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Pain relief for sore joints when taking anastrozole

262 REPLIES 262
Yorkie
Member

Re: Pain relief for sore joints when taking anastrozole

Glad the Voltarol worked for you. Sadly made no difference to me but we are all different and some things work better than others on people, hence my suggestion. The uddermint will not suit all, but the farming crowd will appreciate its possible benefits. It’s always worth telling people what products have helped you but you only need to read Amazon reviews of products to see how different our experiences are.
For those who don’t fancy trying that, or the expense, try Biofreeze gel . I use that when not in an enclosed space! . That works better than Volterol for me.

 

Nyr4evr
Member

Re: Pain relief for sore joints when taking anastrozole

I had the same problems with my fingers especially thumbs. I rubbed my fingers with voltaren. Finally no psi. After a few weeks. I was lucky. Keep us with the voltaren  cream 

Yorkie
Member

Re: Pain relief for sore joints when taking anastrozole

I am 2 months off completing 5 years of hormone therapy. 18 months of Tamoxifen followed by Anastrozole. I have always had the Accord brand of Anastrozole as i learnt with Tamoxifen before that different brands have differing side effects. As i found the Accord brand had less side effects, i have asked for it on prescription. I have done fairly well on it but have lots of hot flushes and periods of fatigue at different points in the day. I wake up with muscle ache which clears after a brisk walk.Just the past few months i have had a stiff painful, swollen hand. I am not sure if its related to Anastrozole but as i only have a short time left on it i will just see what happens when i finish. I have read with interest peoples advice on what to relieve symptoms.  I am going to add to this with the suggestion that you give a product called Uddemint by the company Teisen. So ok, its meant for cow udders when they get mastitis, but a farmers wife suggested i try it, apparently many farmers use it on their hands!! . Look it up on Amazon. Its not as mad as it sounds. Be warned though, its a very strong minty smell.

lamcgowa
Member

Re: Pain relief for sore joints when taking anastrozole

My hands swelled while taking exemestane and I had terrible trigger thumb. The pain kept me awake at night and I could not bend my thumb at all. My oncologist switched my prescription to anastrozole but there was no improvement. I tried a brace, exercises, and voltaren cream. Finally I heard about P5P (pyridoxal-5-phpsphate) and asked my oncologist if it was safe. He agreed that it is safe to try but didn't know of any supporting clinical trials for this use. P5P is a bioactive form of vitamin B6. I found P5P at a vitamin store and took 50 mg per day. Although my hands were still swollen, within weeks my trigger thumb, and pain were completely gone. I've read that this sometimes takes months to work but this is a non-toxic form of B6 so you don't have to worry about taking it for a while. Like me, you should of course, check with your doctor first. Good luck.

Nyr4evr
Member

Re: Pain relief for sore joints when taking anastrozole

I agree about pills. That is why I use voltaren cream. My husband now used it for joint pain 

Nyr4evr
Member

Re: Pain relief for sore joints when taking anastrozole

Please trying the voltaren cream it helped me. Dint stop the anastrazole. The reports are so,positive of it preventing breast cancer it continues to works long after stopping it. I am three years in. Walk and exercise everyday. Very little reason to stop. They all have side effects. Good luck. Stay active 

Nyr4evr
Member

Re: Pain relief for sore joints when taking anastrozole

I had severe thumb joint pain. I used religiously voltaren rubbed in the joint twice a day. It helped my joint pain. My doctor felt it was arthritis. I feel it was the anastrazole. All I know the voltaren stopped it. Walk half hour every day that also helps 

Alabama54
Member

Re: Pain relief for sore joints when taking anastrozole

I too have pain pretty much constantly in my wrist and fingers and it’s quite depressing. I sometimes take paracetamol just before bed which gives me a better sleep. Maybe not as harsh as aspirin. I do a lot of exercise and after 9 months although I cannot lift heavy weights yet I’m building up gently. Also found Tai Chi really helps. Good luck.

 

penelope2020
Member

i've tried it, but it didn't helped me at all. When i had...

i've tried it, but it didn't helped me at all. When i had pains after surgeries i needed pain relievers and only kratom helped me properly. I found a service that has the most effective kratom, than any other, and I tried several other online stores. So-if you are bored or depressed, you can try it, you will not regret it. Their customer service is excellent because they are honest, kind and reliable. They ship the product on the same day, and you can be sure that you will receive your order in a maximum of two days. If ever a mistake is made on their part, they will correct it. They are a blessing to me. So if you want to test it, just buy it here wekratom.com as far as I can tell, this is the best thing I've ever used. It really helps me reduce the pain and rest.

Nyr4evr
Member

Re: Pain relief for sore joints when taking anastrozole

I use voltaren on my thumbs and has helped. I guess it wasn’t the anastrazole like my doc said 

Nyr4evr
Member

Re: Pain relief for sore joints when taking anastrozole

I use the accord manufacturer  of anastrazole. I do well. Joint pain is much better  I. Used voltaren cream on my thumbs whuch were given me trigger finger. I am in year three and have no major problems on anastrazole. Tough beginning but good now. Good luck. They say it is the drug of choice 

Nyr4evr
Member

Re: Pain relief for sore joints when taking anastrozole

Try rubbing them with voltaren   That has helped my pain in thumbs 

Nyr4evr
Member

Re: Pain relief for sore joints when taking anastrozole

I hear the anastrazole seems to be the pill of choice   I have had bad thumb pain but voltaren has helped that   I have gained weight but most is caused by fear of COVID. I have gained but I will beat this on anastrazole. Good luck. 

Nyr4evr
Member

Re: Pain relief for sore joints when taking anastrozole

I got a tremendous relief from voltaren cream for joint pain. I thought mine was anastrazole. My oncologist said no. She was right after treating my thumbs with voltaren I am pain free. Please try before giving up on anastrazole 

Nyr4evr
Member

Re: Pain relief for sore joints when taking anastrozole

I used voltaren twice a day on my thumbs. No more pain

Nyr4evr
Member

Re: Pain relief for sore joints when taking anastrozole

I have been using for thumb pain twice a day Voltaren. It is now over the counter it helped me amazingly

 

 

TrueEarl
Member

Re: Pain relief for sore joints when taking anastrozole

How do you reduce the pain? My friend recommended me kratom, has anybody tested it?

Nyr4evr
Member

Re: Pain relief for sore joints when taking anastrozole

I have been told and read that anastrazole is 97% effective in cutting down recurring breast cancer. I go in the internet and read great things about it

Nyr4evr
Member

Re: Pain relief for sore joints when taking anastrozole

Try to hang in. You only have one more year. I am only 18 months into this. I need your strength to keep me going. 

Nyr4evr
Member

Re: Pain relief for sore joints when taking anastrozole

Hope I am as lucky as you are. Very bad thumb pain today in both thumbs. None at night thank god. But daytime is tough. I try voltarin cream  or ice   Anyone out there with other suggestions. I also went in line for trigger thumbs exercises. I do that also. 

Nyr4evr
Member

Re: Pain relief for sore joints when taking anastrozole

I have been on the accord manufacturer of anastrazole The only problem I have is with thumb pain. I have ordered a thumb splint to try that. I am 18 months and night sweats are gone. I walk everyday 30-45 minutes   I believe that helps. I am rubbing Voltarin in my thumb. I do not want to change from anastrazole. They all have side effects. I will hold on 

Nyr4evr
Member

Re: Pain relief for sore joints when taking anastrozole

I find walking every day half hour does help foot and knee pain. As for the thumb joint pain. I got a thumb icer finger splint from Publix. It has an ice pack to use. It does relieve for a time. Mine only hurts when opening something. Your doc is right don’t open with that hand 

Nyr4evr
Member

Re: Pain relief for sore joints when taking anastrozole

I find elevating my feet at night helps the knee pain. I also swear that walking everyday ha,f hour keeps my knees pain free. Have no cure for my thumb joint pain. Only hurts when I go to open something. Doc said don’t open anything. Ha ha 

Brenda S.
Member

Re: Pain relief for sore joints when taking anastrozole

Thanks Mollybee. After about a year on Anastrozole I developed new pains in my hands and eventually I got “trigger finger” on one finger of each hand, and it got so bad that if I had to bend the finger to hold something, I then had to straighten the affected finger using the other hand, and those fingers were so painful to straighten, but both hands were painful from fingertips to wrists. Had that problem for a few months before it completely disappeared and have had no hand pain or trigger finger since....very strange! So, every time I get pains now I always hope they will go on their own, but that hasn’t happened with any other pains unfortunately.  I have my four-year checkup in July so might ask consultant and my breast care nurse about coming off Anastrozole. I know they can’t make the decision for me, and guess they would prefer it if I stayed on meds!

Thanks for your message, it has helped a lot!  Keep in touch

brenda

 

Mollybee
Member

Re: Pain relief for sore joints when taking anastrozole

Brenda, if you have a lot of aches and pains and they are caused by Anastrazole you should find they disappear after two or three weeks, certainly a month, as mine did.  I am also 3 and a half years in, and couldn't stand it any longer but it was my hands only that were affected.  I was told the hands are usually where the joint pain is worst.  

Kathy, I had never heard of the Predict website either, and that is a very good tip, thank you.  Not really sure how to use it as I had two tumours, one tiny and triple negative, and the other ER positive and a bit bigger, but my "chance of dying in 10 years" was said to be 6% if I had chemo, which I did. So that doesn't seem bad odds at my age, and therefore I'm not willing to put up with a greatly reduced quality of life.  (Although I have already had 3 of those years now so it doesn't seem quite as remote!). Next time I see the oncologist I will ask him to look at Predict with me.

We should probably all be looking at how to live our lives as well as we can.  I am definitely thinking quality over quantity but it's easy to say.  Very different at 70 to 30 or 40.

Mollybee
Member

Re: Pain relief for sore joints when taking anastrozole

Brenda, if you have a lot of aches and pains and they are caused by Anastrazole you should find they disappear after two or three weeks, certainly a month, as mine did.  I am also 3 and a half years in, and couldn't stand it any longer but it was my hands only that were affected.  I was told the hands are usually where the joint pain is worst.  

Kathy, I had never heard of the Predict website either, and that is a very good tip, thank you.  Not really sure how to use it as I had two tumours, one tiny and triple negative, and the other ER positive and a bit bigger, but my "chance of dying in 10 years" was said to be 6% if I had chemo, which I did. So that doesn't seem bad odds at my age, and therefore I'm not willing to put up with a greatly reduced quality of life.  (Although I have already had 3 of those years now so it doesn't seem quite as remote!). Next time I see the oncologist I will ask him to look at Predict with me.

We should probably all be looking at how to live our lives as well as we can.  I am definitely thinking quality over quantity but it's easy to say.  Very different at 70 to 30 or 40.

Brenda S.
Member

Re: Pain relief for sore joints when taking anastrozole

Hello Mollybee, it was really interesting to get your reply. Forgive me if you get two replies from me but I replied before signing in and can’t see my original reply so assume it didn’t get sent. Anyway, I am seriously considering coming off Anastrozole as my aches and pains, and the flushes and night sweats get me down and I would love to feel like my old self again. I am now 70 so have to accept some age-related aches but think I will perhaps not take the pills for a couple of months to see what happens. I am 3 and a half years on the journey so have given it a good go!!

 I have this morning seen a really helpful reply on this forum, from Kathy - which I hope will help you with statistics and percentages, and Kathy, if you are reading this, I had no idea about Predict, so have now looked at that and it does indeed show things very clearly so thank you for that!

look forward to reading more of your posts Mollybee and Kathy.

all good wishes

Brenda

kathyx
Member

Re: Pain relief for sore joints when taking anastrozole

I agree that the benefits of an AI can be minimal - in my case 2/4/6% over 5/10/15years, which is one of the reasons I'm still looking at my first, unopened, box of Arimidex. Like you, I'm older and, as a childless widow, quality of life overrides a small increased risk of reoccurrence.

What I find particularly shocking (and this seems to happen in several countries) is the way that these figures are manipulated by doctors to make it appear that the benefits are greater than they are. I frequently read comments like "My doctor says it'll give me a 40/50% improvement" but  few women stop and ask, "50% of what?". If your risk of recurrence is 4% then reducing that risk to 2% is indeed a 50% reduction, but the reality is, as you say, only an improvement of 2%.

I cannot believe that intelligent, educated people like doctors don't understand the mathematical concept so have to accept that they phrase it this way to frighten women into treatment regardless of qol issues.

Thank goodness for https://www.predict.nhs.uk/index.html

Mollybee
Member

Re: Pain relief for sore joints when taking anastrozole

Hi Brenda, thanks for your reply to my previous post which was back in November!  Hadn't realised it was so long ago.  Well, I told my oncologist about the severe joint pain and taking Tramadol and he immediately said I was paying too high a price for the small benefit of anastrazole.  Told me to come off it for two months and return to him.  This I did and the joint pain was dramatically better.  Still have the arthritis so will always have some pain but not like it was on Anastrazole.  He asked if I would like to try Tamoxifen which is 98% as effective and doesn't cause joint pain but does have other effects.  I decided I would and have now been on it for a couple of weeks.  I have awful indigestion which I'm assuming is one of the effects but ok apart from that so far.

What puzzles me a bit is that no-one on here seems to have mentioned that the hormone therapies, Anastrazole and Tamoxifen, only give limited protection from a return of cancer, a 2% benefit was mentioned to me.  It does make me wonder if quality of life (i.e. drug-free) should override the risk of a return of cancer, with all the difficulties that these drugs cause.  Admittedly I am older than many ladies on this forum and if I were younger, and with young children, I would take anything that gave me more of a chance.  As things are, I am prepared to suffer some indigestion but if things get worse I think I might re-consider, in favour of a more comfortable (if risky!) existence!

Good luck with your own treatment and I hope you continue with your treatment without too much discomfort.

Julia S
Member

Re: Pain relief for sore joints when taking anastrozole

Dear all,

 

not quite the same, but I was switched to exemestane + zoladex after (really) not getting on with tamoxifen, and I started experiencing joint pain (quite bad in the mornings). I spent 2 weeks with vegan friends, and the pain went away completely. So no cause-effect is sure, this is anectdata, but I was quite surprised and am certainly keeping my change in diet. When I came back home, I ate some leftovers with cheese in them and next day the pain was back - when I was more careful the pain went away. It could be worth a try.

 

I take valerian every night to sleep through the hot flushes, btw, seems to work.

 

Good luck,

Julia

Brenda S.
Member

Re: Pain relief for sore joints when taking anastrozole

Hi Mollybee, welcome!  I’m sorry to read that you are having trouble with joint pain, and it is natural to assume it is a progression of your arthritis.   I think we all have different reactions and side effects from these drugs, and really can only tell you my experience, and hope that others will reply too.  I also have the impression that Anastrozole is the best choice for keeping the cancer away.  I have had quite severe aches and pains since taking it, and my GP prescribed Amitriptyline which I take at night as it also helps me sleep! I am sure this is helping, although do still have aches but less severe. Another tip - I read on here a while back that even changing the brand of Anastrozole can help. I had been taking the Accord brand and then changed to Teva brand, and this has helped too, although my pharmacy can’t always get Teva, so it’s a bit hit and miss!

i do hope things improve for you, let us know how you get on. Best wishes, Brenda. 

Mollybee
Member

Re: Pain relief for sore joints when taking anastrozole

Hi everyone, I had my bc treatment 3 years ago - mastectomy, chemo and rads and been on anastrazole since then.  I haven't been online for two years as I was never really aware I had any problems connected with my treatment.  I have had really bad arthritic fingers and thumbs for years but much worse in the last couple of years.  I thought this was just the normal progression of arthritis, until I saw my surgeon for my regular annual checkup recently.  For the first time I was asked if I had any joint pain.  When I mentioned the pain in my hands, which is really severe now, he said it could be the anastrazole making it worse.  I had also had cortisone injections into my thumbs a few months ago which had no effect at all, and the surgeon said the anastrazole could prevent the cortisone from taking effect.  He suggested I talk to the oncologist about changing to something else.

 

Im now wondering whether or not to ask to change. It seems from this forum that all the hormone blocking drugs have some side effects.  I do also feel tired and have hot flushes, mainly in the form of awful night sweats.  But my hands are so bad, I'm taking paracetamol and Tramadol but there isn't a lot of relief even from that.  I'm afraid if I talk to the oncologist he will say (as I've heard others were told) that anastrazole is the best insurance against recurring bc, and I will have to choose between recurrent breast cancer and arthritis.  A rock and a hard place!

Raddlez7
Member

Re: Pain relief for sore joints when taking anastrozole

So much to say if interested I will finish later
Of to work
As a new anastrozole taker - 4 months now
My docs n I both agree one should b taking calcium n D3 when taking Anastrozole. I believe this is protocol. (How much was the question). The D3 helps the joint pain. Also weight bearing exercise.

This is the path I took. Please note if need proper medical terms, I will look up for you. Below is layman terms and summary.
1) I took 1 month of research n questions b4 I decided to take Anastrozole (or different pill or no pills)
2) Anastrozole can cause osteopiana or osteoporosis - bone density test should b done b4 taking any of these pills (exem, taxo, etc)- Bone density test was done on right hip and tailbone. Right hip showed mild osteopenia. Anastrozole takes calcium from bones. I believe that is part of joint pain.
3) blood work from prior records (annual blood work, blood work when flu, blood work results when determining bc, etc) plus get new blood work.
4) based on 2) n 3) I worked out what I though necessary and brought info to docs.
We came out with calcium n d3 amount
5) so I take my pills, walk twice a day, n at work I move as sitting to long make u stiff
Off to work
Hope this helps someone


Brenda S.
Member

Re: Pain relief for sore joints when taking anastrozole

Hi Rosemerry. Sorry to hear you are having a rough time. I don’t think there are any non drug alternatives, but see if you can try a different brand of Anastrozole. I started off with Accord brand and swapped to Teva, and my aches and pains have improved. I am also on Amitriptyline for the pains, which I think are helping. Unfortunately both Anastrozole and Amitriptyline can make you gain weight, which I’m not happy about, and am thinking about coming off the Amitriptyli, but it’s difficult to know what to do.. I do hope someone on this forum can help you. Take care.
Rosemerry
Member

Re: Pain relief for sore joints when taking anastrozole

Yes. Severe pain that keeps me awake even with a sleeping pill sometimes. So bad. What is the alternative? Any?

Rosemerry
Member

Re: Pain relief for sore joints when taking anastrozole

Hi - Thank you for the information. I did not know there were different "brands" of Anastrozole. I started mine about 2 1/5 months ago and the pain in the joints is getting so severe. I am very new to this forum. Aren't there non drug alternatives to estrogen blockers? 

MollyMaid
Member

Re: Pain relief for sore joints when taking anastrozole

I started having joint pain several months after starting anastrazole.  I now take glucosamine and find this helps a lot.  My hands and legs still feel very stiff first thing in the morning, but I don't get any joint pain now.  I just wish I didn't feel so tired and could get rid of the hot flushes.

RenHab
Member

Re: Pain relief for sore joints when taking anastrozole

Hello,

I am new to this group and would love some advise on night joint pain. My knees are waking me up at night throbbing. I try and exercise every day to help with the pain but this is getting unbearable at night particularly.

Any advise/ideas would be greatly appreciated.

 

thank you 

Janey2
Member

Re: Pain relief for sore joints when taking anastrozole

Vicki that sounds rotten for you.  I'm now 4 months into Exmestane after a month off anastrazole.  I am struggling with fatigue again but my joints seem to be okay so far.  It's odd how we all react so differently.  I was told tamoxifen would be the next one to try if no joy with Exmestane, but I'm hoping I will continue to be okay (other than the fatigue) - have you some options to change again?.  Anxiety was definitely an issue for me on Anastrazole and I think others have done well with amatryptaline.

I felt so much better for having a break, I was very anxious about starting another tablet.  However, I then found another lump.  Luckily it was absolutely nothing to worry about, but the fear led me to start tablets again.

Wishing you very well xx

 

Brenda S.
Member

Re: Pain relief for sore joints when taking anastrozole

Hi Vicki.  So sorry you are having such a miserable time. Not sure how much I can help as I am suffering with joint pain, tiredness and hot flushes. I have been taking Anastrozole for two years. I had read on this forum, and have first hand witness reports from someone who changed brand of Anastrozole with amazing results.  I asked my pharmacy if they would order a different brand for my next repeat prescription but unfortunately they were sent the old brand by suppliers. New ones ordered again so I HOPE I will be able to report something positive in due course.

Regarding the Amitriptyline, I hope you were told to take this at night?  As well as helping with the pains, it really helps me to sleep.

I really hope someone on here will be able to help you, and look forward to reading about your progress.   Brenda.  x

Brenda S.
Member

Re: Pain relief for sore joints when taking anastrozole

Hi Vicki.  So sorry you are having such a miserable time. Not sure how much I can help as I am suffering with joint pain, tiredness and hot flushes. I have been taking Anastrozole for two years. I had read on this forum, and have first hand witness reports from someone who changed brand of Anastrozole with amazing results.  I asked my pharmacy if they would order a different brand for my next repeat prescription but unfortunately they were sent the old brand by suppliers. New ones ordered again so I HOPE I will be able to report something positive in due course.

Regarding the Amitriptyline, I hope you were told to take this at night?  As well as helping with the pains, it really helps me to sleep.

I really hope someone on here will be able to help you, and look forward to reading about your progress.   Brenda.  x

Vicki74
Member

Re: Pain relief for sore joints when taking anastrozole

Hi all..... I really need some advice. I have started anastrozole after the exemestane side effects made me feel nauseous all day & joint pain was horrendous. I had been on tamoxifen for 2 years and had what I thought were bad side effects. I am 43 and in 2014 was diagnosed invasive breast cancer stage 2b it was 4.9cm & I went on trial to see if I could get a lumpectomy which I did as went to 1.9cm with chemo and 30 rounds of radio. I then had preventative surgery and had my ovaries & fallopian tubes out hence post menopausal now. The nausea is less bit joint pain the same. I can cope with pain buy not this... I am crying from the pain. I have crohns so any anti flammitory is causing that issues.... I am so tired and sore and am at my wits end. I was given ammitripilin when on tamoxifen but made me muzzy headed so I stopped, I take gluclostamine, turmeric, vit d, magnesium natural aids but no difference, I am also having insomnia..... I don't know what to do.....
Brenda S.
Member

Re: Pain relief for sore joints when taking anastrozole

Hi Katy, I did forget to mention that, unfortunately, partly due to Anastrozole and partly due to my own lack of good sense, I have put on over a stone since starting Anastrozole!! So cross with myself but I do think it is partly medication. Hope you enjoyed your walk with your friend, it is much more fun walking with someone else isn't it. Do hope you feel better. Keep in touch. X
Katy
Member

Re: Pain relief for sore joints when taking anastrozole

Hi Brenda I admire you for changing your lifestyle, I will try harder. I've been a walk today with my friend who is on chemo at the moment. Well done on losing so much weight.
Janey2
Member

Re: Pain relief for sore joints when taking anastrozole

Hello Dellywelly xx
Janey2
Member

Re: Pain relief for sore joints when taking anastrozole

Ouch, that sounds rotten. It's funny my oncologist told me I'd get used to anastrazole, but the surgeon said stop straight away! X
Scotty
Member

Re: Pain relief for sore joints when taking anastrozole

I've reported the back pain to my renal consultant, who ordered bone scan, then x-ray follow on, then from those results, I'm booked for MRI this week. He said he would write to oncologist to ask for change from anastrozole, as I am showing high serum calcium, bone thinning and have a patch on my femur that doesn't look too good. He said anastrozole is known to be the cause of this. Funny how oncology underplay the side effects. For me it's not just a bit of pain, it's a real physical effect on my bones and joints. Feel like blood has to squeeze through joints at the moment! 

Susangerber42
Member

Re: Pain relief for sore joints when taking anastrozole

Good day. 

I'm also struggling with severe joint pain. I was diagnosed in 2014 with breast cancer, stage 1, i had a limpectomy , 6 weeks radiation. I fistvuse tamoxifen, but couldn' t get on with it. I've been using Anastrazole for a year, but its killing me. Im strugling to stand up when i.d sit for a while, during the night im aware of joint pain,  want to do exercise, recommended by drs ,but cant get myself in foing so. Numbness in fingers, stiffness in legs, any help or assistance regarding this. Im feeling in stop taking this and use canabis.   Anyone feeling ,experiencing the same? 

Janey2
Member

Re: Pain relief for sore joints when taking anastrozole

It's been an eye opener the last few weeks. Hoping it's not just a blip but will see how the next tablets go. It's been a heck of a wait for that MRI Rubycat xx
rubycat
Member

Re: Pain relief for sore joints when taking anastrozole

Janey, what a long list of improvements - I could do with those. Really glad that there is such a lot of benefit for you.  I'm now considering whether I should change from the anastyzole.  Am just going to wait now till after my second Dexa scan (May - hopefully) and the MRI (whenever that will be) to see if there are any changes with the old bones.  Cat Very Happyxxx