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Stopping Anastrozole

Member

Re: Stopping Anastrozole

HI all

 

I first had cancer of the colon when i was 18.

 

since then i have had cancer of the womb, totally removed .

 

 

What i would like to know is why in 2015,they took a biopsy, of my breast and missed the breast cancer cells?

 

IT was me that went to the doctors, AGAIN AND TOLD THEM,I HAD BREAST CANCER,they sent me to the hospital,and sure enought, the cancer was there, they operated,all of the cancer team and my surgeon was fantastic.

 

 

This was aug 2016,had 35 days of radiation, i was warned by my oncologist it could cause other problems.

 

Now why should i have had cancer,operated on  since i was 18 , but did not have to take tablets for five years?

 

In the times i had the other cancer in my body, i was not allowed HRT.

 

So,why should i now take Anastrzole for five years.?

 

Yes, i unaderstand that when you have been through the menopose,that your body still makes estrogen,that can attack your breast cells.

 

But to take these tablets seems a bit over the top for me.

 

I have been on them since 2016,i have never felt so low down in my life,also my weight has gone from 11st 3 to 8st.04,i feel so confused,kept on forgetting things,aches and pains all over my body, but the worse was i did not,and still do not sleep,it is a nightmare.

 

So now i have decided a month ago i had have enough,THIS IS MY LIFE,WHAT EVER I HAVE LEFT.

 

I do not want to live it in AGONY of aches pains and no sleep.

 

So i have no intention of taking these tablets any more.

 

I have also been told by a very proffesional person in the DRUG DEPT,that a lot of these drugs are being used as BLACKMAIL.to frighten people into taking them.

 

This is because the pharmecutical companies give the british goverment SO MUCH MONEY for issuing them.

 

NO SURPRISE THERE.

 

Now they have allowed a certain store to sell a liquid drug,that some people swear it has got rid of thier cancer,acne,and pains.

 

So i know where i am going for relief.

 

I believe if i just  take a bit under the tongue a hour befor bed time it will help me sleep.

 

At least when you are sleeping the body repairs itself.

 

So good luck to all you people who have,and still are suffering like me

 

But,i will not take these cancer drugs again,and i also believe in mind over matter.

 

I am going to try this oil, i shall come back to the forum in one months time and let you all know how i  am.

 

good luck to you all,and do not forget there are other alternatives you can try.

 

 

 

Member

Re: Stopping Anastrozole

Wow! Sisterhood absolutely! I have never come across another ‘me’ since my cancer journey began 18 years ago. I would love to hook up with you, even if only exchanging emails as I have felt like a total rebel on my own.....

I am also an activist, in that I am trying to change the law to make terminal illness  ‘protected characteristic ‘ of the law, similar to Maternity leave. Campaign is www.dyingtowork.co.uk

Stay strong like me.....believe in the Universe & I hope we can talk.....Jacci xx

Member

Re: Stopping Anastrozole

Hello - I came across your entry as I was researching symptoms after stopping Arimidex.  I just wanted to tell you that your are not alone as a rebel - I have been bucking the medical advice I've been getting for 7 years.  If I listened and did everything they want me to do I know that I would have been dead long ago and the little time I had would have been of such poor quality it wouldn't be worthwhile.  I honor you and the decision you have made,  One of my big frustrations with my oncologist is her inability to answer my questions about what kind of pain and other physical problems to expect as the cancer advances.  Hope that these are manageable for you as you make your way to the next part of your journey.

 

Yours in sisterhood,

Pam

Catalina Island, California

Member

Re: Stopping Anastrozole

Braindoc. I am 3 months into Letrozole. I have never taken HRT due to history of BC in family and blood pressure problems but have to say the se from the Letrozole have floored me insomnia night sweats nausea to name a few. I was seriously thinking of stopping the tablets but as my cancer was highly hormone receptive I am worried about doing that. I have a meeting with my oncologist in early October having finished Radiotherapy 10 days ago. I am looking for alternatives as I also don't want the bisophospates that seem to come hand in hand with Letrozole. Will be interested in hearing more about how you get on. Chris
Member

Re: Stopping Anastrozole

Hi Julie and everyone else,

I took anastrozole for 4 months.  I had terrible side-effects!  The worst were:  not sleeping, brain fog, very poor memory, balance problems, depression, terrible fatigue, weight gain, and the other usual complaints.  I stopped it 4 months ago, and gradually got better.  About a month ago, I started doing things, such as grocery shopping and cooking a little, and was hopeful.  My brain was working almost normally, except for my wor-finding. My oncologist pressed on me to start AI’s again, so I took 3 doses of Femara (Letrozole) over 1 week, and had return of all the symptoms.   Stopped it right away, but am still reeling from the setback.  I am gradually getting better, but I’ve not been able to work for 5 months.  My optimism has left me!

 

The new plan is to use Tamoxifen, but I don’t know if I can take the side-effects from this, if it’s close to the same!  I’m just being able to sleep again, but have NO energy or ambition to get off the couch.  I think most women recover faster.  I pray that you feel better very soon!

 

My oncologist ( the new one) tells me I’m likely having terrible side effects because I was on HRT for these symptoms for 10 years before I got breast cancer, and had to stop it.  

Member

Re: Stopping Anastrozole


@julie9559 wrote:

Hi,

I have posted this on another part of the forum but now realised that this is a more appropriate section.

 

I am interested to hear from anyone who has stopped taking Anastrozole. I have stopped after 3 months. I have been experiencing various symptoms including depression, incredible tiredness and weakness, poor apetite and others. My consultant has agreed that these are possibly due to the Anastrozole and recommended that I stop taking for a while.

Has anyone stopped taking Anastrozole after similar symptoms? Did the symptoms improve and if so, how long did it take for you to see some improvement.

Thank you for reading and responding



Hi....I have secondary breast cancer. I had severe spread to my liver, I reluctantly had FEC chemo as my liver was nearly into failure. I was told not to expect to live longer than a year. I was put on Anastrozole after my chemo. Well, six years on, still alive, but fed up of feeling so tired all the time etc.....I took the decision to stop taking Anastrozole. I am declining all other treatment & wish to die with dignity. I have seen too many of my friends take one different treatment after another, but still did before me. I think a strong mental attitude etc helps. I do not have a kind Oncologist. I have requested just three monthly CT scans going forward so I will have time to put my final instructions in place. I feel better since finishing Anastrozole, not sure how it stays in my body for as it is approx 8 months seen I decided I wasn’t doing it any more. Quality over quantity of life is important to me. Has anyone else been a rebel like me? Thanks xx

 

Member

Re: Stopping Anastrozole

Hi....I have secondary breast cancer. I had severe spread to my liver, I reluctantly had FEC chemo as my liver was nearly into failure. I was told not to expect to live longer than a year. I was put on Anastrozole after my chemo. Well, six years on, still alive, but fed up of feeling so tired all the time etc.....I took the decision to stop taking Anastrozole. I am declining all other treatment & wish to die with dignity. I have seen too many of my friends take one different treatment after another, but still did before me. I think a strong mental attitude etc helps. I do not have a kind Oncologist. I have requested just three monthly CT scans going forward so I will have time to put my final instructions in place. I feel better since finishing Anastrozole, not sure how it stays in my body for as it is approx 8 months seen I decided I wasn’t doing it any more. Quality over quantity of life is important to me. Has anyone else been a rebel like me? Thanks xx

 

Member

Re: Stopping Anastrozole

I haven’t been checking in, because I’m a bad example! I couldn’t remember anything while on anastrazole! I got lost while driving, and couldn’t longer work. I stopped it after 5 month, and got fairly close to normal after 3 months. My oncologist was not happy, and asked me to try Letrozole. It only took a week of that to put me back in the demented range!

I researched the AI’s as a group. The extension from 5 to 10 years does decrease cancer recurrence, but does not lengthen survival. That means to me that I anastrazole and Letrozole MAY increase death rates from other causes.

If I did not have severely disabling side effects, I would stay on them, but I had to stop them to have a quality life after treatment for breast cancer. I asked my oncologist how much the AI’s reduce my risk of recurrence. With my tumor size and type, it was 2% at 5 years and 5% at 10 years. This information helped me decide.

Next discussion needs to be risk of HRT after breast cancer! That literature is VERY interesting! God bless you! He’s the one who has us in His hands!
Member

Re: Stopping Anastrozole

Hi,

Yes I did lose the weight once i stopped taking them but have had to restart them again.

My GP is concerned! I enjoyed my break & felt so very much better off them.

Flushes, aches are all back again;so quickly within 3 weeks.

I intend to have a break from time to time still. 

Let me know how Julys apt went.

Gillian x 

Member

Re: Stopping Anastrozole

Hello! I have experienced some of the same withdrawal symptoms...This Monday the 9th I will have been off for 1 month after 5 years. I was also taking celexa to help with SE's of Anastrozole I weaned off it a week ago and feel odd as well.
Member

Re: Stopping Anastrozole

Hi,

I'm new to this forum, and found it by searching for advice on stopping Anastrazole after 5 years.  I was originally told to take it for 5 years, but then that was increased to 10 years.  However my consultant did say that I could try stopping for a month after 5 years, and if I felt the benefits outweighed the risks, I might want to stay off it.

After a week off Anastrazole I felt hugely better, and I'm now wondering what to do!  I wrote to my consultant  (does one not consult a consultant??) asking for advice, but after 3 weeks she hasn't deigned to reply, so I guess she's sitting on the fence, and forcing me to make up my own mind!

I think I might try earlier advice on this site, and see if taking it on alternate days works.  And I'm reading all the research papers I can find on the internet from respected sources, which make for interesting reading.

Member

Re: Stopping Anastrozole

Hi. I started taking anastrozole following a oopherectomy. I lasted 3 months. I could hardly function. I asked if I could go back on tamoxifen, although not ideal post menopause (due to op) it was a better option for me. It's also worth trying different brands of your tablet. Side effects can differ between each brand. It's annoying when we have so much other stuff to deal with. You get to the age where you don't if 1. It's your meds 2. Menopause or 3. Your age! Love to you all..xxx
Member

Re: Stopping Anastrozole

Hi. I started taking anastrozole following a oopherectomy. I lasted 3 months. I could hardly function. I asked if I could go back on tamoxifen, although not ideal post menopause (due to op) it was a better option for me. It's also worth trying different brands of your tablet. Side effects can differ between each brand. It's annoying when we have so much other stuff to deal with. You get to the age where you don't if 1. It's your meds 2. Menopause or 3. Your age! Love to you all..xxx

Member

Re: Stopping Anastrozole

Hi Gillian:
Were you able to lose the weight once you stopped?  I've been taking them for almost 3 years and have gained about 20 lbs!  It truly is THE most distressing thing to me. (I have ALL the others, like menopause on steroids!)
I want to stop - or at least take a break.
I have a doctor's appt in July and plan to discuss it seriously with him then.  I am so very unhappy.

 

Member

Re: Stopping Anastrozole

I stopped Anastrozole last April after being on it for 5 years.  I was not prepared for these "withdrawal" symptoms (as I call them!) that I have been feeling since then - lightheadedness, gassiness, dryness in my eyes, some infrequent leg cramps during sleep at night. Did not have any of those during the 5 years I was on it, but a slight increase in my joints pain, which I attributed to aging(I am 64). Has any one else experienced these post-Anastrozole? My doctors did not know of past patients getting these symptoms after being off of it.

Thank you! Any reply will be greatly appreciated!

Member

Re: Stopping Anastrozole

I stopped taking them after 2 months.My effects were as stated by pretty much every user.  My GP has advised to to go back on them but says a break of 2 months is not too detrimental. I am using the time to seriously lose some weight. It has been constant for years but having a dead line may well help. My joints were really aching on the meds so I'm hoping that will help. It's pretty much all I can do. I must admit I feel so much better not taking them but feel there is not a choice.

Member

Re: Stopping Anastrozole

Also I am NOT suggesting that all people should take anastrozole every other day. That was only a suggestion for people who were having such a hard time they were thinking of giving up completely. I am worried about the effect of anastrozole on my cholesterol which is already high - hence my cautious approach.
Member

Re: Stopping Anastrozole

Yes, anastrozole prevents your fat cells from producing oestrogen. It accumulates in the body and has a half life of about 2 days so even on one every other day there is still a lot of anastrozole in the body. Tests hve shown that the drug is very effective at reducing oestrogen but there are other ways as well, losing weight being one of them. Exercise another. And there are natural products such as chamomile
Member

Re: Stopping Anastrozole

I have to say that I thought all the same things as you.  I assume we are only given the hormone tablets if the cancer was ER+? Even after menopause the body continues to make oestrogen albeit in small amounts, so guess the tablets are to protect against this? 

Member

Re: Stopping Anastrozole

I tried on the NHS but the lowest value they could check for was 50 pmol/L which is about normal for post menopause. So I ordered a test online from Medichecks (£60 including having the blood sample taken at a local private hospital). Not cheap but worth it to find out. Their lowest level they can test for is 18.4 pmol/L which is much lower than normal for post menopause.

There are two sets of units for measuring estradiol which is the important hormone. One is pmol/L as above. The other is pg/ml. 18.4 pmol/L is equivalent to about 5 pg/ml

Some research papers use one type of unit, some use the other. You need to be careful to check which they are using. 

Anyway, I know my level is LESS than 18.4 pmol/L but I dont know how much less. But at least it is a lot lower than if I didn’t take the anastrozole.

Member

Re: Stopping Anastrozole

Should of said hormones
Member

Re: Stopping Anastrozole

How do you go about having your jormjbe levels tested privately ? Adec70 x
Member

Re: Stopping Anastrozole

Hi, I have just posted above. I was in a similar position to you. Very dubious about Anastrozole but decided to start one every other day. So far so good and my oestrogen levels are low. Predict data is a bit misleading because the deaths are deaths from all causes, not just from breast cancer
Member

Re: Stopping Anastrozole

Hi, I am new to the forum. I had a mastectomy in February, then told I must take Anastrozole for 10 years. I didn’t like the details of the side effects and at first thought I might not bother to take it. But when I read the research I realised it is really effective at reducing the risk of recurrence. I also found out that in early trials some women were given 0.5mg Anastrozole and that seemed to produce a significant reduction in oestrogen too.

So I decided to start Anastrozole by taking one every other day. I did ask my oncologist about taking half doses but she politely told me that wasn’t on. I have been in this regime for about a month. I had my oestrogen levels tested privately and the result came back as less that 18.4 pmol/L which is very low. (18.4 is the lowest level the test can detect)

i haven’t had any side effects on one every other day and I might stay on that level or go up a bit but I will have a blood test every now and then.

I know a lot of women give up Anastrozole because of the side effects, but that increases the risk of recurrence because your oestrogen levels rise again. Why not just go down to one every other day rather than stopping entirely. At least that way your oestrogen levels will be lower and so will your risk of recurrence. Anastrozole is effective and if you can stick with it all well and goid but in my opinion it would be a mistake to give it up entirely.

Member

Re: Stopping Anastrozole

Siuin,  As a follow up to your post, have you completely stopped anastrozole and have you informed your Onco yet?  I am considering the same, for the same quality of life issues (I am post-meno, 63 yrs old) .... I wrote to my oncologist to let her know what I would like to do but have not heard back yet.   Taking the risk scares me, cuz who wants to go thru THAT again but I'm seriously thinking about it....

Member

Re: Stopping Anastrozole

I am supposed to start anastrozole in three weeks
I am post menopausal
Stopped HRT
Had surgery
Radiotherapy due next week
I am reading so many horror stories about it
I have ME and Fibro and already fe l tired and very stiff which scares me too and will wreck any quality of life if it gets worth.
I am not sure I want to take it for the extra % gain in life expectancy which in my case is low according to Predict
Member

Re: Stopping Anastrozole

Hi Julie,

I’ve been on anastrozole since December, 2017.  At first I felt just fine.  After about a month, I got a return of terrible hot flashes, insomnia, anxiety, headaches, followed by bone pain - heels, thumbs, neck.  I was ready to go in and ask to change to another hormone blocking Med, but did a little research.  I started here, on this website, in a forum about side effects.  Then, I looked up research on side-effects of anastrazole, and how hot flashes should be treated in women with breast cancer.

 

Women with pain, insomnia, etc. tend to have more severe hot flashes.  This adds to fatigue and brain mush.  I thought that, if I could sleep, I would feel better.  I was feeling so bad, I had to quit my job, which I loved!

 

I ended up asking to be started on a new (to me) Medicine for hot flashes.  I was already on 75 mg of the extended release formulation of Effexor daily.  I switched my Anastrazole to the morning, to decrease the insomnia a little, and went to the next Medicine on the algorhythm for hot flashes - oxybutinin.  It’s supposed to relax your bladder, to make it hold more urine, and it’s used in small doses- 2.5 mg twice a day.  It is really strange to me, but I was better by the next day!  I slept a few hours for the first time in months, and I actually had my energy back!  I didn’t sleep as well last night, but I’m still better today.  The amazing thing is that my headache is gone, my bone pain is very mild, and my energy is back- all from treating the hot flashes! I had to share this, because there is hope, and I was hopeless 2 days ago!

 

i don’t know if stopping the anastrozole will help much.  I think it builds up in your system, and has ongoing effects, but I’m not sure.  Ask your doc to address your hot flashes, if you have them, and the Lord May help you as much as He helped me.  God bless you!  Braindoc

Member

Re: Stopping Anastrozole

I have been taking anastrozole for 4 1/2 years.  6 months ago I was diagnosed with high blood pressure...actually off the charts 200/120.  I'm a runner and have maintained my weight since starting this drug. My doctor could not find a drug regime that touched my BP. After a stay in the hospital and connecting with the caridology team in my town....my BP is under control with 3 different meds. I had my 6 month follow up visit with my oncologist this week and she informed me that I can stop anastrozole in 6 months and that it most likely has caused my high blood pressure. I'm in shock. I've been through the ringer the past 6 months trying to address these BP issues. I'm so tempted to stop this drug now. Has anyone else out there had BP issues?

Member

Re: Stopping Anastrozole

Thanks Ann
I wasn't menopausal when I was diagnosed but as I had a large fibroid, Tamoxifen is not an option. I'm meeting my oncologist in 2 weeks and will talk then. I'm sceptical about the efficacy osteoporosis medication. Ive been taking calium and vitamin D since I started Anastrozole. I'm so worried about what to do. Thanks for your reply. Its great to talk to someone.
Community Champion

Re: Stopping Anastrozole

Hi Suin,

I can certainly see why you’re worried about this.  Really, the only thing I think we can say is do talk to your team about it, or it might be an idea to give the helpline here a ring to talk it through.

There are medications that can help with the osteoporosis risk, alternatively, it might be an idea to ask if tamoxifen could be an alternative, as I was told by my oncologist that it does protect bone health in women who have gone through the menopause. 

Wishing you well with it all.

ann x

 

 

 

Member

Re: Stopping Anastrozole

I stopped taking anastrozole two days ago and haven't told my oncologist  yet. I'm scared that I'm doing the wrong thing and I can find no one who will advise me. 

I was diagnosed with stage 2 oestrogen positive grade 3 cancer in my right breast in 2016. I did the chemo and had the best result possible. The tumour shrank to nothing  and I got a complete pathological response which means the chances of getting that cancer again are very low. 

I had a mastectomy and a few nodes removed to be checked. The cancer was gone but I had some calcium deposits and pre cancerous tissue so thats all gone now too. 

I had radiotherapy in the whole breast armpit area. 

I then spent 5 months taking palbocciclib as part of a drug trial. It reduced my ability to fight infection as a side effect.and I got sepsis and left the trial.

I had a breast reduction on my healthy left breast for cosmetic reasons. They tested the removed tissue and it was all totally normal. Ive also read that statistically reduced breasts are less likely to develop cancer.

I have been taking anastrozole since January 2017. I had a dexa scan soon after and was told I was very lightly osteopenic.  A year later I had another scan and then I got a letter moving my next oncology meeting forward 3 months. I was terrified and contacted the breast nurse. Apparently my bone density has deteriorated alot in the last year. It can only be because of Anastrozole.

My question is if my chances of recurrence are low anyway, should I continue to take anastrozole when it is doing me such damage. I hate to go against the doctors advice but I don't want brittle bones. I'm scared.

Member

Re: Stopping Anastrozole

I just stopped that medicine and I agree with you- 100pct . How did you stopped it? At once or using a scheme? My doctor was - let us wait see what happens in 3-4 months ? Why? And the start taking tamoxifen. No way
Member

Re: Stopping Anastrozole

Really! Do we need that? I hate the way my doktor doesn’t even bother to engage in convincing conversation! I am stopping it after 10 months and wonder what withdrawal symptoms will have?
Member

Re: Stopping Anastrozole

I had that too/ I aged tremendously for s few months
Member

Re: Stopping Anastrozole

Hello Jullue,
I am stopping it right now after my hair start falling . I was taking it for about 10 months , and really hated it! Thanks ! I will keep asking around
Member

Re: Stopping Anastrozole

Jacey I agree with you. All of your points apply to me too. I feel as though I've aged dramatically in a short space of time and can't bear the thought of continuing like this for another 3 and half years when I felt so fit and healthy when I was diagnosed. I want to know the likelihood of producing oestrogen after 18 months of attacking it. Surely it doesn't take 5 years to finish it off. I'll be nearly 70 at that rate!
Member

Re: Stopping Anastrozole

Hi. I am now 2 months into Exmestane and other than a couple of weeks where I felt rotten, it has had far less side effects than Anastrazole. My risk on NHS predict was too high not to take something, although I was seriously thinking I'd give up because of anastrazole. It only took a newly found lump (luckily nothing horrible) to realise I will continue. I have fatigue still but no achy joints. X
Member

Re: Stopping Anastrozole

jacey, i so agree with you.  i'm 39 yrs and have been on tomoxifen for 5 years not they wanna give anastrozole fo r the rest of my life and they also want to shut down my ovaries ... what about my qaulity of life.  and the doctors, act like there's no other option but death.

 

i want to take my life and learn how to eat the right things.  take the right vitimans. 

Member

Re: Stopping Anastrozole

Hi. Just adding another two penneth from me!
I have come off Anastrazole after 6 months, so I can start Exmestane in a few weeks. I was struggling with joint pain, although my body had adjusted to the other side effects. I will keep taking the tablets, as this is my second hormone driven primary. I had a total hysterectomy almost 6 years ago and was told that should help prevent BC. Unfortunately it didn't. Whilst there is a possible genetic cause, I really thought I'd be protected against Breast Cancer and I wasn't. The first op gave me immediate menopause and these bloomin tablets the second! I genuinely thought I couldn't have any hormones left in me post menopause!
Xx
Member

Re: Stopping Anastrozole

I don't understand the necessity of anastrozole or any other hormone affecting drug for those of us who;
are past the menopause
have had our cancer removed
are not taking HRT
have had radio/chemotherapy
are having annual mamograms
I accept our bodies make hormones to some degree, but less so, and decreasing, which is why the menopause is so awful. But do we really need to take something that affects our body so extremely? We're putting this stuff into us and our bodies are crying out in distress - is it really absolutely necessary???
Member

Re: Stopping Anastrozole

I've been suffering terribly with a dry salty mouth..it was bad during chemo but has got progressively worse..mouth tastes of salt and it's weakening and damaging my teeth.finally went to the doctor today who gave me a spray to try but is thinking it might be the anastroxole.I certainly don't want to live with this as it effects every day of my life but wondering if any hormone blocker doesn't do this?
Member

Re: Stopping Anastrozole

I'm having 6 sessions of Auricular acupuncture courtesy of our local cancer charity. I think the auricular bit is the most important. It has made a huge difference to the frequency and intensity of the flushes and flashes and also has reduced anxiety and improved mood. I was a little sceptical at first but we have it as a group and all are feeling positive effects at different levels. It's made a huge difference to me.
Member

Re: Stopping Anastrozole

I have not, but it is certainly something to consider. I just know that I can't live with symptoms like I have been having. Quality of life is very important to me. I can deal with moderate side effects, but when they start to interfere with my daily activities something has to change. Thank you for the suggestion. I will look into it.
Member

Re: Stopping Anastrozole

Just wondered if any of you tried acupuncture /reiki/ massage for your side effects before stopping treatment?
Member

Re: Stopping Anastrozole

Julie...I see that you posted about a month ago. I stopped taking Anastrozole just over a week ago because of the severe joint pain and cramping in my hands and feet. I am hoping that my symptoms will diminish soon. Im wondering how you are doing with your symptoms after being off the drug for over a month.
Member

Re: Stopping Anastrozole

Hi Julie,I also stopped taking Anastrozole after only six tablets. I couldn't sleep, felt awful in myself and my joints were so painful. I couldn't walk as the pain in my knees was terrific. I rang Breast Care Nurses who spoke to consultant. I was told to stop taking it and was put on Tamoxifen.
Well I was taken off that too after 11days, this time joint and muscle pain all over my body, migraines, moody, emotional, hot flushes and not being able to sleep due to the constant aches and pains. My Oncologist took me off it and after two weeks I felt myself again. He was hoping that having a rest from it I would be able to go on it again, so my new start date was when I had my first radiotherapy, I've now taken two tablets my joints are starting to pain me and I can feel myself becoming moody.
I don't think my body likes these drugs!!
Hope you are starting to feel better.
Good luck Chris. Xx
Member

Re: Stopping Anastrozole

Thanks Bibi, that's good to know.  5 weeks off Anastrozole now, still achey and still flushing at night but sleeping in between them.  Still not decided whether to go back on it next week after the 6 week break.  Maybe like you, having a break from it will help and I'll give it another go xx

Community Champion

Re: Stopping Anastrozole

Hi ladies it's not quite the same, but I was having terrible joint pains on tamoxifen.  When I went on holiday, I was told to stop the tamoxifen a week before flying (T can cause clots & strokes), so ended up off it for 2 glorious weeks.  I had miles more energy & all the pains went away.  I reluctantly restarted it the day I got back & the joint pain hasn't come back.  I am just telling you that because taking a break might have the same effect for you. x

Member

Re: Stopping Anastrozole

Hi Julie,

 

i too have stopped taking Anastrozole after 3 months on the advice of my oncologist at my follow up appointment after finishing rads.  My symptoms were hot flushes/sweats continuing  ALL night, aches and pains and feeling generally unwell.  He said that my body was unable to take it and advised I stop.  I spoke to a BCN  who who was  Not happy about me stopping completely but suggested I stop for 6 weeks to give my body a chance to recover and see how I felt.  I'm now 3 weeks into not taking it, aches and pains improved slightly, don't feel quite so "sicky" but still hot flushing all night.  However, the sweats are much better and i am dropping off to sleep inbetween the flushes which I wasn't while taking it.  I guess the flushes must be the menopause as I came off hrt the same time as starting Anastrozole.  Still got another 3 weeks to go to see if flushes and aches and improve and decide whether to give it another go or take my chances off it.

 

 

Good luck and keep us informed of how you get on xx

Member

Stopping Anastrozole

Hi,

I have posted this on another part of the forum but now realised that this is a more appropriate section.

 

I am interested to hear from anyone who has stopped taking Anastrozole. I have stopped after 3 months. I have been experiencing various symptoms including depression, incredible tiredness and weakness, poor apetite and others. My consultant has agreed that these are possibly due to the Anastrozole and recommended that I stop taking for a while.

Has anyone stopped taking Anastrozole after similar symptoms? Did the symptoms improve and if so, how long did it take for you to see some improvement.

Thank you for reading and responding