There has been discussion about new treatments and trials for triple negative ladies - Im sure the other triple negative ladies will point you in the right direction .
Thanks again Jill x I have applied to join the private secondary BC forum. I am just so fearful of my TNBC metastases diagnosis and the dire prognosis I've read on the net (13 months?) that I'm hoping to find some ladies who can inspire me with hopefully better outcomes? Deb x
😀 - Glad you worked it out ! if you have questions just ask no matter how silly it may seem - there are Community Champions around the forum whose job it is to help and chat - we are all people who have used the forum ourselves for support and enjoy talking to people who are new to the forum .
Hi again Jill - please ignore my earlier message about the date of posts, I've sussed it now! I should have been more patient! Deb xx
Thank you Jill x This might sound really dumb but how can I tell how old a post is? I've been looking through some and wanted to message a lady who is on oral chemo for TNBC secondaries but from what I can see it just says "member since Jan 2010" but not the date of the actual post? I'm sure I must be missing something?! Deb x
Thank you Jill. I find navigating this forum a bit overwhelming but I'm sure I'll find my way around - just all a bit overwhelming at the moment. I've done as you suggested and some ladies have responded which is great. Deb x
HI Deb welcome to the forum .You are probably best to repost this in the secondary section of the forum where ladies who are in similar situations are more likely to see your post .I will post you a couple of links .Very difficult time to have a cancer / secondary diagnosis x
Hi everyone - I'm new to this so not quite sure what I'm doing?!
Having finished chemo and RT for TNBC 2 years ago I now have the scary diagnosis of lung metastases. My oncologist is calling me on Wednesday to discuss treatment options but my Macmillan nurse thinks this will be oral chemo so that I don't have to attend hospital due to Covid 19.
Knowing the poor prognosis for my condition I have done some research online and read about the CT7001 (Carrick) trial and metronomic chemo (MC) which I understand to be a lower dose of chemo combined with immunotherapy.
When I mentioned both of these options to my nurse she implied that neither were an option due to Covid 19 as the important thing is to keep me safe and oral chemo would mean not having to visit hospital.
Obviously I need to discuss the options with my Oncologist but my worry is that oral chemo may not be the best treatment.
We are obviously living in scary times which makes my diagnosis even worse. I would love to hear from anybody who may be going through any treatment for TNBC metastases to find out how you are getting on.