I was diagnosed in 2014 just through a routine mammogram I was devastated as I hadn't a clue I felt no lump had no pain I just couldn't believe it fast forward to nearly 2018 and I feel brilliant I had to go through chemotherapy/radiotherapy and herceptin for a year as I was her2 positive yes I won't lie I felt dreadful at times but I don't now I just thank my lucky stars I went for my mammogram and it was caught early I'm back at work now yes I get tired but I know my limits I am currently taking letrozole for another couple of years as I was also oestrogen positive I have a few aches and pains but nothing more if you can try to keep off google as like my gp said some of the sites are ancient and the info is so outdated I think this site is brilliant so much information and of course all these ladies including myself have been through it sending you lots of love stay strong if you ever want to chat you can message me or just carry on posting and you will always get so much support love Judi xxxxxxx

ann-m
Community Champion

Re: Where are the positive stories?

Hi Sam,
As ever, the stats can be daunting to look at & as you say, not helpful for anxiety.
But, stats are general, not specific to you & often based on info that is 10-20 years old - a lot has happened since.
Also, there is the tendency for the ‘horror stories’ to be reported, not those stories of those who are well & getting with life as most of us are.
The temptation is hard to resist, but it’s maybe an idea to step away from google? It’s a wonderful thing, but can also just feed the anxiety monster.
Do take care
ann x
Kathryng87
Member

Re: Where are the positive stories?

Hi samh87
It’s a great worrie isn’t it... try not to beat yourself up thwir are successful stories out their, and been so young I find makes it that bit harder... I was the same as you although not the same diagnosis but when I was first diagnosed I had all the what’s ifs ect ect... unfortunately for me I had reacurrence with in 4 months by I found it early and now I’m on the second toad to recovery... you will only beat your self up wondering what if it comes back... the answer is who knows but what you can do in the mean time is concentrate on the fact you have made it this far and you should be so proud of yourself.... I’m still struggling with the mental impacts but try not to let it take over your thoughts...

Xxx
SamH87
Member

Where are the positive stories?

Hi all - I was recently diagnosed in Nov with Stage 2 Grade 2 HER+ BC. I’m 30 years old and have taken a huge confidence knock as a result. Whilst I have a treatment plan in place and have recently completed my first round of Neo Adjuvent Chemo, I’m now finding that I am ‘torturing’ myself by reading horror stories of this terrible disease and have now convinced myself that this is going to spread and come back before I have even properly started my treatment. I keep searching for statistics and comparing them to me and this just isn’t helping my anxiety.
Are there really success stories out there because I just can’t see past the worst case scenario at the moment 😞 xx