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Bone Marrow infiltration

3 REPLIES 3
Community Champion

Re: Bone Marrow infiltration

Mejules, Please ignore time scales and try to enjoy what time you get!! I was told it wasn't an immediate death sentence but probably 2 years! Well, I've been here 13 years with mets in lungs and lymph nodes in my chest. Nobody knows how you will respond to treatment. I know I have been blessed with 13 years, but who knows what will happen to each of us! Best wishes! FF

Member

Re: Bone Marrow infiltration

My husband wanted to know timescales so I have never been told timescales from my oncologist. My husband had a private conversation with my oncologist. My husband has since hinted to me what the original timescales were.
Member

Re: Bone Marrow infiltration

I don’t have any experience of this but am sure someone will come along who has. You certainly sound as if you’ve had to cope with a lot. There is a lot of support on here. My oncologist doesn’t give time scales. They’re all different. Hope you get some comfort x
Member

Bone Marrow infiltration

Hi everyone. I wondered whether anybody in the same boat as me and has secondary breast cancer Only in the bone marrow. I've been told this is quite rare for it only to metastasize in this one area. Bones and everywhere else clear.
I was first diagnosed at the age of 34 in 2007 and had a mastectomy, chemo and radiotherapy. After being very tired in 2017 and subsequent blood tests. It was found through a bone marrow biopsy that there were cancer cells in there and confirmed breast cancer cells from original diagnosis.
I had chemo in 2017 and then hormone therapy. The chemo worked for a short while as platelets improved greatly. However just before Xmas platelets dropped severely and tumour marked raised so back on another go at chemo. On weekly epiburicen at the moment. Lost hair in 2017 through chemo and just got my colour and length to where I like it, but through the epiburicen it's falling out again.
I have beaten my original timescales from my oncologist but just fed up at going through chemo again and all the side effects. I'm only 46 and just want to hang on as long as I can!! Vent over!! 😁