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A Message of Hope

13 REPLIES 13
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Member

Re: A Message of Hope

Really appreciated reading your story. So happy that things have turned around for you and it encourages us all! 

Peggy xx

Member

Re: A Message of Hope

Thank you all for your replies.

My Mum works in bowel cancer screening and was chatting about me today with a consultant. He is baffled that I’m still alive!

According to my hospital notes I had decompensated liver disease,, the prognosis for this is really poor. He has seen a picture of me and says there is no way I have this anymore because I look so well. He has told her he’s going to mention it to a liver specialist because of how well I’ve responded to treatment.

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Community Champion

Re: A Message of Hope

Hi Sazzle,

That's absolutely wonderful, amazing news!  I am so happy for you! Thank you so much for sharing that.  It really does make a difference to know that nothing is certain even when it seems like really bad news at the time.  I hope you go from strength to strength and enjoy your newfound outlook.  Its made me smile today....sending hugs xxx

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Member

Re: A Message of Hope

That's amazing news. You must be so relieved. Enjoy the new outlook on life. No looking back. Take care xx

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Member

Re: A Message of Hope

Hi Sazzle

Fantastic news, really pleased for you and the best news is that it's given you a whole new perspective and hope, long may that continue!

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Community Champion

Re: A Message of Hope

Hi sazzle

What great news and thanks for sharing. I’m glad your latest CT scan shows the treatment you’re on, and presumably nearly didn’t have, is working. Just goes to show this disease at times doesn’t follow the rule book! Definitely your chance to get on and live life to the full.

Nicky x

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Member

Re: A Message of Hope

Hi Sazzle Such great news so happy for you .Gives us all hope x

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Member

Re: A Message of Hope

**update**

hello everyone,, I’m just wanting to share my latest news.

i had a ct scan to check on how well treatment is working...all good news!

The tumour in my breast is shrinking and so are the mets in my bones and liver and only a few small modules can be seen on my lungs. 

Its just amazing news, especially after the prognosis I was given in the beginning of June. I feel like I’ve been given a whole new outlook on life and I’m feeling more confident and positive every day.

♥️

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Member

Re: A Message of Hope

Thank you for sharing hope - we all certainly need this!

Take care

XXXX

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Member

Re: A Message of Hope

Thank you,, I had my 2nd round of chemo on Wednesday. It’s now Sunday and I’m completely exhausted.

I keep trying to think positive but not feeling very at all today, I try to avoid reading online except on here but came across an article about secondary cancer being aggressive in younger women, I didn’t read it but it’s stayed on my mind. 

There’s just so much info online and I’ve no clue about the accuracy of it, going to ban myself from checking things again I think.

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Member

Re: A Message of Hope

Thats amazing!!! yes your message is a message of hope. so pleased for you! xx

 

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Member

Re: A Message of Hope

So glad your feeling much better. Iv had a similar story . After my surgery and all was healed I was due to start chemo but on the day they realised my liver function tests were extremely high including a very high bilirubin level. My bloods before my op were normal.   Panic stations and I had emergency scans as they thought I had a blockage somewhere. It was a very frightening worrying time. Over the days I had several scans and repeat blood tests and even ref to a liver specialist to rule out auto immune etc . I was unable to start chemo until my liver tests were correct. Over the weeks they steadily dropped back down and have now been consistently back to normal. Nobody can understand why my bloods were so off the chart. One thing that came out of it all was I was diagnosed initially with stage 2 and  treatment of chemo and radio . Due to all the scans they discovered secondary in bone which wouldn’t of been picked up if my liver function tests hadn’t of played up. It was a massive shock but my treatment plan had to totally change and be more pacific. Maybe someone was looking Out for me  after all. Six months on and my liver function tests have been completely normal. 
Thanks for sharing

jo

Highlighted
Community Champion

Re: A Message of Hope

Hi Sazzle,

I was so sorry to read about all the trauma you have recently been through - though what an amazing outcome!  That is an incredible chain of events and I am so happy for you that you are feeling better than you were.  I am sending you lots of love and hugs and I hope that every day you get a little better and a little stronger xxx

Thank you so much for sharing.  It really puts things into perspective that doctors can just never know with absolute certainty about these things.

Highlighted
Member

A Message of Hope

Hi everyone, I just want to share my story of what has happened to me over the past few weeks.

 

I went into hospital for my bloods and my first consultation to start chemotherapy and ended up being admitted that same day. My memories are vague but I know I had my chemo on the Wednesday. I had raised calcium levels and I also had to go for a brain scan which came back ok.

 

By Thursday I had deteriorated rapidly, my hand/eye coordination was terrible, I could barely write my own name and I was very confused. I was moved to a private room and my Husband and Mum were contacted to come through as soon as possible.

They rushed through and although I have no memory of this I was in a very bad way and they were told my liver was failing and they were told I was going to die within a few days. I was asked where I wanted to go, I chose to go home and left hospital on the Saturday.

I have been home now for nearly three weeks, I had my blood results yesterday and the consultant was amazed. My bilirubin levels when I left hospital were 5 times what they should have been and are now almost back to normal.

I’ve been given the go ahead for my treatment to continue three weeks after being sent home to die. I feel better physically than I have done in probably 10 weeks at least and I’m steadily getting my strength back.

I just wanted to share this with you all to show that there is always hope. I’m still here and I genuinely thought I wouldn’t be when I first came back home.