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Is it possible to survive breast cancer or does it eventually come back?

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Member

Re: Is it possible to survive breast cancer or does it eventually come back?

@lizzietindrawers

 

I'm glad you can think so positively, unfortunately for me back then I was not in control of what I was worrying about. 

Member

Re: Is it possible to survive breast cancer or does it eventually come back?

Do you think tomorrow I'll be killed by a bus, or hit by lightening? If not then why are you worrying about what's going to happen about your cancer in maybe 5 years time. None of us know what the future holds for us, we just got to live our lives to the max.

Member

Re: Is it possible to survive breast cancer or does it eventually come back?

Hi Lorraine ,

i was just Diagnosed with IDC stage1A. 2months ago. Just 2 weeks ago had a Bilateral mastectomy following reconstruction.  They took out 3 lymph nodes, 1st one also has a micrometer (dot) 2&3 where good!  Doctor is saying they may recommend a little radiation.

How did you come to no radiation? I guess if I did not have Pen size dot in my one node they would say for sure NO radiation.  I know they do want me to do hormone therapy as i am positive for estrogen and  progesterone & neg HER2. I just don’t know if I want do do radiation for that micrometer and what the pro am cons are with or with out and side affects of radiation vs no etc. 

Thank you Leah 

Member

Re: Is it possible to survive breast cancer or does it eventually come back?

Hi Angie

My second op is on the 17th of December.

They also have me the Teva brand. Took my first one today and had minor hot flushes but I'm sure they'll be shot more to come over the coming months.

I'll have everything crossed for you for your 5th year mammogram. Mammograms scare me now but I'm sure positive thoughts go a long way.

If Teva works for me I'll stick with it.

Have a lovely Christmas and let me know how your mammogram goes.

Sending hugs xxx
Member

Re: Is it possible to survive breast cancer or does it eventually come back?

Hi Mandy

Glad your results have come back and you dont require chemo.

 

Do you know when your second op is planned for?

 

Good luck with Anastrozole, if you find a brand that suits you stick with it. Mine is Teva and noticed more side effects when given a different brand so be aware. I now have Teva brand all the time with no side effects.

 

I have my 5th year mammogram on 27th December so keeping my fingers crossed for that.

 

I wish you all the best for your 2nd Op.

 

Keep posting. XX

Member

Re: Is it possible to survive breast cancer or does it eventually come back?

Hi, my HER2 came back negative and my oncotype score only 15 so low risk of recurrence meaning no chemo. I'm pleased about that.

I have to have another op for a clearer margin after which I have radiotherapy. I started on Anastrozole yesterday. Hoping for not too many side effects.

Hope you are doing well? Xxx
Community Champion

Re: Is it possible to survive breast cancer or does it eventually come back?

Hi Getorade[Mandy], The waiting really is a tough time and can feel especially bad at this time of year whilst surrounded by all of the Christmas hype too.   I too was ER+ grade 2 (stage 3 with lymph mets) and have now been on Tamoxifen for a year.  I find that it does make me feel a bit stiff if I sit still for too long but I can still do the same as before.  Regular exercise helps a lot but I don't push myself to run half marathons any more like I did in my youth.  Little and often nowadays: power walking, cross trainer, yoga: all low impact.  Sending hugs. xxx

Community Champion

Re: Is it possible to survive breast cancer or does it eventually come back?

Hiyer, of course loads of people never have a recurrence and go on with their long full and happy life! My Aunt is one of those, she had her mastectomy 35 years ago, just fine, nothing wrong. I know of about 10 people in my real life who are the same! Personally, I had BC 2 1/2 years ago, and am now discharged from needing any more follow-up surgeon appointments. The ladies on the telephone helpline here all had BC donkey's years ago, some of them. Hope this helps a bit to know it is a very effectively treatable cancer type.

Member

Re: Is it possible to survive breast cancer or does it eventually come back?

Hi Fezzy

My cancer was ER+ grade 2. The HER2 result is the one that hasn't come back. For the oncotyping test I should be HER2- to qualify for the test but I don't have that back yet so I don't know how I qualify for the test without knowing this 🤔

Good to hear it's not so bad on your hormone treatment, hoping mine will be OK too. I've psoriatic arthritis in my fingers so I'm hoping they won't be affected too much more than they are.

Yes waiting is the worst bit. 😔

Mandy xxx
Member

Re: Is it possible to survive breast cancer or does it eventually come back?

hi Mandy I was told by the oncologist that they send for oncotyping when your cancer is hormone positive and node negative, although mine was caught early it was grade 3 invasive, so the chemo route was always a possibility, when it came back at 22 score, they told me that if the score is under 25 chemo is not usually recommended, but it was my choice. I have also got arthritis so was very worried about taking Anastrozole. I have been on them since September and yes I am getting joint pain but it's not too bad at the moment, but it was always worse in cold weather so will see if it gets worse. must say 4 weeks is a long time to wait for test results I got mine 2 weeks after surgery and the oncotype was 2 weeks after that, hope you get some answers soon, waiting is the hardest part.  best wishes Fezzy x

Member

Re: Is it possible to survive breast cancer or does it eventually come back?

Hi Fezzy

Thanks for getting in touch.

I'm still waiting for my HER2 result to come back. The confusion for me is why the oncologist contacted me about doing oncotyping on me if they don't know my HER2 result. If the result is positive then I would need to have chemo anyway. I asked him if it had come back and he said they are still waiting. I'm not sure though otherwise why send it off?! Its been about 4 weeks. I'm glad of the test nevertheless but HER2 + is aggressive so it trumps the oncotyping test score I think.

Sounds like you are not too dissimilar to me. I'm hoping for a low score and HER2- then I can get on with the hormone treatment which I am told it may be the same as what you are on.

I saw a stand in doctor for my results. Wasn't impressed with her one bit she was very harsh and when I said I suffer with psoriatic arthritis so can that please be considered when putting me on hormone therapy and she replied they are all the same. Not very helpful 😔

Mandy xxx
Member

Re: Is it possible to survive breast cancer or does it eventually come back?

hi Getorade just thought I would add to this thread I had wle and sentinel node biopsy in July it was invasive grade 3 and ER+8 I also had 4 nodes removed which thankfully were negative, a sample was sent to America for oncotype dx which came back as scoring 22.  So that was mid range for needing chemo and I had a discussion with the oncologist about chemo but after hearing all the stats decided against chemo as it would only have made a 3 per cent difference and weighing up the side effects opted for Anastrozole, I was also given Evacal D3, and Alendronic Acid as my dexa scan showed osteoporosis. I am currently having radiotherapy and on day 13 of 20 the last 5 being boosts, hope this helps I will gladly answer any questions if I can and wish you good luck.  Fezzy x

Member

Re: Is it possible to survive breast cancer or does it eventually come back?

Thanks Angie

The oncotype result takes about 2 weeks. I haven't been started on hormone treatment yet and I don't have radiotherapy until my oncotype results come back in case I need chemo first.

Mandy xxx
Member

Re: Is it possible to survive breast cancer or does it eventually come back?

Hi

Thanks for the link that made very interesting reading. I dont think I had this done. I started Anastrozole nearly 5 years ago and was given the Teva brand. I had a few problems nothing major like stifness in my fingers & ankles. A few months into my journey I was given a different brand and what a difference I had real problems with joint pain. My chemist now always gives me Teva and I think I have been really lucky that I dont have any worrying symptons. So if you get a brand of tablet that suits you stick with it, until this happened I would never have believed that the brand would make that much difference, but believe me it does.

 

When will you know what path of treatment you will be receiving? It is always the waiting time that most people have a problem with.

 

Take care and have a nice weekend.

Member

Re: Is it possible to survive breast cancer or does it eventually come back?

That's great Angie, it looks like you've had all that is necessarily
How are you doing on Anastrozole? I think this is what they are prescribing me.

The test I have been put forward for is this https://www.breastcancer.org/symptoms/testing/types/oncotype_dx
Member

Re: Is it possible to survive breast cancer or does it eventually come back?

Hi

My Histology Report states 11mm G3NST + High Grade DCIS(total 13mm) clear margins, no VI, ER/PR 8 HER negative, 0/1 nodes. I am on Anastrazole now for 10 years, it started off for 5 years. Evacal which is a calcium tablet for the bones. I am not sure but they may give you a bone scan that is to check your bone density before they put you on those tablets. I repeated this test again 2 years after and there was no change.

So pleased with that.I am not sure about the test on my tumour. I hope this helps keep us posted. We are all here to help.

Member

Re: Is it possible to survive breast cancer or does it eventually come back?

Morning Angie

Thanks so much. It seems you and I have had a similar diagnosis. I had IDC stage 1 grade 2 and DCIS. Still waiting on my HER2. I'm guessing you were HER2- ?

Hope you are getting along OK with your hormone treatment. Can I ask what they have put you on?

I'm glad they are doing the oncology test on my tumour. This way I'll know for sure what's best. Did you have the test done? Xxx
Member

Re: Is it possible to survive breast cancer or does it eventually come back?

Hi Getorade

Just saw you post, glad that you are pleased with your results. As many ladies have said your team will be making the right decision for you. I was lucky not to have chemo as they stated that it would be of little benefit, which I accepted as I am sure they know best I had a mixture of Invasive Ductal & DCIS, both of high grade. I wish you lots of hugs for the next stage. Just keeping asking the questions to stop your mind going into over drive. Take Care.

Member

Re: Is it possible to survive breast cancer or does it eventually come back?

Thanks Mai, it's so true. I'm attempting to make sense of it all with all the answers now.

I'm looking forward to speaking with my oncologist very soon.

Hope you are feeling very well.

Mandy xxx
Community Champion

Re: Is it possible to survive breast cancer or does it eventually come back?

Getorade, yes, overthinking is inevitable at this stage but just know that your team are doing everything they can tailored specifically to your histology.  I think the loss of control makes us try and fill in the gaps so we can keep a story afloat in our minds.   Unknowns are hard to cope with but whatever they decide there will be others going through the same and you will be able to share your experience.  xx

Member

Re: Is it possible to survive breast cancer or does it eventually come back?

Makes sense Jobey. I guess if I am HER2+ then I have no choice but to have chemo. I was just wondering why Herceptin can't be used without chemo but it sounds to me they are doing too different things. Chemo to kill rogue cells and Herceptin to stop aggressive cancer growing again. This means those who are HER2- who don't have chemo may also have rogue cells but I'm guessing it's because they are not aggressive and the hormone therapy deals with it.

Overthinking.com 🤣

Xxx

Community Champion

Re: Is it possible to survive breast cancer or does it eventually come back?

They can remove all visible cancer Mandy but with certain types such as HER2 + which tend to more aggresive it only takes a microscopic rogue cell to be missed and for it to take off and set up home elsewhere in your body and form another tumour so Chemo is given to catch these buggers and prevent them from doing any harm. Xx 

Community Champion

Re: Is it possible to survive breast cancer or does it eventually come back?

We are all guilty of putting 2+2 together and coming up with 5 Mandy, it's the frustration of not knowing it sends our brains in to over drive! HER2 results seem to take forever now, I don't remember waiting for mine, I'm Certain I had them the week after biopsy, maybe I didn't as I had no clue about it all back then, could write a trilogy now!! 😜

 

Herceptin as Ann says is only licensed for use with Chemo at the minute, I have read that it was originally only given to ladies with secondary breast cancer who would have been having Chemo so likely it's never been tested fully on its own, I don't really know a huge amount about the reasoning behind it but I do know its a very effective treatment if you should need it.

 

None of us want chemo and I was fortunate not to need it and I totally understand your wish not have it so fingers crossed you don't need to go down that road but we have very active Chemo threads here with many ladies at various stages and they will carry you through if need be, you will never be on your own here no matter what treatment you have 👍

Member

Re: Is it possible to survive breast cancer or does it eventually come back?

Hi Ann

That's interesting. So nothing to do with it won't work without chemo?

It's crazy to think chemo is given where no cancer exists only because Herceptin is only licenced with it. Sounds like a money making thing to me.

Does anyone know of somebody who is HER2+ refusing chemo? Just not sure how chemo is needed if the cancer is not there. My understanding is that chemo kills or shrinks cancer cells and not even all. What if the cancer has been removed? How does chemo prevent cancer coming back? Surely that's what Herceptin does for HER2 + and also hormone therapy?

Xxx
Community Champion

Re: Is it possible to survive breast cancer or does it eventually come back?

Hi G,
It’s to do with treatment protocols, as herceptin is only licensed to be given with chemo.
ann x
Member

Re: Is it possible to survive breast cancer or does it eventually come back?

Hi Jo

Thank you. I'm very happy with the result and I'm happy to have the further test too. I'm hoping I don't need chemo of I can help it, I really would rather not.

I'm also hoping I'm not HER2.. There I go again running away with myself. My sister had myloema and had chemo and told me how horrible it is and how it really does just poison our bodies. She said she would never have it again.

I would why we can't just have Herceptin without the chemo? Is this just a money making thing putting the two together I wonder 🤔.

Xxx
Community Champion

Re: Is it possible to survive breast cancer or does it eventually come back?

Hi Mandy, That all sounds good news! It's common to have a mix of invasive and DCIS, I did, and also to need a second op to get better margins. Clear nodes is great news too 😊

 

The Oncotype test is something that is offered when it's not clear if Chemo would be of any benefit, a few years ago it would have been given as a safeguard for a lot of ladies with intermediate breast cancer but now many escape it thanks to this test so well worth having.

 

Xx Jo 

Member

Re: Is it possible to survive breast cancer or does it eventually come back?

Good news about your margins, hopefully you won’t have to wait too long to find out what treatment you need. Xxx
Member

Re: Is it possible to survive breast cancer or does it eventually come back?

Oh and the grade was 2.

Xxx
Member

Re: Is it possible to survive breast cancer or does it eventually come back?

Hi all,

My results are that they got a clear margin with 1mm to spare. The DCIS (35mm) was 1mm away from the edge of the tissue they took out. They also found an 8mm tumour which is IDC invasive which has also come out. The lymph nodes were clear.

They said the call from the oncologist yesterday who asked me for permission to test my tumour was asking to do an oncotyping test. It is something they do in America to determine whether or not they are over treating people. It will tell them if I am in the high risk or low risk group of it coming back. If I am in the high risk group then I will also be give a certain type of chemo. If I am in the low risk group, I will only have hormone therapy and radiotherapy. Either way I will have radiotherapy but only after I have heeled. I have to also wait the the results of my HER2 to come back.

Next steps are I see the oncologist for the result of my tumor test and after that either I have chemo or start hormone therapy.

They also said when my surgeon is back from hols she may want to do another op to get a bigger margin but I won't know until I speak to her.

Xxx
Member

Re: Is it possible to survive breast cancer or does it eventually come back?

Thanks so much Ann for sharing this. It's people like you that we can all benefit from hearing from and I'm really grateful you took the time to come on to the forum.

Amazing regarding your mum. What a strong lady. It just goes to show every cancer is so different, and you yourself doing so well too. So lovely to read. Indeed I feel there is hope.

I've had lovely ladies like yourself take the time to respond and calm me down. I go for my lumpectomy results today although I've already been told I have no node involvement and they got a good clear margin. I'll find out the next steps at 3pm 😊

All the very best.

Mandy xxx
Member

Re: Is it possible to survive breast cancer or does it eventually come back?

Hi Getorade,

 

I don't live on this website the way I used to, but just saw you're post and thought you might like to know about my mum. She was diagnosed with BC way back in 1982 at the age of 47. She will be 83 years young in April next year, so that's 35 years and still going strong! In those days there was no differentiation of bc types, and she wasn't given any chemo or rads, just surgery. I myself was diagnosed with stage 2 grade 2 invasive lobular cancer in 2013 at the age of 50. I had surgery, chemo and rads and continue to do well, so I hope that gives you some encouragement. Whatever your treatment plan turns out to be, I wish you all the best. Take care. Ann xx

Community Champion

Re: Is it possible to survive breast cancer or does it eventually come back?

Hi Getorade, I just wanted to say hi and sorry you found yourself here.  I'm also an ER+ lady and on Tamoxifen after chemo, mx and surgery.  I was diagnosed age 48 in March 2017 locally advanced including 9/12 lymph nodes and I'm still here and doing well.  It's not quite the 20 years survival you'd hoped to hear about but for me it's wonderful and I've seen my daughter graduate and been on a couple of lovely holidays since I finished treatment.  I too became very obsessed with death after diagnosis as you can read in my blog: http://lifeafterlola.com/ but that does get less over time. As Ann suggested, there are many people out there leading normal lives but they don't all come on here, for some it may be too much of a reminder and they want to put it behind them.  I'm glad to hear you are doing well and I hope that continues.  Feel free to come on here for a rant about the unfairness of it all or you could move to the "going through treatment" threads to ask specific questions to others going through the same.  Best wishes.xx

 

Sunbeam, that's a lovely outlook, I totally agree with you there.  Chemo brochures can cause accidents if you read them whilst trying to cross the road so read them safely. x

Member

Re: Is it possible to survive breast cancer or does it eventually come back?

Hi Getorade

I am living life to the full. Mammo 50 is a trial, which started 3 years after diagnosis. They ask if you would like to take part, then you are split into two groups, one group would be having mammograms every year, the other group every two years. I was selected in the every year group which I was pleased about as once the 5 years were up for mammograms, I would have gone back to every 3 years, which I feel is to long to wait so at least this way I still feel I am being checked.

 

You will start feeling better about the situation as time goes by. It really does get better so just look after yourself.

 

I wish you all the best and will keep checking to see how it is all going for you. XXX

Member

Re: Is it possible to survive breast cancer or does it eventually come back?

Thanks so much Angie

Can I ask what Mammo 50 is?

So happy for you experiencing such happy things since your diagnosis. Lovely news start 🤗 xxx
Member

Re: Is it possible to survive breast cancer or does it eventually come back?

Hi Sunbeam

You're absolutely right. We could go anytime in the past so nothing has changed except this uninvited guest that had come from nowhere and makes some of us pay it way too much emotional attention.

Thanks for your support and encouraging words. Your strong approach to not letting Bob consume you is inspiring.

Keep strong 🤗

Mandy xxx

Member

Re: Is it possible to survive breast cancer or does it eventually come back?

Hi

I was diagnosed in 2013 Grade 3 so had a lumpectomy and radiotherapy and like everyone once we hear the word Cancer we do think the worst. In Dec I will be having my 5th mammogram.  I am also doing the Mammo 50 trial.Since then I good married for the second time, my oldest son got married. I became a Grandma and have had many lovely holidays and enjoyed them all. We all have bad thoughts but please dont let them take over your life. As many people have said it is difficult when you are diagnosed but it does get better. I dont come on the forum so often but I always take a look to see if I can support someone like yourself. 

Take care and any questions just ask there is always someone who will support you.

Highlighted
Member

Re: Is it possible to survive breast cancer or does it eventually come back?

Hi

So my cancer is grade 3, Her2 and oestrogen positive, 3 lymph nodes had it too, opted for mastectomy. Now awaiting chemo etc.

The way I look at it is we all wake up in the morning and we all hope to climb into bed at night.

I could just as easily get hit by a bus while reading the leaflet on chemo from my latest appt.

I think with cancer it does suddenly make you think of your mortality but you never knew and never will know exactly when you were going to go anyway even before you had it so really what's changed.

You woke up today so today was amazing ☺

We all have black moments even if we strive to think positive.

I might have a moment but just say out loud ...right f### off Bob as I refuse to let it suck my day away. Bob is my BOOB without O for ONCOLOGY lol. That was name I gave my lump at the start and even though technically Bob has indeed left due to my mastectomy 😂 I still shout at him to do one.



Member

Re: Is it possible to survive breast cancer or does it eventually come back?

Will do Lorraine and thanks again 😍 xx
Member

Re: Is it possible to survive breast cancer or does it eventually come back?

Hi Ann

Yes I think that's what he said. Something about the genetics and whether they think it will come back or not. Maybe it is a test that already exists.

😊 Xxx
Community Champion

Re: Is it possible to survive breast cancer or does it eventually come back?

Hi Mandy,
It might be the Oncotype test or maybe another they’re trialling to find out the genetic make up of the tumour. This is good, as it will help to see if chemo is indicated or not. Fortunately, quite a few here haven’t needed chemo after having the test.
Good news about the results!
...& yes, for many cancer is a blip in our lives & nothing more & in many cases, better than HIV.
ann x
Member

Re: Is it possible to survive breast cancer or does it eventually come back?

Keep us posted how you get on tomorrow xx
Member

Re: Is it possible to survive breast cancer or does it eventually come back?

Thanks Lorraine, it's just strange I received that call when I am stressing. Surreal really..

Yes he said it is something new they are doing and he just wanted my permission to use my sample.

Results formerly given to me tomorrow.

I'm happy they are regularly coming up with new ways of beating this thing.

One day cancer will be like HIV. I don't think people have the threat of it turning into AIDS anymore and being life threatening. I could be wrong.

😊Xx
Member

Re: Is it possible to survive breast cancer or does it eventually come back?

Hi Mandy,

 

that is great news, and wonderful to have your results a day early.

I have not heard about the further tests on samples but there are new tests and trials going on all the time.

I hope your doctor can offer further reassurance tomorrow 

Lorraine xx

Member

Re: Is it possible to survive breast cancer or does it eventually come back?

Very strange phone call out of the blue just now. As you know I have my results tomorrow but the Oncologist just called me to ask for permission to do further tests on my sample. It's apparently something new they are doing to see if even though people may be HER2- whether or not they fall into low risk or high risk of the cancer coming back to see if they should have chemo. Has anybody heard of this? I told him that he can go ahead.

The good news is that I asked him about my results and he looked them up and said there were no nodes involved and they also got a good clear margin. I'll nevertheless still go back for my formal results tomorrow with the Dr.

My HER2 results are not back yet.

Feel a little better now Smiley Happy

Mandy

Community Champion

Re: Is it possible to survive breast cancer or does it eventually come back?

Hi Mandy,
The vast majority of us are er+ & her-, that’s the most common one.
ann x
Member

Re: Is it possible to survive breast cancer or does it eventually come back?

Thanks Lorraine, I hope so 😍🤗 xx
Member

Re: Is it possible to survive breast cancer or does it eventually come back?

Hi Mandy,

 

no just ER+ 

I have a close friend who was diagnosed a month before me she is going through chemo, it’s not nice but it is shrinking her tumours. They will only advise you to have it if there is a clinical need.

I hope you get good news - I remember several appointments where I kept getting the worst possible news. Your luck will change soon, mine did.

Xxx

 

Member

Re: Is it possible to survive breast cancer or does it eventually come back?

Hi Lorraine

That's great that you're having no bad side effects on Tamoxifen. 🤗

Were you HER2-? Just good to show how much I don't know. I was thinking people are generally HER2+ if ER+.

Just don't want chemo of I can avoid it.

Mandy xx
Member

Re: Is it possible to survive breast cancer or does it eventually come back?

Hi Mandy,

 

my cancer was ER+ mastectomy was advised as a lumpectomy was not possible once the second lump / tumour was found. I was ‘guided’ towards a double mastectomy due to increased risk factors,see below

- atypical hyperplasia (benign but increased risk of BC)

- the above had developed into BC in my right breast

- age, 50+ 

To be honest it was an instant decision to have both done.  

Chemo was mentioned as a possibility and radiotherapy was likely if I’d had a lumpectomy. My consultant advised I didn’t need either when I had my post surgery histology 😊😍

 

I am on tamoxifen and am not noticing and side effects so far xx