From what I've been told about that cycle you can expect a lot of fatigue with EC and then some bone pain with palitaxal. The best advice is to be aware of your body and don't be afraid to take anything your doctor recommends for side effects. And treat quickly and steadily. My second trial thus far is going much more smoothly than my first and my first wasn't even that bad. Two more to go for me and then tackling of the endocrine therapy and reconstruction. Anyway we will get done and have an ending. And because of the great treatments for breast cancer that ending has every opportunity to be a happy one.
my chemo will be EC for four cycles every fortnight then palitaxal for 4 cycles every fortnight.
I'm on chemo now specifically taxotere and cytoxan. I have four sessions three weeks apart and my second one was two days ago. So far it's not bad at all. Not fun either but completely manageable. At this point I am doing everything I was doing before with minimal effort. Do you know what type of chemo you're getting?
Hi all I was diagnosed with ductal cancer on 14.06.22 was told to have massectomy. Had 2 fab surgeons and I had the DIEP flap reconstruction masectomy on 30.07.22 only pain relief needed was paracetamol was up out of bed by day 2 back home on day 5. No radiotherapy needed but octofen dx results score was 32/100 so now need chemo which starts on 06.09.22
I'm also a new member of the club no one wants to join! Had my consultant appointment yesterday, confirmed DCIS (10cm area) in my right breast. So mastectomy it is..
Like you I've had to stop my HRT, doing OK so far, and trying to be positive (one less thing to have to do in the morning, waiting for the oestrogel to dry).. Itchy skin starting back a bit but flushes not too bad so far.
I had a great chat with a lovely friend this week, who is going through chemo (previous mastectomy). She helped explain it all so well, and it made me much less scared, but also realistic about the tough times ahead.
Have you had any thoughts about what treatment you might have? I'm thinking a DIEP reconstruction. It helped me at my appointment yesterday to have narrowed things down a bit (I wasn't sure about having implants).
It's all a bit of a whirlwind isn't it (quite a slow whirlwind though, waiting for each appointment)? We can get through it though! Keep busy/distracted up to 4th Aug 🤗 xx
Oh Sandy, I really feel for you. It can take weeks to arrive at the final (?) diagnosis - I had five different diagnoses over 6 weeks, the last coming after my mastectomy (I just wanted the thing gone). The whole thing can feel overwhelming and, yes, very lonely.
Now is the time to choose people you can reach out to. Is there a family member or someone in your social circle with experience of breast cancer? I found someone in my local book group and she took me to visit the chemo suites and took me for my first chemo. She also introduced me to the Breast Cancer Haven (closed thanks to Covid) and I’d recommend asking if there are local support services, even support groups, in your area. If you have access to a Maggie’s Centre, that would be good. For both of you.
Breast Care nurses have to be very careful what they say. They are not able to give you a diagnosis so your BCN’s response was tactful and constructive, not hesitant. The nurse can’t tell you things until the consultant has dealt with you - then they can clarify, advise, support…Fortunately it was backed up by your GP - you must have a hormone-positive condition in that other breast, something that will require different treatment from the initial diagnosis. It’s quite common but very stressful.
Husbands. This is a tough one and I can only speak from my personal experience of living for 52 years with someone who is emotionally illiterate! Yes, they are there physically and able to offer all the practical support going. Mine does all the housework and cooking as my hands are not as nifty as they used to be. I can’t unscrew a lid without ‘special’ equipment and there’s zero chance of safely lifting a filled saucepan! But the blow of my Stage 4 diagnosis has been too much for him and he is locked in his world of misery, focusing on loss, not hope. I feel he’s grieving already. Nothing has helped.
Maggie’s Centres offer support for family and friends and for carers. Macmillan can offer telephone or online support if they haven’t yet returned to face to face work. I’d suggest trying something together and then trusting the counsellor to recognise where the focus should be. That worked after my primary treatment for my husband, although he maintains I tricked him into it. I didn’t make him go back 6 times! When I got my secondary diagnosis, my immediate thought was how was I going to tell him!
Lesson - you are NOT responsible for your husband’s reactions, nor are you responsible for putting things right. He is. You will have enough to contend with. Give him a few days of space in which to get his head sorted and maybe he’ll be back to how you want him to be. It’s a huge blow and a reminder of human fallibility, which is hard to take. You have one idea of how your world is and suddenly the carpet is whipped from underneath you. I’d suggest involving him directly, taking him to appointments for support but also to get familiar with your world of breast cancer. Give him a written list of what you want to know on 4th and ask him to make notes because, believe me, it goes in one ear and out of the other the moment you leave the room! Give him a role or a purpose.
For yourself, I would strongly recommend ringing the breast care nurses at the number above. They are excellent. They will just listen if that’s what you need, advise, explain… I can’t fault them. There is also a Someone Like Me service where you are matched up to someone who has had similar experience to yours. For him, time, practical involvement and hopefully you’ll gradually get the emotional support you need.
I wish you all the best for what lies ahead.I promise you, it’s all manageable, just not much fun!
I went for my routine mammogram 4 weeks ago. Four days later I received a letter to attend the clinic for further tests.
I attended but felt it was all so overwhelming and was given little information. I felt I just had to go with the flow. I have several mammograms, an ultrasound and biopsy. I received the results last Friday that I had DCIS, the doctor said I pre cancer cells.
Then came the blow there was a mass on my right boob. So again I had another biopsy. I even had to ask the nurse specialist should I stop using my HRT (only been on the patch for 7 months) she replied 'yes I think you should' THINK, I thought what the hell.
I managed to get a face to face appointment with the GP yesterday and she was so understanding and told me I've to stop the HRT and she's started me on Sertraline to help with the hot flushes when they rear their ugly heads once again.
I've got an appointment at the hospital on the 4th of August.
Since Friday my emotions have been all over the place. I feel like my husband is distant with me. I've tried talking to him but it feels like he's there in body but not in mind. I feel a bit lonely at the moment x