Welcome back to posting Jill 🤗 🤗 🤗
That's 💩 about the pain and mobility. Hope you get full results soon and all is clear. Fingers crossed for you Jill. I would be mentally climbing the walls wanting to know one way or the other. . It has been too long for you in my opinion and I find it unacceptable.
Hello Mishy, Hope you are feeling as good as you can be today.
Going off subject.... Did you see the final Bodyguard episode? Jed Mecurio is ace in my opinion - I was an absolute fan of Line Of Duty - Keely Hawes got blasted in that as well!
Take care all, Chick 🐣 X
Apart from the accident, it sounds like going away was a tonic for you. How are you feeling now?
I was supposed to go away this week i was really looking forward to catching up with some family. But no way can I undertake a long journey. I still don't quite undersrand how I manage to return, in August, from my last jaunt.
Eventually got a phone call follow up from Spinal Services yesterday. MRI shows prolapsed disc. Will be offered Nerve Root Injection and to be put on Surgery Appointment list for possible Decompression Surgery. Not holding my breath - the former can take up to 2 months for an appointment and the latter 3 months. Not keen on the surgery but I think I would try the injection. However, it may not work and could make things worse. You would have thought they could have offered an earlier appointment since this originally started in March and they know I have had issues with pain killers. I was looking into private treatment but it seems relatively costly.
Just feel a bit left on the scrap heap. This really isn't living.
Anyway, hope you are faring better
Chick 🐥 X
I can't believe that you've been treated like this Jill x I hope your op went well this afternoon, thinking of you x
Jill, so sorry that you are still being messed about with your op and also that the bone scan looks like you might have bone mets. Just wanted to let you know that I'm thinking of you x
Gone a bit quiet on here - everyone OK? Jill - hope you have been admitted by now and things are moving positively on. Mishy, I hope you are packing for Scotland and relaxing watching more past episodes of GW.
Well another "day from hell" out of the way yesterday. Had ultra sound and FNA. Not a good feeling lying in that ultrasound room almost two years to the day from original diagnosis. The flared up area around mastectomy site is a cyst (advised to leave and not have drained for now) and the hard area where they took cells to test, showed up normal healing cells/scar tissue. Sigh of major relief.
Was on verge of tears when waiting for consultant at one point, but distracted myself by getting my Capsaicin cream out and putting it on. It made me chuckle afterwards thinking if someone had walked in and there was me with a gloved hand rubbing my buttock 😂
To top it all, it is very possible that the cyst and other issue has been caused by the way I have had to lie on my left side for the past few weeks because of the "sciatica" issue.
Whilst I was celebrating with a cup of coffee at the hospital cafe, I got a message from my neighbour either indicating my flat had been broken into or implicating that my place had been used to break into hers. Turned out to be bad communication between her and her hubby but major crisis hopping was not what I needed at the time.
Regarding the "sciatica" issue, best decision I made was to stop all the regular pain meds. Still a bit agitated and stoned but feeling more normal emotionally. Also feeling a bit better physically. The Capsaicin cream seems to be working it's magic along with irregular pain killer use (mainly plain paracetamol).
At times, the cream can cause very warm, burning sensation (some hours after application) but don't care because that is nothing compared to what I have been feeling. Also went to Physio before hospital appointment yesterday. The therapist gave me a massage. Whilst wary of pain at first, it actually felt quite good. That is the first time I have felt positive at Physio.
Chick 🐣 X
The following is for infoinformation incase you want to try.
The "chilli" pepper cream as I call it, otherwise known as Capsaicin, is a POM according to the box, hence not available over the counter. I got it prescribed last year when I refused Gabapebtin for nerve pain caused by Docetaxel. I think it comes in different formats like gel, cream, or a patch. I think the patch is a bit different and needs different handling.
Ah Mishy. Yes it's funny how we can react. When I had my first post mammo and clinic appointment last Jan, I was quite happy to go because I like the idea of an objective physical check especially with mastectomy. I got told the mammogram result the same day with it in writing later. They hopefully will say at the time of the ultra sound if anything suspicious and if necessary do at least a FNA at the same time. I usually have quite an assertive gob on me and to be honest, this continuous pain is making me more of a grizzly.... 🐻 X
Chick 🐣 X
Thank you Mishy and Jill,
Well who would have thought taking the drug cocktail for just over a month could be so damaging. God help people who are on for long term and at higher doses. I think if I had continued, I would need an anti depressant on top. OMG I have not remembered having dreams for ages but last night what a mix of vivid and real life like dreams.
I found some "chilli" pepper cream left over from chemo when my toes were so sore that I could not walk . In pain last night so took a dihydro and rubbed chilli pepper cream from right hip to toes. My leg felt on fire for a time but that is quite common. Will continue 3x a day as don't think it can do much harm. Don't know why I didn't give it a go before.
Still waiting MRI results. I would have thought if there was anything noticeable showing they would have said by now. More concerned at the moment about ultrasound tomorrow. Can't believe it. It's 2 years this week that I got my first breast clinic appointment after finding my lump and now I am finding myself back there again. I hope I get a conclusion one way or another tomorrow and don't have to replay more waiting games. I even have a Zometa infusion on Wednesday so it's hello to the Chemo Ward again. Deja Vu and all that.....
Jill - hope you get some news soon
Chick 🐣 X
Yes Jill - psychological and physical torture. Hope you can have got some good distractions to take your mind off it. Unfortunately, I have no wisdom to offer.
I am feeling like the pits. it has been an absolute rubbish week. I don't know how much longer I can deal with this continuous pain. I wish it would stop just for a little bit. I felt so spaced early in the week that I stopped the Gabapentin. Oh goodness, on Thursday I could not stop crying and just kept telling myself it was the pills. I then stopped taking the rest of the cocktail. It was not really making a difference to the pain now and god knows what damage they were doing inside. I lost 4 pounds in weight since stopping these past few days even though eating and drinking. I have been going around feeling like I am still stoned.My emotions are running high at times and I have been getting a bit hot and clammy, I have taken a couple of paracetamols. The only release I get is if I manage to fall asleep.
I got 3 more piddly physio exercises on Friday. Well too little too late. And the only thing GPs can do is fill you up with more or higher dosage drugs. To top it all, I noticed my mastectomy area feeling more tight and sore than usual and a puffed up area that I don't think was there before. A BCN checked it Friday afternoon and after discussion with doctor, arranged an appointment for Monday morning clinic when they would have the utlrasound available to do a scan. I am hoping it is just something to do with how I have had to lie on my left side due to the leg and foot pain.
Bleeding heck Jill. What a farce. On the plus side, does this mean that they are not as concerned as they first were ?
Best wishes to you and also to you Mishy,
Chick 🐣 X