Hi, it took me a long while to get the courage and strength after the recurrence in 2014, it's stage 3 with lymph nodes involvement. I really thought that I'd never live to see my daughters getting married and have family. I could not talk about my health issue without tears. knowingly our life was under threat is very sad and emotional, we don't know how long we have left! Also the thoughts of friends who have similar fate that are no longer around!! I must be positive but also be realistic.
But time gives you strength, I have been able to talk about my situation freely, or give advice to others when asked. I cherish and very grateful to be given another chance in life. I finished my treatment in 2015, it was really horrible and I'm now considered to be in a remission. I saw my eldest daughter got married in 2016 and now I have a newly born grandson. I'm so grateful each day.
Previously I drank sensibly, ate everything in moderation, but have too much stress. Now I eat mostly wholesome plant based food, no drink, cut down stress, take certain supplements as a personal therapy, and hope for the best. I also take proactive action about my own health and take liquid biopsy tests the last two years to do my own monitoring. NHS do not provide that service - but it's near accurate to monitor the amount of cancer cells still left in your body, much more than the biomarker. I was told that I still have min amount of cancer cells in the blood but the count is low and has not gone up. Anyone who has not been diagnosed, unknowingly could also harbour cancer cells in their body. The important thing is to keep an eye on the number of cells detected.
I believe that it's important to cut out any toxicity in your life and harmful substance in your food, the modern intensive farming practice unable to guarantee that. There is only so much you can do the rest is fate. Be happy, be loving, and be grateful for each day.
i just wanted to say that I'm not sure what benefit the breast care nurse thinks you get from being told you are high risk of reoccurrence or Mets and indeed if she is even correct in that.
My mum and sister both had a larger tumour and similar nodes affected to you and my mum only had hormone therapy back in her day she did not want chemo my sister had 2nd generation chemo
My mum is now 29 years disease free and my sister 14 years disease free I have recently had a double mastectomy myself.
Statistics don't tell individual stories but even if you went off the stats 90% of women in your position are here 5 years on and still very high proportion after 10 years so the odds are seriously stacked in your favour.
I hope this gives you a lift and maybe the breast care nurse just isn't the right one for you because if I had a patient who the odds were very likely that you will be here in 10 20 30 plus years I would be encouraging you to get on a live a happy life.
hope this helps
Not 10 years yet but i'm planning to get there... When I was diagnosed in 2012 lots of things went through my mind including my lovely Son would get married and i wouldn't be there. I then started lookig at research on survival stats 5 yr and 10yr (told myself they were years old and before Tamoxifen 'cos i didn't like what i was reading) and when the BC Nurse continuously reminded me on positive days that i was Stage 3 with a large (6.5cm) Tumour. I wanted to punch her. Since then i have seen a different Nurse who I felt was much more appropriate.
They have to be honest and i was grateful for that however my Consultant suggested Chemo first as the tumour was large and most likely to have spread. I had 6 x FECT (gruelling) Surgery x 3 then Radiotherapy, I have since had reconstruction and surgery to other side. My treatment took 12 months in all and it turned out to be 6.5cm grade 2 stage 3 with only 1/23 node positive. All nodes removed as tumour was 4cm+
The diagnosis came only 12 months after my first Mammogram, the Consultant was shocked and felt it must have been missed, she requested the Mammogram and it was clear.
So Diagnosed September 2012 and i am just coming up to SIX Years Survivor, due to see the Consultant next week and i think she will discharge me. Since my treatment i have had every therapy known to man, i have really struggled. (I work in Mental Health / have been flogging therapies for years). I do need to have some further corrective surgery but have been too busy living life.
My Son did indeed get married, i went down to part time at work, looked after myself better (More downtime, better diet, less alcohol, more exercise.....) I am just changing my Job which i never thought i would do and am so looking forward to a new challenge.
I can only say that i did used to get very angry and then very sad that nobody could give me time frames and my Consultant still only ever says NED (no evidence of disease). I had a lot of therapy to come to terms with the uncertainty following such a diagnosis.
The longer people don't have recurrance the less likely they are still to be on this site so think it is unlikely we will ever get a true picture of the number of long term survivors. I do consider myself to be one and am grateful for every day, it definately changed my outlook and way of life. I am physically high maintenance. The Receptionist in The Beauty Shop is 60 and had Bi lateral Mastectomy 20 yrs ago. IDC in one breast indicators in the other, She did 5 yrs Tamoxifen at the time and now nothing.
Breast Cancer Care have really good movng forward courses, my local Cancer Care Centre offered complimentary therapies and there are Maggies Centres everywhere, I found all of this very helpful.
Hope this is helpful, please ask anything that you need to know, and surround yourself with kind and positive people. Good Luck with your recovery. Buttterfly xx