Thank you so much for sharing your experience, it really helps to know that you’re not alone in all this! Glad that you are recovering well. I think the the LICAP, (sorry I got it the wrong way round in my post!), is similar to DIEP, it’s all done in one operation taking tissue from under your arm to replace breast tissue. I get the feeling it’s a newish procedure to avoid mastectomy. My surgeon has said that the area to take away is quite large and on my small breast will not look good and then with radiotherapy shrinking it more, it’s best to have this partial reconstruction. Hope that your prosthesis fitting went well and thanks so much for the offer of further support, I may well be in touch and hopefully we can support each other! Xx
Hi, I had a lumpectomy back in March. I was diagnosed with DCIS and had a very large lump in a very small breast. There was some discussion about mastectomy because of the size of the tumor and because I needed a major duct excision as well. In the end I had the lumpectomy. My lump was just to the side of my nipple on the outer half of my breast. In the end, they removed all of the breast tissue to the left of my nipple, plus some from behind my nipple and a pizza slice of skin that was over the lump. I'm now coming up on 9 months post surgery and my breast doesn't look too bad at all. It is noticeably smaller (and higher) than the other breast but it is still breast shaped and I haven't lost much sensation. (Bear in mind though: I didn't have radiotherapy and that can change/shrink the breast too)
I decided not to have reconstruction because I really couldn't face more surgery and I didn't want to risk losing any more sensation in the breast and/or nipple, plus, I didn't want to deal with more scars. Instead I opted for a partial breast prosthesis which I was fitted for today.
Overall, it's been tough emotionally but I think in the long run I'll adjust.
I'm not familiar with LIPAC reconstruction, is it similar to Diep? I definitely think it's worth having a long chat with your team about what they think your breast will look like with and without reconstruction. And also, what you can expect in the way of sensation loss and any other risks.
I'm so sorry you find yourself in this position. It's hellish isn't it. The diagnosis is a shock and then you're on this crazy rollercoaster where you're having to make impossible decisions about things you can barely get your head around, and all of it at a break neck speed. I really do wish you well. If I can help at all, you're welcome to PM me and I can try to answer any questions based on my own experience.
Have recently been diagnosed with DCIS. It’s been a bit of a shock and I feel that I am on a very fast rollercoaster having to make serious decision very quickly. Diagnosis in the second week of November, op second week of December!
I was originally told I would have a lumpectomy and radiotherapy but a second radiographer opinion is now saying the Dcis is too widespread and as I have small breasts a large lumpectomy would take a lot and look bad, so the surgeon is suggesting taking the top left quarter of my left breast and performing breast reconstruction surgery known as LICAP. It seems the choice is between a disfigured breast or a large scar under my arm and onto my back. I have a choice to have this partial reconstruction or not but have to make a decision soon. Has anyone else had this same decision to make? Would love to hear from anyone who has had LICAP and anyone who has opted to not have the reconstruction. Would welcome any advice!