My wife has the same diagnosis as you and is currently using that medicine exemestane. May I ask you if you are able to tell me some experiences or give some useful tips if any. thank you
I am so very sorry to read your post.
It sounds as though you need to talk to your daughter and family about your treatments and how they are affecting you. No-one who cares about you would want you to suffer agonies just for the sake of remaining alive.
Whether or not we accept treatments is, ultimately, very much our own decision, and should be our own decision, not that of our family.
I do hope you, your family and your oncologist can agree on a programme that gives you quality of life; that is so, so important.
My very warmest wishes.
It sounds as though you need to speak to your Breast Care Nurse and your GP about this. It's easier for someone to advise you when they can examine you at the same time. Perhaps your Breast Care Nurse could talk you through your treatment programme, what you will be having when and what the likely side effeccts might be.
Very best wishes
I am 82 years old and was diognosed last year with breast cancer and multiple nodes in my left axilla .
i was being treated with let redolent the tumour has increased to 50mm ,so I've now been taking exemestane for 3weeks .
The thing that's worrying me is of course the increase in size but the hardening of the tumour ,is this a significant change and is it something worrying
I 'was on Exemastane and had the runs every morning and very stiff jounts ,am having a break from it at the moment, 3months and am almost back to normal but know I will go back on but just felt so dreadful , might try Tamoxifan but again the side effects worry me.
Take care x
Hi, I was originally given Anastrozole, took it for 18 months, was taken off them for 18 months this, then I was taking nothing at all. Until this August when I was given Exemestane as recommended by the Breast nurse I usually contact, as I found out from anaesthetist who I saw in March for my knee op that my original consultant had retired through ill health last December!!! So I was basically lost in the system until this summer! Anyway, when I wasn't taking any hormone meds, I was feeling quite poorly most of the time, picking up viruses and struggling with fatigue, bone pain, PN in my feet, etc!! Since starting the Exemestane 4 months ago, I am worse than I have ever been. I wondered whether the Exemestane is partly to blame, but 4 months is quite a long time for the all over pain to kick in, or so I would have thought. I'm seeing my new consultant in January so I guess I will have a lot to discuss with him!! Like I was saying on a FB forum (Breast Cancer Buddies has been a Godsend!) never unwell (just Under active Thyroid which never bothered me) until diagnosis and treatment, and even worse now a few years after. My biggest worry is what if there's something going wrong inside Andy I don't know it? Apart from the yearly mammo, how does anyone know what's going on elsewhere? Another question for him at my appt!
Cheers, Michele x💖