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synchronous bilateral BC

7 REPLIES 7
Community Champion

Re: synchronous bilateral BC

Hi interestingtimes,  I'm glad you found my blog helpful.  I had single sided breast cancer but lymph node metasteses and IBC.  We all have different levels of suckiness to our diagnosis which results in scarier levels of statistical guestimates.  The problem is (and this is the bit that's hard to live with at times) is that NOBODY KNOWS what your personal statistic will be.  I've learned to be fearless after taking some very ugly mental journeys because living with what my mind was going became as bad as the actual disease.  This gave me two diseases; one which was physical, and one which was created in my own head.  I'm now NED so I try to focus on that as my reality and avoid looking at future scenarios.  I think you'll find this easier to get your head around over time but early on it is very difficult and it takes time to accept unknowns are part of this disease but they are also part of life for everyone. Can you consider reducing your working hours? xx

Member

Re: synchronous bilateral BC

Mai7, thank you for your input! I read your blog but am still not clear on whether you have bilateral or not? I have to say, one thing resonated with me from your blog and that is be careful to check sites for reliabilty etc. I, like you, read EVERYTHING I could, including research papers. I found it interesting how one paper said there was no difference in survival rates between unilateral and bilateral BC and another said there was an almost 10% lower survival rate. Just proves that you can get stats to pove anything! lol...

SO, like you, I am trying to take it one day at a time, although I am going through the "Will I be here in 5 years to see my daughter go to university?" stage and I'm finding it tough. We returned from 12 years in Africa last year and so have no support network here. I work stupidly long hours and have over an hour commute each way so no time for socialising or even exercise (I work 6 days a week most weeks). Like you, my feeling was "I've just been through a major upheaval in 2018. Could that not be enough?!?!"

Anyhow, this sounds like a vent and a moan. Sorry! But thanks for the support.

S xx

Member

Re: synchronous bilateral BC

Sorry for the delay in replying to you ladies - surgery wiped me and I've hit a major slump emotionally! The referred nerve pain was a shock and having it in both sides was a real kicker. The grades of each tumour were also upped after surgery so now I'm waiting for the oncoptye results. At least the nodes were clear on both sides. Does anyone know if bilateral means more chance of having chemo? Despite the higher grades, I'm still at stage 1 on both sides (although with different cancers in each). I guess you get used to playing the waiting game... :-(

Both my lumps were found via ultrasound (I have very dense tissue and my GP in Africa knew this so insisted on a mamma AND ultrasound), although the calcification was picked up on the mammo. 

Good luck ladies. Keep us posted. 

Member

Re: synchronous bilateral BC

Hi Interestingtimes

I wasn't, but it was less than a year apart. Made me wonder though, because all the initial attention was to my Right as it had a 'definite' small lump, that the later Left, less obvious lump, may have already been there, but just not diagnosed. It wasn't such a definite lump as my Right one, and only my Right, the obvious affected breast, was mammogrammed at the beginning. 

Am I to presume, because you posted, that that's your diagnosis? If so, that's the absolute pits, darlin'.

Please do lets us know how you're doing.

Delly xxx   

Member

Re: synchronous bilateral BC

Lump left breast, biopsy showed ductal, had mastectomy, actually turned out to be lobular. Had MRI and found one in other breast. Had another mastectomy (and ANC for left side), this one was ductal. Same receptor status. No-one could feel the one in my right breast, even when they knew where it was!

All started about 3 months ago, now just had second FEC-T. My aunt has had breast cancer 4 times, first aged 50, and is still going strong at 83, so here's hoping!

Community Champion

Re: synchronous bilateral BC

Hi interestingtimes,  Sorry you find yourself here.  I was diagnosed stage 3 locally advanced bc (including spread to 9/12 lymph nodes) in March 2017.  I had chemo, surgery and radiotherapy and I'm now on Tamoxifen.  The treatments tend to be similar regardless of the specifics.  You can find my story here:  lifeafterlola.com

I found it helpful chatting with others in the "going through treatment" threads on this forum, especially the chemo monthly thread.  There are threads for discussing surgery, chemo and radiotheraphy and targeted therapies.  Do you have your full diagnosis? Hormone status, HER2 status, Node status?  This may determine which threads you may want to join.  https://forum.breastcancercare.org.uk/t5/Going-through-treatment/ct-p/going_through_treatment 

xx

Community Champion

Re: synchronous bilateral BC

Hi ,there are certainly ladies on the forum who have been diagnosed with cancer in both breasts at the same time - hopefully someone will be along soon to share their experiences.Good luck with your treatment .Jill x
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Member

synchronous bilateral BC

Morning all,

 

Anybody been diagnosed with synchronous bilateral breast cancer? I've done some research and it seems it affects less than 3% of patients... Would love to chat to someone going through the same thing.

Thanks.