Hi Pennyb57 thank you for reply, I'm sorry to hear about your diagnosis, it's an awful shock isn't it.. I currently am waiting now for CT scan results and also mammogram results, just seems like an extra test to get stressed out over. Can I ask what treatment are you on ? I'm on palbociclib and letrozole, cycle 10 , doing ok on it x
Hi there Gillyflower so glad you are doing well (apart from the itch) 😳.. I'm waiting for my latest CT results so I've scanxiety going on, never mind the mammogram results as well!! but I'm on a wee holiday and enjoying that, something to take my mind off .. thanks for reply
I think they should be done in conjunction with USS because I had three and none of them showed up anything and last year I was diagnosed with stage 4.
I totally feel the same, I absolutely hate going for Mammograms even though I know I should feel grateful!
I'm doing well all things considered thanks - though currently in a very itchy state as it seems Cape/eczema and summer weather definitely don't mix well - never mind though, its the least of my worries haha. How are you doing? 😊 xxx
Hi Nicola, that's what I thought too, I'm now waiting for the results of my mammogram and have the date for my next CT scan! Just seems unnecessary I will definitely speak to my oncologist to see if I can give the mammograms a miss... I hope it's sunny where you are here in Ireland it's heavy rain predicted for later today lol .. take care and thanks for replying.. jools xx
I have secondary breast cancer and have CT scan every 12 weeks. I was surprised to be invited for annual mammogram, but checked with oncologist who advised no longer required.
Maybe check again. One less thing to worry about?
Take care and enjoy the sunshine.
Hi Jaybro, yes sometimes life seems like one long appointment with SBC! I do suffer from scanxiety and although I'm really grateful they are keeping a close eye on me, it's extra stress waiting for more results...
Thanks for the reply and take care
You have enough on your plate without the additional worries of a mammogram. I was given a clear mammogram 6 months before I was found to have two tumours and heavy lymph node involvement. No one mentioned one of the tumours was triple negative. That was 2018. A tiny skin infiltration was my alert. When I questioned the mammogram, I was told it depended on the radiographer but was still the best way of picking up breast cancer.
Now I have SBC, in the past 6 months, two MRIs and a CT scan have failed to pick up my SBC. It was an ophthalmology biopsy that located the cancer. Fair enough, it was tucked inside my eye socket but MRIs should have picked it up instead of referring to an indeterminate mass!! Again I have skin lesions but they haven’t been picked up by the scans. We are working solely by the blood markers to see if treatment is working. I have lost all trust in scans (apart from the bone scans which explained that I had a badly healed fracture of the sternum and the CT scan was looking at scar tissue, not cancer). I’m hoping I’ll be offered a PET scan - something has to be right!
Having had my rant, I will still go for my mammogram if treatment allows. I don’t get scanxiety after all these failures. I just hang onto blood markers!
Hi catokitty yes I was really surprised when I was booked in for a mammogram I'd only just caught my breath after my last CT scan results!
Thanks for replying
My oncologist said there was no need to go for mammograms as I have six monthly chest, abdo and pelvis CT scans which would show anything up. Its a relief to have one less scan to get anxious about x
Hi there Gillyflower 👋 I kind of feel bad even asking the question because I know we are lucky being so well monitored etc .. it's just the scanxiety I could do without and the mammograms are just another waiting game for results... Extra stress I suppose.. how are you doing ?
I've been wondering the same thing, as since my secondary diagnosis I still get called for Mammograms. I queried it with the Breast Clinic when I attended the scan and was told to speak to my Oncologist....Oncologist then said something along the lines of "if you've been offered one then yes keep going". I tried to query it with her but she didn't want to advise me either way (I suspect she's risk averse given the amount of complaining I've done about the service in the past).
I did attend the mammogram I was called for last year after secondary diagnosis but I am thinking I might not bother this year, as I am also getting 3 monthly CT scans currently.
Hi secondarysister2 yes I agree totally, especially when such a high percentage of primary returns as mets.. in my head I try to prepare myself for the 3 monthly checks and results that follow, I'm just curious as to whether a mammogram shows up anything that a CT scan can't.. you'll know from your experience with your mum life seems like one long appointment, so are the mammograms really necessary..
Thanks for reply and take care
To be honest, I have wondered whether they are necessary at all after a primary diagnosis.
For example, my mum had breast cancer 10 years ago and had a mastectomy on one side. She had regular mammograms on the other breast these last 10 years.... it always gave great reassurance that they came back clear.... but it eventually came back in her bones... no checks on her bones... or even advice what to look out for.... ever!!! It seems most women’s secondary diagnosis isn’t often in the breast ?!
Hi all, I was called up for my yearly mammogram on Friday, which I went for on the say so of my breast care nurse. I didn't think I'd still need them since I'm CT'd every 3 months? Thoughts anyone? Reason for asking I suffer dreadfully from scanxiety and now I'm a bundle of nerves again...