Endometrial hyperplasia from taking tamoxifen

[Debbie1964]

The treatment was to take progestron, to reverse changes, but as my breast cancer was hormone positive my ong wouldnt allow it, i was advised to stop taking tamo as that they believed was causing it, and further 6 monthly hyterscopys and byopseys, my womb went back to normal, my womb was 28mm when i stopped tamo, they didnt actually tell me what it was in my finally biobsey in october 2021 , all they said was there was now no concern it was normall , they discharged me and said they didnt need to see me unless i had heavy bleeds again, since then all has been well 

Debbie 

[Wegotthis2022]

What was the treatment plan for hyperplasia? How thick was ur uterine lining? 

[Evie-S]

Thanks for sharing that info Debbie, I hope the treatments are kind to you and work quickly. I am also bad with needles - so when I was having chemo one nurse told me to screw up/clench my toes while she did the injection. I did it and afterwards asked how that helped - she told me that’s what they do with children to distract them from the needle!!! It worked for me too 😆 

Big hugs, Evie xx

[Debbie1964]

Hi Evie, my oncolgist said i am not to have the hormone treatment to reverse womb changes, i have to stop taking tamoxofin and have a blood test in 6 months to see if my body is in menopause, im ,56 so i should be, if im in menopause i will have monthly zoledex injections, if im not in menopause zoledex and letrozole, and gynacolocolgy will monitor my womb with a further biobsey in june, i asked could they just do a hysterectomy and they said its too drastic at this stage, my womb was 11mm 18 months ago on first biobsey, it is now 24mm, they want to see how it reacts after tamoxofen is out of my system in 6 months, not looking forward to zoledex injections , as i had them at the beginning of my breast cancer journey and im a woos with needles lol. 

best wishes everyone

Debbie

[Evie-S]

Debbie 1964 - I’m sorry you have had that diagnosis, and sending hugs and best wishes as you get treated. It would be very interesting to hear more if you are happy to share details, I’m also on Tamoxifen and have had to have a couple of investigations over the years. Evie xx

[Debbie1964]

Thanks for your replies ladies, i am having a phonecall today to inform me how they will treat it. I will update when i know, as it may be of some interest to other ladies on tamoxofen.

 Debbie x

[Wafaa 1954]

Hi Debbie,

Hope you are doing well.

I was on tamoxifen for 7 months and every month my oncologist asked me to do ultrasound  to check the endometrial thickness and my endometrial thickness is increased up to 13mm after 7 months and then my doctor advise to stop taking tamoxifen and take Aramosin instead of it.

Hope my answer will help you,

Regards

[Evie-S]

Debbie1964 - I can’t answer your query but wanted to give you a hug and wish you well and hope they sort it easily for you. I hope others come along but if not you might want to call the nurses. Evie xx

[Debbie1964]

Hi . Today i was diagnosed with endometrial hyperplasia . Caused by tamoxifen. They say it can be reveresed by treating it with hormones and biobsys every 6 months. They cant treat me until they speak with my oncolgist as im still on tamoxifen. Are there any ladies that has experianced this, and what treatment were you given. Im abit confused as im taking tamaxofin as my breast cancer was 8/8 eastrogen and progestron. So a bit confused as to why they would want to treat my womb with more hormones.

Thanks for reading Debbie x