Hello K M
I started on"Letrozole 4 years ago after 5 years of Tamoxifen and your symptons are practically the same as mine are now.
When I first started on Letrozole I was okay apart from the Burning Mouth Syndrome that started 6 months into the drug. My husband had been made redundant and I was still at work fulltime in an office and he took over the housework etc so I wasn't really doing much physical work as such.
He then took early retirement as he was 55 and I decided to take a break from work as I was getting tired and stressed in the job and he then got a pt job gardening so I stayed at home for 2 years. so apart from normal household things was okay. I was getting stiff at times and got the old muscle spasm but not too bad.
I then, and this is when it all happened, got a homehelp job with a charity working 15 hrs a week, housework, shopping etc and thats when it all started. Just doing the extra physical work along with the drug brought me a load of aches and pains, mainly in my back, hips etc.
My Onc sent me for a MRI scan which was clear and he at last said one was the main SEs with Letrozole is the aches and pains and is severe in 1 of 3 patients.
I am now on Ibruprofen, Omeprazole to counteract the stomach problems caused by Ibruprofen and a muscle relaxant and thats where we are. I have been signed off sick for 4 weeks and am now deciding whether to give up my job and find something less physical but I will probably wait until I have finished Letrozole next year.
The scan did show a change in bone marrow but that is expected in the length of time I have been on Letrozole.
I think that there are SEs with all AIs but there are others to chose from. I have been offered a change but as I have only a year to go I will try and manage.
Hope you get an answer soon.
Hazel