Hi Pepsi good to hear you are feeling calmer and have got some answers, can I ask if you are in the UK?
Just seems strange for them to do scans for DCIS as it can't have spread if it's not invasive but never mind at least it's been done and all looking good so far 😊
Im sure all will go just fine, plenty of ladies here who have had mastectomies for various reasons and they will be abale to give you all the advice about what will happen Xx Jo
Hi Pepsi, I'm so sorry you are having to go through at at time when you should be enjoying your baby's but we can only go with the hand we are dealt.
Firstly as upsetting and confusing as it all is at the moment take a deep breath and get all the facts of exactly what is happening , DCIS is breast cancer within the ducts and CT and bone scans are not generally done with this diagnosis as it's is contained so would not have spread anywhere outside of the breast.
If the diagnosis is invasive meaning it's in the breast tissue and not just the ducts then they may do further scans but although mine was invasive I didn't have any.
I suggest calling the clinic and speak to a breast care nurse, ask her to explain your exact diagnosis to you and the reason why you have had the extra scans, write it all down so you can understand. The confusion you feel now won't help your state of mind, getting the facts really do help, don't be afraid to ask them you have very right to know what's going on.
its all to easy to sit like a rabbit in headlights at appointments and we don't ask the things we need too which leaves us coming away feeling even more upset and confused.
It can all be treated that's the thing to remember and however insurmountable it may feel like now we've all been there and a lot of us are years out the other side , 3 years for me .
Arm yourself with as much knowledge as you can and lean on us for support, you will cope and get back to just being mummy again don't worry Xx Jo
Oh crikey, you have been through it, that sounds really grim. Hopefully the antibiotics will kick in now and you'll start to feel better.
Sending you a hug, hope you can take things easy and recover.
You were right about an infection. Its definately not been my week. I went to GPs to get dressing removed, she said it was healing fine and the another dressing on and said to return in a couple of days well as the day went on didnt feel good at all. By next morning my boob was enourmous and very red. I rang surgery and they saw me again removed yesterdays dressing and put another on. Got antibiotics. Went home and spent the night feeling worse and coulnt wait for morning. As soon as i ranf BC nurses i was told to go there they took one look and said it needed to be drained which was awful at the time but big relief. Have been the last few days to get it checked then this morning it wasnt right so had to have a tube inserted to drain it into a bag. So sick of it all now everday it has been something different wrong. Lets see what tomorrow brings. Theanks for advice on radiotherapy xx
I think it's pretty normal to feel tired after surgery, but the temperature and vomiting doesn't sound right, I think you should talk to your BCN and your doctor just to check it isn't an infection. Your body has been through a shock, and it takes time to get over any general anaesthetic.
I found the worst thing about radiotherapy was the effort of getting there every day, and I also got quite emotional about the whole process. But I was very lucky in terms of side effects, I didn't get tired or sore.The best advice I would give is to make sure you have plenty of easy meals in the freezer and if you get offers of help, take them.
Sending you a hug, I really hope you feel better soon, but think about getting a check up for the temperature and vomiting, I don't think that's normal after surgery.
Well i had a wire guided WLE exactly 1 week ago. Went in as a day case and felt ok the first day but every day since theres been something wrong with me, ive either been throwing up, hot sweats, pounding headaches just not felt well at all. Hoping that this is the only surgery i will need but obviously i will need to wait for results. I thought i would just be ok after a day or two but the least little thing i do i need a nap afterwards.Its definately not how i thought it would be. Any good tips for facing radiotherapy?
Dear Duggle, just wanted to say all the best for your consultant appointment tomorrow and it's good you have started to make a list of your questions.
I hope you will come away from the appt feeling a bit reassured and remember you can always contact your breast cancer nurse (BCN) if you have any further questions.
There is lots of information on this website and they also have the bit on the forum where you can ask the nurses.
Come back and let us know how you got on.
It is scary having to make these decisions, but your team is there to offer help and advice. If you only have DCIS you have a really favourable diagnosis, and the outcomes are pretty much the same whatever you choose.
Someone on another thread recommended a book about DCIS to me. It's written by a professor in breast cancer and has lots of advice on what to think about making these decisions. It's called DCIS of the Breast,Taking Control by John Boyages, I got mine from Amazon for my kindle. It's a hugely reassuring book, he calls DCIS a pre cancerous condition, yes it needs treating but it isn't full blown invasive cancer. And the book is very easy to read and understand, I wish I'd had it when I was diagnosed. It has quite a big section on the things to consider when choosing between WLE and mx.
I didnt have any problems with radiotherapy except it's a nuisance having to go five days a week for 3 weeks. I know some women do, but it isn't everyone. And even if you do get side effects it isnt likely to be all of them!
It's a bit like the information leaflet that comes with a packet of pills, the list looks scary and if you worried about it you'd never take anything.
The important thing is to get information, and then make the decision you're most comfortable with. If you opt for mx there are loads of options for reconstruction either at the same time or at a later stage, or you might be happy going flat and using a prosthetic.
In the end I asked my surgeon straight out what he thought would give the best result and took his advice, and I haven't regretted it. So hopefully your team may be able to help you decide the best option for you.
This is a horrible stage when you're in such turmoil over being diagnosed at all, I cried over radiographers and BCNs and my poor husband all the time. But you do get through it and come out the other side, it all gets easier as time goes on, and eventually this stage is behind you.
Sending you a hug, and hope your appointment goes well tomorrow.
It's really difficult making these decisions when your mind is in turmoil with the shock of being diagnosed. It's now 22 months since I was in a similar position to you. I had 5cm of DCIS, though mine was above the nipple so I didn't have to lose it. I had a therapeutic mammoplasty, which is effectively the cancer removed and the remaining breast tissue moved round to create a new smaller breast. I'm happy with the result, even though it had to be repeated as I didn't get clear margins.
It's difficult making these decisions, but I would say with hindsight that things tend to turn out better than you think. For example, the scars fade to become a faint line, it takes time but mine are not really noticeable now.
If you have to lose your nipple, then it doesn't sound like having a mx is going to change that. There are some other threads by women in a similar position, they may be able to tell you about their decision. I do have a friend who had a new nipple tattoo, and is very happy with it, it's maybe something you could think about at a later stage. I think there are also surgical options to recreate a nipple, your surgical team should be able to tell you more. Your BCN may even have photos to show you, of mx and WLE.
When I was at your stage, my surgeon persuaded me to try a lumpectomy first, because I could always have a mx and reconstruction later if I wanted. But he thought the best cosmetic result would be from a WLE. So it may be worth asking what your surgeon thinks would give the best result for you.
Sending you a hug, this stage is horrible, when you're in such shock and turmoil. But it does get better, you will get through this and come out the other side, and there are many other women on here going through the same thing at the same time, you may find some real support from them. Good luck!
Dear Duggle, I am sorry you find yourself here - being newly diagnosed is I think the worst part, I certainly found that to be the case. But you will find plenty of help and support here from all the ladies who have been in a similar position.
I had over 6cm of DCIS and was offered the same - wle or mx - I didn't rush to make a decision and the surgeons didn't rush me either so in the end I took the mx with immediate DIEP reconstruction and am very happy with it.
There are so many things to consider before making your final decision and you haven't mentioned the possibility of reconstruction - I hope you've been offered this with an MX.
I'm sure you will get some useful replies here - the most important thing is get all the info you can about the options available.
Can you tell us how large an area the DCIS is estimated to be?
with best wishes, girly x
I need help I’m not sure where to start, I’m newly diagnosed with DCIS and completely shocked . I had to decide on WLE of mx and I choose WLE but I will be losing all my nipple so am imagining a huge scar but have been told if margins are not good then I will def need mx. . I am seeing consultant again this week as I couldn’t take anything in. Shall I just change my mind and get a mx and just get it all over and done with ? How do people make these decisions. It’s all I can think of.