Hi, Can I just ask do these treatments ease the mets pain , admittedly I have only had one shot of fulvesterent hormone, with one zometa , but I also have just finished radio t to hip and axilla . my pain is mainly in hand from nerve in axilla , which I take 27 tablets a day !!!!!! oh and oromorph at night, and my hip stops me walking any great lenth.
I am In clinic on friday for more injections , but I dont want to ask , my faith and positivity is in my boots today. I know my pain is not great compared to some , and this scares me with what I have to come.
I was intending to go back to work , cant see that on the cards
sorry for my negativity , im giving up at first post , which isnt me
take care xxx
You sound very upbeat. And it sounds as if things are improving for you?
i am usually pretty positive, but finding it harder to be, just now. I had mastec in 2001, then letrozole, until advised I had been on it long enough.. Then 2 years after that,liver and spine mets Am currently on the gravy train of, 'this seems to be failing,now we suggest The next one should be....
Have a lovely oncologist, but really 'dont want' to be starting iv again this thursday!!
One thing I will say to everyone, if Letrozole is working, dont stop it, when I tried it again, it failed, so if it works...stay on it.
Morning ladies, yes it's pouring with rain here too!!!.....yet another wash out summer!
I'm still struggling with aches and pains in my hip and back 😟 it's worse when I sit for periods of time or whilst in bed, my mets don't seem too happy with any pressure on them at the moment so really struggling to get comfortable. Coping ok with paracetamol and naproxen though......don't like taking the hard stuff! Carolyn you do so well not needing any pain relief at all!
Well just made a big pan of my "healthy soup" loads of veg chucked in a pan, my hubby calls it my "windy" soup....wonder why!😀
Hugs Janette xxxx
Welcome to the bone thread........if 'welcome' is the right word. Nobody wants to be in our position, but here people can support one another. You wonder if this is the forum for you........yes, it certainly is. Others have come here worried about their mums! These forums are for anybody, patient or family, wanting information and/or support. Already Carolyn has said some very sensible things. I am sure your mum will be given bone strengtheners. I have a monthly denosumab injection. She could have a hip replacement at her age.......my dear dad has a full knee replacement at 88 and lived to 97. But do talk to your mum's onc and her breast care nurses. They can be more specific. I learnt to talk up for both my little parents in their later years. It can be hard, but you get better at it!
Anyway, welcome, and do ask any questions at all. Do browse the threads, and don't forget that you can ring the very informed nurses on the BCC telephone number. They are kind and patient and very knowledgeable. You can ask them anything. I talked to them a lot at the beginning. Take care, and give all our love to your mum,
Hi, I hope it is ok for me to join you and everyone else. I am not suffering myself but my Mum is and she does not have access to the Internet so I do a lot of things on her behalf. I worry that although as a family we do whatever we can to support her she feels very alone sometimes. My Dad died in 2009. Mum had breast cancer 10 years ago and had a single mastectomy. She was given the all clear after 5 years and medication was stopped - as we now know, 5 years is not long enough. Last year after some really bad back pain she ended up in hospital with a disintegrated vertebrae and the discovery that she has extensive spinal bone mets. We thought she would never walk again but she is a fighter and is back home and is as independent as possible. Maybe I should mention that she is 83 (almost 84) but has always been very active and people cannot believe how old she is. I sometimes feel I have to remind health professionals that there is a lot of life in her yet and they need to consider her treatment with that in mind! She has recently had severe hip pain and after much complaining is being taken seriously. I wondered if anyone has had a hip replacement due to bone mets and what the outcome has been because obviously we want to go into any decision with as much information as possible. I have read through a lot of the posts and feel that I understand as much as I can do as a relative but also that I can share these with my Mum so she will see that she is not alone. I think you are all amazingly strong people. I recently completed a pink ribbon walk and met some great people who have inspired me to do more. Sorry this is a very long post and I understand if you all feel that this is not the forum for me but I hope I can join you. Kathryn
Hi ladies, just catching up. Carolyn, really pleased abut your good news re stable. Always so good to hear. You enjoy your chocolate. Not many things we get to enjoy is there!!
sharon, glad you managed a good break. Always refreshing to get away.
Hope everyone else is doing ok. Good luck to everyone who has scans/results/treatments this week.
Hi Julzd, just wanted to say that since I started on letrozole last year my fingers have swollen, I questioned this with my onc, because they are not only swollen but feel stiff like I have arthritis, she told me that letrozole effects the small bones causing them to swell and ache. Have you also noticed your feet hurt too? When I get out of bed in the night for the loo I walk like a constipated duck after being lay down for a few hours! 😁
Hi Carolyn, I forgot to take pics with my tablet I used my phone and I can't post pics on the site off my phone for some reason!!......It was lovely Though 🍰🍰🍰
Hugs Janette xxxx
I would be careful with the smoothies, Carolyn - apparently they can be fattening too! I'm sure it will be a healthier fat, though
Great news Carolyn, a huge sigh of relief I know! Glad the chocolate buttons helped you celebrate 😊 I was on anastrozole for nearly 5 years keeping my bone mets stable so these hormone therapies do work, I just think as it's such a small tablet and here's no needles or hospital visit is involved you can be worried you're not getting the right treatment! But when they work - they work!
Enjoy the feeling and get out there driving as soon as you can, it will make such a difference to get some, if not all, your freedom back.
YIPPEEEEEEEEEEE! Great to hear about your results Carolyn. Phew.
Sending cyber hugs and flowers :-)))
Just read your post, Carolyn......YAY!!!!😄 😄 so pleased for you. Have a good long sleep...😴 after lots of chocolate 😇xx