Ok, this may be a controversial one but my attitude to life is that it is about quality rather than quantity. I am on a 6 week break from Anastrozole at the moment because the side effects were impacting my life too much - constant hand pain, fingers swollen and stiff, hands weak, enormous difficulty sleeping and generally fuzzy headed. I am self employed and I literally can’t afford to do a bad job - hence the decision to stop the meds for a while.
I know AIs do a very valuable job but I think it is a judgement call, that will be different for everyone depending on their circumstances and situation.
I should say upfront - I am single (husband left me 6 years ago) and I have no kids, so I live for my adorable dogs, my friends and my dad. Oh and eating cake. 😉
I know that there have been ladies on here who have posted how different brands affect you and the side effects.
You can ask for your Pharmacist to give you the Accord brand when you put your form in or go to another pharmacist. I am on tamoxifen and have always had the Teva brand, my pharmacists attitude is you are on this for 10 years so if that is the brand that works for you then that is the one he will give me.
I am only four months in to anastrazole, the furst three months on the Accord brand I was fine, very minimal side affects. Picked up my next prescription, a brand I have never heard of manufacturerd in Spain. This last month has been horrible, the aches and pains have hit big time, feel like a 90 year old rather than 57! Could this be the different brand or my body getting used to anastrazole? Have been thinking if this is the way forward do I want to continue with hormone treatment, which in the back of mind I know I have to!
Treeze, I agree. A friend once asked me if I've changed my outlook since my diagnosis ? Do I live life to the full? Sadly not. Each day is a struggle, and I do what I can. My aim was always to be able to look after my children. And that I can do. Anything more than that , is a bonus.
It also depends how you look at it. From what I’ve read, NHS Predict on looks at survival at 5 & 10 years, not those who’ve had a recurrence during or after that timeframe. I’ve also read somewhere, that hormone treatment reduces the risk of recurrence by up to 50%, with most of us falling between a 10-40% recurrence risk anyway.
Hey ho, it is a dilemma. I’m on tamoxifen & have stayed on this rather that go onto AIs, with my oncologist’s & surgeon’s agreement, as it is protective of bones & I’ve been fine in it - could this be an option?
As ever, do what’s right for you.
Wishing you well with it all.
I don’t have an answer but am in a similar situation - am having a break from Anastrozole because the side effects were becoming too much. Such a difficult decision to make but I guess it will be different for everyone.
I had an early grade 2 stage 1 ductal breast cancer, no lymph node in volvement (3nodes removed) in 2014. Lumpectomy, radiotherapy and letrozole. I have moved into moderate osteoporois now, hair thnning on top of head and numerous ligament issues, buttocks, shoulder, elbow, coccyx. I changed to Exemestane a month ago after a month break from treatment. I am tempted to discontinue and hope for the best. I have read the Predict research paper and identified my risk. It seems that A.I's give me 1% greater survival over a 5 year period and 2% if I take it for 10 years. Problem is, I can't figure out whether this is suh a small risk that I could come off it or if 1 in a hundred is a big risk. I am 66 years old now. How do other people make this decision. Sometimes I just want to get of the meds and then I think, well better to have arthritis and osteoporos and thin hair at least I woud still be alive and not dying of cancer. How do others make the decision - one way or another. Medics simply say that although there is only a low risk of recurrence, and low benefit from treatment, breast cancer is so unpredictable that you cannot be too sure... what to do?