Hi Ali, I've been on Letrozole for two years, and I have had to do a bit of figuring out with it all. With advice from my Onco I found a brand that suited me, and my joint pains eased immediately. I have had a rest from it to recover from aches. I take it with Palbociclib , but not together as it makes me feel drunk! So Letrozole at night and get over sweats and aches. Hit shower in morning to get me going, plus stretching exercises. Yes, two years after op I still do them! My consultant radiologist advised glucosamine tablets, but I don't think they were effective. I have discovered TaiChi is my saviour. Lots of movement, like stretches plus meditation. I really sympathise with you, and know you won't have done it lightly. However, as I have secondaries in my lungs I will certainly be pursuing all avenues and trying to stay on my regime. The very very best to you. X
My onc put me on tamoxifen because I have osteoporosis of the spine and he said that letrozole is very harsh on the bone density, and I am post menopausal. I wonder if you can change to that, I know it has its problems as well as it can thicken the lining of the womb etc, but it might be worth checking with him to see
just know now how you are feeling, I have to just stopped taking Letrozole after 3 years and feeling so much better, however not sure if I have done the right thing.
God luck, big hugs xxx
I am wanting to stop my tablets after nearly 2 years as I feel like an old woman with hip and back stiffness that just seems to get worse. I am 71 and quite active playing golf, gardening etc. I am wondering if my body will return to normal if I stop.
It' Emily here from Breast Cancer Care.
It sounds like you have a difficult decision to make, and there's quite a lot playing on your mind in terms of both risk and side effects. If you'd like to speak to a Breast Cancer Care volunteer over the phone who has made a similar decision, then this is something I could arrange for you.
Feel free to send me a direct forum message with your name and number if you think this would be helpful, and I can give you a call to talk through.
Sorry that you havent received a response yet. Hopefully someone will be along shortly to share their experience with you. In the meantime you may find it helpful to speak to one of our specialists on the free Helpline, 0808 800 6000. Alternatively you may prefer to post a message directly to our nurses in the Ask Our Nurses area of the Forum.
Digital Community Officer
I had an early grade 2 stage 1 ductal breast cancer, no lymph node in volvement (3nodes removed) in 2014. Lumpectomy, radiotherapy and letrozole. I have moved into moderate osteoporosis now, hair thnning on top of head and numerous ligament issues, buttocks, shoulder, elbow, coccyx. I changed to Exemestane a month ago after a month break from treatment. I am tempted to discontinue and hope for the best. I have read the Predict research paper and identified my risk. It seems that A.I's give me 1% greater survival over a 5 year period and 2% if I take it for 10 years. Problem is, I can't figure out whether this is such a small risk that I could come off it or if 1 in a hundred is a big risk. I am 66 years old now. How do other people make this decision. Sometimes I just want to get of the meds and then I think, well better to have arthritis and osteoporosis and thin hair at least I woud still be alive and not dying of cancer. How do others make the decision - one way or another. Medics simply say that although there is only a low risk of recurrence, and low benefit from treatment, breast cancer is so unpredictable that you cannot be too sure... what to do?