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Ovaries removed or Zolodex

5 REPLIES 5
Debbie61
Member

Re: Ovaries removed or Zolodex

Hi Sharon. I’m coping quite well with Anastrazole. It has caused stiffness in my joints (especially my feet) particularly  first thing in the morning, but I loosen up quite quickly and not in great pain. I started with Accord which was ok then on one occasion the chemist gave me Teva as they didn’t have Accord. I made a fuss as I’d heard that different brands cause more/different side effects, but there was no alternative so I had to take Teva - the pharmacist told me to keep an open mind, so I did, and I now prefer Teva (no difference except it has the days on the packet which is really useful as I can never remember if I’ve taken it or not! (I take mine with my breakfast together with a calcium/vitamin D tablet). My oncologist actually told me “5 years but as more evidence is coming in suggesting 10 years is better, will probably be 10”. Ten years is a long time but I’m 2 down so only 8 to go!! Debbie xx

Sharon7
Member

Re: Ovaries removed or Zolodex



Hi Debbie - thank you for replying.  I’m  kind of thinking along your lines of not really relishing the double dose, as my body has been notoriously sensitive along the way often reacting to anything I’ve been given (even the steristrips caused very painful blisters, as well as the dressings from the groshon line 😩, let alone the chemo itself - 4 doses of it and 4 hospital admissions so it’s been a bit of a rollercoaster for me).  My thoughts are “if I’m going to go through the menopause why not just take them out instead of trying to cope with an artificial one and constantly living in the ‘am I through it or am I not’ scenario” before they can stop the injections .  Like all of us, I feel I’ve done a lifetime of waiting for results for one thing or another and I feel like I do better when I take a bit more control back.  As for the scar, I’m not that worried about it as my bikini days were left behind many moons (and stones) ago haha. It can happily join the growing number of other scars I have 😉.  How you finding the anastrazole? 10 years is a long time - I think mine will be 5 years but I’m not sure - it all seems to differ for so many of us. Xx

@Debbie61 wrote:

Hi Sharon. I had left mastectomy in 2016 and on Anastrazole for 10 years. I didn’t need chemo or radiotherapy even though I had micromet on sentinel node. I was 54 when diagnosed and peri menopausal so for the first few months I was also having monthly zolodex injections in my stomach. I found this inconvenient and didn’t like taking a double whammy of hormones so I suggested ovary removal to my onc. He said he was going to suggest it when things had settled down a bit for me. So I had them removed and afterwards the surgeon who did the op said “congratulations, you’ve done all you can do”. Recovery was straight forward and I have a small scar at bikini line - and no more zolodex! Debbie x




@Debbie61 wrote:

Hi Sharon. I had left mastectomy in 2016 and on Anastrazole for 10 years. I didn’t need chemo or radiotherapy even though I had micromet on sentinel node. I was 54 when diagnosed and peri menopausal so for the first few months I was also having monthly zolodex injections in my stomach. I found this inconvenient and didn’t like taking a double whammy of hormones so I suggested ovary removal to my onc. He said he was going to suggest it when things had settled down a bit for me. So I had them removed and afterwards the surgeon who did the op said “congratulations, you’ve done all you can do”. Recovery was straight forward and I have a small scar at bikini line - and no more zolodex! Debbie x


 

Sharon7
Member

Re: Ovaries removed or Zolodex

Thanks for replying Sue - I too had terrific joint pains but it was after my last chemo which apparently they call the ‘docetaxol’ hangover! I think I’d prefer the wine hangover myself haha. There were days when I could barely walk so I’m hoping these won’t be as bad as that.  I already have arthritic pains, which I have got used to over the years so fingers crossed it won’t be too bad.  We all have a ‘thing’ that we can’t do much more of, so I can understand you not wanting more surgery.  For me it’s injections. We’re planning to go away for a couple of days after the first Zolodex so I’ll make sure I’ve got plenty of paracetamol so it doesn’t spoil anything. And I agree with you whole heartedly about just getting on with it and gritting your teeth.  When I allow myself to think too deeply or reflect too much, I get quite overwhelmed, scared and maudlin so your words of advice are a great help in helping me to choose what to do X


@Sue C wrote:
Hi Sharon
I'm currently having the zoladex injections, plus letrozole. Have been doing so now for just over 2 years. I was offered ovary removal, but couldn't face more surgery, so declined. Also, having ovaries removed, would put you into instant menopause, and I wasn't sure about that. Having the zoladex implants, are not too bad. Initially, I did feel unwell for a few days after, like coming down with a cold, but then that passed. I generally suffer with fatigue and joint aches and pains, but I think that is due the the letrozole ( apparently!). I've just had a blood test to see whether I'm now menopausal and waiting results. If and when I am, then the implants will stop.
With any of the treatments offered, I always grip my teeth and get on with it, believing that that is the best chance of non reoccurance.
Best wishes
Sue xx

 

Debbie61
Member

Re: Ovaries removed or Zolodex

Hi Sharon. I had left mastectomy in 2016 and on Anastrazole for 10 years. I didn’t need chemo or radiotherapy even though I had micromet on sentinel node. I was 54 when diagnosed and peri menopausal so for the first few months I was also having monthly zolodex injections in my stomach. I found this inconvenient and didn’t like taking a double whammy of hormones so I suggested ovary removal to my onc. He said he was going to suggest it when things had settled down a bit for me. So I had them removed and afterwards the surgeon who did the op said “congratulations, you’ve done all you can do”. Recovery was straight forward and I have a small scar at bikini line - and no more zolodex! Debbie x

Sue C
Community Champion

Re: Ovaries removed or Zolodex

Hi Sharon
I'm currently having the zoladex injections, plus letrozole. Have been doing so now for just over 2 years. I was offered ovary removal, but couldn't face more surgery, so declined. Also, having ovaries removed, would put you into instant menopause, and I wasn't sure about that. Having the zoladex implants, are not too bad. Initially, I did feel unwell for a few days after, like coming down with a cold, but then that passed. I generally suffer with fatigue and joint aches and pains, but I think that is due the the letrozole ( apparently!). I've just had a blood test to see whether I'm now menopausal and waiting results. If and when I am, then the implants will stop.
With any of the treatments offered, I always grip my teeth and get on with it, believing that that is the best chance of non reoccurance.
Best wishes
Sue xx
Sharon7
Member

Ovaries removed or Zolodex

I’m seeking opinions really.  I’m about to start exemestane with monthly Zolodex injections, but I’m also being given the option of ovary removal too, and was wanting to hear from anyone who can give me advice or experiences of either/both to help me make my decision. 

 

A little bit of history: I’ve had blood clots (in the leg and lungs) during chemo, which is why I can’t have tamoxifen and my ovaries are starting to kick in (I’m 48) so I’m not even post menopausal.  I also reacted badly to the docetaxol and had to stop chemo early because of it, so I’m a bit anxious about how my body will take this new regime.  It’s been 7 months since radiotherapy ended (surgery and chemo were first), and I haven’t been able to start the hormone therapy yet due to the after effects of the bad chemo reaction and some other new issues raising their heads (under control now). I had a primary breast cancer tumour diagnosed Nov 2017, grade 1, lymph node involvement so lumpectomy and full axial node clearance, the tumour was very large (51mm) and ER+ (8/8).  I’ve had 4 rounds of chemo and 20 sessions of high dose radiotherapy. 

 

Many thanks in advance, 

Sharon