That is great news now you can get on with that wedding it must be lovely to have a daughter to share her wedding with. I had 2 boys one married in Jamaica while I was having chemo and the other in France which involved 2 weddings a civil ceremony and then church the following day. I had nothing to do with the organising.
So all you out there treasure your daughters I love my sons but miss a daughter.
Love and ((((hugs)))) xxx
Just to let you know as far as the onc is concerned my lump is not C . I've got to keep an eye on it and if in pain , straight back. . I never ised to worry about things like this.
The sun is shining here and the world seems back in its place.
Take care everyone
Not been on for last couple days. Been catching up with all the posts. Site has been very busy.scratch can I ask what your tumours markers are now since you mentioned they were going up. Still really worried about what they said about inflammation near bowel. Lynne did your onc suggest investigation with bowel problem you have? Mine onc seems to be using the wait and approach to see if anything happens within the next few months. Regarding how often scans are done in my case once treatment was finished in April 2010 they only checked my bloods to monitor tumour markers. Stayed on Letrozole till 2014 when it got changed as markers had gone up to 41 and bone scan showed progression . Since then I have been scanned every 6 months. Not had bone scan since Jan 2014. Think I am now going to be scanned every 3 months. Carolyn I am the same as you regarding hair. I had really long thick hair before all this happened had to wet hair if I wanted to put hair up. On Letrozole my hair was definitely thinner than what it is now on E/E but still no where as thick as what it was which like you I get upset about. Nice sunny day here in N/E. ZGot lots of washing out drying. Hope everyone is feeling OK. Linda
Hi all, with regards to seeing a reiki practitioner, if this is something you are interested in trying there are also spiritual healers - see the healing trust http://www.thehealingtrust.org.uk/, practitioners have to go thr training. Reiki helaers also go thr training but it seems more variable.
Some practitoners offer distance healing - such as the quaker tradition.
Some questions I might ask someone was how long they had been practising and what kind of training they have had, to help me get a feel for them. People who offer healing do often an interest in the spirit world but they should check out with you what is acceptable for you rather than just coming out with things. If this isnt something you want, maybe let them know.
Natalie, on the question of why me, I take the opposite approach - I ask why not me? Obvously I would prefer not to have cancer but this is how it is now for me. I like to think I'm a fairly okay sort of person but my view is that life is full of light and shade, joy and suffering and everyone experiences these in some way. I'd just like a little bit more of the joy as well please.
Hi Mrstimps, just do your research on the net and also our threads, and jot things down on paper because you can guarantee you will forget to some of your questions. Be careful what you look up on the net though there can be some scary sites out there, stick to the Breast cancer sites and macmillan sites.
Hugs Janette xxxx
Morning ladies, lovely day here in Manchester.
Carolyn, I'm fine thanks, just been busy with my new little girl Heidi, we brought her home last night and she slept in my daughters room as she is a bit nervous. Gosh I hardly slept a wink, it felt like the first night home with a new baby worrying she is ok and still breathing! She was absolutely fine didn't make a peep all night!
I've posted a pic on the photo thread but it's come through upside down 😀I'm useless with technology.
Hugs Janette xxxx
Nice to hear from you. best of luck with scan and x ray results... aagh stress and the wait are not good for us.
How nice you have the wedding to look forward to.. hope u have your outfit sorted out and I bet you have already changed your mind at least twice if you are like me.
I had my nephews wedding a few weeks and found it difficult as due to my hip problems can only wear flat ballet pumps and somehow outfits don't look right without killer heels!!
I'm surprised that weddings don't just have a disco and uncle Sid doing the birdy dance these days..my nephew had a pizza bar..photo Booth.. cigar bar and bucking bronco ( was tempted but had my sensible head on)
Lots of hugs xxx
You say the nicest things but I'm such a vain cow. . obsessed with hair loss at the moment!! You must have very tough hair and lucky you. The early chemos didn't cause hair loss..I think it was cmf that was a good one. In 2004 I had four fec and eight cmf.. lost hair with fec but then it grew on the cmf part. So I wasn't bald for very long. The newer chemos seem to be hard on the hair loss.. I think cold capping must be so hard for the ladies to cope with too.
I'm glad you are in touch with giedre as I was worried about her not posting the last few days. Its certainly nice having you around as you have been there and done it with most of the treatments!! I was also glad to read your hubby is OK too as it was a worry for you.
Well that's it... damn hubby's got sport on tv again... what is it with men and anything connected to balls!!
Hello lovely ladies, it has been a while since I posted , but life has been very busy here. I have been reading posts and trying to keep up.
FF , so sorry about your sad news.
Chocolates good luck with the SATS
Julie. best wishes to Jenny , the photo on the trascript IS NOT ME.
My 'rash' did clear up, thank you to all who gave me such good advice.
Have now a bony lump on collar bone, after nearly a four hour wait to see onc today it seems it hopefully is one of those things. Xrays tomorrow and another look at scan results , so fingers crossed.
I think I sometimes need times of denial about this illness , but being busy getting ready for my daughter's wedding and working full time helps me to feel almost normal , just very tired.
Hugs and best wishes to all
Love M xxxxx
I hope you see this post I have sent you a pm and it has gone through.Look at the top of the page and you will see envelope with 1.
your photo shows that you have a lovely head of hair. I felt that my hair was getting thin on Exemestine especially when I was drying it I could see it flying away. But it soon stopped before that I was on Letrozole for 9 months and didn't have any trouble. I had my hair coloured and foils in and had no trouble even now on this tablet form of chemo no trouble. It does get light very quick and I feel as though it is finer than it used to be although my hairdresser for many years doesn't think so. But the IV chemo back in 1997 the nurses were suprised I had kept a full head of hair when everyone else had lost theirs. Even the Rads didn't get rid of all the hair under my arm. Maybe my hair is strong stuff I couldn't get a curl to stay when I was young.
Hope yours will sort itself out best of luck but it does look nice
Love and ((((hugs)))) to you all xxx
Nice to hear from you and I am so glad you are doing well long may it continue. This forum is really friendly and helpful I hope you pop in again from time to time we love to hear from you.
Sharon your Day centre sounds great although we do have a centre locally that gives you 6 free beauty treatments 2 free hair appointments and advice on other issues for making you feel good.After the freebies you can get all treatments at reduced prices.It is a charity and funded by a charity trust left by a local couple who left a large sum of money in their will.
Love and ((((hugs)))) to all xxx
Good Morning Ladies,
I have not been on for a while but just wanted to say a huge thank you for the year support I had from reading your posts. I was diagnosed last June with Secondary to the Spine, Pelvis, Lymph Nodes and Liver. I finished my Docetaxel in November and was put in remission in February. Sadly this was incorrect as I had never been examined once by my Oncologist. I transferred my care and I am now midway with Radical Radiotherapy to the Lymph Node in my neck. I am also on Anastrozole and Zoladex to shut my Oestrogen production down. My last scans showed the visitor had disappeared from my lymph nodes, possibly can't find it on my liver and it is contained in my bones. If the liver chap re-appears he will be blasted with RFA. With thanks to you ladies and your posts, I had a better understanding and still recite some of your comments today. Live with this like a chronic disease not a death sentence. Stay positive and each morning get your best smile out. I have been sugar free for a year (tumour feeder), still try to maintain gluten free and take a Vitamin D and 2 Curcumin tablets each day, along with milk thistle. All my blood tests are excellent. I am now pursuing the failings of an Oncologist for negligence. I firmly believe that this visitor lives with you, not you with 'it'. Stay strong my girls and I will pop in and out time to time.
Thank you for my strength xxx