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Feels like a long wait

12 REPLIES 12
Kay0987
Member

Re: Feels like a long wait

I actually felt relieved, too. Like my diagnosis day was a good day. I knew a bit about breast cancer and when they told me at the biopsy it looked like cancer and to be prepared, my thoughts went into overdrive. Luckily in the states we don't have a two week wait (mine was five days and only because I had my biopsy on a Thursday before a holiday weekend. Two days is a more typical wait time here) but I had pretty much killed myself off. So the actual diagnosis (hormone positive and early stage with more than likely no lymph node involvement) felt like a gift. That feeling ended pretty quickly but it was nice at least that day 🙂

And welcome to our crappy club. It sucks loads but the company is lovely!

Tili
Community Champion

Re: Feels like a long wait

Dear Rodin,

We have all been there and now we are there for you, it’s always so strange we never want to receive a diagnosis of cancer however we deal with it. You can now get your planning order going forward I’m wishing you health and happiness for an excellent outcome.

Try to be positive easier said than done take one day at a time and all the help offered.

Keep posting and let us know how you’re getting on

Biggest hugs Tili 🙏🌈🙏🌈

Rodin
Member

Re: Feels like a long wait

I had the biopsy results yesterday and it is cancer.  Bizarrely ( or maybe not after reading other posts), I felt relieved and not so lost.   Provably because now I can stop second guessing and get on with the treatment plan. 

I have to have a CT scan and possibly MRI, before confirming treatment. The suggested plan is a lumpectomy followed by hormonal therapy. 

Onto the next step, I’ve got this with all of your support. 

Rodin
Member

Re: Feels like a long wait

Hi Tigress

Thanks for the reply, yes my husband is coming with me on Friday.  You’re right, my mind will be in a whirr, whatever they say. 

Tigress
Member

Re: Feels like a long wait

Hi Rodin, 

Will you be taking someone with you to your Friday appointment?  If possible I think it’s worth it.  The only time I haven’t been for appointments on my own was for the results of the biopsy.  It’s difficult to take it all in, whatever is said to you, as it’s impossible not to start processing the information straight away and then you miss the next thing that is said to you.

It would be fatuous to tell you not to worry but I echo the sentiments that you will be in the hands of complete professionals who do this day in and day out so try to trust the process.

 

Rodin
Member

Re: Feels like a long wait

Just a quick update, I’m still waiting and counting down the days until Friday - biopsy results day. 

I feel as if my usual positive, confident self has been taken over by an anxious. overthinker and mentally tired self.  

I hope this will change on Friday 🤞

 

Rodin
Member

Re: Feels like a long wait

@Pebbles51  you’ve had quite a journey, thank you so much for sharing it. 

Through my work, I’m always waving the flag for wellness, but I didn’t appreciate how deep your mind works when you go through these experiences.  I hope you can get support as it’s a lot for you to go through and adjust to. 

it’s also amazing that you and others are on hand to support on this forum, that support really is invaluable and I thank you so much x 

Pebbles51
Member

Re: Feels like a long wait

Thanks @Rodin 
I had a lumpectomy in June with one node removed followed by a cavity shave in July as my margin wasn’t clear, thankfully my lymph nodes were. I finished my radiotherapy about 6 weeks ago and I’m on Letrozole for 5yrs. 
To be honest I’m struggling now, mentally and physically but it’s very early days and I’m going to ensure I get the appropriate support needed. 
All I can say is trust the experts, ask lots of questions, take as much support as you can and be kind to yourself, it’s a BIG thing and you shouldn’t underestimate the impact it has. 
Sending hugs 🤗 

Rodin
Member

Re: Feels like a long wait

Thank you so much Charys, your reply has certainly helped. I understand the clip more now and can stop second guessing now. 

I'm so impatient and hate not being in control, but it’s good  to have such great support. 

I wasn’t offered a phone call and after reading the replies, it’s probably not a good idea anyway.  It’s been a week now since my biopsy, another 10days to go.  I’ll have to throw myself into work, running and family stuff to get through it. My immediate family and my best friends know and that helps. 

I can’t thank this forum enough, seems like not being able to sleep is common and reading the posts does help x 

 

Charys
Community Champion

Re: Feels like a long wait

Hiyer Rodin,

A tiny clip shows up on imaging - so its clear to the surgeon where the area was that was biopsied. I believe its about being able to easily find the exact spot that one sample was taken, so that if more samples are taken they can be done from different areas. I think. Also, if surgery is needed the clip can provide a marker for that.  I didn't have a clip during biopsy, but I did have some added after surgery to show the location where the tumour had been (for future imaging comparisons). I'm not sure I know why some people have them during needle biopsies and some don't - and I'd be guessing somewhat - but I suspect it is to mark suspicious areas that are harder to find even using imaging techniques. It could be be that your 'area of suspicion' is more easily located than the other lady, due to its position or shape or type of area being tested. Maybe someone will put me right on that ?!  Happy to be corrected.

It sure is a truly nerve-shattering wait, I recall mine oh so clearly and it was certainly 2 weeks to the results. You have the empathy of anyone who has been there before you, the psychological turmoil during these days of 'not knowing' are horrendous. I don't think its too dramatic to say that it feels like torture, and really puts your emotions through the wringer. Its hard to not let your mind go into some dark and frightening places, people can't sleep, some can't eat and lose weight and it consumes their thoughts - but we are all here and understand. Remember Rodin that after your consultant appointment life will go on irrespective, even if you need treatments :). 

Regarding the telephone question - I wasn't offered the option of a call. I know many people aren't as lots of hospitals have a policy of only giving ALL results, no matter what they are, in a face to face meeting. That way, they can provide immediate support if the news means that treatment is needed for BC. I did ask at the time why they didn't just call people who had benign results to save the face to face, but the answer was that if you therefore spent 2 weeks waiting for a call and didn't get one - then you'd 'know' something was wrong. As painful as the wait is, it was deemed better to at least have a definite specific date for results. So, certainly my trust area, do a blanket face to face. I can't recall who posted below saying they had their results on a phone call - to be honest, that sounds awful. The Breast Cancer Nurse is often in the room ready to provide support if you have results that show BC - and they often talk to you after your meeting and give guidance on various things. I suspect you might have already been offered a telephone option, if one existed, and the fact that there is a date to return to the consultant probably means thats how they deliver all results. 

Hang on in there Rodin ! You won't crumble to nothing, its just so darned hard dealing with the not knowing. I truly hope that your results come back as benign, but if they don't, then those skilled professionals, with their effective modern medicine will sort things out for you with a treatment plan. Feel free to post any of your thoughts and questions - we are happy to listen and share experiences. x

Rodin
Member

Re: Feels like a long wait

Thank you so much for replying & I’m sorry to hear your news wasn’t good. How are you now? 

I hate not being in control & having to wait. 

Pebbles51
Member

Re: Feels like a long wait

I also had a recall after a routine mammogram and had to wait 2 weeks for my results, I opted to call for my results as they were fairly confident it looked like a fibroadenoma. I was on holiday with my children when I rang for my results to be told the devastating news that I had breast cancer, how I wish I had got my results at the hospital where I would of received the appropriate support. 
Not sure about the clip, I think it’s so they can monitor any future changes more easily? 
Fingers crossed for you, the waiting is the worst feeling x 

Rodin
Member

Feels like a long wait

Hi everyone, 

I had a recall last week, following a routine mammogram. No symptoms, but after having more mammograms and an ultrasound, I was told there was a lump - I still can’t feel it.   I had a biopsy and have to wait until 18th November for the next appointment as the consultant is away - it feels like forever! 

I’m trying to keep busy, calm, positive etc. but actually I’m crumbling a bit more every day,

Has anyone ever had results over the phone rather than waiting for a face to face appointment? Wondering if it’s worth me phoning to try.

Also, the lady before me had a clip with her biopsy, I didn’t - does anyone know why I didn’t have a clip? 

Sorry for the questions, they are swimming around in my head and thanks for reading x