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Pain relief for sore joints when taking anastrozole

Katy
Member

Re: Pain relief for sore joints when taking anastrozole

Hi Brenda

thenks for the tip on green tea, I am definitely going to try it.  I've had increased joint pain too especially in my thumbs since taking Arimidex.  I've had osteoarthritis for a few years now but it has definitely got more painful recently.  I also find tomato based sauces aggravate mine and some people react to dairy foods.  Thanks again, just going to put kettle on...

nancydegratto
Member

Re: Pain relief for sore joints when taking anastrozole

I was thinking of taking Exemestane instead of Anastrrozole terrible joint pain for 9  months, I read yesterday that a side effect from exemestane  is dermatitis and edema,  I didnt see that with anast.  my friend  has both from her cancer  her leg is all blown up ,it never goes away  leg so heavy she can hardly walk very confused terrible to suffer like this .

Brenda S.
Member

Re: Pain relief for sore joints when taking anastrozole

Hi Jaya, sorry to read that you are suffering severe joint pain because of Anastrozole. I have been on it now for about 19 months and have had pain in hips, knees and hands, with the added joy of a trigger finger on each hand, which has been very painful, so I do understand what you are going through!  I am still able to go to the gym 2 or 3 times a week, and although I don't feel I have the same amount of energy I had pre-Anastrozole, I do feel better after exercising, which is different from your experience.  I do have some positive news though.....for the past six weeks or so I have been drinking green tea (can only manage the mint variety) and I really don't know whether it is coincidence but my aches are noticeably better and even my trigger fingers have improved. I only mention this in case it is worth you, or other sufferers, giving the green tea a try.  I do hope things improve for you, I know how debilitating all this is.  I hope you will find this forum as helpful and supportive as I have.  Let us know how you get on please.   Brenda.  X

Jaya
Member

Re: Pain relief for sore joints when taking anastrozole

I suffer from severe pan from Anastrozole; I believe. I have IBC ( inflammatory) stage 3 B. Been taking anastrozole 2 years. I honestly worry its destroying my joints. Pain incredible after activity. Only relief I found heat, and lidocaine patches.
Janey2
Member

Re: Pain relief for sore joints when taking anastrozole

Hi Emma. I think you've had more than your fair share to deal with! I've taken glucosamine and evening primrose oil at high strength for several years, as total hysterectomy left me immediately menopausal and I wasn't allowed HRT - I was on the point of begging for it when BC diagnosed. I have to say I had issues for the first few months with nausea and flushes with Anastrazole but then settled. It was only when I went to the surgical review this week that the dr said give another tablet a go. I am not sure if it is the tablets causing the joint pain but 2 days off has left me far more comfortable. I do believe in taking them though, as I've been hit twice now with eostrogen fed cancer, so will persevere. I think it's only the unlucky few who have bad side effects but it is noticeable how few are on the site talking about exmestane - watch this space! There are a few of us from the Exeter area floating around! X
Emma111
Member

Re: Pain relief for sore joints when taking anastrozole

Hiya everyone .... it's Emma from Exeter. So so sorry to hear about those of you experiencing problems with anastrazole. I now feel very guilty as I've not had any side effects - so I've been stressing it's not working properly. My BCN says this is not the case so guess I just have to trust what they say. I also have the zoladex injection once a month to make me menopausal, no probs with that either.
I was so stressed and nervous about starting anastrazole thinking I'd be in pain all the time - so in that respect I'm very very lucky.
I do remember before I started that my BCN said if I did have issues that many other women have improved symptoms by taking high strength evening primrose oil, high strength cod liver oil and high strength glucosamine. Have you tried this for your side effects?
Aside from no side effects I've had shingles, tonsillitis and hacking cough in the space of 2 months. ...so maybe that's to make up for no probs on anastrazole. Lol xx
helly18
Member

Re: Pain relief for sore joints when taking anastrozole

Hopes the examestane improves things and will be watching with interest, 7 months on anastrozole hasnt got any better! X
Janey2
Member

Re: Pain relief for sore joints when taking anastrozole

That's the one! Xx
rubycat
Member

Re: Pain relief for sore joints when taking anastrozole

  Yeah, all empty. Cat Very Happyxxx

Janey2
Member

Re: Pain relief for sore joints when taking anastrozole

Rubycat, you are tip top friend always and I'm on the case with a note book to hopefully note lack of symptoms - and a bit excited to have 4 weeks off all meds - hoping not to walk like Wallace and Grommit in The Wrong Trousers!! I was being very lazy and should have named you both Emma and Lena Mary! Thank you lovely Delly Xx
rubycat
Member

Re: Pain relief for sore joints when taking anastrozole

Not an Exeter friend, but can I still count?!Cat Very Happy  That's interesting Janey to change to exmestane, will see how you get on. Will be interesting if the aches & pains go within these 4 weeks - I'm sure you're right that there are no complaints about the exemathingamejig.Cat Very Happyxxx

delly
Member

Re: Pain relief for sore joints when taking anastrozole

Good Luck with your treatments and therapies. Sending my love to all you girlywhirlies.

Dellywelly xxxxxxxxxxxx

Janey2
Member

Re: Pain relief for sore joints when taking anastrozole

Hi. Well, as of yesterday I'm off Anastrazole for 4 weeks, then on to Exmestane. My joints were starting to get unbearably painful. I'm feeling positive there is so little on the forum about exmestane and hope that's due to reduced side effects. How are you Exeter friends doing? X
BeckSue
Member

Re: Pain relief for sore joints when taking anastrozole

I was so NOT anticipating taking anastrazole-my joints are already arthritic. Been taking for two weeks and lower back is aching now along with sciatic pain. Hope that is the worst. Am taking chondroitin and glucosamine-started that two weeks before anastrazole while still doing rad. Hope that helps my knees and hands. Am also using a heating pad on my lower back alternating with ice-doing the same to the back of my leg-which seems to relieve the discomfort some what. Ice and heat three times a day. Then heat to my back when I go to bed. Time will tell!! Am also trying to lose weight by just eating healthy-am a vegetarian so eating healthy is pretty easy-just need to cut portions and walk, if my back and sciatic nerve let me. All in all am so glad to be alive-I have thirteen year old twins-if God willing want to see those cuties grow up!!
Has anyone watched the Ty Bollinger's "quest for the cure"?
delly
Member

Re: Pain relief for sore joints when taking anastrozole

Well now Lovely Ladies - I soo apologise for "crashing" this thread, BUT, I'm on a "mission". 

Firstly, I hope you're all doing well, haven't yet in depth read into your thread, but have already recognised extremely familiar faces - Janey2, Ladyballbowler!! Hi gorgeous Fluffies - so this is where you come to avoid MOI?? Hummm, gonna tell Charys on yers!!

 

Sorry, but it's Magic I'm after - that Magical_Moon woman?? You there flower?? Get the feeling you've gone off the Forum radar and did I read something about you "cutting the apron strings"?? Understandable darlin girl. But can you please get in touch with me by pm email, if you would do me honour of. I'd really love to be in contact with you and know how you're doing. I've recently been reading back from the origins of the "Fluffy" thread, having a right good giggle and quite frankly . . . . .  I've "missed" you girl. Please get in touch. Taaaa, in advance.

 

Right, I'll leave you's all to carry on after my friendly interruption. May stop for a bit, and have a read.

Love to you ALL

Dellywellydingdong xxxxxxxx

 

Emma111
Member

Re: Pain relief for sore joints when taking anastrozole

Thank you, 3 down - 12 more to go x
Janey2
Member

Re: Pain relief for sore joints when taking anastrozole

Good luck to you both for Monday xx
Emma111
Member

Re: Pain relief for sore joints when taking anastrozole

Lena Mary, my appointments from 16th through to 31st Jan are 4.45pm! I'm sure we will meet.
I generally wear my bright blue coat in cold weather , glasses and a black beanie .... if you see anyone fitting that description it's probably me!!☺x
Janey2
Member

Re: Pain relief for sore joints when taking anastrozole

Thank you Lena Mary. I'm definitely getting there other than a blooming cold! As you live a bit away from the hospital, I wondered if they'd discussed staying in Exeter? Some people I met were put up at the hospital during treatment.
Lena Mary
Member

Re: Pain relief for sore joints when taking anastrozole

Nice to hear from you, Janey. My Rads were delayed as I couldn't make up my mind about having this treatment! Decided to go ahead with it after all. Hope you are well. Lena Mary
Lena Mary
Member

Re: Pain relief for sore joints when taking anastrozole

Hello Treeze, perhaps meet up with you and Emma too, at Exeter. So sorry to hear you have the dreaded lurgy. Hope it clears up quickly. Lena Mary
Lena Mary
Member

Re: Pain relief for sore joints when taking anastrozole

Hello again Emma 111

 

I start Rads at Exeter on 16th January.  First few appointments are around 10 am but the rest are around 5pm.  We still might meet up.  I have to have transport as we are in Axminster and husband would find it  tooo much to drive every day for 3 weeks.

 

Hope to meet up with you.

 

Lena Mary

Janey2
Member

Re: Pain relief for sore joints when taking anastrozole

Thanks Emma. I had my private acupuncture session today and floated out of the therapy centre! I'm going to book again for when I'm back at work, along with the reflexology. Hopefully my colleagues won't recognise me I shall be so relaxed! X
Emma111
Member

Re: Pain relief for sore joints when taking anastrozole

Lovely to have two reflexology treatments to look forward to. I'm def hoping to do a moving on course! Really think I'll benefit from that. I've also enquired about the Look Good Feel Better session so will hopefully do that soon. I hope your return to work goes well .....settle in and don't try and do too much too soon xx
Janey2
Member

Re: Pain relief for sore joints when taking anastrozole

Emma I've saved 2 reflexology sessions for when I get back to work. They've also said I can have my lunch break there when working nearby. It's been a real haven for me and my partner. I haven't booked on other groups but I met someone who did the FORCE moving on group and they thought it well worth booking. I don't think I can fit them in with work though. I did do the look Good Feel Better session, which was a real treat, although I've had to hide the make up goodies from the girls at home! I did have one session of reflexology straight after my last radiotherapy and it was perfect timing. X
Emma111
Member

Re: Pain relief for sore joints when taking anastrozole

Will do, thanks Brenda x
Brenda S.
Member

Re: Pain relief for sore joints when taking anastrozole

Happy New Year Emma, and everyone.  So pleased to know you started taking the dreaded pills and all is ok. I felt a bit silly after I had my panic about starting the pills, but it is comforting somehow to know I wasn't the only one! (my imagination must be a bit like yours).  

It might be helpful to know that I had one day, during the first month, when I felt very sick for about 15 minutes, which I attributed to Anastrozole.  Told my BCN about it and we think it was because I had forgotten to take it the night before so took it in the morning. She advised taking it at night.  Now if I forget at night I don't take it until the next evening....I'm sure missing the odd one is not harmful.

   As you may have read in an earlier post, I have a friend who was on Anastrozole for five years, as part of a drug trial, and she had NO side effects at all so anything is possible.  Please report again when you're further along the journey as I'd love to know how you get on.   Hope all goes well.   X

Emma111
Member

Re: Pain relief for sore joints when taking anastrozole

Happy New Year to you all.
Yes thank you Janey2, I've been to Force and had 5 massages .... saving my 6th for a month after radiotherapy I've decided. I'm also hoping to go to the art class on a Thurs afternoon until I'm due to go back to work. Ive enquired about acupuncture so hopefully will hear soon regarding when I can start. Do you ever go to the relaxation sessions on a Wed? I did over the summer during chemo and may go back during radiotherapy.
Well Brenda, you were so right ..... took my first pill this morning and nothing awful happened! Didn't spontaneously self combust as I thought may happen (such a wild imagination!). I've been for a 9 mile walk this morning and feel fine! I know I may still get side effects obviously but don't feel so nervous!!xx
Janey2
Member

Re: Pain relief for sore joints when taking anastrozole

Happy New Year to you all. Emma hello to another Exeter woman! I'm sure you've found your way to FORCE already but if not, get yourself over there and on to the Auricular acupuncture course - a wonderful group and the treatment has been incredibly effective. I still get hot flushes, but the intensity and frequency are so reduced. I've booked a private session with the therapist before I head back to work in a couple of weeks. I'm also worried about fatigue and managing my job. There is also a fatigue Physio programme (again through FORCE), which I start next week, which will hopefully have a good effect. Good luck x
Brenda S.
Member

Re: Pain relief for sore joints when taking anastrozole

I'm sending my good wishes to you all too.  I had 15 sessions of radiotherapy just over a year ago and had no real problems at all, no skin problems and only a couple of days of fatigue.  Hope it goes as well for the ladies on here who are starting treatment soon.  Let's hope 2017 is a better year for all of us.  Xx

Emma111
Member

Re: Pain relief for sore joints when taking anastrozole

Thank you for your positivity ladies.
Lena Mary, I start rads in January too (10th) ... in Exeter! Perhaps our paths will cross. My appointments are late afternoon x
Janey2
Member

Re: Pain relief for sore joints when taking anastrozole

Hello again Lena Mary! I'm sorry to hear you had problems after your ops, I thought you'd be following on straight after me in Exeter. I hope you now have a smoother experience x
Treeze
Member

Re: Pain relief for sore joints when taking anastrozole

Lena I'm starting in January too-next week.Have come down with a cold and bad chest which I could do without.I'm on anastroxole too and just have a few more hot flushes and loose bowels when I started it but that's more or less cleared up now.
Lena Mary
Member

Re: Pain relief for sore joints when taking anastrozole

Hello Emma

I started on Anastrozole about 6 weeks ago.  Apart from feeling hot at times I have not had any other problems yet.  Fingers crossed.  Everyone is different.  Chin up!  

 

I start Rads in January, not looking forward to that as I had a lot of problems after my op.  Be optimistic!!

 

Lena Mary

 

 

Brenda S.
Member

Re: Pain relief for sore joints when taking anastrozole

Hello again Emma. Sorry to know you are also suffering with anxiety. My husband suffers with anxiety so I understand what you're going through.  Fortunately I don't usually suffer with it myself but have to admit to being very anxious about starting the Anastrozole, to the point that I phoned a friend to talk it over and I actually took the first pill while I was on the phone to her.  I don't know what I thought was going to happen but  it felt almost like a panic attack and, of course, nothing drastic happened but I think when we've been through what we've all been through, sometimes we are not rational and we do get uptight about some things, but I think we have to try not to be too hard on ourselves.  We're doing the best we can, and we are allowed to be vulnerable and look for reassurance.  Keep your chin up and be kind to yourself.  Brenda.  X

helly18
Member

Re: Pain relief for sore joints when taking anastrozole

I am 49 and have had terrible pain due to the anastrozole , i am now on amitriptline along with strong cocodamol which has improved things, however as its already been said those who have no problems dont generally post and i have got together with a group of bc ladies today and a couple who have beenon AI for a number of years have no problems xx
CassieB
Member

Re: Pain relief for sore joints when taking anastrozole

I am 71 and have been on Anastrozole since March 2014. Yes I get a few arthritic type aches, but nothing really to worry about. It may even be nothing to do with the drug but simply old age wear and tear.

 

I understand from reading posts here that some people have a reaction to different Brands of the same drug and therefore ask their pharmacist to only supply the Brand they have least side effects from. Talk to your pharmacist about your symptoms and see what s/he says. Your doctor may be prepared to prescribe the one brand if the pharmacist isn't prepared to help. If all else fails, talk to you BC nurse - they have heard it all before and may well be able to tell you what other people have found helpful.

Emma111
Member

Re: Pain relief for sore joints when taking anastrozole

Thank you Brenda and Ann. I'm suffering with anxiety at mo so having a tendancy to overthink and get upset at mo. Hopefully once anti anxiety meds have kicked in I'll be able to think rationally about taking the meds next week and the benefits of it rather than thinking the worst about it before I've even started x
Brenda S.
Member

Re: Pain relief for sore joints when taking anastrozole

Hi Emma. Please don't be petrified.....only the people who have the unwelcome side effects post on this site. I am sure plenty of people don't feel as we do. In fact, I have a friend who took Anastrozole for five years with no side effects at all.  I am 68 so the aches and pains are probably worse because of my age.  If I was younger I would still be able to work, despite the aches etc.   It is fairly unpleasant but nothing to be petrified about.   Personally  I wouldn't resort to coffee enemas, but have resorted to taking Amitriptyline (prescription only) and it has taken the edge off the aches and has the bonus of making me sleep well, which I have never done.  This site is great for help and advice, and great support....it's a bit like an exclusive club!!  Please keep in touch and let us know how you get on.  Will be thinking of you.  Brenda. 

ann-m
Community Champion

Re: Pain relief for sore joints when taking anastrozole

hi emma,
Sorry to see how you're feeling, its always so anxiety provoking to read about issues with treatment, but understandably these will be posted.
I'm not on anastrazole, so cant comment, but your team will support you with any side effect issues.
btw, I personally wouldn't worry about coffee enemas!
ann x
Emma111
Member

Re: Pain relief for sore joints when taking anastrozole

I'm due to start taking this next week and after reading this forum I am absolutely dreading it! Is the pain 24/7?? It must be hideous if people are resorting to putting coffee up their bum!! I'm only 38!! Will I be able to go back to work full-time? I'm a legal secretary and due back in March ..... will the pain consume me the whole time??? I'm petrified!
jeangerbert0821
Member

Re: Pain relief for sore joints when taking anastrozole

Coffee enemas. Research it!
jeangerbert0821
Member

Re: Pain relief for sore joints when taking anastrozole

Please lookup the benefits of coffee enemas. With all the drugs we have to take we really need to detox the liver. It also helps with pain and a host of other issues. I've been doing them every morning for over a year. 2014 bc right breast. 2.8 ,cm. No lymph nodes involvement. Clear margins. 4 rounds of chemo. Complete mastectomy. I choose. Reconstruction. I was put on anastrazole for 5 years. No issues at all until recently starting with hand pain. Trigger finger. Back pain. Pelvic pain. Leg pain muscle pain. Over the counter pain meds working so far but pain keeps me hobbling a lot. Coffee enemas are important part of treatment. Do yourselves,a favor. Research it. It takes some getting used to. Difficult at first. But gets easier and easier. I will continue taking the little white pill as long as I can. I have a good friend that is stage 4. Not estrogen positive. She said she wished to God she could take the pill and be reassured . But she can't.Please weigh you options carefully. God bless all
ARK
Member

Re: Pain relief for sore joints when taking anastrozole

Had double mastectomy in June for stage 1 cancer. Did fine on Anastrozole for first three months before starting to notice joint problems. Within a few weeks I felt like I had aged 10 years. Extreme joint pain all over, but worse in hips, pelvis and hands. After contacting oncologist stopped drug 8 weeks ago, much better, but finger joints remain swollen. Have now been prescribed Exemestane, but afraid to start taking this as I just had Expander and fat transfer surgery 10 days ago. Anyone here switched drugs and had good results or suggestions.

Brenda S.
Member

Re: Pain relief for sore joints when taking anastrozole

Hello and welcome. Must admit I haven't tried any "alternative" remedies but haven't ruled it out either.  I have been taking Amitriptyline now for a couple of months and I think it has taken the edge off the pains, and I do feel better first thing in the morning, which is a huge relief.  I still have trigger fingers on both hands and the aches and pains certainly haven't gone, but feel less troublesome.  I now feel I can live with these side effects but, of course, would be delighted if anyone has any ideas for getting rid of the side effects altogether!  I don't feel brave enough to come off Anastrozole, but don't blame anyone for doing so as the aches and pains are quite annoying and debilitating, to put it mildly.   I hope you will get support and help from this forum. I have found it very helpful.    X

Emma111
Member

Re: Pain relief for sore joints when taking anastrozole

Has anyone tried acupuncture / reiki / massage for your side effects? I've been advised it can minimise side effects. ...advice?x
Houghj40
Member

Re: Pain relief for sore joints when taking anastrozole

I have had the joint pain from all 4 types of breast cancer drugs to the point I was practically crippled. My consultant finally admitted that this happened to 10% of woman in the trials who dropped out. After lengthy discussions with my oncologist I have decided that the 1.4% extra life expectancy it bought me statistically was  not worth the misery I was experiencing, and stopped all drugs. I feel so much better and I am sure the ability to exercise again is a huge health positive. Each decision about these drugs depends on the personal circumstances but the news this morning that someone wants to prescribe anastrozole as a preventative to healthy women makes me shudder.

Brenda S.
Member

Re: Pain relief for sore joints when taking anastrozole

Hi Treeze, welcome.  Sorry you are feeling so rough.  I think you will find medical people very understanding about this and am sure you will be able to change pills, but I was told that side effects will be at their worst in first 2-3 weeks and then calm down a bit.  

Just a thought from my own experience; I decided from the start that I would take the pills at night but I forgot to take it one night so took it in the morning and felt VERY sick a few hours later. I rang my Breast Care Nurse and she advised taking pill with/after food and always at night.....which the leaflet in the tabs doesn't say, but since then I have only very occasionally felt nauseous, and if I forget pill at night I don't take one until following night.  Not chancing feeling so sick again!   I realise you may already take yours at night but thought it worth mentioning.  It may be that chemo makes nausea more likely, but I was lucky enough not to have chemo so not sure about that.  Please report back to let us know how you get on.   You will get a lot of good advice and support on this forum....I know I have!

All good wishes.

Brenda S.

Treeze
Member

Re: Pain relief for sore joints when taking anastrozole

Just saw this thread and wondered if I could butt in! I've only been on anastrozole for a week I know but feel horrible..I've coped reasonably well with chemo so far and waiting for surgery but since taking them I feel nauseous..I've had no sickness with chemo..and dizzy and spacey all the time.don't want to go out or eat much and I've been eating well.will this pass or would I be able to try something else?
Brenda S.
Member

Re: Pain relief for sore joints when taking anastrozole

Hello cajunsurvivor, good to hear about your experiences, and pleased to know that now you're off Anastrozole you are pain free - must be great for you after all that pain.  Have you changed to another pill or come off all medication?  It's great that you are back to being sporty as you were before the A.  How encouraging for you.  You have obviously made the right decision for you.  It's  always good to hear of other people's experiences, so thanks for joining in the discussion.  

With all good wishes

Brenda S.