Hallo Artygirl Even with all the technology available it seems there can always be uncertainty. I had a bone biopsy taken from my pelvis last autumn and was already on exemestane because of what was probably my problem. But then in June my onc just happened to mention that the biopsy results had not been all that conclusive. An MRI scan showed I also have something in my skull and a tumour in a really inaccesible place below my brain which might be bc or something else but they can't tell because a biopsy would be too invasive. So we live with uncertainty. Anyway I went to the Port Eliot festival in Cornwall this weekend and had a great time
Well done Carolyn, on several fronts: a.drinking a lot (really good for you!) and, b.buying new patio furniture (although I thought yours was lovely anyway), oh, and c.getting up late! A woman after my own heart!
PS if hubs is fed-up of putting flat pack together, I can give you the names of two different people who would do a good job for you.
Oh Carolyn, what are you like! Put the dog in the kitchen overnight, or the sitting room! You spoil him! Hope you get a better night tonight, or have had an afternoon nap.
Artygirl, I hope they figure it out soon. Did they biopsy it? I can remember when they biopsied my lung there was some confusion. They had to send it out for more staining, and it took a couple weeks. Good luck! FF
Stresshead, I'm OK! Just that bone met added to the confusion of why are my legs weak. I'm off prednisone now, so if that was part of the problem it's gone. If it's because of my knees and inactivity, I've begun some physical therapy to combat it. If it's the chemo, hoping the therapy combat that too. Hoping to see a difference in strength in a few weeks. My energy is less without the steroid, but again counting on time and exercise to help that! Maybe no steroids and exercise will help the weight too!
Bad day at work yesterday! Thankful it's Saturday! I work at a senior center. The senior center is a place for seniors to come hang out. It is open 9-3 MTWTF. There is fine art class, exercise, yoga, ti chi, dancing, bingo, poker, entertainment, etc. It Is always busy. Most of them are very sweet and lovely, but a few can be real pips! Enjoy your weekend ladies. I'm working on some ideas for a pirate murder mystery for the center!
I love the Lake District Julzd - spent a couple of weeks in Ambleside a couple of years ago - the scenery and walks are stunning aren't they?
Happy weekends to everyone - may they be pain and worry free xxx
So pleased to hear you are a stable Mabel, long may it continue! Always good to hear such news.
Love Helen x
Just seen your post to Marie and I'm wondering if you put an emoji, or two, in your PM? A while back I couldn't send PM's even though I had sent them to the person before. By a process of elimination the digital team from BCC suggested this was the problem - and it was 😊 Emoji's on the main, public, forum are OK as you can see.
Janette, what fantastic news...keep celebrating.
Funnyface...hope you are feeling a little brighter now. I know its a worry but your scan could have shown a lot more so try and be strong...like Carolyn says yo have coped so well for so long....
Carolyn..i wish i had your sense of humour...your 'tissue' incident had me in fits.
Hope everyone is as well as can be and sorry if i've missed anyone. xx
Bit behind on this thread so forgive me.....Andrea what fantastic news...you were right to share it! I'm sure the fuzzy head the day after was worth it!!
Avrelia....sorry you have had to join us. I had fec as my first treatment for primary sb and was qite ill on it but i had an antisickness drug called aprepitant and i had injections for neutropenia so there is stff out there if you should need it. I found losing my hair very hard (been through it twice now and looks like a 3rd time may be round the corner) but , although i tried, couldnt face the cold cap after my first attempt, although many ladies find it ok. You will get through it though and hopefully have success. Keep posting. x
Hello Janette, congratulations! Well done, and long may it continue! Stable is a good word to hear in our situation - wonderful.
we are a couple of wimps arnt we ?? When I saw Oncologist six weeks ago .. and he said stable scan etc -- I burst out crying and he produced a box of tissues from no where and do you know what I thought .. ugh Tesco own brand .. surely I deserve some nice soft aloe vera ones or perfume ones after all the stress !!
What am I like ?
Hi Marie, thanks for the PM I've tried to reply but it won't let me?? Hope you have a wonderful day tomorrow, wishing your daughter every happiness for the future 💑👰👰
Hugs Janette xxxx
Hi Carolyn, no I don't see scans etc, really do not want to either! I know I have cancer and that is all the info I want thank you very much, that and my stable results every 3 months is enough for me. I know some ladies want to know all that's going on and fair play to them but it's not for me! No she didn't elaborate on the hole and I didn't either, I think she knows I'm a stress head so keeps thinks brief.
Well dropped Heidi off at the "hairdressers "she wasn't very happy so think she will be a sulky pooch when we pick her up!!
Hugs Janette xxxx
Great news Janette, huge sigh of relief I'm sure!
Enjoy your day with Heidi, the perfect arrangement 🐶😊
That is excellent news Janette! Learnt today of someone who's been on Letrozole for 10+ years! quote nice to hear!
Yes hats of to letrozole! Off to bed now I'll save my celebratory drink for the weekend, my head is still banging hoping it will be gone by the morning now results stress is over!
Night ladies Hugs Janette xxxxxxx
Evening ladies, well Janette is AKA "stable Mable" yeyyyyy! Onc very happy with tumour markers at 35 she said a person's normal range is 30! Scan shows still stable mets. I did mention my painful hip and she said at the Christie they are now very close (roughly 6 months) to targeted radiothary which could work for me, I've already had radio in that area so can't have anymore. Also took in a print off of some simvastatin info which she read and said that at the moment there isn't enough research and evidence to say that it would benefit us secondary ladies.
Hugs Janette xxxx
I know exactly how you feel Janette, I mentioned to my BCC nurse that I wasn't sure I could sit in a waiting room again, waiting for results and said to me, and I quote, 'I would be happy to see you outside of clinic time, at your convenience, to talk through the results, at least I can set aside dedicated time to give you and also I could discuss the results & way forward.
How lovely is that of her - these nurses really are the best.
I have bone mets in vertabrae L1, L2, L4 and T12, T9, T8 and T3 - so not good to read about the risk of paralysis
Keeping everything crossed that results today went well for you Janette.