Glad I could be of help. I know exactly what you mean about the photos, I felt the same but never found any of the lumpectomy for comparison. If it helps, my area of dcis was also about 3 cm if I remember correctly and the surgeons advice was go for the LICAP as 3 cm plus margin on a small breast is quite a large area.
Good luck with your decision and with whatever option you choose, please feel free to get in touch again if you need to.
Thanks for getting back Elisabeth and describing your experience, I really appreciate it.
At the moment I’m very slightly more in favour for the licap.
I don’t think I’m too bothered about the scar, I’m a bit weird, I actually found a video of the licap procedure and watched it which has made me feel better about it. The less I have to speculate and let my imagination run wild, the better I feel.
If only I could find some photos of both procedures, after radiotherapy, on a small bust with the lump in the exact same place as mine and I’d be much happier with my decision! 😆
Hi Emma B
I fully understand where you are, very scared, very unsure. I too was very worried about what to do. Nearly a year on, I am so happy to have decided to have the LICAP surgery, yes I have a long scar around the bottom of my breast and onto my back, a small dent here and there but generally my breast still looks like a breast and with a bra on you would never know I had surgery at all. I ended up having 3 operations in the end, the second one was because I had a haematoma, that was just specific to me and unlucky, then I had to have another as they didn’t get a good margin first time around. So 3 cuts on the same scar but still it is looking good. The worst part for me to be honest was when they put the wire in before the operation, because my area of dcis was deep into my breast near the nipple, I needed extra local anaesthetic but you would need wire I guess even for a lumpectomy. I still have no sensation in my skin on my breast where the old tissue was removed and the new popped in, that is something easy to deal with, the main worry for me was losing sensation in my nipple but thankfully that hasnt happened. All in all, I had very serious concerns about having it done and I nearly faltered, much to my surgeons cheerful annoyance, ( she was lovely,) as she has I guess seen so many woman facing a future with severely disfigured breasts, that her skills can now avoid with this procedure. Whereabouts in the UK are you? I am in Scotland and had a great team.
The photo on the leaflet about LICAP that I was given before the procedure scared me more than anything and I did suggest to the team that it needs changing! In reality the end result looks far better! I am very happy that I made the right decision to go with the LICAP surgery.
I am very very happy to chat with you over the phone which may help you but I am not sure about publishing our phone numbers on here, any ideas? I can call the helpline tomorrow and let them know I am happy for them to give you my number?
Hope this helps.
I hope you don’t mind me getting touch. I am trying to decide whether to have licap or just lumpectomy.
I have very small breasts and will have radiotherapy afterwards but the team don’t seem to be able to give me much idea about how the lumpectomy will look afterwards.
the lump to be removed was 3cm plus extra for margins and it was right on the outer edge of my left breast.
I’m terrified of waking up with half a breast after a lumpectomy and that it’ll be ages before I could have reconstruction because of coronavirus. But if it ended up not looking not too bad I’d be happy to just leave it and wear a prosthesis I think.
Id also hate to have the licap and then after radiotherapy it looked rubbish and they can’t fix it cos my skin is so fragile.
There just seems to be so many unknowns so it’s so hard to decide.
Would you mind sharing your experience? X
Thank you so much for sharing your experience, it really helps to know that you’re not alone in all this! Glad that you are recovering well. I think the the LICAP, (sorry I got it the wrong way round in my post!), is similar to DIEP, it’s all done in one operation taking tissue from under your arm to replace breast tissue. I get the feeling it’s a newish procedure to avoid mastectomy. My surgeon has said that the area to take away is quite large and on my small breast will not look good and then with radiotherapy shrinking it more, it’s best to have this partial reconstruction. Hope that your prosthesis fitting went well and thanks so much for the offer of further support, I may well be in touch and hopefully we can support each other! Xx
Hi, I had a lumpectomy back in March. I was diagnosed with DCIS and had a very large lump in a very small breast. There was some discussion about mastectomy because of the size of the tumor and because I needed a major duct excision as well. In the end I had the lumpectomy. My lump was just to the side of my nipple on the outer half of my breast. In the end, they removed all of the breast tissue to the left of my nipple, plus some from behind my nipple and a pizza slice of skin that was over the lump. I'm now coming up on 9 months post surgery and my breast doesn't look too bad at all. It is noticeably smaller (and higher) than the other breast but it is still breast shaped and I haven't lost much sensation. (Bear in mind though: I didn't have radiotherapy and that can change/shrink the breast too)
I decided not to have reconstruction because I really couldn't face more surgery and I didn't want to risk losing any more sensation in the breast and/or nipple, plus, I didn't want to deal with more scars. Instead I opted for a partial breast prosthesis which I was fitted for today.
Overall, it's been tough emotionally but I think in the long run I'll adjust.
I'm not familiar with LIPAC reconstruction, is it similar to Diep? I definitely think it's worth having a long chat with your team about what they think your breast will look like with and without reconstruction. And also, what you can expect in the way of sensation loss and any other risks.
I'm so sorry you find yourself in this position. It's hellish isn't it. The diagnosis is a shock and then you're on this crazy rollercoaster where you're having to make impossible decisions about things you can barely get your head around, and all of it at a break neck speed. I really do wish you well. If I can help at all, you're welcome to PM me and I can try to answer any questions based on my own experience.
Have recently been diagnosed with DCIS. It’s been a bit of a shock and I feel that I am on a very fast rollercoaster having to make serious decision very quickly. Diagnosis in the second week of November, op second week of December!
I was originally told I would have a lumpectomy and radiotherapy but a second radiographer opinion is now saying the Dcis is too widespread and as I have small breasts a large lumpectomy would take a lot and look bad, so the surgeon is suggesting taking the top left quarter of my left breast and performing breast reconstruction surgery known as LICAP. It seems the choice is between a disfigured breast or a large scar under my arm and onto my back. I have a choice to have this partial reconstruction or not but have to make a decision soon. Has anyone else had this same decision to make? Would love to hear from anyone who has had LICAP and anyone who has opted to not have the reconstruction. Would welcome any advice!