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Northern Ireland BC Ladies

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Re: Northern Ireland BC Ladies

Stay safe ladies. X 

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Re: Northern Ireland BC Ladies

AMA..…..much love to you and best wishes for your recovery from radiotherapy x

 

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Re: Northern Ireland BC Ladies

Thanks Wonky it felt good to know I’m done with hospital for 6 weeks, Coronavirus adds a new concern for patients going for treatment. Hope you and all the ladies stay well and stay strong.  x

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Re: Northern Ireland BC Ladies

Well done Ama! X

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Re: Northern Ireland BC Ladies

Well Ladies that’s me done, finished last rads session today!  

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Re: Northern Ireland BC Ladies

Thank you Wonky, your encouragement is much appreciated. x

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Re: Northern Ireland BC Ladies

Hi Debbie, sorry to hear you landed in for a sleepover, but so pleased that you were well looked after by the the fantastic staff. You certainly aren’t having an easy time on this journey. Hopefully things will settle for you and you’ll continue on with treatment and get it all out of the way. Thank you so much for your deodorant suggestion, I’ll be hot footing to get some today. Right now I’ll try anything! As for tamoxifen, almost one month done, no huge side effects, aside from the facial hair, and a return to hot flushes. So it’s on with the rads, lovely pink glowing boob day one, day two glowing a bit more but plastering on the diprobase they gave me. At this rate of going, I’ll be cooked to o a crisp by the time I’m done. 😂 take care, hope your being spoilt back home.x

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Re: Northern Ireland BC Ladies

AMA hope you are coping ok with the radiotherapy.......I was 2 floors away from you!!!!! I just got home this evening after a stay in ward 2b after a reaction to my last chemo.......OMG the nurses and Drs are absolutely fantastic.........I also had the same issue as you and changed my deo to the Dr Organics Rose Roll-On.....I don't know if its linked but it sorted it for me.

Gutted to hear about your facial hair......I will be taking Tamoxifen and have.....or should I say had......really thick dark hair so I will be probably go thru this with you for the next number of years.........Smiley Embarassed

Stay well

Debbie x

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Re: Northern Ireland BC Ladies

You're doing great! X

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Re: Northern Ireland BC Ladies

Thanks Wonky, that’s one down and fourteen to go! Think I was lane 10 and head like a sieve can’t even remember a name. x

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Re: Northern Ireland BC Ladies

Hi Ama,

Lots of love for your rads tomorrow. The Rads Staff are fantastic! If you are Lane One with Aislene, please tell her I still think she is a super star!

Can't say I have the smelly armpit prob. Suggest you ask to see a Rads Dept nurse ( also super stars) to get it checked out, in case it's pointing to some sort of infection trying to get a hold.

 

X

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Re: Northern Ireland BC Ladies

Well that’s me on the way to Rads. Phone call today, I start tomorrow. Glad that another wait is over, and I’ll actually be doing something that will move me on in this journey. Tamoxifen has given me the gift of hot flushes again, thank God at night mostly, disturb sleep but better than coping day time. Thought I’d seen the back of them few years ago, but more scary is the increase in facial hair in just a few weeks. Usual lip and chin wax I get every few weeks isn’t going to do it. Waxed last week and its thicker and longer than it’s ever been when left for several weeks. Not vain but it’s embarrassing specially when grand-daughter asks why you have a beard and moustache like her uncle!

Also ladies can I ask again, am I just paranoid about this or has anyone else experienced the same issue.   No matter how much or often I wash/shower/bath my surgery armpit has a smell. It’s driving me nuts. Even using deodorant it smells unlike the other side. It’s a body odour smell but almost chemical too (if that makes sense). I’ve never had a problem before.  Hope you are all doing well. x

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Re: Northern Ireland BC Ladies

Debbie good luck and best wishes for you as you continue your treatment. As I said to Heather the strength of women on here never ceases to amaze me. x


@Debelina wrote:

Heather I was so delighted to read your post......thank you for letting us know how you were getting on x

 

Tomorrow I am taking my 1 or 21 targeted therapy and 4 of 6 chemo on Wednesday when that finishes its onto Tamoxifen and then Radiotherapy to be discussed......I'm scared to ring the bell as I have a high recurring cancer and have accepted that I might be going back done this route hopefully later rather than sooner.

 

I hope you do not have to wait long for your surgery!

Take care - Debbie

 


 

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Re: Northern Ireland BC Ladies

Heather hope you enjoyed your wine you sure have earned it. I’m glad you completed radiotherapy without major issue. One more step along that road for you, and I hope when you’re surgery is complete, you’re stepping back to normal is complete. The strength of women here never ceases to amaze me. 
I’ve been through planning for radiotherapy and am now waiting for the letter to confirm when I start my 15 sessions. Started my Tamoxifen few weeks ago. Still a way to go but getting there x

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Re: Northern Ireland BC Ladies

Heather I was so delighted to read your post......thank you for letting us know how you were getting on x

 

Tomorrow I am taking my 1 or 21 targeted therapy and 4 of 6 chemo on Wednesday when that finishes its onto Tamoxifen and then Radiotherapy to be discussed......I'm scared to ring the bell as I have a high recurring cancer and have accepted that I might be going back done this route hopefully later rather than sooner.

 

I hope you do not have to wait long for your surgery!

Take care - Debbie

 

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Re: Northern Ireland BC Ladies

Hi ladies,

I hope you are all well. Where are you all on your journey now?
I finished my radiotherapy last Monday, the 10th. I decided before I began my radiotherapy that I wouldn’t ring the bell, I still have some surgery to be arranged, so I don’t really feel like I’m finished yet. It is heart warming to sit in the reception area and see the joy on the faces of those who do ring the bell, to signify the end of their journey. Found myself getting quite emotional for them. 

Luckily I have had no issues with the skin, for anyone getting the radiotherapy plaster the cream on, they give you a wee tube just, I was asking for one every 2nd day because I was using so much. In the end I asked my GP to prescribe me the big 500g Diprobase pump so I had plenty when I finished. Tiredness is not too bad. Hair is growing following my chemo, I’m going to have to shave my legs again 😫 lol

It is very strange not having my calendar full of hospital appointments and times. Some people don’t seem to know what to talk to me about anymore, for 8 long months it was all we could talk about. The stepping back to ‘normal’ feels odd. Baby steps, baby steps. So tonight I am having a glass (or 3) of wine to celebrate being near the end and try to forget what I’ve been through. I raise my glass to all you wonderful women, the strength and endurance you all have...... if no one has told u lately, you truly are amazing 💓

 

Heather  xx

 

 

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Re: Northern Ireland BC Ladies

Thanks Debbie, 15 sessions, the y will send me details in about three weeks about times etc. Have requested afternoons as mornings can be difficult with gdaughter. Start of March would suit me fine, done and dusted for Easter - new beginnings! Take care stay well 

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Re: Northern Ireland BC Ladies

AMA that is such a positive step...…….our armour is definitely full of chinks...….but once our treatment is over think of our lovely healthy bodies underneath that can take the armour off. How many more sessions do you need to have.....I hope you don't need to go at the weekend and are able to enjoy it......maybe we will have to cosy in with Storm Ciara Smiley Embarassed  I am glad you got thru today x

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Re: Northern Ireland BC Ladies

Many thanks for kind thoughts Debbie, went back today for another go, and thankfully managed it.  I still can’t believe how vulnerable I felt after not being able to do it first time round. I guess on this journey we are all strong women, but little chinks in the armour still appear!

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Oh AMA I am so sorry you are feeling so miserable and wish I had some words of advice for you...…...I am sending you lots of positive thoughts for Friday x

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Re: Northern Ireland BC Ladies

Hope all you ladies are doing ok at each stage you are at, you have all been in my thoughts. You are all so strong I’m glad I found this forum.

today I went for planning for rads. I’d practiced the breathing, but not well enough, to put it bluntly I blew it! I’ve to practice and go back Friday for another try. But to be honest I’m so stressed and anxious about it now I can’t see it being any better. Came home and I feel so stupid! Staff were very nice, but I just feel so silly. Prior to going in consultant and radiographer stressed not to worry if I couldn’t do it, but it is a big issue now for me, I’ve wasted their time and an appointment lasting over an hour, and achieved nothing. I’m dreading Friday will be just the same. I’ve been pretty optimistic but realistic from diagnosis through, but I just feel knocked sideways today. 

 

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Re: Northern Ireland BC Ladies

Heather I can't believe you are nearly over the half way mark Smiley LOL What will you do with all your free time not having to go the the centre everyday Smiley Happy 

I just found out yesterday that I will have to have radiotherapy but not until next year so imagine how far on you will be by then......stay strong pet xxxx

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Re: Northern Ireland BC Ladies

Hi weewoman, doing OK tk God.  I'm glad radio is treating you kindly, don't forget to moisturise well. Time fly's by and u will be out the other side in no time.  Hope ur doing little things to treat yourself, very important.

 

Take care 

Roseb xx

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Re: Northern Ireland BC Ladies

Hi everyone 👋 

 

How are you all doing? I hope you are all doing ok 🙂 I have my 7th radiotherapy out of 15 today, so halfway almost. Skin a little red but not too bad. Feeling ok, still tired from chemo so haven’t noticed any extra fatigue, and hair has started to grow, it’s so soft and pure white, I feel like a little lamb lol Ive just turned 40 and will have a full head of white hair 😲 I’m not too worried, all the young ones are dying their hair white/silver these days anyways, I will be trendy for free lol

Hugs to all,

 

Heather 

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Hi AMA, it is very daunting at the stage you r at.  When I was there 5yrs ago, it helped me talking to my neighbour and a work colleague who went through same as me and were fine and still are!  There are so so many women going through this, what is going on?! I was put on Arimidex and taken off my estrogen, I hope tamoxifen suits u.  I’m not sure AMA did u have a mastectomy? Did u get your cream to apply after your rads?

 

well wishes to you x

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Ama, best out than in, I say so bawl your eyes out in the shower lovely. You might be freaking, but hey you're squeaky-clean in the process. Xxxx. And don't apologise to anyone - you are going through a very tough time. It does get easier, just takes a while

 

Hugs from here. Wonky X 

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Many thanks ladies for your support and humour it’s much appreciated. Well I saw Dr McCarty, happy with the wounds and proceeded with her explanation for deciding on rads and Tamoxifen. Given my existing joint and pain issues Tamoxifen was deemed the more suitable. However after hearing again about side effects and menopause etc I felt like saying no thank you!😂.   Ashamed to say I’ve bawled my eyes out feeling sorry for myself tonight in the shower. Anyway back about the 6th for a scan and another “talk” according to the very nice Dr McCarty. Is that the planning appointment or does that come after the scan? Feel like I’m losing track of things now there’s so much going on! 

 

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Re: Northern Ireland BC Ladies

Ama, hi. Chances are you will go to the same 'lane' ( makes it sound like an MOT centre -lol) for your entire rads stretch. So your lane-team will soon build a rapport with you. You will be shown  great sensitivity as regards the fact you have to 'strip off', but tbh as the days go by these rads teams are so fantastic, you might be stripping-off with little concern. Channelling your inner Demi Moore. X I cannot rate them highly enough for their sensitivity and how much effort they put into making us feel comfortable, and cared for. Once you get into the routine it gets easier. I know we are not allowed to reference specific NHS staff on here, but I secretly hope you are Lane One.

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AMA - thanks for the well wishes, hoping the next 3 weeks fly by! My appointment with Dr McCarty was 18th December, but I was due my last chemo on New Year’s Eve so the earliest my radiotherapy could start was today, 3 weeks after my last chemo. I’m not sure how long the wait would be if not receiving chemo. You likely will get your little tattoos tomorrow also, they are just tiny pinhead marks, not exactly a pleasant experience but necessary for lining up the lasers correctly during each treatment. The hospital gave me a cape to take home and bring with me to each treatment, you get undressed to the waist, put on the cape and lie on the bed, then the cape is opened and you are pretty exposed, so many people have seen me half naked by now it doesn’t really bother me, what’s a few more lol

The kids have been my rock and reason for getting through this all. My eldest is 19 and he probably took it the worst, being older he fully understands the severity of the word cancer. My daughter who is 16 and 2 younger boys have generally been ok after the initial shock of being told, kids are resilient little things  ☺️ It must be very hard for you keeping it under wraps from your grand daughter, I hope you have very little side effects from the rads and it starts soon so you are closer to finishing 🤞

Heather xx

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Heather good luck with the radiotherapy. I don’t know yet when I’ll start, I’m seeing Dr McCarty tomorrow, and will also find out which pill I’ll get. I’ll watch with interest how you’re getting on with both rads and tamoxifen. How long after app with Dr McCarty did you start rads. Also maybe silly question but how exposed are you during rads? Are we provided with gown, or just left totally uncovered. How are your children coping? I’ve my granddaughter living with me, but haven’t told her anything, due to high anxiety levels. But I have to admit dreading being hit with any side effects, things are hard enough. Good luck all xx

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Re: Northern Ireland BC Ladies

Wonky thats a lovely post I’m sure the ladies will avail of that.

 

wishing you well x

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Re: Northern Ireland BC Ladies

Hi all you lovely ladies. Bit tired tonight, but wanted to post something positive. The cafe in the City Hospital cancer centre is very nice. But if you paddle down the pathway outside/ past the cafe you come to the Friends Centre which does free tea & coffee and had a very pretty garden. Also, although you have to stay inside the building, your bleeper works everywhere, so you don't have to stay put in the waiting-rooms, if you would feel more comfortable waiting elsewhere. Obviously not to the point of giving the staff the runaround, but something to think about. Very pretty garden opposite to rads reception desk ( down the corridor). X

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Hi everyone, thanks for lovely replies.  Weewoman plaster yourself in prescribed cream in that area 3 times daily and you will be fine, do not let it dry out!  I did this and I had No problems.

Debelina, I’m glad only one node was affected and treatment these days is very good. You really have been through a rough time developing pneumonia as well! be very kind to yourself. 

warm wishes Xx

 

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Re: Northern Ireland BC Ladies

Hi girls 🙂 

Had my first radiotherapy today, glad to get started because the end of it is now in sight. Staff were all lovely and you don’t feel a thing, just hoping the dreaded burnt isn’t too bad when it happens 😕 already have the fatigue from chemo

 

AMA - hope your appointment went ok, have you a start date for radiotherapy? I started my tamoxifen today also, 1 down, just 3559 tablets to go 😂 u have to laugh at the ‘take one tablet each morning for 10 years label’ lol I hope you had a good experience with Dr McCarty also 😊

Rosebud - good to see another member from NI 😀 I hope you have gotten your results now and everything was positive. 
Wonky - hope you are well 🙂 I certainly felt the strange atmosphere amongst the patients when I attended the Bridgewater Suite for chemotherapy. Its the unspoken words written on people’s faces, realising we are all in this same rubbish boat just trying to get through each treatment. But I met some lovely people throughout my chemo sessions 😀

Debelina - glad u had some help from your son after the op, it really is a huge surgery. And then developing pneumonia afterwards, you have been through the mill. How have you healed up afterwards? Mine was all healing fine and then I developed a reaction to the glue they use, resulting in my 1st chemo being delayed by a week. How are you coping with this round of chemo? I hope your side effects aren’t too bad 🙂

 

Heather xx

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Re: Northern Ireland BC Ladies

OMG Wonky...….too funny....I am sure your Dr has had that happen many times Smiley LOL

 

 

Rosebud......Wonky's NI thread ladies are increasing......pretty not nice that others find themselves here but I think a lifeline that we have a wee place to chat and have Wonky and now yourself to remind us that there is light at the end of the tunnel x My breast cancer is also Invasive Lobular also and I am so lucky that when my lymph nodes were removed I only had one that was 'bad'...…. I am ER positive and HER2 positive so have decided that its nearly time for me to start gathering info on how I can help myself as I am starting to feel less scared about understanding what this actually means. I hope you don't need to wait so long on your results x

 

Debbie x

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Hi wonky, I understand completely, our minds are all over the place afterwards.  I have read that statistics re BC are about 7th in line as biggest cause of death in women!  My problem is that estrogen is contraindicated for women with history of BC especially hormone sensitive ones but there is even a change of thinking on this now so who knows really.  

How are you now? I’m not sure where you are on your journey xx

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Hi Rosebud, I feel bad that I started this thread and then walked away from it. All the NHS staff are amazing, but what is imprinted on my heart (and soul) is the faces of women in the waiting rooms. So stoic and so brave, yet that strange silence of fear.

BC has taken it's toll on me, yet I am one of the luckier ones. Cannot imagine what chemo is like. 

As you say Rosebud, its nice to chat, and hopefully the lovelies already doing so, on this thread will keep the great work going. Now, simply for a bit of fun girls ..... you are stripped naked from waist upwards. Oncologist examines you and pronounces you 'good to go'. Me - I just wanted to hug him, but nooooo. LOL and big hug to all with a BT postcode. 

 

 

 

 

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Re: Northern Ireland BC Ladies

Hi Wonky, I have just seen a few posts from NI which is nice.  

I am now 5 years post BC waiting on results of my last yearly scan, please God it will be good!

I am up and down struggling with menopause, headaches, mood swings, sweats etc etc!  Mine was invasive lobular no node involvement and had lumpectomy plus rads, all went very well.

 

Just nice to chat to women who have been through similar so a big hello to all x

 

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Re: Northern Ireland BC Ladies

Hi. 

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Re: Northern Ireland BC Ladies

Hi, anyone still posting on forum from Northern Ireland?

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Re: Northern Ireland BC Ladies

Much well said Ama. 

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Meeting an oncologist at the cancer centre really brings it home to you, what it is we’re dealing with. “The Cancer Centre” says it all doesn’t it.   I’m a very positive person, and for me since routine mammogram through to post op appointment this week it’s been quite a busy time with me thinking just get it done. But the past few days reading the various literature given by bcn about rads and pills does bring a more serious tone to things, for me anyway. It’s a bit like, I have to do this, whether or not I want to, or whether or not it agrees with me, I NEED this treatment and I NEED these pills, this is it. Because I’ve had previous surgeries for non cancer related issues, I think I had almost,  albeit not intentionally, approached this with an attitude of its just another surgery. Except this time you don’t just go home, rest recover and carry on. This time there’s more to think about. Sorry don’t mean to be despondent, but maybe just a reality check moment for me. Anyway onwards and upwards. I’m pleased you’ve had a positive experience with Dr McCarty, that’s reassuring for me. Wonder how long the appointment will be, as bcn said It’s just to discuss rads and pills 🙂. By the way I think you do deserve a medal Heather, and not just for putting your socks on! Good Luck x

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Re: Northern Ireland BC Ladies

Girls/Ladies, any thoughts on meeting up somewhere? X 

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Re: Northern Ireland BC Ladies

Totally agree AMA and because we are all have different forms of BC and different options of treatments its a 'journey' you can't plan for you just have to deal with it each day Smiley Embarassed

Heather I had a DIEP during my mastectomy operation and had my lymph nodes removed too...….looking back I can't believe what a long operation we went thru! I took pneumonia 3 days after just when I was getting ready to go home and had to spend another week in the City......I remember that 'sock' moment too.....I was like a peacock getting them on.....I have a 13 yr old son who was a total expert in helping with the stockings you have to wear.....you wonder what they must think when they see their mum getting excited about being able to do simple things again Smiley LOL

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Re: Northern Ireland BC Ladies

Debbie I do feel relieved that I can take another step to getting through treatment, it’s like you just want it all over and done with. But part of you knows no matter how realistic or positive you are, it just isn’t a simple straightforward journey.

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Re: Northern Ireland BC Ladies

Hi ladies

Debelina - I hope that now Monday has passed you are physically feeling stronger and able to get back to work in week 3. It’s hard isn’t it? 🤗 U really do have to take the positives as a milestone! I had the diep reconstruction after my surgery, I wondered if u did also when u mentioned tummy/boob? I unfortunately developed a haematoma so had a further emergency surgery afterward and longer hospital stay, when I came home for a few weeks my wee sons aged 8 and 9 had to put my socks on.... the day I could bend down to put them on myself, it was like winning a gold medal at the olympics!!!! I hope you are feeling as well as possible 🙂

AMA - so so happy for you that lymph nodes and margins are clear. I know 1cm may sound alarming, my tumour was 4.7 cm when examined after removal, however lymph nodes were clear but that’s why a mastectomy and reconstruction was the only option. And as u say, concentrate on the fact it is gone. I named my tumour Fred, I decided to acknowledge it and accept it and give it a name, and it helped my kids understand a bit. They hate Fred lol My oncologist is Dr McCarty, she is a lovely lady. She was always happy to answer any questions, never felt rushed or that any question was stupid. I am still under her care until I finish radiotherapy.

Wonky - so happy for you that you good news, are you discharged from care now? I also agree with Debbie, thank you for starting this thread up 🙂 I hope that now your treatment and surgery are over you can get back to as close to before bc normality as possible 🙂

Heather xx

 

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OMG Wonky I am so so so happy to read your post......that's fabulous news! I wish you every bit of strength. Thank you for setting up this thread......much love....Debbie x

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Re: Northern Ireland BC Ladies

I'm through my dear. All done. Op, rads. X But would always try to support others who have still the miles to walk. X

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Re: Northern Ireland BC Ladies

Hello there Wonky...…..have you had your operation yet...…..are you ok x

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Re: Northern Ireland BC Ladies

Hi Ladies. Not long back from Belvoir Park Suite at City Hospital. Good news for me today; but much love and sincere thoughts to those still dealing with the worry and stress of BC. x