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Newly diagnosed grade 3 living in Glastonbury

8 REPLIES 8
Member

Re: Newly diagnosed grade 3 living in Glastonbury

Thanks Susie.

Get my plan 18 days time. Radio 4 weeks @ MPH +/- chemo @ YDH. Might get call from BCN before then when results come through. Live alone and know what to say to get my transport. Ex-nurse and SEN mumma so good at filling in forms to get what I want. Will be back @ YDH Mond/Tues as boob filled up again. Fibro more trouble than BC symptoms atm. 

Member

Re: Newly diagnosed grade 3 living in Glastonbury

Hi TraceyDreadz

 

Firstly I love your sense of humour. Having CFU shaved into the stubble is a wonderful way of showing your utter contempt for your unwelcome intruder. Knowing the size of the rooms the nurses have to use I'm surprised so many people squeezed in. Hopefully you won't develop another seroma but if you do the nurses really don't mind draining it and making you more comfortable. I developed two large ones after anxcillary node clearance. 

 

I found the treatment I received at Yeovil was brilliant. All the staff on the Macmillan chemo unit were wonderful and treated me with respect at all times. If you need to have chemo you will have an appointment where the the treatment plan is fully explained. You will also be told about the chemo you'll be receiving. A member of the team will take you to see the unit too. I won't go into much more detail as you don't yet know if you need chemo or not. Just something to think about beforehand, have you thought about cold capping rather than losing your dreadlocks? The other thing is so many ladies are concerned about feeling or actually being sick as a result of the chemo. That won't happen at Yeovil, promise. The mantra is prevention is better than cure so you will be given Emend which is the gold standard in sickness prevention. They also prescribe 2 other anti-sickness meds to take aswell. As for radiotherapy at Taunton, again I can't fault the treatment I have received to date. I had my 14th of 20 sessions this morning. Some sessions are held on a Saturday whilst machines are being serviced during the week. Only 2 machines are operating at the moment at they are in the process of replacing a third. You'll have a CT scan done within the Beacon unit and will have a talk with one of the radiotherapists who will explain everything and give you the opportunity to ask questions. You'll then have a wait of around 4 weeks as a whole team of medics will decide your treatment plan and where the radiotherapy needs to be accurately targeted. Have you got someone who can drive you to the hospital everyday? If not transport can be arranged. Don't think about driving yourself, you'll be exhausted😪😪😪😪😴. You also get free parking. On your first visit, the CT one, you are given a permit to put in the car.   

 

When you have a start date for your radiotherapy then you may wish to join the chat in the radiotherapy forum on here. 

 

Take care, Susie B xx 

Member

Re: Newly diagnosed grade 3 living in Glastonbury

I am at Yeovil on 29th to get full results and treatment plan. I know it will be 4 weeks radiotherapy at Taunton. The oncotyping results will be back by then. BCN said she would ring me if results come back before appointment. I will find out then if I need chemo or not. If I need it I shall be cutting my dreadlocks off and storing them. I plan to dye my hair purple, or have CFU shaved in the stubble, or both!

Had a 60ml+ seroma drained late this afternoon. Small room, 5 people, all eyes glued to screen, a most interesting time!

Member

Re: Newly diagnosed grade 3 living in Glastonbury

Been and had a seroma drained today. 60mls + saucer sized stain on paper underneath me. What a difference from fat booby to deflated booby! I looked at the ultrasound screen, and also fat needle sticking out booby. A most interesting experience! Didn't feel a thing either.

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Member

Re: Newly diagnosed grade 3 living in Glastonbury

Hi TraceyDreads2

 

I saw your post and noticed that you live in Glastonbury. I'm not too far away from you in Martock.

Firstly I'm sorry you find yourself here but love your attitude. I was diagnosed with bc last December. At the time they didn't know if I was HER2 positive or triple negative (TNBC) so had to wait until surgery in June for definitive diagnosis.  My Gremlin went on a little holiday to Canada and was confirmed as TNBC. My treatment plan was a bit different as I joined a trial ROSCO, so I had 4 rounds of chemo (FEC), lumpectomy and node clearance ( ANC), 4 more rounds of chemo (TC), and am currently in my 3rd week of radiotherapy at Musgrove Park Hospital Taunton.

As you live in Glastonbury will you be receiving radiotherapy at Musgrove too? Also if you do need chemo which hospital will you be referred to? My main treatments, chemo and surgery took place in Yeovil. If you have or will be receiving more treatment at either of these hospitals please let me know and if you want to know more about what happens at either hospital let me know and I'll get back to you. 

If you find you need chemo then, as already been suggested join the forum for the month in which your chemo is due to start. I'm from the February 19 group but we have recently left the forum and coninue our chats on Facebook Messenger. Some of us though continue to pop into this site so we will still be here to offer advice, give support or answer any questions. 

Good luck with your future treatment. 

Susie B xx  

Member

Re: Newly diagnosed grade 3 living in Glastonbury

It's my tumour having the holiday to america, hence the name Little B*****d! 

Community Champion

Re: Newly diagnosed grade 3 living in Glastonbury

Hi TraceyDreadz,  I love your attitude and hope you continue to stay upbeat.  If you do have chemo then join the “going through treatment” monthly chemo thread where everyone gets through it together.  I was diagnosed in March 2917 grade 2 stage 3 with 9/12 nodes affected and still here and doing well after chemo, surgery and radiotherapy.  Chat on here for now if you want to ask any questions.  Have a wonderful holiday. X

Member

Re: Newly diagnosed grade 3 living in Glastonbury

Hi Tracey

 

Love the attitude Smiley Happy Yes you were damned lucky it hadn’t spread to your lymph nodes. I was heavily node-positive so there was no doubt about my treatment plan. Everyone responds differently to radiotherapy - I sailed through my 15 days BUT I’d had a full mastectomy so didn’t have to worry about nurturing a nipple etc. I did get radiotherapy muscle pain a few weeks later and that is proving an unwanted yet lingering visitor. 

 

Best of luck and keep nurturing that soddit attitude - it really helps x

Member

Newly diagnosed grade 3 living in Glastonbury

Went to results appointment this morning to discover the little b*****d has been upgraded from a grade 2 to a grade 3 invasive ductal. Planned radio now 4 weeks instead of 3, no dates yet. Also in grey area of mop up chemo needed or not. So the little b*****d gets to have a holiday in america to be oncotyped while we wait another 2 - 3 weeks! On the plus side, it has been completely removed and my nodes are clear. Only 11mm in size so I was damn lucky to have found it  within its reluctant big host.