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Pain relief for sore joints when taking anastrozole

cils
Member

Re: Pain relief for sore joints when taking anastrozole

Hi magical moon ,

thank you so much for your reply your layout of questions and answers are very percise and methodical to the point which i like and clear and understanding.you have enlightened me to questions i did not know and helps me to understand what to expect.

It is nice to know someone who has experienced some thing i might have to have.(will have) in the near distant future .

It is true then that you can get cateracts from taking anastrozole(aremidex)?

Just another thing we have to go through and cant get out of it.

my vision in left eye is slightly more blurry in long sight than the right ,if i put my hand over my right eye glass for reading the left eye is blurred or slightly blurred writing.only had eye test and new prescription 2 months ago.

suppose the eye sight will go both long sight and short sight at the same time?

as you say if you got cateract in eye already it will get worse gosh not looking forward to it at all.

at least its something they can fix.

take care magical moon will speak soon xx

Magical_Moon
Member

Re: Pain relief for sore joints when taking anastrozole

Hi Cilla,

The thought of having surgery on your eye is scary. I was very anxious but, now I have had my first eye done, I can reassure you that it is a very speedy, painless operation.
How long was op?
Only 10 minutes. It was incredibly fast, I asked the nurse to time it for me.
Did it hurt?
No. There is no pain. You are aware of something pressing on your eye intermittently which is caused by the small surgical equipment used to hold back your eyelids.

Will it grow back?
No. The cataract is the clouding within your natural eye lens. During the operation your natural 'clouded' lens is removed from the lens capsule inside your eye and replaced with a new artificial lens implant. The artificial lens implant will not develop another cataract. However, sometimes the natural lens capsule can become clouded a few months or years later. The risk of this happening is 1 in 10 patients but it is easily rectified by a simple laser procedure to correct it.
How was it when surgeon was attending to your eye (scary)?
Yes, I was scared when I laid back in the operating chair because I didn't know what to expect and was hoping the anaesthetic had worked. However, the whole procedure took no longer than 15 minutes. Part of this time (5 minutes) was used to clean around my eye with antiseptic solution and place a sterile sheet over my face. There is a gap in the sheet over the eye being operated on. The other eye is covered up. A fan placed underneath the sheet blows cool air over your face.
The best advice I can give for during the operation is to concentrate your mind on looking at the swirling, coloured lights you can see. You CANNOT see any instruments the surgeon is using or feel them touch your eye. Everything is blurred because of the local anaesthetic and also from the sterile liquid which is swished into your eye. The liquid causes the swirling lights effect.
DO NOT think about what the surgeon is doing. I did for a fleeting second and it was scary and a huge mistake. Think of lying on a beach, looking at the swirling lights, George Clooney, eating your favourite chocolate, etc. Just about anything but NOT what the surgeon is doing to your eye!
How did they freeze the eye?
A tiny pellet (the size of a grain of rice) was placed inside the lower lid of my eye. This contained the local anaesthetic and the nurse put the pellet in about an hour before the operation.
Can you see much clearer?
Yes, within 24 hours your vision comes back well enough to get around. Colours are much brighter. I had to wear my sunglasses the following morning because the light was too bright. Although the lens implant has a distance vision prescription suited to your specific eye measurements, I still need an additional prescription glasses lens to get 20/20 vision because of the shape of my cornea. You have to wait six weeks post surgery before having an eye test if you need glasses.
How bad had it become before I had cataract surgery?
My cataract was very fast growing. My ophthalmologist found the early stages of one in my left eye in December 2014. Six months later (August 2015), it was much worse. By then, I had double vision and very poor visual acuity which could not be corrected by wearing a prescription lens. My balance was affected because I could only see clearly with one eye. I felt unsteady as if I was falling over which made me feel sick and dizzy. Going down stairs/steps was awful.
When the symptoms get so bad to affect your day to day living, driving etc. your ophthalmologist will be able to refer you for cataract surgery.
Cilla, I agree it is another hurdle to go through but it is such a relief to get your eyesight back. Once a cataract is detected, your vision will only continue to get worse. As soon as your ophthalmologist is able to refer you for cataract surgery, tell him you want to go ahead with surgery and get on the NHS waiting list.
From referral in early August 2015, I waited just over three months for my surgery date on 24 November 2015. Then, four and half months waiting for my second cataract surgery on 12 April 2016.
If you have any more questions, just ask. Happy to help.
Peace and Positivity,
M x

cils
Member

Re: Pain relief for sore joints when taking anastrozole

high magical moon lovely to hear from you again just a few questions on your cateract operation

  • how long was op
  • did it hurt
  • will it grow back
  • how was you when surgeon was attending to your eye (scary)
  • how did they freez it (needle in eye}
  • can you see much clearer
  • how bad had it become before you could have it done

was yours afast growing cateract what time span did it grow in

soory about questions its just another hurdle to go through.Woke up still stiff in joints and my back but dont let it get me i get moving to get it loosend up.i bet yoga would be good.just hope it goes when tablets finish another 2yrs to go.

speak to you again magical moon 

regards cilla........:

Magical_Moon
Member

Re: Pain relief for sore joints when taking anastrozole

Hello Cils,

Lovely to hear from you again.  Hope you are keeping well despite having to live with the ubiquitous side effects of Anastrozole.  I'm still struggling with chronic pain and associated fatigue but haven't plucked up the courage to stop taking Anastrozole for a month to see if my pain reduces.

From the research I have done, I've not found a definitive answer about the chances of recurrence after 5 years of Anastrozole.  The NHS Predict tool does give survival percentages at 5 years and 10 years taking and not taking hormone therapy but these percentages are estimates for general guidance and not case specific.

http://www.predict.nhs.uk/predict.html

The possibility of a recurrence appears more dependent on the size, type and stage of an individual's original BC diagnosis.  Although Anastrozole will help ladies who had a high ER+ score, it is only part of the bigger picture.

To be honest, I would love the medical research scientists to give us definitive statistics but nobody is going to be that bold.  A BC diagnosis can be like a lottery and a recurrence can be too.

Sorry to hear you have developed a cataract.  The cataract surgery on my left eye went very well last year in November.  On 12 April, I will be having surgery to remove the cataract in my right eye.  Please feel free to ask me any questions.  I am more than happy to help you.  I live in England and my eye surgery was done through NHS.  My eye surgeon has a local private practice but is a consultant at my local NHS hospital as well.

Peace and Positivity,

M x

 

cils
Member

Re: Pain relief for sore joints when taking anastrozole

Hi magical moon,

thought i would drop a line to ask how are you faring . Hope you are better with the anastrozole side effects, i have had a 2nd bone scan and have been put on Ad  kal calcium tablets for bone thinning hope i don't have to take for life after finishing anastrozole(will ask doc)

does anybody know if there is much of a recurrence after 5 yrs of anastrozole?

gosh all these ladies describe many symptoms similar to my own mood swings ,being down ,forgetfulness etc its good to know other people have it too.

would like to ask you about cateracts operation as i have developed cateracts in my left eye.

do you live in england?

best wishes cils 

Magical_Moon
Member

Re: Pain relief for sore joints when taking anastrozole

Hello Kimmie,

Welcome to the thread.

It is always good to share each other's experiences so we do not feel alone or think we are imagining things. Just knowing someone else has had the same symptoms and can offer suggestions to ease the pain is beneficial.

I am sorry that you are having extreme pain in your wrists.  It's no fun is it?  Living with severe pain is a huge challenge especially when you are trying to get your life back to some kind of normality after BC.  I do hope you find something that will ease your pain.  If you do, be sure to come back and tell us.

Not long to go before your first anniversary.  You always feel anxious at these milestones but it is lovely to get the confirmation NED.

Keep in touch and thanks for joining in.

M x

KimmieV
Member

Re: Pain relief for sore joints when taking anastrozole

Thanks so much for all of the posts on here. I have extreme pain in both wrists now. Fingers ache and I have trigger fingers! I feel fortunate it is just my wrists but such a change in how I used to be. My oncologist said all of this pain is definitely from Arimidex. I'm actually on the Accord Brand of Anastrozole. I tried Letrozole for a while but it got worse and caused my 1st 3 fingers on one hand to tingle too so I switched back. It took more than a month for the tingling to get better so perhaps this stuff stays in our system longer than 30 days. I'm looking forward to trying some of the suggestions listed and hope to be able to post some myself. Y'all have given me hope and a new outlook on this pain. My 1 year cancer free is coming up in June also.
Carolyn52
Member

Re: Pain relief for sore joints when taking anastrozole

I take Letrozole but get aches and pains etc and sometimes find a glass of tonic water very helpful, Also cod liver oil tablets do help too. 

Somewhere on the boards some had good results with Devils Claw as well. All worth a try to ease the symptoms.   

Magical_Moon
Member

Re: Pain relief for sore joints when taking anastrozole

Like your friend, I am in constant pain.  I'm on the Accord brand and have awful side effects. I tried the Teva brand and it made me feel even worse so I went back to Accord.

I know some ladies do find that side effects become less by changing brands.

Personally, I believe that my body cannot tolerate being deprived of oestrogen. Aromatase Inhibitors reduce the amount of oestrogen within the body by approx. 95%. My thoughts are that some ladies' bodies do not react as strongly to the reduced oestrogen so have minimal s/e's.  Whereas those that have very bad s/e's are much more sensitive to the oestrogen deprivation.  I am not a medical scientist so could be completely wrong.

Unfortunately, my BC was 8/8 ER+ so feel that my choice to stop taking Anastrozole is somewhat compromised.

Prior to being diagnosed with BC, I took HRT for 12 years.  Absolutely no regrets because I felt absolutely FANTASTIC!  I was topped up with oestrogen but stopped immediately on day of diagnosis.  Now I am at the opposite end of the oestrogen scale with almost none.  No wonder my body is reacting badly.

M x

Cesrabbit
Member

Re: Pain relief for sore joints when taking anastrozole

It's so interesting reading about different experiences.. My friend and I were diagnosed around the same time. We are both on Anastrozole. I've suffered few side effects. Achy hands In mornings for 5 minutes but that's it. My friend can hardly walk down stairs and is in constant pain. The only difference is branding. I'm on Accord. She's on Teva. She's going to try my brand and see if her symptoms go. I'll report back.
cajunsurvivor
Member

Re: Pain relief for sore joints when taking anastrozole

Well said.  I am truly considering getting off of Anastrozole.  I've been on it for 1yr 3 mos. 

cajunsurvivor
Member

Re: Pain relief for sore joints when taking anastrozole

I have been on anastrozole for 1 yr 3 mos.  I have never had knee pain or problems.  I was running a half marathon each year.  Since being on this drug, I have had 2 scope surgeries.  (one on each knee).  My knees ache all the time.  My short term memory is really bad as well.  There has to be a correlation!  

Skm1960
Member

Re: Pain relief for sore joints when taking anastrozole

Just read through the thread.  I am also taking Anastrozole for BC.  I have been taking it now for about 8 months after trying Letrozole.   I feel like crap.  My body is seizing up all over.  The mornings are tough trying to move my hands, standing up very slowly, I hang on to every surface in the house as I move about, my ankles and knees are sore and stiff, lower back pain kicks in if I try and stand for too long.   I have now started having pain in my leg muscles and random shooting pains down my legs and in my feet.  I am so fed up and miserable, the GP has now put me on antidepressant pills too.   Lost count of the medication I take ...  Anastrozole, Naproxen, Omeprazole, Vitamin D, Glucosamine, Chondroitin, Gabapentin, Cocodamol, Trazodone .. Can't remember if I have missed anything out !   This has taken over my life, it rules everything.  My husband and I are just living like flat mates now, he doesn't seem to get how things have affected me.  Working full time is a struggle too, trying to focus on my job with all this is getting tougher and tougher.    It frightens me also to think that the effects of this drug on my body are permanent, I thought things would improve once I was off it.  

kirkkyle
Member

Re: Pain relief for sore joints when taking anastrozole

Hi,

I started taking Anastrozole after finishing treatment of rads back in May 2015, at first all seemed ok apart from the odd ache here and there. Went away on holiday I the september, and walking up or down stairs started getting worse, saw my GP after my holiday and again the same thing was said to me its early days take your time? So I adhered to this advice come Noveber when I went for  check up and see consultant to make sure all was ok, I mentioned this to him his reply come off the Anstrozole if you like? So I thought about this and then spoke to my GP again and the answer was the same come off the tablet for a month to see if its the tablet thats causing the aches and pains, so I did, absoloutley no change for me. I contacted GP again and said I would restart the tablet, I'm making an appointment toorrow to see GP again I feel that i have worsened and now reading all the comments it has made me feel that I'm not going mad! Ifeel that I'm now limited to what I can acheive during the day, I thought I would have been starting to get some normality back into my life after all the treatment and the op.I feel that my body doesnt want to do the things it used too, I walk my dogs out everyday with my husband and try and move about as much as I can, but by the end of the day I can just about shuffle about, I take codiene at night to relieve some of the pain, and getting up in the morning my body is so stiff it feels that if I mpve suddenly i'll snap. After having a bone density scan it said that I had some bone thinning going on, I can't believe that this tablet doesn't help with taht I know its a preventor and I'm worried it might come back, but I can't go on like this its debilitating, I'm only 57 but feel ore like an 80 year old my mum gets about better than me and she is in her 80's. It is also noy helping my depressive state of mind either. I try to be positive  but some days its a chore. 

Magical_Moon
Member

Re: Pain relief for sore joints when taking anastrozole

Hi Cils,
Apologies for not replying sooner, I have not logged in to the Forum recently. Thanks for enquiring how I went on. It is kind of you.
I got my second year NED which was great news.
However, the decision to stop Anastrozole was left entirely my choice. I was offered the chance to switch to Exemestane but I declined. I told her that I was not happy to take Exemestane because the 'blocking mechanism' is irreversible. The thought of taking a drug that has irreversible effects does not appeal to me.
My chronic joint pain has continued but no one in the medical profession can confirm it is definitely caused by Anastrozole.
I was referred to a Rheumatologist in summer who carried out blood tests, ultrasound scans of my hands and a full body bone scan. The bone scan revealed no cancer (huge relief), ultrasound scan revealed osteoarthritis and blood tests confirmed my joint pain was not rheumatoid arthritis (phew!). She discharged me from her care.
The same as the breast cancer specialists, the rheumatology consultant could not confirm that my increased chronic joint pain was caused by Anastrozole. She could only suggest that I stopped taking Anastrozole for a month to see if my joint pain diminished.
At the moment, I am recovering from cataract surgery (another side effect of hormone therapy) so I have continued to take Anastrozole. I did not want too many changes to my body during recuperation.
In the New Year, I intend to stop Anastrozole for a month to see if my joint pain is reduced. I need to know one way or the other if Anastrozole is the culprit for ruining my quality of life.
Have you made any decisions about Anastrozole?
Take care,
M x
PS. When I got my second 'All Clear' result, I thought it would be easy to stop taking Anastrozole without hesitation. It seems I underestimated the power of my mind wanting to retain the 'comfort blanket' despite my chronic joint pain.

 

Magical_Moon
Member

Re: Pain relief for sore joints when taking anastrozole

Deleted.....double post.

 

 

lexilou3
Member

Re: Pain relief for sore joints when taking anastrozole

Also m6 fab pharmacist said to get UK brand of arimidex too,,, seemingly some arimidex can come from Poland. Not against Poland, just need most relief !
lexilou3
Member

Re: Pain relief for sore joints when taking anastrozole

Hi all,
After many disturbed nights due to leg pain my onc specified my script for Anastrazol is Arimidex - the original medication upon which the other brands are based. My nights are better, i have had this now for 3 months, but it costs so much more,,, £ 60ish rather than £2ish per packet. But sleeping better is so much better for me.
Good luck all x
cils
Member

Re: Pain relief for sore joints when taking anastrozole

Hi magical moon

hope your check up visit to oncologist worked out o.k with your delema regarding Anastrozol please reply would love to know how you faired as i am in a simular disposition.

lots goood luck cils


@Magical_Moon wrote:

Hello ladies,

I have had a terrible time on Anastrozole with severe chronic joint pain.  Only relieved to some extent by taking Amitriptyline at night which GP prescribed for neuropathic pain.  At least I get three hours sleep now before waking up in pain.

After 21 months I've had enough and am going to ask for a consultation with my oncologist at my second BC anniversary post surgery.  My breast surgeon recommended I stick it out for two years if I can because this period is the most critical timeframe for having a recurrence.  I was frightened of a recurrence at the time so accepted her advice.

Now I am feeling psychologically stronger, my perspective on continuing with Anastrozole has changed significantly.  I want to regain my quality of life.

Getting BC is a lottery and so is having a recurrence.  We can only do our best and what is right for us individually.  Some ladies do not take hormone therapy and never have a recurrence.  Others take it and still have a recurrence.  There is no cast iron guarantee.

Psychologically, I will be in a better place when I get a second NED at my next mammogram checkup in October.  The time will be right for me to reassess the continuation of my hormone therapy.

BC has always been a physical, emotional and psychological challenge.

Wishing everyone good wishes.

M x


 

metalika
Member

Re: Pain relief for sore joints when taking anastrozole

I have been battling with cancer since 1985, And have had various operations' :- Lumpectomy, Bi-lateral Mastectomy, a year later implants inserted, further lumps all malignant, Hysterectomy, Transflap reconstruction,  then finally, Metastasis in the spine in 2008.

During this time I've had Radio Therapy several times, as far as I can remember I've taken, or had administered various drugs, Tamoxifen, Zolodex more recently Anastrozole which I've been taking since 2007 after my last surgery. All have had their own particular obnoxious side effects some of which were quite severe.

With Anastrozole it took a while to connect some of my side-effects with this drug as  I'm in constant pain with my spine and take several other drugs to try and combat it, all of which have their own particular obnoxious side effects too!!

However after reading either victims stories I began to connect the dots and have come to the conclusion that Anastrozole may be the main culprit with alot of my symptoms which are:- terrible joint pain, considerable weight gain, 3 stones in all which, no matter what I do to try and reduce it, it just doesn't want to shift, terrible heartburn, hair loss/thinning, loss of height, depression, this is to name but a few.

Even though I've had a full Hysterectomy, which in it's self can cause joint pain because of loosing my ability to produce oestrogen, my consultant obviously thought it best that I should take it because of the small amount of oestrogen produced by the adrenal glands. 

I know it's a risk, but I'm seriously thinking of coming off the drug, mainly so I can regain some quality of life. I'm nearly 57, but am feeling, moving and thinking like an old woman, I can't walk properly, and I'm constantly in pain, I know the Anastrozole is helping to keep me alive, but at what cost? It's a play off, stay alive, but have no quality of life, or take a chance and enjoy living? The question is 'What to do'?

Shana
Member

Re: Pain relief for sore joints when taking anastrozole

Breast cancer Grade 1 plus  25 doses radiation  Stopped taking anastrazole due to cronic leg pain. After 3 

months on the stuff I literally could not walk and always  felt vague and unable to concentrate.plus itching

I was a very fit (runner, weights,swimmer)57 year old ageing fast on these pills.A few weeks after stopped pills I had a heart attack. Called a SCAD No  I am not diabetic, no high cholesterol or high blood pressure

I was on no medication at all  My advice think carefully about taking the stuff if you have a low grade cancer.

Been told not to take cancer pills by doctors because of heart attack as this is a possible side effect. But they won't confirm or deny as the radiation was to left breast. If  you need to take the cancer pills by all means do so. I am now regaining health -legs still ache at times 6mths later. But thats better the laying on the sofa crying in pain unable to walk or move much. Nothing is wrong with heart now have a small stent put in were vein collapsed- had no clogged arteries-back running. Lifes good. Read up on side effects before you take the medication they offer you 

kerryh
Member

Re: Pain relief for sore joints when taking anastrozole

Like you I was on anastrazole and my joints were deteriorating rapidly and like you I felt 30 years older than before.  Like you also my oncologist changed me to Tamoxifen saying that it was not as harsh on the joints.  Once again, like you the joint pain did not disappear when I changed over though there is some improvement.  I believe the anastrazole has caused permanent damage from which I doubt I will ever fully recover.  Nevertheless, tamoxifen is easier to live with than the anastrazole because I take it at night instead of in the morning.  I also take high doses of glucasamine, chondroitin, fish oil (small oily fish) and cucumin.  It makes life manageable  but I have not gained the 30 years I lost.  Maybe I have gained 10 of them though.  A little is better than before.

Grandmagrizzle
Member

Re: Pain relief for sore joints when taking anastrozole

Hi

i was diagnosed in July 2011, and had lumpectomy, and 20 sessions of R/T.
I took Tamoxifen for almost 4 years, but it caused uterus changes, so had an hysterectomy. I am now on anastrozole, and suffer with bad joint pain. Like others the pain moves around different joints. Mainly in the mornings, and evenings.  Sometimes though I can hardly walk.  I think my GP thinks it's maybe all in my mind,(maybe she is right)  but I have been referred back to my oncologist.

cancer was a doddle compared to its treatment side effects! 😉  People think once you have finished you initial treatment and had surgery you are ok, but the side effects are far worse!  Moan over lol

 

 

cils
Member

Re: Pain relief for sore joints when taking anastrozole

hi monica,

read my reply to  the lady hazele page one

hope helps

cils

cils
Member

Re: Pain relief for sore joints when taking anastrozole

hi haele

i too have been on Aremidex for two half years, i started with hand joint pain and ankles and over the two years its has come in my hip joints and also have bad stiff pain lower back IN MORNINGS will not budge til i get moving around.

I find putting a heat pad on lower back does really help,its worth a try.

You just get confused as you are getting older wether  it could be Artheritus etc.

thought about changing tablets but there too i might get more minuses than pluses.

im taking cod liver oil tablets thought about taking gluecoamine sulphate too.

  

cils ......

Laineybo
Member

Re: Pain relief for sore joints when taking anastrozole

Hi Hazel

I have been  taking tamoxifen  for nearly  5 years with very little joint pain. I believe  the  key  is exercise  so I cycle swim  and walk daily - so  give it a try as you  too are very active.I did try an as last year but  after 8 weeks l had a bleed and a blood test revealed  that I was not quite post menopausal at nearly 60!

 

 

 

 

hazele
Member

Re: Pain relief for sore joints when taking anastrozole

Hi, never done this before but feel compelled to after reading previous posts and being in similar position.  I had BC surgery and was put on Anastrozole in March this year as I'm post menopausal and had only a very early small lump which was very ER+.  I sailed through the whole procedure, including 20 RAD sessions, without any side effects.  I was able to continue exercising throughout (aerobics, cycling and walking) and felt positive and really well.  Three months into taking Anastrozole I began to notice difficulty in walking up stairs.  This gradually got worse until I had pain and stiffness in most joints, particularly my hands which are worse in the mornings but pain lasts all day.  On 2 July I saw my surgeon and reported my symptoms.  She immediately took me off the Anastrozole and prescribed Tamoxifen but told me to wait 6 weeks to clear the Anas. from my system and give my body a chance to recover.  I am shortly due to start taking the Tamoxifen but I'm dreading this as my joint pain is worse than ever.  I have seen my GP who seemed disinterested and said the Anas. should be clear by now and that my joint pain could be a sign of something else.  He didn't do or suggest anything!  Does anyone know how long it does take for the pain to subside and for joints to return to normal after taking Anas?  Also, can Tamoxifen have similar side effects? I don't want to look at the leaflet giving the side effects as I am now feeling like a very grumpy, negative, tired old woman!

lexilou3
Member

Re: Pain relief for sore joints when taking anastrozole

Hi Suzie,
ACCORD suited me best (Teva and another less so,,, for the less brands flyshes and creeping shivers dustuebed me). Leg pains now wake me at night and will see my onc in sept to discuss. But... each brand affects each woman differently. Others here gave sworn by TEVA. Good luck x x LL
Suziex
Member

Re: Pain relief for sore joints when taking anastrozole

Thanks Poppyj 

i will wait and see if anyone comes back to me with different brands. The worst thing for me I had taken tamoxifen for two years with no problem except slight thinking of the womb and now I have got through the change they have changed me to letrozole . 

poppyj
Member

Re: Pain relief for sore joints when taking anastrozole

Hello Suziex

 

Yes, been on Letrozole since Feb 2014, and have had several different versions. I've been on Cipla and have very painful joints. Been on other makes too  (most recent I think is called SUN). Have now been taken off them altogether to see if that makes a difference. My breastcare nurse is looking into what brand I was given originally by the hospital, and will try to get those prescribed by my GP. They do all vary, and it seems to be a lottery as to whether you hit upon one that suits you (bearing in mind all the other side effects they can bring). When you do find one that suits, make certain you're given that at the pharmacy as they will give you whatever is in stock otherwise. Wish I'd known that at the beginning but I was too niaive and shell-shocked to notice what I was given. I'm on Glucosamine & Chondriotin too. Not sure if they help. Good luck!

Poppyj

Suziex
Member

Re: Pain relief for sore joints when taking anastrozole

I have been taking letrozole for 5 months now and I thought I was going to be ok, but other the last month my joints are begining to ache. I an taking cod liver oil, glucosamine and chondrites can someone tell me what the maximum amount I can take each day? Could anybody recommend anything else that I could take that would be safe to take .  The brand I have been prescribed is cipla does anyone else take this brand and do you have problems?

 

suzie x

Magical_Moon
Member

Re: Pain relief for sore joints when taking anastrozole

Hello ladies,

I have had a terrible time on Anastrozole with severe chronic joint pain.  Only relieved to some extent by taking Amitriptyline at night which GP prescribed for neuropathic pain.  At least I get three hours sleep now before waking up in pain.

After 21 months I've had enough and am going to ask for a consultation with my oncologist at my second BC anniversary post surgery.  My breast surgeon recommended I stick it out for two years if I can because this period is the most critical timeframe for having a recurrence.  I was frightened of a recurrence at the time so accepted her advice.

Now I am feeling psychologically stronger, my perspective on continuing with Anastrozole has changed significantly.  I want to regain my quality of life.

Getting BC is a lottery and so is having a recurrence.  We can only do our best and what is right for us individually.  Some ladies do not take hormone therapy and never have a recurrence.  Others take it and still have a recurrence.  There is no cast iron guarantee.

Psychologically, I will be in a better place when I get a second NED at my next mammogram checkup in October.  The time will be right for me to reassess the continuation of my hormone therapy.

BC has always been a physical, emotional and psychological challenge.

Wishing everyone good wishes.

M x

chrise
Member

Re: Pain relief for sore joints when taking anastrozole

Hi!  I have taken anastrazole foir 12 months but due to aches , fatigue etc have been advised to stop it for 6 weeks to see if better.  But now am anxious as actually pain in joints and back and shoulders are worse and I have felt really rough!  2 weeks so far without..  Was early stage BC er pos no node involvement so mastectomy but no chem.  Is it common I wonder to have withdrawal symptoms!

lexilou3
Member

Re: Pain relief for sore joints when taking anastrozole

Hello Hardware,
I have been on this medicine gor about 8 months now. In that time have had 3 different brands, and for me the side efects i could best toletate are those from the ACCORD brand. Having said that, more frequently am waking in wee hours with gross leg pain. I am going to seek review with my GP to discuss,,, failing that will request further review with oncologist. Recommendation forme is 5 years of this medication...
Have you noted what happens to you with the different brands ?
good luck, thinking of you x x
hardware
Member

Re: Pain relief for sore joints when taking anastrozole

Hi anyone.
Have been on anastrozole for 4 months and can not take much more. I feel about 90. Actually I know 90 year olds fitter than me. My back, knees hands are the worst. Incredible pain and cramps. Tried the water thing, no good. I have had blackouts and getting quite scared. Please can someone says its gets better.
Matty2
Member

Re: Pain relief for sore joints when taking anastrozole

Have already upped the amount of fluid I take in daily but nowhere near that much just added about 3 extra drinks a day compared to what I was having usually (not wine Woman Very Happy). I don't know if it makes a difference or not, but I read it was recommended to increase amount of fluid intake.

Never thought of acupuncture for the aches - think I will look into that.

 

B.

drdspg
Member

Re: Pain relief for sore joints when taking anastrozole

Please read this. Too much of anything is not good for you and that includes water and oxygen. The original info on 8 glasses of water a day came from a mineral wAter company and has somehow been taken up as absolute fact.
BBC news magazine " is drinking eight glasses of water a day really good for you".
Sorry- couldn't manage to paste the link.

happyyogi
Member

Re: Pain relief for sore joints when taking anastrozole

The article does NOT say that two liters of water (about 8 glasses) is too much, or even can be too much; it says, the absolute MINIMUM we all need is one liter, but it is not recommending that one reduce to one liter.  It is also mostly focussed on excessive amounts of water (like seven or eight liters) as being a problem.  Personally, with cancer as a problem, it is really important to drink enough water.  Many of us don't.  I am trying to drink two to three liters a day.  That is not contraindicated.  

Southcoastbeachgirl
Member

Re: Pain relief for sore joints when taking anastrozole

Hi
I have found the only way to cope with the aching joints and shooting pains is to take daily ibruprofen & paracetamol, as others have suggested. I also take Lemoprazole to protect my stomach, plus glucosamine & chondroitin ( high strength) and cod liver oil.
I have tried taking paracetamol on its own as I think the ibuprofen may be contributing to the IBS symptoms I am experiencing, but it didn't work effectively for me.
I was on Anastrazole for 9 months but have been switched to Exemastane as my oncologist thinks I don't tolerate the Anastrazole well and that can also upset your tummy as well as causing aches & pains. I have only just started that so too early to tell how I will get on with it.
As I'm high ER+ stopping the hormone treatment isn't an option.
I have also started Bihar yoga on the recommendation of my physio, but found it too uncomfortable without the painkillers. The combination of gentle stretching and painkillers seems to be working for me and giving me a more bearable quality if life. Just not sure how long it's ok to take daily painkillers.....?
Whatever gets me through! A nurse friend suggested acupuncture might be helpful but I haven't tried it yet.
Good luck & hope you find a solution that suits you xxx
dawnhc
Member

Re: Pain relief for sore joints when taking anastrozole

At risk of going slightly off topic here I just want to sound a warning note about drinking large quantities of water. It is possible that even 2 ltrs a day can be more thanwe need. There is a very good article in the Daily Mail (yes I know there will be a lot of groans -oh no not another D.M. article LOL - but this article is quoting a number of very respected sources.) So I leave it to any that want to read further and put the link here:

 

http://www.dailymail.co.uk/health/article-348917/Aquaholics-Addicted-drinking-water.html

 

Dawn

xx

Guest user
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Re: Pain relief for sore joints when taking anastrozole

DRINK 2 LITRES OF TAP WATER PER DAY

YOU WILL FIND YOUR ACHES AND PAINS WILL GO

 

I WAS PAINING IN EVERY JOINT WHEN I WENT ON THESE PILLS

WATER WAS MY SAVIOUR AFTER 48 HOURS

NOW I FEEL BETTER THAN EVER

Guest user
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Re: Pain relief for sore joints when taking anastrozole

DRINK 2 LITRES OF WATER EACH DAY

IT CURED ALL MY ACHES AND PAINS  FROM TAKING ANASTROZOLE WITHIN 48 HOURS.

ITS MAGIC MEDICINE

Guest user
Not applicable

Re: Pain relief for sore joints when taking anastrozole

I STARTED TAKING ANASTROZOLE 2 MONTH AGO

OH MY EVERY JOINT HURT, I FELT LIKE AN OLD WOMAN.

I ASKED MY SON TO CHECK THE INTERNET FOR ME.

HE CAME UP WITH 2 LITRES OF TAP WATER DAILY

WITHIN 48 HOURS ALL ACHES AND PAINS GONE AND I FEEL BETTER NOW THAN EVER BEFORE.

WATER FLUSHES OUT ALL TOXINS IN BODY THERE IS NO BETTER MEDICINE.

ALSO LAST YEAR BEFORE I WAS DIAGNOSED WITH BREAST CANCER I HAD ITCHING ALL OVER MY BODY EXCEPT THE FACE .

I WAS SO DISTRESSED.COULD NOT SLEEP

DOC GAVE ME E45 CREAM AND TABLETS-DID NOT WORK.

YES YOU HAVE GUESSED IT LOTS OF WATER AND I WAS FINE WITHIN 48 HOURS -ALL ITCHING GONE

poemsgalore
Member

Re: Pain relief for sore joints when taking anastrozole

Started Anastrazole July 4th this year. No hot flushes, no extra aches and pains apart from my RA. Just this intolerable itching all over my body. I've tried creams and lotions. They seem to make it worse. Seeing my Onc on Tuesday so will mention it to her. Winge, winge, moan moan!! Well, that's what these forums are for Woman Tongue

MonicaS
Member

Re: Pain relief for sore joints when taking anastrozole

Hi ladies - Ive' been on Anastrazole for 2 yrs and after initially bad hot flushes, it all settled down.  Then I started getting joint/muscle pains and swapped to Tamoxifen for a few weeks, but things got no better/worse.  Back on Anastrazole.  Things were ok until a few months ago, then I started with terrible leg and foot cramps, but have always had a tendency to cramp, so toughed it out.  Now I'm getting muscle tightness/cramps and terrible pain in left hip and leg when I wake up.  I cycle quite a bit and expect the leg muscles to be tight after a long ride, but this is constant now.  I've done yoga for years so am probably about as flexible as I'm going to get (not very!). 

 

It's always bad in the morning and gets better during the day, today I took Ibuprofen and it eased off.  I know I'm a lot better off than some of you, but it's getting me down.  What I don't understand is why it comes and goes as it seems to do.  Sorry no answers, just whingeing!  I do have a chiropractor-type person who does an MOT every so often, and will go and see him to see if that helps.  He's young and really hot, so 2 good reasons to go LOL! 

 

Monica

Katykookabura
Member

Re: Pain relief for sore joints when taking anastrozole

Hi Scarednurse, I have been on Aramidex for nine months now and I was told by my surgery consultant that it would make my joints worse as I have arthritis and have had both knees replaced in last two years. I also have fibromyalgia so have pain anyway. I did a pain management course a few years ago so hoped I could manage my 'new' pain from taking Aramidex.
Anyway I was on a lot of analgesia and anti inflammatory drugs and decide to stop them as been taking them for too long.
My pain is bad mainly first thing but once I get moving I get better then in the evening and at bedtime. Decided to take glucosomine about three months ago and already took strong cod oil tablets. I manage my pain by trying to pace myself and use paracetamol and when really bad I have tramadol slow release 100mg at night .
My GP says he will monitor it as he does think the Aramidex is causing 'side effects'.
I suggest you talk to your GP and try and get some 'pain management' from him/ her rather than suffer pain. Pain us the most debilitating thing and can really affect your daily living. Maybe because I have had pain for years I am managing this extra pain at moment.
I see a chiropractor and he advised me last week to use Ibrufen because of its anti inflammatory content as much milder on stomach than Naprosyn or Voltarol which I had previously. I have taken some in the morning yesterday and today and they have taken the 'edge' off the in pain. I shall see how it goes over next week.
The other thing that has helped is a TENS machine which I used on my knees before they were repaced so you could try that. The other thing that can help is Voltarol gel on any really sore area.
So you can see a mixture of things might be needed but do not suffer pain without some help. Perhaps all ladies and gents who have to have hormone treatment for breast cancer should be referred to,pain management clinic ?. Somehow don't think they could cope with the numbers !!. Take care, Katy.
Guest user
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Re: Pain relief for sore joints when taking anastrozole

Hi I've been taking Aramidex for a year after taking Tamoxifen for 2 years, as my oncologist diagnosed that I had gone through the menopause from a blood test. My oncologist said the joint pains would be easier with Aramidex than Tamoxifen and recently I spoke with my breast cancer nurse who advised me the opposite so I am not sure who to believe but I do know that every morning my ankles are so painful and my knees and hips feel so sore when I have sat in one place for more than an hour. This is making me pretty miserable as I am about to take part in a charity trek next month and really wanted some advice apart from just taking more painkiller pills ie paracetamol and ibrufen. I recently started taking vit D and garlic capsules and have taken omega 3 6 9 and multi vit for a long time now. Any advice anyone ?
dancing_girl
Member

Re: Pain relief for sore joints when taking anastrozole

Hello, I've been on anastrazole for a year now. I did suffer with some arthritis in my knees before, but that has gradually got much worse and also ankles, wrists, thumbs and big toes are affected now too.
Incidentally I have been taking glucosamine, omegs 3 and garlic tablets for years. not sure they do any good, but I daren't stop - at least they don't do any harm. I don't think pain killers help much, but with regards to paracetomol and ibuprofen, I heard a radio 4 programme the other day, saying that the combination was more effective for head aches than either on their own, so I'm trying that. My hobbies are dancing and walking and I'm determined to carry on despite the pain.
I, too, am only weakly Er+, so my oncologist said we would see how we go. Difficult to stop taking it though. Interested to hear how anyone who has a break from it gets on.
Best wishes to all.

ch280
Member

Re: Pain relief for sore joints when taking anastrozole

Thanks for the info, Di-Di, and there I was thinking I had got away with it! I will keep an eye on this post to find how others cope with the pains and also keep on hoping that they won't get too bad! Hope that your pain improves again. Take care!

Guest user
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Re: Pain relief for sore joints when taking anastrozole

I was taking Arimidex for about 6 months before the joint pains started. They were not too bad at first but have been getting worse latley.