Hi ladies I have started taking Nutrition FX menopause 3 which has made a big difference to flushes. It's made out of mung beans & green tea etc. All natural stuff. I wouldn't worry about phytoestrogens too much, because they are in all of our food & some research shows they occupy oestrogen receptors & stop the bad oestrogens attaching i.e. Are helpful. Another BC thing that no one can quite make their minds up about. xx
if you are struggling with hot flushes during and post active treatment or are on Tamoxifen or an aromatase inhibitor, such as Letrozole - you may want to download and read this publication in the first instance.
It is very comprehensive and covers a number of ways to manage hot flushes, should they not decrease over time. In my case they were awful throughout chemotherapy. I have now been on Letrozole for 5 months and they have reduced dramatically. I still get 2-3 per day, but they are managable and do not leave me completely soaked - I just get very warm for a few minutes. The night sweats have also gone.
For those of us, who have a hormone positive diagnosis - herbal supplements are generally not recommended, as they very often contain high doses of phytoestrogens, which mimic estrogens.
Research has, as yet, not been able to establish whether a such an intake of phytoestrogens may be harmful to that group of women. I personally rather avoid, than increase my risk of the cancer coming back - until it has been proven that it is safe to take them. My oncologist also advised me against taking them, as I had a highly estrogen receptive cancer.
As to Evening Primrose - you may wish to read this- http://www.livestrong.com/article/548301-does-evening-primrose-oil-cause-high-estrogen-levels/
Hi Ladies'I'm not on Tamoxifen, removed myself from as it exacerbated my existing depression, following two mastectomies 2006 (47) 2007 (48). but went into menopause at 50 anyway (now 58), which was when all the hot flushes started. So unlike any of you's on Tamoxifen, mine are purely menopausal. I recently put myself back onto high dose Evening Primrose oil, after a lapse of a few months. Find that helps a great deal, it being a natural equivalent of oestrogen. But I have to say, I'm gonna have to try the "sage" supplements. Thanks for that recommendation.
Arl - What type of tablet are Megastrol. Are they a form of antidepressant???
Jobey - good to see you darlin woman and friend. Hope you and your hubby are both doing well. Don't forget my invite to join you for a Friday night steak and chips meal, courtesy of hubby the chef !!
Lotsa love to you all. A Very Merry Xmas and A Happy, Healthy, Flush Free New Year.
Use a lady care magnet it's the best thing I've had for reducing the flushes, mood swings etc, you can buy them o line or in boots
As regarding chillows wonderfully things,i paid full price for my first one have since deactivated them on e bay without the box! From Hong Kong £2.75 free postage,it said up to 6 weeks mine came in a fortnight ,iv ordered another two...
Try and stay with the tamoxifen, at first I was exactly the same, I got prescribed megastrol, was on them for couple of years, then decided to come if them as they are a steroid, it reduced the flushes, also get yourself a chillow pillow of Amazon I think it's roughly £28, what a difference, as time goes on they will reduce and should just get an odd flush, I've been on them for nearly 4 years , I also had to experiment at beginning with different makes of tamoxifen, the teva brand has worked for me, try stick with the same kind let your chemist know, because there is different ingredients in all the tablets, do not let the pharmacist fob you off, just remember it's you that is on the tablets for years. Hope this helps.😀
Try and stay with the tamoxifen, at first I was exactly the same, I got prescribed megastrol, was on them for couple of years, then decided to come if them as they are a steroid, it reduced the flushes, also get yourself a chillow pillow of Amazon I think it's roughly £28, what a difference, as time goes on they will reduce and should just get an odd flush, I've been on them for nearly 4yrs, I also had to experiment at beginning with different makes of tamoxifen, the teva brand has worked for me, try stick with the same kind let your chemist know, because there is different ingredients in all the tablets, do not let the pharmacist fob you off, just remember it's you that is on the tablets for years. Hope this helps.😀
The Ladycare magnet.
I saw it on the Macmillan cancer care site. It's in the bigger Boots shops and basically works along the same ways as a copper or magnet bracelet for arthritis.
helpful for all problems involved in menopause. I am 59 and well out of my menopause but after a lumpectomy in May this year and 15 radiation session I was a sweating weeping aching mess. On Letrozole. Don't get me started.
Now I am taking exemestane and so far so good, a few sweats, no weeping, no aggression..
The Ladycare magnet is manufactured by Ladycare Lifetime Ltd, Bristol. And can be found online. In Boots website. Cost around £28 and I've had it on( there's a front and back that clips on your briefs) for many weeks now.
No chemicals, no after effects, result. Warmest wishes to everyone in our club and their families xxx
I'm starting to get frequent hot flushes, just now almost 2 months into taking Tamoxifen :-( I thought I had got away with few SEs to begin with so it is a little disappointing... Also my head is feeling fuzzy frequently. And all just as I'm going through rads, not a nice combination. Will try some of the suggestions on here - sage, evening primrose, magnets. Thanks ladies. Funny thing today though, I thought I was starting another hot flush, but then realised I had left the heating on all morning owing to my fuzzy head... I hope this fug will pass.
I have been unofficially trialling sage supplements which my Oncologist suggested. Much to my surprise they do seem to help, reducing the magnatude and frequency of hot flushes. In the autumn (pre sage) was getting flushes all the time (day and night) and really intense too. Started sage in December, was sceptical at first but they seemed to make a difference. Missed quite a few doses over Christmas period and the hot flushes got worse again. So started the sage again which really does seem to help. I'm taking 1,140mg a day, half in morning and half in the eve after food.
i counted the hot flushed I had in one day worst was 50 average 20 have calmed a bit now.Seemed worse when stressed.
do any vitamins help?
does anyone take vit D for joint pain?Does it help?
yoga helped flushes but had prolapse so had to stop.
I decided to wait to see if a new brand of tamoxifen would make the SEs better. Which they seem to of at the moment so not going to take them unless they get worse again. I have them on stand by
Just wondering if the venlafaxine was working for you ,are there any s.e
I am considering taking them for hot flushes
I've done just over a year of Tamoxifen, had hot flushes initally at night, then in Oct/Nov instantaneous boil in the bag during the day. Took Citalopram (for other reasons) and didn't find it helped much.Saw oncologist before Christmas who suggested trying evening primrose oil and sage! So far I think the sage may be making a difference. Difficult to know if it's just not being at work over Christmas or if it's the sage but the heat waves seem to have reduced, both at day and less at night.
Oncologist said take it in any form. I bought supplements from H&B, if it does work may need to get experimental in the kitchen, though can't imagine sage cookies taking off!
Or a trial eating Paxo for breakfast every day! Yuk!
Happy 2016's to all fellow Tamo takers!
My Doctor put me on clonodine to help the hot flushes, it has been used in the past to lower blood pressure, they are really helping, although I still have some hot flushes they are not as often and not as bad, an now going to try the Ladycare magnet to see if I can banish them completely. Also I stopped the alcohol and that helped, when I do have a drink then I have a bad night, always hot!!
I have been on tamoxifen for 6 months , I have really bad hot flushes at least 10 -15 Times a day
Also night sweats I wake up drenched ,have to change a least twice .
Does anyone know how long it lasts ? I have heard venlafaxine (efexor) can help as anybody taken this?
Any advice appreciated don't know if I can do this for 5years.
I think the clonidine is starting to work, still have the hot flushes but they are not as bad and do not last as long, have been taking them now for about 8 weeks, so will keep on with them. Not sure what the alternative is as don't really want to stop taking the Letrozole even though the aches and pains are not nice and have put on weight. Hoping everything will even out at some stage. Keep strong xx
I am going out to get some tomato juice! Thanks for the tip. I am okay during the day but sometimes I wake up at night with a hot flush and I have to sleep with the window wide open which my husband hates. I am on Letrozole but I think the side effects are more or less the same. I read recently that women on hormone therapy shouldn't drink grapefruit juice because it raises oestrogen levels. You live and learn!
Anyone tried tomato juice ? A study by researchers at Tokyo medical university showed that 200ml twice a day reduced the severity of hot flushes. I have been doing this and it has helped reduce the intensity and frequency of hot flushes. I also take tamoxifen in the morning to try to reduce night sweats.
I don't even like tomato juice but will be buying it for the next 10 years. Hope this can help someone out there.
I never heard of a naturopathic oncologist before! Can I ask, did you have "traditional" treatments?
Regardless, I too read that black kohosh damages the liver in the long term... it is a pity as I was going to try it
That is interesting... my naturopathic oncologist prescribed the Black Cohosh. Seems like everything has the good and bad effects. I googled and read a few articles and it appears that some think Black Cohosh may act like estrogen --- bad for ER+ (which I am) --- but it also says the latest research shows this NOT to be the case. At any rate, as with everything it is an personal choice. For me, it works and I'll keep taking it awhile but appreciate your input because it sounds like there are more risks for long term usage (not related to cancer) and I may stop taking it sooner rather than later.