Hope you are doing okay, it was good to hear from you.
Sorry to hear that you may have to do chemo lovely - so you will find out on the 14th? Where do you go for all of your appointments, is it the Royal Free?
How are you feeling about the virus / isolation etc?
It is all ok home schooling the boys, has it moments!!!! Am drinking wine in the evenings to get me through!!!
Think definitely good that you don't pay for the test, when you will have the Optima one done and it is a good way to see it, what will be, will be. I understand how having the chemo would make you feel, but if they say it is what is needed, I guess it is the best way to prevent and keep you cancer free. You can do it lovely, you are a strong woman and you have your loving family to support you through it.
Please let me know how you get on and what happens next, am thinking of you and sending you lots of positive vibes.
Have a relaxing weekend.
Good to hear from you it’s all a worrying time in the world right now isn’t it.
Isolation with young children is tough & I hope you’re boys are now enjoying mummy being teacher too 🤔
Have a much rewarding glass of wine some evenings😘
I signed up for the trial last week & now it’s waiting time to if I was one of the lucky ones as not everyone gets on it’s all done on a score base & unfortunately I will never know if I was chosen.
I am not sure if I told you that my oncologist suggested Chemo 😢 due to it spreading to 3 lymph nodes, this has been booked for me to start on 17.04.20 but will be cancelled if the trial says I will be ok on the hormone tablets.
its all rather hard explaining it but basically if I go to my next appointment on 14th April & am told it’s 100% chemo I will not know if it was the trial that determined that or it was just a case I did not get on the trial.
I did toy with the idea of looking for a private test but then thought what if I waste 3000 & still need chemo so I made the choice of what will be will be.
I also fear what if cells got loose & I would hate that my being a scaredy-cat over chemo inflicted cancer starting elsewhere.
Im okay though funny enough calm right now!
This isolation is frustrating as I have been at home 3 months just as I was due to return to work this virus started & my boss said no & I should stay at home.
Hey ho I’ve kept busy lots of rather organised cupboards 🤣 move over Mrs Hinch huh.
Also I have watched a few good Dramas, Penance was good & i am watching The Nest & Belgravia , the Liar ..... my husband doesn’t get the tv controls much 🤷♀️
Anyway keep safe Angie & strong hope you’re feeling ok.
Just checking in to see how you are as we had not 'spoken' recently.
Work has been busy this week with juggling actual work and home schooling! All okay and calmer today because it a non work day for me.
Is there any news with the Optima test results yet and how are you feeling post surgery?
Big HUGS to you xxxx
Hope you are ok and having a nice, relaxing weekend.
How are you feeling in yourself and how are you post surgery?
My tummy is less itchy, it is still healing, but so much better than it was! I was able to drive again from Friday, was so nice being back in the car! Only did local journeys, but it was good I must say. Desperate to get back to the gym, I usually do Spin and Kettlebells, but I think the Kettlebells will have to wait for a while and I will do gentle spins to ease myself back into things accordingly!
So the test I am having done is the Oncotype DX test.....I have not heard of the Optima one, but it sounds similar (having just googled it).
So let me know how it goes with your Oncologist on Thursday, good to write down the questions, as I always find that once I get there, it all goes out of my head.
Stay strong and well!
Big hugs xxxx
I am okay & slept like a baby, thank you.
Itching tummy is good it’s healing I know it’s drives you nuts I found dabbing a heap of cream on and leaving it to soak in helps.
Working from home is best & more so due to your body has been through a lot the last thing you need & as someone at your works tested positive your best off out of there.
All this panic buying has been crazy with nothing left on the shelves, have you got a little stash of pasta 🤷♀️ but at the same time it’s scary I think it’s not going to be long before schools are closed.
Have you researched this test I know you mentioned it in a previous message was it the Optima test ? This is what they have sent mine off for I can only pray it comes back I don’t need chemo. To be honest I don’t know much about it, yesterday at the hospital it goes in one ear out the other, I was a bit stressed about it being found in 2.
I am seeing the oncologist next Thursday so will have questions written down in preparation.
Defiantly make a coffee date as soon as all this Coronavirus has buggered off.
Have a lovely weekend my plan is to have a chilled one.
I must cherish the time off I’m back at work soon.
How are you feeling about things today? Did you manage to see OK?
The test is good lovely, it will show whether you actually need it or not and gives a very definite result. I am also having the test done, as a matter of precaution.
Yes, once this Corona stuff has blown over (!!!!) then we should set a date to meet up. What do you think about it all by the way???
The office I work in has closed overnight, due to someone being diagnosed with the virus!!! Nightmare, very scary...so it's work from home for me for the next week or so.
Tummy is getting better thank you, the itching was driving me mad yesterday! But that has eased off a bit today.
Sending hugs and best wishes to you always xxxx
I am okay it’s been a long day.
shame it wasn’t Zero findings but it is what it is & I will keep as positive as I can waiting for this to return from the USA.
Then I will be passed over to an oncologist fingers crossed I can skip the chemo treatment, the consultant said today that this test will determine if I need it rather than it just be given to me so this was positive.
Back to the waiting game again I will keep busy & think happy thoughts.
Of course I’d love to meet up with you for a coffee it would be nice to have a natter us warriors need to stick together.
As for the husband he got away with cooking tonight as I did go for a late lunch with my daughter so I was a bit stuffed😋
pj’s and tv tucked in bed is all I need now.
hope your tummy is ok.
thank you for thinking of me today & all your lovely words of encouragement.... Big hugs 🤗 Xxx Xxx
I have been thinking about you all day, thank you so much for messaging me and keeping me updated.
2 out of 20 is very positive my darling, obviously we would rather it was 0, but 2 is low and that is good and staying at Grade 2 is also good. Let's hope that the test shows that it is just radio for you.
Hope you manage to have a relaxing evening and your husband can look after you.
I was thinking we should try to meet up at some point in the future (if you're up for it and I hope that does not make me sound like a stalker!!).
Anyway, see how things go, take it easy and well done for getting through today. I know it is hard, but try to focus on the positives.
BIG HUGS to you and STAY STRONG LOVELY LADY. WE ARE WARRIORS and WE CAN DO THIS xxxx
An update on my appointment is
So they removed 20 lymph nodes & 2 are positive 😒
Optima trial testing in the USA will be receiving the 2 lymph nodes for testing to determine what behaviour the cells are so if they are a high risk it will determine I do need chemo but if I am a low risk then I will not need it I will have daily radiotherapy for 3 weeks.
It’s not the news I wanted today but like the consultant said only 2 out of the 20 are positive & if it was 3 or more he would have put me up a stage, so I am still stage 2 .....
Fingers crossed these results return I’m a low risk I will find out in 4/6 weeks Xx
Aww thanks Angie lovely words I know I will keep telling myself I’ve got this tomorrow morning 🤗💓
I am glad you got to work from home remotely that’s great maybe you could do for a bit ....
Look after that tummy I actually remember chatting to a lady in the waiting room at Royal free this happened to her tummy too I’m sure it will clear up. Great plastic surgeons team there & a fabulous nurse called Rebecca Canny you may see her too aww she is sooo lovely 😊
you enjoy that vino have one for me.
I await that 3rd series 😉
we have sky & Stranger is not on this yet but I definitely will watch it somehow.
I am off to bed need to zone out with a bit of tv in bed , today had been a bit fuzzy it’s the day before results day I guess 🙄
Fingers crossed 💓❤️
I will be in touch Xxx
My surgeon said that sometimes the skin can reject a stitch and kick it out, so that's what happened and then it caused a bit of an eruption!!!! So I am taking it easy, worked from home again today (very nice, could get used to this!!).
Just about to put the boys to bed soon, then it's a glass of wine for me and some telly to chill to!
Will be thinking about you tomorrow, please let me know how you get on, sending ALL positive vibes and a MASSIVE hug to you.
Glad you enjoyed The Split, but yes, OMG wasn't the last episode sad - wahhhh!!!!!! Am sure they will do a third series.
Have you seen 'The Stranger'? That is SUPER! One to binge watch 🙂
GOOD LUCK, try to chill tonight and get some rest.
Speak to you soon - you have GOT THIS xxxxxx
Oh no you poor thing that sounds sore & yep yuk did they say what caused it ?
Lol on the forever taking clothes off I’ve lost count of the times the tops off & your sitting there butt naked practically it takes a while to get used too 😂
Oh wow The Split how I have loved this thanks for the tip omg they have to do a 3rd series for sure I was sad when I watch the final episode this morning.
I am back to work next week so kind of making the most of some lazy me time it will be weird getting dressed up for work I’ve lived in PJ’s & Lounge wear for a few months🤷♀️
I hope you’re taking it easy try not to get the tummy wet , stick to sink sponge washes & I hope this heals soon.
yep tomorrow is results I’m a bit anxious to be fair I will let you know how I get on - meanwhile I’m going to make a nice cuppa & find something else to watch🙄
thanks for your positive vibes much appreciated big hug 🤗
How are you lovely?
What time is your appointment on the 12th and is it at the Royal Free?
Glad all healing well, that is good news. Yes, it's weird when you touch your boob or tummy and they feel numb!!!
Sorry I have not been in touch the past few days. I had a bit of an issue with my tummy scar, it started feeling a bit weird from Friday evening. Went to see my consultant this morning and I had a stitch abscess! YUK! They had to drain it to get it all out, clean it and re-dress it! double YUK! So very painful indeed and I am now working from home today.
There is always something. Feel like I am always taking my clothes off 😉
Hope you enjoy The Split, I loved it!!!! Sad it is over, but there is scope for a 3rd!
Sending hugs and let me know about the 12th - I am thinking about you and sending ALL positive vibes.
Everything went well with boob & tummy Check , they do not need to see me for 6 months now I guess this is to have a discussion about a new nipple, my tummy & boob are still numb it’s feels strange especially washing in shower I have got used to it now & they say the full feeling may never return.
As for the naughty treats I too have indulged hey ho we deserve a few chocs after all we have been through🤷♀️ Must be careful not to ruin our new tums🙄
Oh no the dentist let’s hope it’s just a check up & no fillings.
lovely sunny day today I may go for a stroll. I made contact with work yesterday & plan to return on 17th I feel ready & like you I’m at a desk & will go at my own pace and work around any further treatment required.
I’m sure I will have good support & lots of cups of tea made for me & served with biscuits 😂
Great your okay on the trains & finding a seat. Hope you have a relaxing weekend & I may start watching the Split later I need to watch first series though first.
I have Liar on record the first series of this was great.
I’m gonna miss all this sofa time I get ha ha.
Take care keep up being kind to you.
catch up soon Xxx
How are you feeling today lovely? And how did you get on yesterday? All okay with your healing? My tummy still feels numb in places...feels weird around my belly button too!
Yes, had lots of cuppas and coffee breaks and the girls were so kind to me, it was lovely. Ate a lot of chocolates ha ha! Filling up my new tummy with things that I shouldn't be!!!
I got a seat on the trains, which was good.
washing hair, that IS a mission! OMG! Makes you feel good when you've done it though.
I also watched Whitehouse Farm, enjoyed it. Just finished watching the second series of The Split, have you seen it?? So good.
Anyway, hope you feel OK today, am off to the dentist now, arrghhh, more flipping pain!!!
Take care and speak soon xxx
Aww bless you brave lady going back to work your so strong please allow time for quiet breaks during your work day.( nice hot cuppa)
Tummy takes a good few weeks to heal I’ve got used to wearing big Bridget Jones knickers ever since the operation I find them comforting & protective to my scar & loose clothing.
I guess you sitting back at your desk is not so comfortable as sitting on the sofa at home, take a nice cushion into work it may help.
How are you finding the trains I do hope you find a seat on your journeys.
I was lazy I did not go out for a walk that day 🤦♀️ I sat watching the drama series whitehouse farm.
Today I have Hosptial only to check the healing of tummy & boob and then to pop into breast clinic for my nurse to look at the slight swelling underneath my arm from lymph node operation.
Still sore and not comfortable to move hey ho I’m managing with using my right arm doing little things.
washing my hair this morning was a mission though 😂
Anyway I best get a wiggle on I’ve a few bits of washing etc to do.
look after you & I will let you know what is said on results day next week my fingers & toes are crossed positive vibes too.
big hug 🤗
Nicky 😘 xx
Sorry for the delay, busy couple of days at work! All okay though, tired and my tummy felt a bit sore, but think from being in a different position all day.
How are you feeling? You did well doing a roast on Sunday, how was your walk and film on Monday? What did you watch?
Good luck with your appointment today, let me know how it goes when you can, hope it is all healing well lovely. Take GOOD care and speak soon xxxx
Thank you for your words of encouragement it helps me through & yes my armpit feels so sore & swollen hope this heals soon.
Good idea to ease yourself back in to work, mind yourself on the trains with the crowds etc.
Feeling motivation today I am going for a nice walk soon & then an afternoon watching a film as yesterday was lovely but busy I enjoyed being back in the kitchen making a roast.
I will keep you posted on my results day & good luck with your boob healing it takes a while mine still feels really numb I’m off for an appointment with plastic surgeons on Wednesday just a follow up to check boob & tummy healing.
big hug to you strong Lady 💓💪Xxx
So lovely to hear from you and please do not apologise for how you are feeling at all - it is natural and I would be exactly the same. I think you are doing brilliantly. I found the lymph node removal so painful, it's an awkward area to be in isn't it. Sending you so much positivity and gentle hugs right now!
I hope you have a lovely day with your family. We are also having family over for a roast a little later today, so I need to get my act together!!!
I am not on the Tamoxifen yet, he wants my boob to heal a little more first!
Am back to work tomorrow, but only for the Monday and the Tuesday, so I am easing myself back into things!
Let me know how you are feeling, take it easy lovely and be kind to yourself. It's a lot that you are going through. I know how it can be with waiting. Try to keep busy with films and books.
Sending a big big hug and lots of love to you xxx
sorry my reply is late I’ve had a few wobble days & I know it’s because I am anxious of lymph node results which I get on the 12th March I wish it was sooner.
Thank you for sharing your story I am also of the opinion that as I had the mastectomy with immediate reconstruction that I would not have to have any treatment other than tamoxifen but as the cancer was found in the gateway lymph I am now unsure.
I shall do whatever I need to do but really pray it’s just tamoxifen 🙏
I would like the test I did speak to my cancer nurse & will raise this with my consultant I know it’s rather expensive on a private basis I know a company called Myogenes based in borehamwood do this test I actually know the lady her name is Clare if you get a chance google & take a look see what you think I am like you for peace of mind would like to know what are the chances of it returning.
So regarding my last op I am still in pain & unable to raise my arm but it’s only been a week I am getting impatient I guess as I really hope to return to work in a couple of weeks.
How are you doing I hope you’re feeling fabulous & not found going back to work to difficult.
Have you started the Tamoxifen? Any side effects they say it’s like menopausal symptoms I guess us ladies have to go through one day & I am sure I will be approaching this soon being 49 years old.
its a small price to pay for being cancer free I guess we have to learn to ride with it.
My family are over for dinner today so I best go & prepare I hope you are having a lovely Sunday.
Thank you for your lovely message & kind words of support I really do appreciate it & promise to get my positive face back on & stop feeling low.
keep up your super powers healing you are amazing 😉
Nicky Xx 🤗💪💓
Just checking in to say HELLO and see how you are feeling lovely?
Thinking about you and sending LOTS of virtual HUGS your way.
So sorry to hear you are having a wobble today - but it is perfectly natural to do so and also very common post-anaesthetic, your body has been through a lot and our minds take it all on too.
Wish I lived closer, I would pop round and make you a cuppa!
Okay, so for me, I had micro calcifications on my right breast and after they did a stereo-tactic biopsy, they found a lot of DCIS, they then did a local wide excision to remove it. When I went to get my results a week later, they had also found (along with the DCIS), some true cancer, which was a shock to me, as I had not expected that. Due to the fact that they had not found a clear margin, they had to do a second wide excision and also remove the sentinel node, because of finding the cancer. So I had that done a couple of weeks after my first surgery and although the node was thankfully clear, the DCIS was still widely spread and yet again, they had no clear margin. Hence the next surgery was mastectomy with immediate reconstruction. From the mastectomy tissue, they found 18mm more of DCIS, but no more cancer.
No radiotherapy, as the mastectomy decision means I didn't have to have it, they wondered about chemo at one point, but because the cancer that they found was small and there was not any more, they said it is not necessary. I do need to go onto Tamoxifen and I think I will start this soon (I see my consultant again on Friday).
So that's me...the other thing I am considering is whether to have the Oncotype DX test....have you had this done?
I think I am lucky, in the sense that I tend to recover from surgeries relatively quickly.....when I had my c section with my 2nd son in 2014, I recovered quickly. We are all so different and I have a friend at work who had something similar (breast cancer and had an implant reconstruction) and she was off for 3 months. I guess just how you feel in yourself and only you know. It is all very personal and individual.
I totally understand about waiting for test results. Message me as much as you want and try to keep busy (but relaxing!!!). Are you watching things on Netflix? I have lots of recommendations in case you need any. Lots of good stuff to keep you going.
Stay strong lovely lady, you have TOTALLY got this.....
sounds like you have it all planned it’s great when work are flexible with you & sitting down job fab that’s me also ....
enjoy yourself this week pottering around having time for you it’s important I’m reading & watching tv can’t really do much else with the lack of arm movement.
would you mind if I asked what & when you were diagnosed I know all cancers are different you seem to have moved on so fast & with no further treatment is amazing I know you said it was in your lymph nodes too I guess I am trying to work out if I will have to have further treatment.
my cancer was Ductal carcinoma oestrogen positive Her2 negative and found in the gateway lymph.
was yours similar ?
having a little wobble today I just want consultant to say right take tamoxifen every day & go live your life.
sorry a million questions I know every one is different but it helps me reading & hearing others stories.
waiting for results is just horrid.
message me when ever you have a chance I know you’re a busy mummy of 2 boys...
How do you feel today? I bet it is good to be home 🙂
Enjoy the films - I have watched SO MUCH NETFLIX these last few weeks!
I do understand what you mean re Chemo, like you, it scares me, but I guess if we have to, we have to. Fingers crossed for you lovely.
I have a sitting down all day job! I am a PA for a private equity company and have a very comfy chair and footrest! Work have been super supportive and I can probably go in a little later and / or finish earlier to accommodate the rush, so all good.
Have total peace and quiet this week, as the boys are back at school and my Husband is not working from home anymore. Honestly, I love the ME time! It has been blissful.
Wishing you a speedy recovery and keeping it all crossed for your results. Take it easy and enjoy lots of good watches and lots of cups of tea.
Big hugs xxxx
Thanks Angie I will rest up & zone out with a few movies.
i am anxious about results & what’s next I pray I don’t have to go through chemo that scares me.
but I will do whatever I’m told.
keep strong 💪
I am pleased you feel ready to go back to work mind yourself on the trains you are still fragile do you have a sitting down job ? Ease back in slowly I actually can’t wait to go back to work.
i work full time but plan to go in on less hours to start with our health is our wealth.
i will keep you posted ok & thanks for your message means a lot.
keep up your good healing your amazing 😉 Xxx
Lovely to hear from you and so glad to hear that the surgery went ahead as planned - great you were first on the list!
Hope you recover well, thinking about you.
Please let me know when you get your results.
I am hoping to go back to work next week. I only do 2.5 days, as the children are still young, so I do a job share. It's in St Pauls, so I might do a later start and earlier finish to avoid rush hour on the tubes. But that is still TBC.
Have a good, restful Sunday, lots of Netflix and relaxing.
sorry late reply I had a busy week & yes surgery went ahead yesterday morning I was lucky first on the list & not slept to well but I’m going home today with the one drain in & this will be removed in 5 days.
i feel a bit sore & uncomfortable hey ho nothing like the first operation.
fingers crossed results come back clear.
i hope you are doing okay 👌
speak soon when I’m home xx
big hug 🤗
Just wanted to wish you GOOD LUCK ahead of tomorrow....and hoping you are still scheduled for it to go ahead.
Let me know how you are when you can, sending you huge hugs and lots of positive vibes.
How are you?
I totally understand you wanting to get the op over and done with, so that you can get to the next stage and yes, you're absolutely right, I felt the same way. Not long to go now lovely and you will be there, getting it done and then you can move forward. I am keeping EVERYTHING crossed for you.
They need to start me on the tamoxifen - which will be when I am a little more healed. I have to go back to see my PS in about 3 weeks time, just to check the boob. The stomach is healing really well, but after my second surgery I am a little behind, so it just needs keeping a close eye on. Still very bruised and harder in places, but am just letting it take it's course!
Glad your children have been very supportive, how many do you have? Are they married yet?
Sending best wishes and gentle hugs your way.
Small world isn’t it with us both having lived in the same towns we have probably passed each other around the shops you never know.
I actually can not remember the names of the night nurse I had she was young & from Spain long reddish hair she was a real sweetie I will see them all again I guess on Friday fingers & toes crossed.( I have packed my little overnight bag 💼) I just want this op over & done with a bit like you may of felt when you had to go for second op.
How cute your little boy helping with the washing bless him.
its great you are up doing a few bits & healing well.
What has your consultant planned for you now do you know?
Are you under the breast clinic at Barnet now that would be a small world also as we could of sat in the waiting room at the same time🤔
No fences down this weekend thankfully but last weekend we had 2 down 😟 weather has been so miserable.
I have cooked today which was good & it’s only me & the hubby at home so easy dinner for 2.
My children have flown the nest now but all live close by ish & have been amazing support.
Hope you have had a nice chilled weekend with your family but taking it easy at the same time.
you have got this too 💪 keep strong Xxx
Ah yes, Cold Harbour Lane, not too far from us! I lived in Barnet for a while about 20 years ago! How funny!
Yes, I was also at the Royal Free. I had a lovely nurse that was on night duty called Sonham, she was absolutely amazing!!!
Keep thinking positive lovely, you have got this!!! Hopefully they will not cancel your scheduled surgery, will keep it all crossed for you.
I am healing well thanks. My tummy is apparently ahead of where it should be, so that's good! I had a c section a few years back with my second son and that pain was similar, so it kind of prepared me! The breast is a bit behind where it should be, due to the second surgery I had to fix the Hematoma, but that is to be expected. Family are being amazing, am doing little bits and bobs where I can. My eldest son (7) is carrying the wet washing to the top floor of our house for me, where I hang in on airers to dry and I am actually able to hang it up, so that's great.
Keep in touch and hope you are having a relaxing weekend and no storm damage!!!
Hi Ya Angie
mad isn’t it that having a couple of busy days knocks the stuffing out of us i was told this happens & going back to work will do the same & like you I really want to return it’s just I guess we want normal again.
Wow you are in Bushey I once lived there just off cold harbour lane I am now back in Barnet where I grew up.
so I told the consultant I didn’t wish to know the length of time the operation takes as I knew from knowing the last op was 10 hours that made me anxious.
i will be back in the royal free I guess you had your op there too with you being pretty near me.
its a one night stay I will come home with the drain in & 5 days later I shall have it removed by my lovely cancer nurse Eileen she has been amazing with me through this I sure have had many hospital appointments like you probably.
Then it’s waiting time for results on lymph nodes I have asked what comes next but this all depends on results I’m told.
its all kinda set me back as I did plan to return to work at the end of this month hey ho got to keep thinking positive.
I was told there is a chance the operation could be cancelled due to there being a big list I have to keep my fingers crossed I do not get a cancellation phone call.
i need to get this done sitting around waiting sends me back in worry mode.
so how are you doing are you healing ok & I do hope that you’re still resting up & allowing family to help out still.
i put some washing on the other day for the first time in a few months & made a nice veg soup it felt good to do something useful 💁♀️
big hug back to you 🤗🤗🤗Xxx
So sorry for the delay in getting back to you, been a busy couple of days and it took it out of me!
Okay, so 21st Feb, that is not too long to wait, I am glad for you. Do you know how long the op will take? How long will you be in for? Which hospital are you going to? Sorry, lots of questions!!!
I know what you mean about routine! I want to get back into mine too! Aiming to go back to work the first week of March, if all is OK and continues as is. People think I am mad too and tell me to take more time, but we all deal with things in our own ways - recovery is very personal - and that's one of my coping mechanisms!
So I am not too far from you, I am in Hertfordshire (Bushey). We used to live in Winchmore Hill though - whereabouts are you?
Sending hugs xxxx
good to hear you have been reassured I know in a few weeks you will feel the difference & lol your new boob will begin to feel like it’s neighbour & no one will ever know I think they do a fantastic job it just takes time to adjust to the no nipple part but hey they will come in 6/9 months for us 💁♀️ Angie I think Us pink warriors will always be paranoid of every twinge from now onwards it’s normal & guess we just need to learn to move forward from this & yes I think I will be put on tamoxifen if the next op results are clear.
I am just back from my consultant they have provisionally booked me in for the operation on 21st feb but this could be changed as the list is quite long that day.
hopefully it will go ahead I know I’m nuts in saying this but I feel like going back to work soon 💁♀️ My friends say take more time but i am getting cabin fever I need normal routine again 😂 I may regret this when my alarm starts going off again at stupid o clock.
anyway you keep resting & thinking about you big hugs 🤗
where are you in the world I’m in North London.
Yes, I do feel reassured now, thank you. I think just paranoid after the second surgery. It is just so swollen and solid ish! compared to it's soft neighbour next door! Thank you also for your reassurance.
I will need Tamoxifen, I think I start this I a few weeks once I have healed a bit more.
I hope it goes well. Please let me know when you get your surgery date, hope you do not have too long to wait.
Thank you so much and you too. Stay in touch and keep me posted with how things go - I am thinking of you lovely xx
i hope you seeing your consultant yesterday reassured you that your new boob is normal to feel that way as I mentioned mine has felt softer in last few weeks so what’s the plan for you now do you need any further treatment ie radiotherapy or tamoxifen.
I’m at hospital tomorrow seeing my consultant I hope to get a date for surgery I think they are going to remove 8 lymph nodes in total I guess I will find out tomorrow I will keep my positive face on.
keep up your resting & allow all to pamper you.
So sorry to hear of the lymph node, poor you. When is the next surgery planned for the removal of others and how many will come out? Thank goodness it was not anywhere else in your body. I feel for you. You do not need that on top of everything else.
I did have a lymph node taken out, during my second wide local excision (as during the first, they had found some cancer, along with the pre-cancer). It was OK though.
Yes, my breast feels a bit heavy ?! and kind of like it's pulling and tightening. Some parts feel softer than others. I am seeing my consultant this evening, so he can look at it anyway, to give me peace of mind (hopefully!).
I feel for you with the lack of sleep and meltdowns. Hopefully you will get the other lymph nodes out soon and they will be clear. Sending a big (but gentle) hug and tons of positivity.
Let me know how things go, stay in touch and tell me how you are feeling.
BIG HUGS again xxxx
Great to hear your home it is the best feeling huh nothing like being back in your own bed.
sorry to hear about you ending up back in surgery that’s not what you needed or deserved 🤗
so I’m sure your tummy feels pretty numb like mine it takes sometime to get used to it & I was told that you don’t always get the full feeling back after having a Diep flap & the boob feels numb also & once the dressing comes off I was told to massage it so when I had showers I did this with a soft sponge it’s 4 weeks today since my op and things feel softer there now & I can finally sleep on my side 🙏 & im walking a lot better. Keep applying cream on tummy scar & boob it helps.
i have had a few tough weeks back to the tears again as the lymph node they removed during surgery tested positive so I’m going to be operated on again soon to have more lymph nodes removed it was not the news I wanted to hear & I also then had to have full body scan to see if cancer had gone elsewhere thankfully it hasn’t but whilst waiting for results I went right back to how I was on Nov 19th when I was first diagnosed no sleep & too many meltdowns.
Did you have a lymph node removed?
It’s all so scary the feelings and emotions are unexplainable at times & I look in the mirror and see this pale face staring back at me but I tell myself keep positive I’ve got this 💪
I hope you’re resting & making the most of all the help you get & watching lots of movies like me although I do feel I get cabin fever a bit 💁♀️ But have managed a few walks with my husband.
not lately though due to these winds.
keep me posted on how your doing & keep your head held high your a pink warrior now Xx Nicky
Thank you so much for checking in on me! So kind of you. How are YOU doing?
I got home on Saturday afternoon - was the best feeling!!!!
I had my surgery on the Monday, took around 8 hours....but then I had a complication on the Tuesday and had to go back for more surgery (basically a Hematoma), so then was under even closer scrutiny!
At home now and am pretty mobile, my tummy is not as bad as I thought it would be. My breast is very bruised / pretty swollen under the arm area where the drain was. Worrying as it feels pretty 'solid' now and panicking that I may have a second issue...but also think I am being paranoid! How did yours feel when you were home? Was it more 'solid' in places??
how are you feeling after your operation hopefully you are being well looked after & gaining strength 💪💓
Thank you so much! So kind!
SO happy that you are pleased with your new boob! Amazing! These surgeons are fantastic!
Hope you continue to recover well.
Stay strong and well and happy!
I will speak to you in a couple of weeks XXX
you are most welcome I think it’s important to be on this site pre op and post op as we are all brave ladies & reading stories & advice sure helped me through.
i had my dressings removed today & made to take a look at my new boob I have to say what amazing clever surgeons I had in that theatre it looks ok just no nipple but this will come in 6 months.
you remember you have so got this ok 💓💁♀️ Keep us posted when you’re feeling up to it & once again I wish you all the luck & will think of you on the 3rd.
glad you got fab support & hell yeah you treat yourself to slippers etc ..... I also did the same and a button up pj too as easy to put on .... all the best .... girl power be strong 💪 xx
Thank you for your lovely reply!
How are you feeling today? It sounds like you have an amazing and supportive family around you - so important - I am very lucky to have the same and it makes such a difference.
Thanks for sharing your experience with me and for the tips - good to know. I am pretty much there with all of the bits for my hospital bag and have treated myself to new slippers and dressing gown! Why not!
Recovery time is key, listening to our bodies and just taking the time that we have to let our bodies and minds mend.
Sending you best wishes and healing, positive vibes always.
Thank you again for thinking of me.
Thank you so much, that is very kind of you and much appreciated.
I will loop back in to update you once I am home and feeling up to it.
Thanks again for the advice and just 'chatting' with me on here, makes it easier to know others that have been through it and how it has all worked out.
Stay well and happy.
It is most definitely a rollercoaster and you are bound to feel emotional.
Wishing you all the best with your surgery on 3rd Feb. You'll soon be back home recovering. Look after yourself and take time to heal.
If you feel like it let us know how you are doing afterwards.
just want to say I wish you all the best with your operation in 3rd February you will of course be emotional & scared but keep strong positive thoughts & remember you are not alone in this so many of us become pink warriors.
i was diagnosed with invasive Ductal carcinoma on the 19th Nov I sobbed screamed & felt anxious all the way through Christmas I hid a lot from my amazing family. I had surgery on 10th January a mastectomy on left breast with Diep flap reconstruction the morning of the surgery was emotional but once that needle went in I knew nothing about it my thoughts walking into that theatre were you can do this this is gonna save me these surgeons are amazing.
waking up I was so relieved to see my beautiful family I was sore and had 4 drains in place to be honest pain relief was good & I spent 6 days on the ward I found standing up quite painful & walking was tough always ask a nurse to assist you & if you don’t feel confident as for the commode I did😊 it’s important to get up but the first few days I found the toughest. I’m home now & it’s day 17 post surgery I still feel soreness but it’s heaps better & I feel so much more human I have done nothing but rest in bed with the support of my family & husband & now I manage to go out for 5 minutes walk in the fresh air it’s amazing.
i have not been brave to look at my new boob I close my eyes when washing I will get there but when my bra is on it looks the same as the other. Do buy some big knickers for after surgery they have probably advised you of this & don’t over pack your bag like I did you will be in the hospital gown for days because of the drains. Nurses are good at helping you wash & change. I wish you all the luck in the world you got this 💪 soon you will be sitting up in bed watching lots of day time tv Xx
Thank you so much for taking the time to reply to me and I appreciate the detail and tips! I have now put a long handled cotton shopping bag with my hospital stuff, ready to go!
My Op is booked for the 3rd February. I had to go yesterday for a CT scan and a meeting with the plastic surgeon and I felt emotional after that. Bit of a rollercoaster all of this!
I also met with my consultant on Monday evening and he said that the consultants had all agreed that a mastectomy is the way to go, given the amount of pre-cancer and lack of clear margins, so that has reassured me further that my decision was correct.
I hope you are continuing to heal well.
Thank you again and wishing you all the very best for the future.
Such a tough decision to have to make, but it's great that you feel confident about it.
I was told I was going to have a mastectomy and I chose a DIEP reconstruction and I am really please with the results. I had my op in October.
I met with the surgeon before the op was booked to take measurements and discuss everything.
I also met with the breast care nurses who were wonderful and explained the whole procedure to me from arriving at the hospital, surgery, recovering in hospital and then returning home and follow up physiotherapists appointments.
Once I had a date for surgery, I came in the day before to be drawn on, marked up I think is what it's called. I then had a choice to stay in or go home, I opened to go home and come back at 7am the next day.
I had felt really emotional the weeks before surgery, but I felt really calm on the day.
My marks were checked again and then once in the hospital gown I had to lie under a heated blanket (to improve blood circulation). I met with the surgeons and anaesthetist and then off to theatre. I was so relieved to come round and look down and see a breast shape in the recovery room. Back on the ward you are checked every hour for the first 24 hours, then 2 hours for next day and so on. I found the ward really warm so a hand held battery fan is useful as are PJ's (when you can change in to them) with short sleeves partly because of the heat and partly so you aren't too disturbed in the night when the nurses check your blood pressure. The first day after surgery, the nurses had us out of bed sitting in a chair, the second day, the catheter came out and you can have an assisted shower (the nurse stays behind the shower curtain in case you need a hand) and start walking about. I was concerned about having a catheter but you won't care while it's in (the first day after surgery you won't have to get up and go to the loo which is a relief) and you don't feel anything. The third day I think the breast drain was removed and then I just had a drain below my tummy to one side. You may be given a bag to put your drains in, but do bring one of those cotton shopping bags with long handles in case, they are really useful to pop the drains in when walking about. The fourth day I could shower on my own, which felt great. I wanted to go home by day 5 but unfortunately the remaining drain, was still draining, so I stayed in and they removed the drain on day 6 which is when I went home. Take it easy at home and move things to a height where you can each reach without stretching up or bending down. A V pillow was really useful too as you have to sleep slightly raised on your back. Apart from a couple of small areas on my tummy, which took a bit longer to heal up, everything has healed really well. My tummy scar is beginning to fade with the help of daily massaging with Bio oil and I'm feeling really good. I haven't yet tried a bra which isn't surgical but I'm going to buy one soon. I'm really pleased with how everything went and what it looks like and I hope you will be too. Wishing you all the best.
This is my first post! Looking for some advice and just wanting to 'talk'. I was diagnosed with DCIS last October, had my first wide excision in November and when they analysed the tissue that they took out, there was some true cancer in there. They then did a further wide excision three weeks later and due to finding the true cancer, also removed my lymph node. The node results came back clear, but the tissue extracted on the second excision showed another 37mm of pre-cancer. I've already had 8cm of pre-cancer and cancer removed and was told that they could try another (third) wide excision, but it is 50:50 as to whether they would get a clear margin and if they didn't, they would need to do a mastectomy anyway and if they did get a clear margin, I would have to be monitored very regularly, as the cancer that they found put me at high risk for it to come back in 5, 10, 15 years...... Bearing all of that in mind, I have taken the decision to have a mastectomy, to take the concern / fear away. I am waiting for a date for my surgery, but am opting for an immediate reconstruction (Diep Flap) and wondered if anyone else had been in a similar position that could tell me what kind of things to expect please! Nervous of the surgery, but do feel it is the right way to go. Thanks in advance. Angie X