Sending you a huggle my dear, what a difficult day for you xxx
I've had a bit of a difficult day today. Had an appointment with a customer I've had for over 10 years today and it was the first time I'd seen him since my diagnosis. He lost his wife to BC a few years ago when she was only in her 30's and working with him then, through all that turmoil was difficult but so worthwhile. He had heard on the grapevine that I'd been unwell too and his shock was palpable. It was a difficult couple of hours today and brought a lot of stuff back for him, and another reminder for me that things can work out differently. Three times her BC returned and the last one was just too much for her and the medical team (which is the same team as mine, same consultant, same everything). Feel absolutely drained this evening.
I know every case is different and just because it goes one way for one, doesn't mean it'll be the same way for someone else but it's hard when you see it like I did again today, with someone I've known for so many years.
I knew today was going to be hard, and it was.
Hey ho. Tomorrow is another day.
Been setting up our new Tivo box, am exhausted now, I dont do those sort of things but it means sitting on the floor in front of the TV which Colin cant do, but all good experience, I think!! anyway the TV is working so thats got to be good.
Janey - Wow mate that is going to be some folder, well done you they know who they are dealing with now 🙂 Girl power xx
Well I managed to get up a whole hour earlier this morning, not on purpose, I read the clock wrong, thought it was 6.52 and I had slept in, it was actually 5.52, going to be knackered tonight I think.
Hope you are all well,
Hi, the 'test' message from Delly was a moderator checking that her pm function was functioning, I have since discovered.
Okayyyyyyy, whats going on in here then today ? I CAN'T BELIEVE they said that for cancer appointments it had to be unpaid/leave! That beggars belief to be honest. Jeez, most people even let you go to the damned dentist.
Janey, they sound more like Occupational Illness than Occupational Health. How will it help anyone to make people miss their hospital appointments because they can't afford to lose the time or the money? Great that your employer has a better policy, but obviously some employees are getting a really poor deal.
Still log it Janey. HR would have received a copy of any communication sent to you. Most organisations contract out Occ Health these days, but it's still HR's responsibility, and your immediate superior to monitor it. You'd have a really strong case. Not that you want to go down that road, however, you never know what the future holds and what cr*p may come your way in the future so any little snippets of ammunition you have saved up is useful. If you don't need it great, if you do, it's there xx
Thanks Lesley, I'm planning an acupuncture top up soon, as I'm starting to feel the heat again - not a good look at work and it's making my hair curl even more!
You would have been proud of my email to HR to report Occ Health. I had an immediate response and apology; and further work will take place to educate about my employer's policy (which is supportive compared to most). Problem is they have contracted out Occupational Health and the new (private) provider is doing the role for loads of organisations, all with differing policies.
At least I know I have my fire back to do battle for others again - but I'm very yawny in the afternoon still.
Looking forward to getting home and hoping for another mighty haul of purple sprouting brocolli from the garden, to boost supper!
Hope the rest of you are having good days too and hopefully Delly will be back again soon. Hugs to all xxx
Just popping in. Had last acupuncture this morning. She said if I would like a top up to feel free to ring up in a couple of months and she is more than happy to do it. Himself is very poorly. Only a cold but with him and his conditions it can get complicated.
Right Janey, good for you sticking up for yourself and your rights. Hope you're keeping a log, dates etc and what was said and by whom,this is an excellent piece of ammunition if you ever need it. It if ever gets to the point where you feel your position there is untenable so the only alternative is to resign you can let them know this and that you will be going for constructive dismissal. Pretty sure then that they will do everything they can to avoid a tribunal and offer you a good compromise deal, hopefully with an enhanced pension. No employer is going to look good at a tribunal badly treating an employee whose dealing with cancet, and they will know this xx
Just tried to delete my last post...but I could only edtit it...not delete....so maybe Delly's pc has a glitch?
By the way Charys, have pmd you xx
No, I didnt see the message from Delly either! ...does anyone know how she is? Delly, if you are reading these, we do care about you.xx hugs,
You absolutely are allowed that time off paid. In my service I am allowed 3 hours paid time off to attend any hospital appointment. Well done you checking it out, you are also covered by the Equality Act 2010 because of your cancer diagnosis.
Hope today is a better day for you.
Janey, you sure you spoke with OH and not the person who loads the coffee machine ?
A bit bemsued that Delly put up a message saying test, and then it was deleted?
Saw this today too. Think it's rather appropriate.....
" if you're lost and don't know what to do, just listen to the deep voice inside you ( not the high pitched one telling you to kill people)"
Made me smile!
Yay that sounds like a brilliant plan, take as much from them as you can to give yourself a good headstart.
Oh you do make me laugh xx
Thats coz you were missing me and wanted me to feel included in the day (I am sooo modest!!)
Oh mate that is fabulous news what a relief. Had the same sort of exam at my apt with Onc last week as well, he said the thicker area he could feel was the same, from the op.
Yay 🙂 🙂 xx
Flip me you lot have been busy today I am going to have to go back two pages to catch 🙂
I have just logged on. Been to work today and then came home and lightly mowed the front garden and verge outside our house. I then sat and did my newest tapestry for a couple of hours!!! where did that time go, I suddenly thought I havent been on here today. I will have to do catch up now. Dinner is on so I will be be back laters.
Love to you all xxx
They call it a vault???got to be a man who came up with that one. There must be a better term than that lol
Ps Janey is it a vault? I thought I had a volt smear, maybe youve got lots of money and treasure up there and I haven't lol. Going to google it and see which it is, not that it matters, doctor told me I only needed the one after my hysterectomy and that was it, no more dropping my drawers, well not for that anyway xx
Oh I do love you lot, always make me laugh, and that's certainly the best medicine xx
Well it's taken a few minutes to stop giggling at Clair's alcohol v smear post!! That was very funny in all fairness lol lol lol.
i remember the nurse asking me how much I drank when I went in for my pre op assessment in September. My response was the same as some one else mentioned - number of units before or after the BC diagnosis?! She threw me a look and said no more lol
work was as I expected today and I'm going to work out the best week to hand in my notice so that I can take advantage of a couple of busy months coming up. If I can leave with a few ££ then that'll help give me some breathing space moving forward. I guess if he's ignoring me then at least he's not coming out with anything hurtful.
Mum is is beside herself again as her father in law (we have a complicated family) has been diagnosed with cancer, which has spread. I fear I may have upset her as I commented that he is 91years of age and has been fit and healthy all his life. I also said that if I live to the age of 91 I'd be bloody chuffed. You know that feeling when you start to say something and you can't stop yourself from saying it? Oh dear. When will I ever learn?
thick fog here this afternoon after a glorious morning. Heating is back on but judging by my gas and electric bill that arrived today, it would be cheaper to drink alcohol and give myself a hot flush than it is to pop the heating on! Lol I had a 'large' Baileys last night and boy I was BOILING most of the night. Life can be so cruel pmsl xxx
Welllllll thank goodness she came to that conclusion from a questionnaire !!!!
Charys, that's what I was thinking, how can she tell from a smear test??!!
Well I know I drink more than I should, not by much but a bit. But I have a very healthy diet and am (just!) within my BMI, and I do loads of walking. So I know I should cut down, but it's hard to do everything.
The oncologist told me that the Tamoxifen was to protect against a new cancer on the other side, that the evidence is it makes no difference to the chance of recurrence for the original cancer.. He said the radiotherapy is the belt and braces for that.
But I don't know if that applies to every type, it may not be the same for everyone.
Clair, I think a bottle of wine is roughly ten units, and every one of them is medicinal! That's my excuse and I'm sticking to it. Luckily no one asked me what I drink, the oncologist asked me if I drank alcohol, and I said," "probably a lot more than I used to at the moment!" and waited for the lecture. And he just said, "I'll put you down as a moderate drinker then!" So he didn't seem at all bothered. Unless I don't look like much of a lush...!
Maybe, Lesley, it meant to 'whip out the wine bottle' she was glugging from during the appointment ! LOL
Wooooahhhh, hold on Clair.....back track here....she could tell you 'drank too much wine' by looking up your whatsit??????
Whip what out Clair, your womb? And how much wine is too much? I generally have one glass every evening, well within the safe limits, however, I can get tiddly on a slightly large one, whereas most of my friends can down a whole bottle before feeling any effects, so Im pretty sure the "safe" limit varies from person to person depending on your size and how well your body deals with it, think mine must be pretty low. I keep practising hoping I'll get better at it xx
Fantastic news Charys, and I have to say, a bit of a relief that no mammogram involved. My first check up is 23 May and I was dreading poor booby being squeezed into that machine as it's so painful anyway, In fact the pains seem to be getting worse these last couple of weeks, and as you say, the mind works overtime. It's lovely to hear such good news on such a lovely sunny day
Hey Anita....good to see you. I guess the thing is once you've had the 'bad luck' of the diagnosis initially you just expect everything to go the same way lol....but there is absolutely no reason at all why it should, staistically it most definitely should be good news for us all. I'll be joining you in April for the mammogram, but I feel so much better having the positive feedback from the consultant today.
Thanks Ann, can't believe I got myself in SUCH a state.
That's great news Charys. We went through treatment around the same time but my follow up isn't until nearly the end of April. I tend to overcheck & worry about every lump & bump but I suppose that's normal at the moment. Every appointment & check up is probably always going to be stressful. X
Charys, I'm glad that's put your mind at rest. I guess there will be all sorts of lumps and bumps by the time the scar tissue forms, and any internal rearrangement of the tissue.
I try to remember the statistics they quoted for the chance of another cancer, it was 10% chance of it happening in the next ten years. But I'm not clear on whether that is recurrence in the original site or a new primary on the other side. I listen when I'm in the appointment, and I think I understand, and then I come home and realise I didn't. The only thing I do remember is the Tamoxifen doesn't change the risk of recurrence on the treated side, it's only for the other side.
Oh well, best not to think about it I think, whatever will be will be ...
It's another gorgeous day here, we've just got back from a lovely walk, and stopped in town to buy a meal deal. And as you do, I bought a stellata while l was there, ten quid in Tesco which I thought was a bargain.
I'm thinking of keeping mine in a pot.