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What brand to try if can’t take Accord Letrozole

9 REPLIES 9
AngieG
Member

Re: What brand to try if can’t take Accord Letrozole

Hi Karen 

Im still about the same on cipla, still have painful joints but I’m not taking so many pain killers now so I think it’s getting better. I’ve got an appointment with my rheumatologist tomorrow, I’ve had a back problem for a long time now. I’m going to ask him if he can suggest anything to help with the stiffness and pain. When you tell the oncologist about how you feel they just say it will ease with time, I really don’t think they realise how much it effects people. 

I didn’t start back to work after Christmas like I was planning because of the Covid situation. My GP said to wait until I had both of my jabs , which I think is sensible as I work in busy out patient clinics. I had my first one before Christmas and I’m due my next on the 20th. Looks like hospital staff are sticking to the 3 weeks apart. 

Good to hear your feeling a bit better, I know what you mean about your feet and ankles in the morning ! I walk to the bathroom like a penguin 🐧😂 good that you can work from home, it’s the safest place for you at the moment . 

Take care and stay safe x

karen99
Member

Re: What brand to try if can’t take Accord Letrozole

Hi Angie

I hope the cipla is still working for you.  I tried to get this brand but it wasn't available so I decided to try another 2 weeks on the Sun pharmaceuticals which is the best brand for me so far.  I still have stiff ankles and feet and find it very difficult to walk when I first get out of bed but it tends to go quite quickly.  I do the same as you and take pain killers if the pain wakes me in the night but this seems to be less frequent now. I just wished I didn't feel so tired all the time.  That fatigue feeling doesn't seem to have gone. I hope you are feeling fit enough to go back to work.  I am lucky as I am able to work from home so don't have to worry so much.  Fingers crossed 2021 will be a better year.

AngieG
Member

Re: What brand to try if can’t take Accord Letrozole

Hi Karen and any fellow letrozole takers 

I have been on cipla for nearly 2 weeks now and up to date this is the best one for me that I’ve tried yet. I’ve had less pain in joints especially hands and legs. Fingers crossed 🤞 this will carry on. I take 2 co-codomol at bedtime and that seems to help me be able to move better in the morning, not sure if it’s the pain killers or improvement with the cipla that lets me get a decent nights sleep. I was waking up when I was trying to move in bed because of the pain. I’ve also started taking a high strength glucosamine. So I’m not sure if it’s a combination of things or I am actually getting used to it but if I can carry on like this I will be back at work in January 👏👏👏 it’s strange how the different brands effects people, cipla gave my sister in law carpel tunnel syndrome but seems the best yet for me. She can take accord but I couldn’t get out of bed without help on that 🤷‍♀️ 
Have a good Christmas, let’s hope for a healthy happy new year x

Anycomentome
Member

Re: What brand to try if can’t take Accord Letrozole

it is sign of improvement of your immunity power If you are feeling better, Now It can added some Yoga exercise and take advice from expert doctor to change your brand if it is not available. 

karen99
Member

Re: What brand to try if can’t take Accord Letrozole

Hi Angie

Sorry to hear you are the same as me, but in some ways it makes me feel better that I am not imagining how I feel.  I feel I have aged 20 years too!.  I was wondering if it was the tablets or just the Covid times resulting in feeling down as we can see our normal friends etc but I think it must be the tablets.  I now have a plan.  I get 14 day prescriptions from my doctor and try different brands to find one with the least side effects.  When I have gone through all the brands my pharmacy can get I will go back to the oncologist to see what else can be done.  Teva was a terrible brand for me as I was crying\tearful and PMT like (niggly and on edge).  Now 3 days in on Sun.  Fingers crossed it will be better.  

karen99
Member

Re: What brand to try if can’t take Accord Letrozole

Hi Susan

It is hard to stick with it but I have a plan now which helps...I am changing my brand every 2 weeks to find one which seems "less worse".  Teva gave me terrible PMT type symptoms ( tearful \ niggly \on edge) and indigestion\nausea  but now on Sun and that seems better so far but only 3 days!

Susanmanchester
Member

Re: What brand to try if can’t take Accord Letrozole

Stick with it been taking Letrozole 17 months now  and eight and a half years to go ..... it was at its worst first six months . Switched to Cipla.... Accord caused bad joint pain. Surely worth it to stop cancer recurrence .... take it religiously ladies it will get better 

AngieG
Member

Re: What brand to try if can’t take Accord Letrozole

Hi Karen I’m the same as you with the letrozole, I started it in the beginning of October , my first one was accord i was awful on that but gave it a good go. Then I tried Glenway which was a bit better for 2 weeks then back to how I was on accord but this time more pain in hands and arms🙄 this week I’m going to start on cipla so fingers crossed this will be better if not I’m going to ask if there’s anything else instead of letrozole . I’m wanting to go back to work in January but if I’m not any better it’s going to be difficult, I’ll have to get up at 5 so I’m moving and pain killers have worked a bit before I get to work. I work in a hospital so it’s very busy as you can imagine. I don’t know about you but I can’t face feeling like this for the next 5 years. I feel like I’ve aged 20 years in a few months! 

SaskiaE_BCN
Community Manager

Re: What brand to try if can’t take Accord Letrozole

Hi Karen99,

Thanks for sharing your experience with Letrozole. While you wait for other users to respond to this thread, you could chat with our clinical nurse specialists about this treatment and its brands on 0808 800 6000. Or you could post to the Ask Our Nurses board.

Best wishes,

Saskia 

karen99
Member

What brand to try if can’t take Accord Letrozole

Like many others on this site I have found the side effects of Letrozole so bad I want to stop. My side effects are nausea/achy shoulders/difficulty walking/sleep disturbance and tiredness.  I had a grade 3 tumour removed in April. (Nodes Clear). After radiotherapy started on Letrozole in July. The side effects are effecting my quality of life. I am trying Pilates/yoga weekly to try to cope but I have worked out that the Accord brand don’t suit me at all. GlenMark was slightly better. I am going to try other brands before I go back to my oncologist and ask to be taken off Letrozole. My question is which brand should I try?