Hi Helena, I hope you are doing well and that you still managed to have your operation despite the cold You developed. Best wishes for a speedy recovery, let me know how you get on. Nicola x
I promise I will do. I will be in hospital for 2/3 days apparently and then I am off work for 6-8 weeks. Hoping it is 6 rather than 8 though
Lovely to hear from you and that you have a plan in place to srot this all out.
My tumour markers came back as normal but following a failed hysteroscopy I had to have an MRI which showed that the lining of my womb was very thick therefore I am having a hysterectomy on 18 September, they have advised me the best option is to have it all taken away. Feeling a bit apprehensive about it all, but I know it is the best option, and as my consultant said to me the silver lining on the cloud is that I will be able to stay on Tamoxifen.
Will keep you updated with my progress if you would like.
Hi All, just thought I would update since last post. My tumour marker blood tests were all normal, but my scan in July showed more polyps , the original fibroids which I have had for a long time and the ovarian cyst still there, plus no sign of menopause yet at 54! I finally had my appointment with the consultant on Wed, she said she wanted to discuss management options and she wanted me to have a Mirena Coil, but I don’t want to risk this because of BC. Having had a lot of time to think about this I was keen for her to do a hysterectomy as I know it’s a big op but feel it will remove a lot of risk factors as well as sorting my heavy periods problem. She has agreed to this and I have a provisional date for January. Xx
Following on from my last post, I had a repeat ultrasound done last week and apparently the ovarian cyst is still there but hasn’t grown. Have had tumour marker blood tests done again but don’t know my results yet. Not sure whether to chase those results as have to wait till 5th Sept to see consultant again unless I can get a cancellation so if the blood tests are raised I shall only worry myself silly until I know what they are going to do! If only I could get away from all this uncertainty! Nic xx
Sorry I didn’t reply before. The tumour markers were c125 and another one, the c125 (which I think shows ovarian) was clear but the other was slightly raised. I was whittling about it so my gp ordered a retest and it had dropped back to normal range. Apparently now my consultant has ordered another scan for July and wants me to do bloods again at same time. Trying not to worry about it since everything else was clear!
thanks for your reply. The tumour marker test you had which ones was it for. No one has suggested this to me but from what I've read I may have had CA125 done way back at the initial bc diagnosis but was not reported to me. Have not had bloods taken since so not sure if I should be asking for this test from GP perhaps.
you said one was raised did you have taken again to see if falling? Hope it was good news.
hope you get your scan appointment soon
I haven’t really had any symptoms with the cyst but the consultant said they would do another scan after 4 months (which should be about now!) to see if it had changed. They also did tumour marker tests (see previous post). I’m waiting for a scan apt at the moment. They told me it was a haemorrhagic cyst (filled with blood I think) which is apparently quite common and that often they break down on their own so I’m trying not to worry too much! Good luck with yours! Nic x
Hello, I've just read this thread with interest. Please can you tell me what symptoms you experience with the cysts? I have been on Tamoxifen for 4 months and just found out that the CT scan I had back in December showed an ovarian cyst, 2 cm. so pre Tamoxifen treatment. My oncologist said to take a wait and see approach. I have had pain in my left side mid cycle and heavier periods so was wondering at what point I maybe need to go back to someone and get it checked or as pain is manageable just get on with it!
thank you for any advice
The nurse also said that they would tell me at the appointment what they saw when they did the hysteroscopy xx
I have only been on it 18 months, I had a show, which 7 years after i last had a period was rather worrying so went straight to GP,, she put me on fast track, not because she thought it was anything sinister, she just wanted me seen asap.
Hope all goes well for you. At one point I was wondering whether to ask to stay on tamoxifen after my 5 years are up but with all these problems I’ve decided that’s not a good idea! This is the second time I’ve had to have polyps removed since starting taking it! Thankfully the nurse who did the hysteroscopy told me she was fairly certain everything looked ok so I wasn’t quite so anxious waiting for the results this time! Xx
Oh that is really reassuring as I am having the same thing done on Wednesday, fingers crossed I get the same outcome.
Also have a cyst on my ovary and have to have a blood test. The nurse said that they are just being thorough, rather scary time xxx
I had good news yesterday following my hysteroscopy. They removed 2 polyps 1 was 1.5cm the other 2.5cm but the results came back normal. So now I just have to wait for a repeat scan to see what is happening with the ovarian cyst.
Hi Sonia, how are doing on your journey ? My cyst is apparently the size of a small potatoe, and whilst cancer markers in blood test are 'low', I've been offered an oophorectomy, as I have increased risk of ovarian and breast cancer due to family history. Got the breast cancer badge and not keen on getting the ovarian badge, so have opted for the op.
My tumour marker tests came back one normal and the other slightly raised which is very worrying! Discussed with gp and they said I could have it redone as it’s been a month to see which way it has gone and whether I need to worry! Still got to wait another month for the hysteroscopy so more waiting and worrying! Xx
I started tamifen in October last year, and have stopped for a break advise of breast care consustant as having some reactions to to it . I was was looking for posts on coming off tamoxifen and came accross this post - just fresh from an internal ultrasound. One of my ovaries is distended as so full of what appear to be cists , but sonongrapher is discussing with consulatant as so big. I found this post strangely reassuring despie been one edge until get results next week . I wish you all well .
Hi , I diagnised breast cancer, surgery in August 2017, I satrted taking Tomxifen about 5 months, I had USS in September showed Dermid Cyst, and 2 cm Cyst in ovaries. I had another TVUS 2 weeks ago, showed the cyst got bigger ( 6 cm). They gave me blood tests for tumour marker today. I am in shock. Can any one had similar exprience?
I’ve had a pelvic scan as well which revealed polyps in the womb and an ovarian cyst of 2.8cm. I’ve been sent for a blood test to see if I need another scan in May to check if the cyst has changed, waiting for consultant to tell me about that and have to have a hysteroscopy to remove and test polyps. Had to have one of those 18 months ago too but results were clear. Been on tamoxifen 3 years! It is worrying as you have to go through all the waiting for results again.