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Appointment

8 REPLIES 8
Anne30
Member

Re: Appointment

Thank you. I am going to go to Maggie’s tomorrow I think. You are all so wise. I wonder if I will become wise too
Anniej
Community Champion

Re: Appointment

Hi Anne, it comes as a shock to all of us when diagnosed with secondaries. What I do know is, never ask a question you don't want the answer to! My Onco was extremely upbeat about treatment these days, saying he had plenty of tricks in his bag. I don't think there's any point in asking about life expectation as everyone is so different and responds differently to treatments. The answer can only be very general, and my Onco refuses to debate this area. I am currently on Letrozole, which is an aromatise inhibitor, and Palbociclib, which is being trialled. I rely very much on support from my local Maggies centre which runs a secondary BC group. We receive excellent advice and support both from Maggies and each other. There are ladies in this group who have managed their condition for over eight years. The trick is to live in the moment and remember that you are living with, not dying from, cancer. Please do pm me if you would like information on the various help, courses and activities I have accessed. In the meantime, one day at a time. 🍀

Anne30
Member

Re: Appointment

I did ask. My husband says I was much too pushy and kept trying to get a sense of what the likety progression would be. I have three small areas - two on the spine and one on the hip. Starting anatrozole and chemo tablets and bone injections once a month. She thought that would work for a bit and then she’d have to do something else.
LYNDYLOO
Member

Re: Appointment

Hi Anne

It must have been a shock for oncologist to say that to you. Just wondering did you ask the question first.

I know when I was first diagnosed with breast cancer only in the August 2009 had mastectomy in the September but before starting treatment they sent me for CT scan and bone scan. Results came back I had bone mets. Like you it was a shock as I felt well with no bone pain at all.

The oncologist was very positive quoting it is classed as a chronic illness not a death sentence and there was loads of treatments.

It is early days for you once treatment starts and you get positive results things will settle down.

Stay strong.

Anne30
Member

Re: Appointment

Thank you. She did say that as I have been diagnosed with primary and secondary at the same time she has plenty of treatments to try. I was just hoping she’d be more encouraging. I suppose they don’t want to be too optimistic
Kate21
Member

Re: Appointment

Hi Anne, yes, Anastrozole is an aromatase inhibitor like Letrozole which I’m taking. They stop an enzyme, aromatase, from working so there is less oestrogen in the body. Many take them for years, when I started on Letrozole my Oncologist said if you imagine having a tool box with those little draws in, and each draw contains a different treatment, well Aromatase Inhibitors aren’t even in the toolbox, they sit on top! Any emotion you’re feeling at the moment is understandable but things will settle down. Kxx

Anne30
Member

Re: Appointment

The tablets are anastrozole. Have you heard of them? I feel well physically and walked to and from the hospital (five miles) but can’t face seeing anyone. I feel ashamed somehow.
Kate21
Member

Re: Appointment

Hi Anne, I’m sorry to read your post as I know you were hoping for more answers today. I’m a little surprised to hear she’s said that to be honest as they really don’t know and it sounds like they were being very cautious. I understand it will be difficult for you but try hard not to dwell on that figure as they can only use published data and statistics, which are frequently out of date, and as she said they will include people in far worse general health than you, which is very relevant. I was told very early on that being hormone receptive means there are more treatments available, what tablets have you been started on? You’re naturally going to be shocked but try to live in the moment, (I understand much easier to say than do), I think I remember you posting that you felt so well and couldn’t believe what you’d been told, you’re still that person! Stay strong and tell yourself you’re going to show the Oncologist and nurse, you can do better than their stats!! Sending love and positive thoughts, Kxx

Anne30
Member

Appointment

I have seen the oncologist whom I liked. My cancer is in three places in the bone - very small areas. She said average life expectancy would be five years and the nurse was very reluctant to say there was any chance I’d make 10. My cancer is very hormone receptive and and I’m also having chemo tablets. Has anyone got any advice on coping with the initial shock? She did say the average included lung and liver mets and old people. She said I need to wait and see how I reapond. Any thoughts welcome!