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Progesterone, assorted other hormones and fluffy cake

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Re: Progesterone, assorted other hormones and fluffy cake

Hi Helena,

How are you?

I'm OK thanks - staples coming out tomorrow and on to the next phase of physio. Had to shift BC follow up appointment because it clashed with dressing change - how priorities have changed! I've been enjoying having the time to sit and make Christmas cards instead of rushing them at the last minute.

Hi to everyone else - hope all is well and that you are keeping 'abreast' of things!

Jak xx

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Re: Progesterone, assorted other hormones and fluffy cake

Jak

 

how are you doing my friend, how is your recovery coming on xxxx

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Re: Progesterone, assorted other hormones and fluffy cake

Thanks Jak yep in waiting list for op a couple of months he says wants to me have a year clear of rada as apparently they can hinder healing so wants to leave it as long as he can not allowed to have a holiday ir anything in meantime i have to stay close just incase i need to go in due to a sudden worsening of symptoms so no boozy Christmas for me or pulling shapes on danceffloor!!! Now i know what the op entails im feeling more relaxed i was so stressed last week!!!
I already take vitamin d and i take cod liver oil so pleased i had test at least i can do something about it a freind fiund out the other day she is stage 4 osteoporosis in her spine and hip she is worried about falling as she is high risk for fracture and she never took Hrt when going through her change because of the info about bc, i suppose what im trying to say is you have to weigh up the risks associated with bc or protect your bones i really don't think its something you can decide without the right info gps seem to shy away fron it and as a few ladies on here have stated they wre diagnosed and never took it
On a much lighter note im finally getting into tge Christmas spirit putting the decs up!!!!
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Re: Progesterone, assorted other hormones and fluffy cake

Hi Mishy sending a hug. I'm on ADcal for bones - calcium + vit D so a bonus I reckon. x
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Re: Progesterone, assorted other hormones and fluffy cake

Hi ladies had an interesting result back from bone density scan im osteopenia considering that im a TN lady no hormone therapy just chemo and rads have to start medication chemo pushed me into menopause obviously no hrt allowed so im really pleased i pushed for dexa with my GP especially as i am having surgery to my c spine surgeon has requested i take bone meds for a couple of months before hand so bones up to being hammered and chisled 😨
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Re: Progesterone, assorted other hormones and fluffy cake

There has been recent research by some American doctor (he was on Radio two a few weeks ago) that HRT has nowt to do with breast cancer. This US oncologist has written a book called “ oestrogen matters”, but he is kind of going against the mainstream tide at the moment. His wife and daughter both had BC and are both on HRt since having BC. I think there is still a lot of research to be done on this area really....and we don't have definitive answers at the moment.

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Re: Progesterone, assorted other hormones and fluffy cake

Lesley 21 I totally agree with you about not blaming ourselves for contracting BC. I have friends too who totally go against the grain and gave never had any trouble and other friends who are exercise junkies, vegan and tee total yet still sadly have had or have BC. It's a lottery no one wants to win!! Do hope you feel better for the Lemsip.💖💖
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Re: Progesterone, assorted other hormones and fluffy cake

Well Alibobs, my sister insists my BC was caused by taking hrt for years, however, since being diagnosed I have come into contact with a large number of fellow sufferers and so far I’m the only one I know who took hrt so I’m still not convinced.  I wasn’t told it was a contributing factor but was told that as I scored 8/8 er I mustn’t take it any longer and needed to take anastrazole for a minimum of 5 years.  Only managed 3 months before stopping as it made me so ill.  Have to admit I’d love to go back on hrt just to get a good nights sleep but guess it’s too risky.  That programme did say that hrt only made a slight increase in the risk and being overweight or drinking was worse,  There are plenty of tee total slim women who have never taken hrt who get BC and plenty of over weight heavy drinkers who don’t so I refuse to be made to feel guilty for taking something that I needed.  I’m sure men aren’t made to feel guilty when they are unlucky enough to be one of the statistics.

 

Right, enough yattering from me, time for a lemsip and bed xx

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Re: Progesterone, assorted other hormones and fluffy cake

Alibobs

 

Exactly the same with me, I did not have HRT and was post menopausal when I got bc.  I recall the nurse asking me if I was on HRT when I was at the breast clinic and I said no xx

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Re: Progesterone, assorted other hormones and fluffy cake

I watched that mentalpause programme too! It was a interesting watch, didn't realise until it started that it was really focussing on HRT causing BC! Ironic, I was offered HRT 12 years ago but refused cos I had heard of the association. Well enough said as I still got BC after I'd been through the mentalpause!!! 🤔
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Re: Progesterone, assorted other hormones and fluffy cake

Lesley

 

Hellooo, lovely to hear from you mate and thank you for your words.  Yep I am def on the mend and raring to go albeit that I will have to temper myself for the next 3/4 months but I will do that as I dont want to compromise myself.

 

I am so sorry that you are suffering with your menopause symptoms.  I must admit since having had the hysterectomy I am having more sweats at night which I had very rarely before.

 

Hopefully if it is a cold then you will get it over and done with before xmas xxx

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Re: Progesterone, assorted other hormones and fluffy cake

Hello Willows,

 

Thought I’d say hello.  Though I haven’t bern posting lately I have been looking in on you.  So glad you got. a good result Janey though could have been better. Also pleased Lady H on the mend.

 

Very interesting programme Monday night on the menopause.  Mine started 15 years ago,kept reasonably under control by hrt for 13 years.  Having had to come off it when diagnosed 2.5 years ago it’s showing no signs of easing up at all, anything between 4-6 during the night.  I’m beginning to think I’ll have it for life.

 

Tree up today, cards written ready for posting so feeling pretty pleased with myself, just as well as throat and eyes just started aching and got the feeling a cold is on the way so at least I’m ahead of the game if I need a couple of days indoors. Xx

 

 

 

 

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Re: Progesterone, assorted other hormones and fluffy cake

Charys

 

Oh I love it xxx

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Re: Progesterone, assorted other hormones and fluffy cake

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Re: Progesterone, assorted other hormones and fluffy cake

Charys

 

And even after two years, we are all still here for each other whenever we need it, I can not ever imagine a time when I will not post on here albeit not a regularly as I used, and boy I really did post!!!, we have all moved on, some of us have had other things to deal with over the past two years, but I love that we always have this very special thread for support when we need it, encouragement and celebration for all our milestones.

 

Thank you for your lovely words of encouragement, you have always been there for me, picked me up and dusted me off when I needed it.  Its funny I was out last night with some friends one of which has had a total hysterectomy two years ago, she could not believe how well I was and that I was moving around so freely.  I honestly think it is power of the mind, but I have to say there were some low difficult moments during that time.  Oh I am intrigued that my uterus and cervix has been quoted Smiley Happy Smiley Happy Smiley Happy

 

You do wonder what planet these people are on at time, HRT!!! for goodness sake we have had bc, I certainly did not think someone would be allowed to take that even if taking tamo, surely that is contradictory.  Yes thank goodness you can laugh after what you have been through and lets hope it will not be too long before you are through this stage.

 

xxxx

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Re: Progesterone, assorted other hormones and fluffy cake

Ps Charys I hope those hormones start to behave. I think I’m almost through menopause 2 and wondering what anyone else thought of Mariella’s programme?! X
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Re: Progesterone, assorted other hormones and fluffy cake

Evening you lovely lot. Feeling nostalgic after reading the last few posts, I decided to look back at some of the first few. I made mention of a nurse prescribing friend popping by. That same wonderful friend who seemed to magically appear when needed was diagnosed herself just a few weeks ago. She got her plan today after mastectomy and starts chemo shortly. I’ve urged her to find her BC name and get on here and find her tribe to go through this nonsense with! You are a fabulous bunch of friends and I do think you were and continue to be the extra weapon in recovery. Mishy always welcome to this expanding bunch and Jak so pleased you are now home and hoping you are soon sprinting!
Thanks for good wishes Ann. I had results yesterday. Good news polyp wasn’t cancer, bad news it was precancerous. I am very happy it’s gone but feels a huge throwback to endometrial monitoring. I want to stomp around a bit but equally appreciate how well monitored I am.
I hope you all have lovely weekends planned. We are off to party with family. I’m not very into fancy dress but it’s Gatsby theme - dress sparkling and I shall have to channel my inner Strictly Charleston! Xx
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Re: Progesterone, assorted other hormones and fluffy cake

Hey Mishy18 - gate-crashing doesn't exist on this thread - its an open door!

 

Hiiyer Jak, good luck with the ongoing knee recovery. Helena - you have done SO SO well, and been so incredibly brave and strong. I quoted your uterus and cervix on a different forum today, just so you know...Smiley LOL

 

It is hard to believe its over 2 years since this thread was started - remembering those days too, Helena, Dizzy, Janey and Ann, so much has moved forwards, but we were all here when we needed to be and when we needed each other !!! I think of Lesley often and wonder how she is, along with some others who used to post. I am glad people pop back and post as its a great testament to all of our resilience.

 

BTW my hormones are STILL playing up massively, now its late stages of peri...hoping its VERY late stages...rather than tamoxifen taht started this thread. Smiley FrustratedSmiley LOL Those of you that were here on the thread at the start know it was instigated by being taken off tamoxifen after 6 weeks on it, and struggling to readjust hormonally. I had a very extreme and unusual response to it (not to worry anybody else !). Anyway, at my final clinic appointment last week, the consultant said they 'could' prescribe HRT..........but only IF......I took tamoxifen. Ha, my face ! The letter stated 'you were quite clear that you will not be taking it again, after your last bad attempt'. LOL Can laugh now ey.

 

December 1st tomorrow all.........xxx

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Re: Progesterone, assorted other hormones and fluffy cake

Jak

Lovely to hear it's gone so well, that knee has been a problem for so long. So this is the annoying stage that will lead to a new you when you're fully recovered and able to do things again, and pain free. My husband is three weeks past a hip replacement and improving really quickly now, hopefully by the time the weather is fit for long walks he will be as well, we had to put that on hold this year and most of last.

 

 

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Re: Progesterone, assorted other hormones and fluffy cake

Well done Jak look forward to a new year with a new knee you will be able to do so much more x
Sorry for gatecrashing your thread ladies just wanted to send Jak my best wishes for her op but lovely to see how you are all enjoying life 👍
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Re: Progesterone, assorted other hormones and fluffy cake

ann

 

Lovely to have you back, I bet you are enjoying the "warmer" weather here than in NYC Smiley Happy Smiley Happy xx

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Re: Progesterone, assorted other hormones and fluffy cake

Hi Charys,
That’s fab news & so good to see where we all are now 2 years down the line & still chatting here on the thread you started 😊
Jak, my OH had a knee replacement this year & regular pain relief & doing the exercises did work! He’s now walking for miles which wasn’t pos previously.
All the best for the gastroenterologist in Jan, Janey.
Love to all
ann xxx
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Re: Progesterone, assorted other hormones and fluffy cake

Jak

 

Yay oh it is wonderful to hear from you and that everything went well with your op, so so pleased for you, onwards and upwards now mate. If you are unsure about the exercises why not give your GP surgery a call I wonder if they would be able to give some advise.  Are you going to be having physio as well?

 

It is a beautiful morning here in Birmingham after a dreadful week of rain and winds, I was in the kitchen just and the robin was sitting on the planter on the patio, I love watching him hop around.

 

Sending you loads of hugs

 

Helena xxxx

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Re: Progesterone, assorted other hormones and fluffy cake

Hi Ladies!

Thank you for your kind messages.

Well that's me sorted again got home on Wednesday night after being assessed and passing with flying colours. Even though I am in a lot of pain and anxious about not having someone to tell me if I'm doing exercises right, it's better to be at home just a shock because hey had said 3/4 days. I am taking loads of pain killers so keep falling asleep! My mum is still insisting it's nothing because she knows someone who bla, bla, bla!! It's a lovely day here and I can see my sparrows and wood pigeons in the ivy 'tree' outside my bedroom window.

xx Jak

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Re: Progesterone, assorted other hormones and fluffy cake

Charys

Funny, I was just thinking about how things were two years ago, it's  2 years ago today since I started radiotherapy. I was in such a state, and coming on here really changed everything for me. You were all wonderful and I felt massively supported just knowing other people going through this, and not having to pretend all the time.

And there were lots of giggles along the way, we had lots of lighter moments too.

 

And here we are mostly still posting from time to time, and with newer voices too, what a good job you started this!

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Re: Progesterone, assorted other hormones and fluffy cake

Janey

 

Thank you xx

 

Bit knackered tonight overdid it today as a result of having to sort my car out, which meant a walk down and back up again the steep incline of our road so I reckon a good night sleep is in order tonight xxxxx

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Re: Progesterone, assorted other hormones and fluffy cake

Charys, that’s lovely to read and another tick on the list! Great news for you too Helena and a tick on your list too. Love to all xxx
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Re: Progesterone, assorted other hormones and fluffy cake

Charys

 

I remember it well as I had only just joined the forum. the month before and you were there for me from the very beginning for which I will always be very grateful my friend.  Hard to believe that was two years ago

 

That is fabulous, strange isnt it we are told it verbally however that piece of paper is oh so important.  I had my letter confirming all was well from the hysterectomy results last week, I just wanted it in writing.  I had my at iwth GP yesterday and I am signed off fit for work from 11 December, albeit on a very reduced phased return until the end of January.  I am really looking forward to going back as it is a significant moment for me. 

 

Sending you loads of hugs

 

helena xxx

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Re: Progesterone, assorted other hormones and fluffy cake

Helllooooo ladies......so......had my official letter today 'discharging from the breast clinic'. Ta da. Menopause transition has gone up a massive big notch this last year, and its freaking hideous to be honest, but at least that means less oestrogen I guess. Its nearly that time of the year again, the start of the run-up to Christmas, I think of you all at this time as it was that first one we were all together and keeping each other going that was very special. x

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Re: Progesterone, assorted other hormones and fluffy cake

jak

 

Hope all has gone well with your knee op today and you are enjoying a lovely cup of tea xxx  We are all with you in sending you all best wishes for a speedy recovery.

 

Sending you hugs

 

Helena xxxx

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Re: Progesterone, assorted other hormones and fluffy cake

Hey jak if you get this sending you my best for your op tomorrow xx rest up afterwards and just think if what you will be able to do with your new knee xx
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Re: Progesterone, assorted other hormones and fluffy cake

Jak, I think you have your op tomorrow. Wishing you luck and hope you channel your inner Helena and are perfect patient for recovery! Your turn to have us virtually in your pocket. I’m so much better now that polyp has gone. Just waiting on results this week and seeing Gastroenterologist in January. In the meantime back to genetics to see if I have Lynch Syndrome. I hope your patient behaving Dizzy! Hugs to all xx
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Re: Progesterone, assorted other hormones and fluffy cake

Charys that’s such great news to read xx
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Re: Progesterone, assorted other hormones and fluffy cake

It does feel that way, yes, like a milestone. It just feels different to the other twice of being seen at the clinic. Thanks H x

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Re: Progesterone, assorted other hormones and fluffy cake

Charys

 

Whey hey that is fab news well done you, major milestone xxx

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Re: Progesterone, assorted other hormones and fluffy cake

Hurrah, just been discharged from any further surgeon meetings.......it feels like a 'reset'!

 

Hope everyone else is doing ok x

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Re: Progesterone, assorted other hormones and fluffy cake

Sh I haven't finished wathing Killing Eve yet! My knee op is 27th November x

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Re: Progesterone, assorted other hormones and fluffy cake

Jak, I hope you don’t have too long to wait. Now I’m a bit more with it I’ve had another look at the report from yesterday. Looks like they’ve taken several polyps and one, which was 12mm, which I guess is why I’ll be back in a year’s time assuming no issues with biopsies. I’ve emailed Genetics, as wondering now if I do have lynch syndrome, which was originally suggested but wasn’t tested, as no history of bowel polyps! Hopefully polyp will be benign. Would be unfair to have 3 primaries! Hope you’re all keeping dry in this Autumn rain. Fire lit and rugby for us and a bit of Strictly. What will we do without Killing Eve?! Xx
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Re: Progesterone, assorted other hormones and fluffy cake

Hi Janey, I'm OK thanks counting down the days to KneeDay. Glad you survived the colonoscopy. A friend of mine had similar symptoms & a clear colonoscopy (inc. polyp) they've put her symptoms down to irritable bowel. xx Jak

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Re: Progesterone, assorted other hormones and fluffy cake

Janey

 

Hair cut, proper clothes on and the nurse has confirmed that the scar has healed so no need to go next week, so a brilliant day.  I am knackered with all the stress of the day but now I can start to move forward which is brilliant.

 

xxx

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Re: Progesterone, assorted other hormones and fluffy cake

What a relief, Janey. The colonoscopy is a pain to go through, but as you say, it's better to be looked after on this.

ann xxx

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Re: Progesterone, assorted other hormones and fluffy cake

Thank you all so much for lovely thoughts and support. Thankfully the consultant today was able to access ct results from a couple of weeks ago and hugely relieved to hear nothing found. No answers about what’s causing the pain and nausea but I’m sure now everything else is ruled out that it’s the liver cysts they found at ultrasound - or is it the Exmessy?. The prep for colonoscopy was a trial one and didn’t work as effectively. I had a real Nurse Ratchett with me, practically accusing me of not sticking to instructions. Luckily other half with me for support that I’d been model prepper! The procedure wasn’t the best way to spend my Friday but it’s done. They’ve taken a polyp, which is off for testing and report says there maybe more missed because of bad prep. Joy of joys I’ll now be adding annual colonoscopy to annual mammogram! Can’t complain, as it’s good to be watched over. Hope everyone else is doing okay and that you’re now Lady (glam) Helena and you are pacing yourself. My friend never looked back from hip op Dizzy, so fingers crossed. Lovely to see you pop in Jill and hoping you are doing ok. How are you Jak and Charys? Love to all fluffy ones xxx
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Re: Progesterone, assorted other hormones and fluffy cake

Hope all goes well Janey xx Jak

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Re: Progesterone, assorted other hormones and fluffy cake

All the best for today Janey ! Hoping for a brill outcome for you. x

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Re: Progesterone, assorted other hormones and fluffy cake

Dizzy

 

All set and ready to go and I am actually wearing trousers from my own wardrobe rather than the baggy pants that have been my norm for the last 4 weeks.

 

Janey in your pocket darling

 

xxx

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Re: Progesterone, assorted other hormones and fluffy cake

Good luck with your op Janey -🤞🤞they can give you some good news today .
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Re: Progesterone, assorted other hormones and fluffy cake

Janey, hope all goes well with your colonoscopy  today, big girl pants at the ready and us in your pocket. Tons of love

 

Helena

I hope you enjoy your outing to the hairdresser today, after being stuck at home for so long.

 

Xxx

 

 

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Re: Progesterone, assorted other hormones and fluffy cake

Dizzy

 

Oh absolutely I do not want to undo all the healing I have done over the past 3 weeks xxx

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Re: Progesterone, assorted other hormones and fluffy cake

It's better to build back up slowly Helena, your insides have been through a lot!

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Re: Progesterone, assorted other hormones and fluffy cake

I am really lucky that my friend Sue is doing all the chauffering and is happy to, she comes round every other day such a star and she is the one who is taking me to the hairdressers on Friday.  It is only just over another two weeks and then I will be able to then there will be no stopping me, I just want to err on the side of caution just in case.

 

Finally bucked up the courage to go for a walk today, I do not know why but I have lost some of my confidence in recent weeks and was scared to go out, on my own.  I did 1000 steps and was really proud of myself.  I am going to up it by 200 steps tomorrow, weather permitting.

 

xxx