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Anyone tried the brand Tillomed tamoxifen?

8 REPLIES 8
Member

Re: Anyone tried the brand Tillomed tamoxifen?

Please do let us know if you find a stash. 👍😜 I was told the shortage is temporary - until March. I’ve been given the Tillomed to try. Dreading it as Teva is the only brand I’ve been able to cope with the side effects. 
X

Member

Re: Anyone tried the brand Tillomed tamoxifen?

I’ve taken teva for 7 years now. Initially tried Rencol and had awful side effects inc aching legs. I then tried wockhardt & that seemed good But pharmacist couldn’t reliably get it then. I’m hoping to try wockhardt again or see what pharmacist suggests.
I truly believe you need to find a brand that works & stick with it. I’m hoping to be able to get to 10 years & then stop. i haven’t tried tillomed myself but may give it a go. My pharmacy have been great in keeping consistency so I’d say if yours isn’t then I’d change straight away to one that is even if I had to travel. Good luck. Julie 

Kip Community Champion
Community Champion

Re: Anyone tried the brand Tillomed tamoxifen?

I love Teva too and can't get it now.  I'm having a different brand every time now,  currently Wockhardt but got relon and Tillomed too.. I stopped the Tillomed as was really stiff and achy but might not have been related, so will try that again next.  I hate being switched every month but pharmacy just just shrug 

Member

Re: Anyone tried the brand Tillomed tamoxifen?

Hello ladies. Thank you for all your replies. I decided to give it a go. Seemed ok at first, but then my skin went really itchy. I would wake up thinking I would be covered in spots but I wasn't, just itchy skin. So, what now! I decided to get 10mg Teva on private prescription as it was really the only brand that suited me. After much should I shouldn't I due to cost I called the doctors and she agreed to sign it. So whoop I was back on Teva, short lived also as now there is a shortage of 10mg!!! So back to the drawing board. It is so frustrating, we have enough to cope, deal with without the added stress of trying to get our meds.

I did notice my hair has been a lot thinner while taking tamoxifen, but I found changing products helped make it look thicker.

Will let you know if I find a big stash of Teva!!! Thanks again for you replies much appreciated.. xxx

Member

Re: Anyone tried the brand Tillomed tamoxifen?

Hi, yes I have tried Tillomed after being on Teva for over 3 years and it has been the best I’ve tried so far, with the fewest side effects 😊 sadly my joy was short lived as the chemist no longer stocks it so I’m having to try various other brands now in the hopes I can get another one that suits me 🤞

Member

Re: Anyone tried the brand Tillomed tamoxifen?

I was given Novofen in place of Teva but experiencing severe hair loss. I am not sure if it is due to Novofen or the accumulating effect of tamoxifen. My doc is clueless how to solve the hair loss issue. Seems no one else is taking Novofen and complaining of the same issue. Feeling very sad and angry. 

Member

Re: Anyone tried the brand Tillomed tamoxifen?

Hi Evie, it's so difficult isn't it. Out of my 5 years on tamoxifen I have been lucky to get Teva for 4 of them. I tried Wockhardt and just came out in a rash and loads of spots. I wish it was easier for us, we have enough to deal with without having this challenge every 6 weeks. Let's see if anyone has tried it.. xx

Member

Re: Anyone tried the brand Tillomed tamoxifen?

Hi Poppy, I’ve not tried or even heard of that brand, but I’ll be interested to read any replies as I too have had to change from Teva. I’m on Wockhardt at the moment. It does seem a very individual thing, I’ve heard mixed reports on all brands (except Teva!) 

Evie xx

Member

Anyone tried the brand Tillomed tamoxifen?

Hi Ladies. I am trying to find amother brand following Teva being discontinued. My pharmacist mentioned Tillomed which I haven't heard of before but she said it has been around a couple of years. Would be interested to hear from anyone who has tried it especially if you have taken Teva in the past. Thank you..xx