Thank you for your inspiring post, it helps all us ladies who are post active treatment and those who are currently going through/about to embark on it, to hear such wonderful stories xxx
I don't post often but I remember that there are never as many positive tales as there are problems so hope this helps
My story is dx at 48 with grade 2, 34mm tumour, vascular invasion, 2 nodes positive and a nodule in skin also no clear posterior margin
I had mx and chemo. rads then 2.5 yrs tamoxifen and 2.5 yrs Arimidex
I developed Lymphodeoma and have had a few other health issues along the way but am still here getting ready to celebrate my 62nd birthday on Monday
So although my onc classed me as high risk that was all back in 2004 and I'm still here over 13 yrs later
So here's hoping that some of you recently diagnosed who are having a tough time will be back on here in many years to come saying "I'm still here"
So best of luck to all
My positive story is my Mum who was diagnosed and treated 30 years ago. She was one of the women to trial zoladex and tamoxifen and is still doing well and produced a fabulous Christmas dinner for 12 of us, refusing all offers of support! She had a mastectomy, with node clearance; and I was lucky to have a lumpectomy and sentinel node biopsy, which I think is testament to the advances being made, supported by Charys' stats.
Good luck and keep posting x
You are right, the positive stories are all out there living their lives I know you will have read these stats - 'Survival' (its a horrible word, but the one used of course) for 5 years for women with breast cancer is on AVERAGE 90% In 2010 the average 10 years 'survival' was about 80 percent. That's the average, and doesn't take into account treatment regimes (some people have none!), recent changes in treatments (ever changing and progressing), stage at time of diagnosis and various other factors like age at diagnosis (some very old), other health conditions at diagnosis etc. So, thats a lot of women, the vast majority, who are getting on with their lives after treatment. Those women are also tracked, monitored and checked regularly - thus hugely raising the chances of a recurrence being found very early - that's good news. So, why do I bring this all up, the standard stats for 'this is a treatable/beatable thing' for a majority of women.....to prove to you that they are out there...on your road, at your workplace, at the supermarket even if you don't know it!
I'm not in the '10 years since' group, I am very nearly in the 'two years since diagnosis' group. You are right, often on forums there is a self-selecting group who are still having issues, or are close to the diagnosis, and an absence of long term recoverers. This is natural, as your life feels even more valuable and you move on and bc becomes a distant memory. So, in one way, its good news those women aren't here You might be surprised that people come out the woodwork once they know you are being treated and start talking about their friends, colleagues or family who also had bc, but it wasn't mentioned before as its the past.
As others have said, don't read the horror stories, they are written because the vast minority, sadly, are still unwell. You could beat yourself with those sticks for the rest of you life, and be absolutely fine. x
Hey SamH87 - I'm still here after two mastectomies 2006 and 2007, both with total node clearance. I've been a regular on this Forum, sadly for only 3 1/2 yrs, simply due to not knowing of it's existence prior to. Can assure you - there are loads of we "long survivors" !!! Please let that be of some support to you, as it's really the main reason I post on this wonderful Forum. That I'm amongst many other women much further down the line - who want to just give support and "Hope" to others who are earlier in their diagnosis. This is just the right night to do that too.
I hate hearing of, and get sooo upset hearing of ANY other woman being diagnosed by this bleepin bleep disease. If nowt (Northern expression) else - it's given me a huge compassion towards others going through it. But you will come across many others on here. Please take and draw hope from that.
Much love to you
Hi Clairep read your reply with interest as I had aggressive grade three in nodes and although older than you diagnosed at 48 am struggling emotionally to get on with life. I really don't want to be ruled by cancer. Just wondering have you had any recurrence scares in this time and any tips for recurrence fears. So pleased you've done so well x
Just wanted to welcome you to the forum where you can see you will get loads of help and support from the wonderful ladies on here.
What you are feeling is totally normal and you really do need to keep away from Dr Google, very misleading. There is lots of very good information on here in the information section at the front page of the website.
If you want a bit of success stories click on the link below, that is 14 of us who had different diagnosis and treatment and we met up on 2 December to celebrate being 12 months at least down the line:
Sending you hugs
Sam it's normal to feel like this in the early days of diagnosis, its almost impossible to convince your brain that you can get through this! I had lost my mum to breast cancer so of course I wrote myself of when I was also diagnosed, I traumatised myself reading stats and heart wrenching stories and was in a dark place for a while but as the weeks went on and I was doing ok I began to feel I could do this and come out the other side.
I won't pretend I had an awful time of it with treatment because I didn't , I had no chemo only radiotherapy but I still had cancer and no amount of reassurance from those looking after me did much to help in the beginning, but you won't stay in this mindset for ever, your brain will get over the shock and your rational thoughts will return , we have no choice but to deal with the cards we've been handed but we have every right to believe we will be ok! Xx Jo
Hi Sam just thought I would reply back to your post I was diagnosed in 2014 just through a routine mammogram I was devastated as I hadn't a clue I felt no lump had no pain I just couldn't believe it fast forward to nearly 2018 and I feel brilliant I had to go through chemotherapy/radiotherapy and herceptin for a year as I was her2 positive yes I won't lie I felt dreadful at times but I don't now I just thank my lucky stars I went for my mammogram and it was caught early I'm back at work now yes I get tired but I know my limits I am currently taking letrozole for another couple of years as I was also oestrogen positive I have a few aches and pains but nothing more if you can try to keep off google as like my gp said some of the sites are ancient and the info is so outdated I think this site is brilliant so much information and of course all these ladies including myself have been through it sending you lots of love stay strong if you ever want to chat you can message me or just carry on posting and you will always get so much support love Judi xxxxxxx