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Bone mets - please join in

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Re: Bone mets - please join in

Sharon.

So sorry about your cat... ..it's heartbreaking isn't it? My sis had to have her 16year old cat put down last week.

Glad u agree about the iodine injection too..I have a real headache from it again today. I never getheadaches so know its that.

Hoping weather stays nice for you.

Hugs xxx

 

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Carolyn the iodine does not agree with me when I have ct scan..i feel horrid for two days..sharonx
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Hi jultz hope you get on well with letrozole.if get achy joints get glaucosomine tablets..trey definitely help
.take care Sharon xx
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Hi Carolyn.got few more days here then Torquay.my daughter in Plymouth and she seems to get opposite weather to us .if we're sunny she's cold vice versa..my old cat scratch who is my sign on name died on Friday .had her dinner went for sleep and didn't wake up
..i was very upset but she was 17.and had peaceful end....
😻..miss her mad old dementia ways ...xx
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The celeb ones my fav they are never what you think they are. I hope there's some interesting people in this one then I'm sorted for a few months lol. My most favourite programe ever is Wentworth that should be starting again soon x x
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I only like celebrity big brother ..don't like the normal people ones !!!!
Xxx
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Big brother starts tonight one of my favs sad I know but I love a bit of reality TV x x
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Hi janette I treat my dog as a child too until the grandkids come along don't think my two will ever have any mind one of themselves to young just yet. Started the letrazole today so let's see how this one goes. Sharon have a lovely holiday carolyn hope the headache has gone I hate that injection too x xx
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Hiya Sharon.
Think you must be down in the moondocks now of Torquay ...I ordered some lovely sunshine for you and hope u have internet and can keep up to date with us here too but hey ..why waste time when there is so much to see and do around the area.
Enjoy xxxx
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Hiya Jeanette
Glad u got to spend the day with your doggy ..it's nice to spoil them but pass them back!!
Hopefully u will get a grandchild soon to spoil as they are a joy.
Still got a headache from that iodine injection I had with the scan yesterday ...horrid feeling that u have wet yourself too!
Just been out and bought a new rug for grandsons room as he sits on floor with his PlayStation and carpet gets grubby.
Hugs xxx
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Hiya everyone
Hope u all are enjoying the sunshine wherever u are.
BUT of course that means hot fidgety nights for a lot of us on various treatments !! Windows open all night long and the hokey cokey with the duvet ..one foot in one foot out !!! Lots of huffing and puffing ( not that sort you naughty ladies!!) And moths and creepy crawlies invite themselves too.
Sleep well. Xxx
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Hi ladies, how gorgeous has our weather been!!!😎 Hope you are all keeping well. I had my little Heidi for the day yesterday we had a fab time 😀 until I get a grandchild she's my baby!!! We have spent a fortune on toys for her, she won't rest until she has demolished them! 

Hugs Janette xxxx 

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First they steal your heart when they are born and then empty your purse when they grow up !!
I love to spoil the grandchildren though so they get nice things ..by the time u get to our age ..don't need material things so much .
Xxxx
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Carolyn.cant say no to grandchildren can you..and they know it😊 sharon
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Oh Sharon .
I love b and m ..but I seem to spend £40 odd in there everytime I go in. Hubs buys gardening things and grandson caught me for a few bits last week too!
💜💜💜💜
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Hi yes I agree iv got ..b&m Argos and home bargains a five minute walk from me..spend load in there but it passes my day so its all good.have added nursery to my shop bought about 200 quids worth for garden.the sun must have gone to my head 😊 take care all.xsharon
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Sometimes it would b cheaper to go to the corner type shop and just buy what you need.
Funny thing is ..it's all boring stuff like bin bags and things we buy
Xxx
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It's leathul going in those shops never came out yet spending under a fiva haha x x
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Jultz
Funny you should say that ..went twice last week as its near to me ...spent £23 one day and £16 yesterday ! How .....do i do it ?
Xxxx
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Hi janette hope your doing ok I spend a fortune in pound land pick up all sorts of stuff I don't need haha x x
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Hahaha carolyn, I'm off to pound world for some shampoo tomorrow 😀👍💆
Hugs Janette xxx
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I'm going to stick in this week carolyn I've just had a big piece of cheese cake couldn't resist I'm starting properly tomorrow x x
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I'm sure the weight will fall off in one lump this week !! Your metabolism might b a bit slow after steroids.
Anything that tastes nice is a no no for me this week !!! Not buying bigger knickers.🍎🍏🍊🍋
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I joined slimming world two weeks ago I've ate more since joining I got weighed last week stayed the same get weighed again tomorrow if I make it got scan at 910. Good luck to you for your scan tomorrow ❤❤ for they live a few hours away ? X x
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Hiya jultz
Yes we've got soccer aid on too...hubs says England team playing better than the proper one did last week!!
Glad u got shampoo ..I've got mine coming later this week.
Just done a four hour round trip to take grandson back home for school tomorrow. Shall miss him but not McDonalds and kfc !!
Banana smoothes and salads for me next week. Ha ha .
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Carolyn that's my plan lol. I got that shampoo you suggested delivered today from amazon just got in from work I've had a lovely bath and washed my hair it feels so soft doesn't look as fluffy too so hopefully this works. I'm watching soccer Aid I love it but hate all the sad stories x x
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Jultz ...
I have visions of you sat in the Sumner house on big Indian cushions ..doing yoga / meditation and with those incense sticks burning and a turban on !!!
Jeanette
Accidently used my grandsons shampoo in shower this morning ..cheapey children's shampoo from pound shop ..guess what no itchy scalp and no moulting when drying it either ......
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Spud girl.. Thanks for the turban website... They are great! Definitely going to try some if needed 🙂

Helen xxx

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Tiger
Sorry read the fasting article too ..I think its going to be hard to do after chemo ..but if it helps maybe it's worth a shot . I always ate loads afterwards to settle tummy !!
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Hiya tiger.
Welcome ..all the hormone treatments carry se and most times they settle down or you get used to living with them.
I took tamox in 2004 after primary dx for two years and only remember hot flushes and a bit of weight gain but its a powerful little pill!
Once you have had the scan results you will have a clearer idea.
It's a very hard time but remember this website is real people with real symptoms and there is alwAys someone here that can support you.
Keep in touch ....
Xxxx
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Hi Tiger, 

I have been on this thread for almost 5 years ,but I am more of a lurker. Pain can be a sign of healing. May I ask if you have been put on any bone strengthener? My initial mets were on a rib. After my first coupe of strengthener infusions, I had a burning sensation in the ribs. At the next scan thet rib mets had gone. Nowadays my bone strengthener are in tablet format, but there are also injection.

not read the fasting article with chemo. It is not the first time i hear about this, but I can't comment. 

 

Have a great Sunday everyone. 

 

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Hi Helen

 

i know you want to keep your hair for the wedding,but if you are concerned with the tingly feeling and want a Plan B, have you looked at Suburban Turban? (I hope I'm allowed to write the name here.   She is a milliner and does some gorgeous headwear, including bridal. xxxx

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Hello again! I also wanted to ask another question and forgot to add it (sorry about that) - I read the article in the Guardian about the possibility that fasting before chemo can help limit some of the side effects - has anyone tried this and if so, do you think it helped? It's obviously something I'd talk to my dr about first but just wondered if anyone had any thoughts. Thanks so much ladies xx

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Hello, I'm back for another peek at all of your chats. Thanks again to those who sent such inspiring messages. I hope I get the courage (and the IT know how!) to find a way to reply to you all individually. Please may I ask for some help with a question I have about Tamoxifen? I've been advised that at the moment it looks as though I only have mets in bone, and I know there are some in my ribs. I've been taking Tamoxifen for 3 weeks now. Over the last week I've had increasing pain in my ribs. Some pain was there on and off and localised before but now feels like a ring of pain/burning all round my middle, with patches that hurt to touch. I don't feel breathless but if I take a deeper breath than normal or cough it triggers the pain. I've seen some info about 'tumour flare' but don't really know what that means so I wondered if it could be that. I've also noticed this week that my voice has become croaky/deeper and in the morning especially my mouth is incredibly dry. A nurse has listened to my chest and says it sounds clear and my temperature is normal. Does anyone know if this could be side effects of the Tamoxifen? I'm trying not to think that the mets have spread to my lungs but I'm really scared in case they have. I can't start chemo until I've had a bone biopsy and the results are back (being done Wednesday) and I just don't know how quickly this can spread. I'd be really grateful if anyone could let me know if they had similar issues when they started on Tamoxifen. Thanks everyone for reading such a long (and depressing) message. Sending lots of love to you all xx

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Hi Helen, I use hair concealer and thickening fibers, I have very thin hair after having thick hair that all fell out the first time I had chemo five years ago. This really boosts my confidence and even hides it under harsh lights, I often get compliments on my hair when I've used them. Anyhow I do hope it does slow right down and its not extreme loss xxxxxx

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Hi Helen,

 

I was told that sometimes thick hair can stop the cold cap getting through to the scalp so there will be hair loss  to begin with.  Hopefully it will slow down after the initial shedding.  Fingers crossed for you xxxx

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Oh Helen. What a shame about the hair..maybe it's just a splurge and it will stop again. The tingling head though is a bad sign.
Did u get yr rings in the lanes in Brighton ? Have been there several times. The poem is lovely and hair or no hair ..I'm sure you will have a really lovely day.
Xxxx
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Hi all... My hair is coming out in handfuls - 5 weeks to the wedding, got that tingling scalp feeling. Have put a thick elasticated cotton hair band on today to stop me fiddling. I'll be gutted if I do the cold cap and it comes out. 

 

However we are in Brighton today and have bought our wedding rings :-))) Didn't do the engagement ring thing.. Just a wedding ring each. We are having a humanist wedding.. Non-religious and all the words to the ceremony we have written with the help of a close friend.  It's great. Just hope not too much hair will fall out!

 

meant to be really sunny tomorrow eve one !!

 

My friend just wrote this poem.. I love it!

********

 

,Silliness' by Chris Hartnell

 

More often than not

It's a good thing

To let a little silliness add some colour to the day;

Being silly isn't silly -

It says,

"Look, I'm happy to let down my guard

And let you in",

Forget appearances

And power games

For just a little while,

And I’ll trust

You won’t judge

Anything I do or say,

Nor me you -

Just dance with me,

There are no rules,

It is simply a matter of the meeting of hearts and minds in all simplicity,

And letting laugher in -

The wonderful leveller of all things.

********

happy,silly weekends all

helen xxxxx

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My hubs is the gardener ..I don't know a daisy from a dandelion ..so the gardening thread on private forum is safe from me ! Also the arts thread ...never good with sticky back plastic and blue Peter !!!
My hair has been worse with simple too ...ugh .
Bought some Argan oil and back to normal stuff until I get the nioxin this week !!
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Carolyn, I agree with you on the Simple shampoo, it also made my scalp dry and itchy and my hair lank. Gone back on Herbal Essence. To be honest the only time iv noticed that I'm multing is when iv just washed my hair, as I comb it through I lose quite a bit then. 

Well my and hubby have spent all morning in the garden planting bedding plants, that is the first time I have done any gardening since my dx over 2 yrs ago, having Heidi has made me realise I am capable of doing more and that I really don't need to wrap myself up in cotton wool!!

Hope your all enjoying the sun.....I'm off for some well deserved retail therapy 😀

Hugs Janette xxxx 

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Wondered how the summer house was coming along ...sounds lovely with electric too.
I was either buying taps online or a trip to b and q ...can't stand going there and always get a "achy hip" if hubby suggests it !! 😛😛😛
Think its a man thing. Same as screwfix ..it's like Argos for men isn't it!!
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I agree a tap is a tap. I've been buying stuff to put in the summer house that's been nice got all indian hippy type stuff it will look lovely once it gets sorted. We are getting some electric put in it next week so il get in and do it out x x
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Haha Jultz

 

Done my tap shopping online now  and a nice ittle man in a van will deliver them on Tuesday ..my kind of shopping. .....boring  .... a tap is a tap ..as long as it switches on and off ..and doesnt go drip drip drip all day  ...dont really care much. 

Now for some fun shopping ..............

 

Hugs xxxx

 

 

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Haha carolyn I'm laughing we've been bathroom shopping and my husbands been asking me about taps for the last two weeks I'm sick to death of trailing around the shops not the kind of shopping I like !! X x
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As u know ..I love online shopping but got a sooo boring one to do ..New kitchen taps ..100s of the blitters to choose from ....phew think I might have to reward myself something else after all this tap shopping !
Hugs xx
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Jultz.
I didn't seem to get hair thinning on letrozole for the first three months or so ..I'm eight months now and its getting more .
How's the chillo pillow ?is it helping ?
Xxx
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I think that's what I'm getting ..the starter kit sample. It's expensive but worth it if it stops hair loss !! I don't wear black tops anymore as I can look like I'm carrying a dead cat on my shoulders !!
I found using "simple" shampoo dried my hair and made my scalp itch although lots of other ladies here found it a cheaper option.
Have a nice weekend xxxx
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Sharon have a lovely time it's nice to get a break from everyone now and again x x
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Just looked on amazon a lot of its out of stock I've managed to find a starter kit for 12.95 instead of 30 pound x x
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Hi ladies I'm think il try this shampoo instead of the horse one I start letrazole next week I'm gutted because my hairs just came in hope it doesn't thin out straight away x x