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Letrozole neck pain

6 REPLIES 6
SUSE
Member

Re: Letrozole neck pain

I put up with letrozole and another one in the same 'family' of drugs then oncologist said to change to Tamoxifen.  Might be worth you asking. Not that Tamoxifen doesn't have it's side effects but not the pain in joints I got with Letrozole.

Carmen Verandah
Member

Re: Letrozole neck pain

Hi

I thought it was just me!

My neck was very painful during and after 15 days of radiotherapy lying on a very uncomfortable apparatus for up to 45 minutes at a time. I’ve spent a lot of money on seeing an osteopath and buying different pillows. I started letrozole in May, and I wake up every morning with a very stiff neck and skull pain (best way to describe it!), and sometimes have to move my whole body as I can’t turn my head to look when crossing the road. I do yoga and Pilates and gentle stretching but it’s not really helping. The pain fluctuates but I don’t think I can manage 10 years of it.

I think I will speak to the Breast care nurse and the pharmacy about changing brands. Thanks for the advice.

 

Carmen 🌸

alexandragroom
Member

Re: Letrozole neck pain

@Carol1960 where did you get to with this? Did you try another medication instead? I hope you are ok 🙂  I too am on letrozole & am also considering changing medications as my neck and head are so bad :(.

 

I have spoken to my oncologist & he is doing MRIs also.

 

Lexie xx

Carol1960
Member

Re: Letrozole neck pain

Hi B

Thanks for your advice. I was on Cipla originally  and they gave me lots of leg pain. I have since changed to Accord brand and the leg pain has gone but am now experiencing the neck pain. As you say it is all trial and error with the brands so I may need to change yet again. Finding ibuprofen is helping but dont want to get hooked on those.

All the best Carol

 

Beebs
Member

Re: Letrozole neck pain

Hi Carol1960

I came across a thread about Letrozole and learnt that there are different manufacturers (I never knew this). I was taking the Cipla brand and recently changed to TEVA after reading about the experiences of other ladies. Changing brands has made a difference to my aches and pains. Perhaps changing brands may help you too? Otherwise definitely let your oncologist know about your neck pain.
All the best

B

Bernard_BCN
Community Manager

Re: Letrozole neck pain

Hi Carol1960

I'm sorry you've been experiencing neck pain.

While some other Forum members may be able to contribute personal experiences, I found this page on our website about Letrozole. There is an additional page about side-effects which may be useful too.

We would recommend that if you continue experience pain you contact your health team as they may have recommendations.

If you'd like to speak to our nurses, you can reach us on freephone 0808 800 6000 (Mon-Fri 9am-4pm; Sat 9am-1pm).

Sending our best wishes

Bernard

Carol1960
Member

Letrozole neck pain

Has anyone suffered with bad neck pain while taking Letrozole. I have been on them 5 months and some days can hardly move my neck at all.

Any help or suggestions would be greatly appreciated. It's so bad I have even considered stopping altogether.

Thank you. Love to all you fab ladies

❤xx