Thank you for your reply. It's great you are doing fine on the Tamoxifen, and with Zoladex injections too. I hope things keep going well for you! How long did you wait after your surgery before starting Tamoxifen just ouf of interest? I've been told I could wait a few weeks before starting it.
I have been advised to take Tamoxifen, but also to research it first especially as I have M.E. and tend to experience more side effects than most to drugs - Tamoxifen being known for unpleasant side effects in many.
I am 32 and three weeks ago had a mastectomy (with immediate reconstruction) to remove a four centimetre spattered area of grade one invasive cancer, which had developed from DCIS. There was also a second region in the breast which looked potentially dodgy for the future, and papillomas. My consultant says the Tamoxifen is just 'belt and braces' as they are confident they have removed all the cancer which was only a low grade and hadn't spread to the lymph nodes. I am being referred to genetics though, as there is a very high incidence of cancer of many types in my family, including my father's sister and my Mum who both had ovarian cancer. It's possible therefore I have a genetic propensity to breast cancer and so my risk factor could be higher for it returning.
I only got married two months ago and so the idea of getting menopausal symptoms right now makes me feel a bit sad, coming off the contraceptive pill due to the cancer being oestrogen receptive has been not ideal for us already, but I am also aware that if the cancer came back having not taken Tamoxifen I'd feel really bad about that.
I would be interested in hearing from anyone with a similar cancer to mine who has decided not to take the drug, and also the experiences of anyone who has M.E. and took Tamoxifen.
Thank you for reading.