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Bone mets - please join in

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Re: Bone mets - please join in

Hi Janette,
About a year ago, not long after my secondary diagnosis. I developed a a severe, pretty persistent headache which lasted about 6 weeks. The headache suddenly stopped but a few days after it did I had a CT scan of head which showed nothing at all and the headache has never returned.Still no idea what it was but I was convinced it was something awful while it lasted. Best wishes xxx
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Thanks Julie /Carolyn. Might give them a ring later, might sound daft but I really don't want to go down the brain scan road! Just praying I'm having a bout of migraines 😕
Hugs Janette xxx
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Sharon, I'm so sorry to hear you're in hospital and also not on the ward that you need to be on.  Let's hope that things change today and you start to get the treatment you need in order to get home.  Sending you lots of love and hugs.

 

waving to everyone else.  Good luck with scans/results/treatments.  A hot few days down here, so trying to get things done in the morning so can rest in the afternoons.  

 

Huge hugs,

 

hxx

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Scratch  What a dreadful night for you  Let's hope you can be transfered to another ward today. Maybe threatening to discharge yourself will have some effect. Hugs xx

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No didn't buy a lottery ticket .so didn't win.x❤ ,
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Still here getting no sleep..lots of dementia people on ward...feel like signing myself out
Iwas supposed to go to oncology ward yesterday but they had no beds...its hot stuffy.iv had about 3hours sleep.someone in my ward had a dementia turn shouting at nurses for about 3 hours.not their fault
..fed up.x
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Hi Sharon, hope today went well and you are feeling ticketyboo? Did you win the euromillions? Also hope you mum is recovering. Lets hope your stay is a short one so you can go skipping home asap

 

talk soon

 

hugs,

 

Moijanxx

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Jeanette, I  do get a clicking jaw but I  had it before I  starte Zometa so don't think mine is related. However, yes, the jaw could be causing your headaches, talk to yur team again. Good luck xx

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Hi all - I'm recently back from a 10 day trip to Italy, so been out of touch for a while.  Sorry to hear not everyone is feeling great at the moment - the heat doesn't help does it.

Was able to put all things cancer related to the back of mind while away, but back to reality with PET scan tomorrow - the next couple of weeks are going to be long while waiting for results.

Take care everyone xxx

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Hiya Jeanette
Can't help with that one ..hubs says I have a busy jaw!!
I have all sorts of other side effects with denosumab but not that one ..yet.
Hugs xxx
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Evening ladies, can I ask does anyone who is on denosumab get a clicking jaw?? My jaw has stated clicking a lot lately and I'm wondering if that could have anything to do with the headaches I keep getting? Been suffering again all day with yet another! 

Hugs Janette xxxx 

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Thank you Barton I keep thinking this can't be right or maybe it's early days . Hubby keeps saying do you feel ok . Yep is my answer to that. Then you can't help but think is it working lol no pleasing me hugs
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Glad you are feeling ok, Corey. I hope it continues for you!

 

Hugs. Barton.x

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Hello Sharon, so sorry you are back in hospital! I do hope your stay is short, and as pleasant as a hospital stay can be and glad the food is OK.

 

Hugs. Barton.x

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Sharon sorry you are in hospital and hope they get you comfortable quickly and sorted soon so you can go back home to your own bed and bathroom. Sorry to hear your mum is there too but I  guess it means visitors can arrange their times a bit, two for the price of one Man Wink Aweiously though, I  send you healing vibes and a gentle hug x

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Hi Sharon, sorry to hear that you are in hospital, hope they get you sorted soon! Keep your chin up 😉

Hugs Janette xxxxxxx 

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Hi all not too bad just awaiting oncologist decisions....it would have been too hot today for me at home anyway....dinners ok.cant beat your own bed and bathroom though can you.my mum I in here as well as had a fall and broke her arm..so everyone doing two visits on one to see us..obviously not on same wards
Xxsharon
X
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Hi Sharon, sorry to hear you are in hospital hope they sort everything out and get you home again soon,

i also hate being in hospital....maybe you will win the Euromillions whilst you are in there if hubby gets you a ticket.

 

hope you are feelng comfortable?

 

lots of love,

 

Moijanxx

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Hello Marie
Sorry u having a rough time but I'm sure u will feel better soon.
Sending mega hugs xxx
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Hi all,

Sorry I haven't been on lately. So sorry smoe of you are having a rough time.

Be gentle with yourselves , hugs to all . M xxx

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Hi Sharon sorry you have ended up in hospital I do hope they get you sorted soon.

Hi Corey best of luck with your chemo I do hope the se will be kind to you.

Hi everyone else what a lovely day just popped in to get cool this weather is unkind to me but will suffer a little more So popping back out.

 

Love and (((hugs)))  xxx

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Sharon get well soon and make sure you rest in there you need a bank loan to watch the TV love Julie ❤❤❤
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Hi Carolyn yes I'm on fect . Not cold capping as I don't think I could go through that . Got my beenie hats and head scarves ready . X
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Sharon
Just take it easy and relax on ward and let the nurses spoil you and the hunky docs pamper you !!!!
Loads of hugs xxxx
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Hello Corey
Glad u are feeling ok ..not sure what chemo u r having but I had fec and it was always 8 hours after I got the sicky bit. Are you cold capping ? Not sure how good the Exeter ones are as don't know anyone here that has had them.
Take it easy ...xx
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Hi yes I'm on a ward.xx
Yes the food is fine..its hot and stuffy on here.although my husband just told me its really hot outside.xsharon
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Hi every body just like to say thank you to everybody for the good wishes and support. Slept well last night and had breakfast this morning . Feel ok apart from tired ok at the moment no sickness yet . Although plenty of time for that . Here's hoping I don't get it xx enjoy the lovely sunny day every one xx
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Sharon, Sorry you are in the hospital. Hope they get you situated soon and out of there. I do enjoy not having to cook or do house hold chores while I'm there. I like my own bed though! Feel better soon! Hugs! FF

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Sharon
Are you on a ward or still in a and e ?
Xx
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It's hot out here ..do enjoy the air conditioning of hospital. Hope the food is ok ..when I was in hosp last year ..it was good and nice to have it served up without shopping for it , cooking it and then washing up after it.
💟💟💟💟
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Every time I get a scan ..it's different rules !! With whatever nurse is on duty !!
Glad u relaxing and reading up on the threads ...
💟💟
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No its more likely to be fluid from the Mets they build up and cause swelling...update you all later.hate being shut in here in the summer.😊
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Carolyn if you don't wear zips or metal button.you can keep your own clothes on for ct bone scans..i just wear legging and t.shirtxx
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Sharon
So glad to hear from you ..hopefully they will sort you out ...maybe you have a surprise baby in there causing the swelling !!! Ha ha
Chin up ..
We are all thinking of you
Hugs xxx❤❤❤
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Hi Carolyn still in hosp.got different pain killers as called oxytocin ..think I'm having ultrascan today.xx
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Sharon
Hope hospital a and e have sorted out your swollen tummy and you are more comfy ..
Thinking of you
Hugs xxx
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Hello ladies
Weather is gorgeous ..love it .so going to overwork the washing machine and wash everything in sight !! Sad so sad. Ha ha
Hope u r ok .
Hugs xxx
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Hi Corey You have got a long way to travel. Hope your SEs aren't bad, you can take time to look after yourself and you have a community around to support you. xx

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Hello Corey, glad to hear you have your first chemo under your belt. Sorry you had a bit of a meltdown and are suffering from a headache (hope that is better now!). The staff will be used to people coming in extra stressed, so I hope they looked after you. Sorry you have such a long journey both ways, and the roads aren't great, are they?

 

Please take care of yourself as much as possible. It is a stressful time. I hope you get few, mild or, preferably, no, side effects.

 

Please keep in touch and let us know how you are getting on.

 

Hugs. Barton.x

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Since my sis moved to bude ..getting quite used to it. We always end up in rosies on the seafront for lunch as its good food and my sis can take her dog in as well.
Yes ..you will b busy this time of year with the tourists but hey hoo ...it's extra income.
Take care of yourself and keep in touch with us. I think Barton has already been in touch about a meet up for coffee ..there are three of us here in Exeter that meet .
Hugs xx
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Hi yes in between holsworthy and bude . So we get the best of both worlds . Lots of people come and stay in our holiday cottage on the farm and ask us about the best places to eat or best beaches. Funny really as we hardly get time to go to the beach and if we do my 14 yr old doesn't want to go as its not cool going out with your parents but my other two kids love it . Xxx
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Hiya ..so you are a holsworthy girl ..bit of a trip to Exeter for treatment though. My sis lives in bude ..so pass through when visiting her.
But you are in good hands in Exeter ..good oncology care in cherrybrook.
Hugs xxx

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Hi Carolyn 52 I think I got soo uptight about picc line . Felt I bit silly afterwards , the fear of the Unknown I suppose . Have a head ache but think that might be the stress and the long trip back home to holsworthy xx thank you for being so kind xx
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Hello Corey
Well done ..once the first chemo is out the way you will know what to expect and be able to plan your life around the good days and bad ones. Keep a daily diary so you will be able to keep a normal routine around it.
The picc line will help too ..think they fit them in more comfortable places these days ..mine was right in the crook of the arm and a bit irritating .
Hugs xxx
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Hi every one just wanted to say had my picc line fitted no problems with that and also had my first chemo this afternoon . Feeling a bit tired and with the anti sickness here's hoping it works . It was a long drive home done by hubby but had some tea and just chilling .
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Jultz
The trouble with slimming stuff ...you eat twice or three times the amount and so u just as well eat the proper stuff !!! Ha ha .
Your learning from the master here but she is outgrowing her size 14 very quickly.
Hugs xxx
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Hiya marirose
Firstly all the best for your scan this week ..it's a really busy time for so many this week.
The knickers are m and s of course and Im Sure they would stretch around big Ben if they had to. I always wear a tee shirt bra with no metal too for scans. But x rays and bone scans ...if I avoid metal ..can keep my dignity and not wear a silly gown. I suppose hospitals all vary. Bone injections easy ..just unflop a big bit of belly fat !!!
Xxx
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Carolyn your right I should just get the real stuff massive bar of dairy milk my mouth is watering now haha x x
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Hi all

bonariensis I didn't know you could get your scan results through the post. Not sure if I like that idea ok if good but if results bad I would want to see onc as soon as possible but at least you get a report to study it and ask questions.

 

Carolyn where are the hospital knickers from I can't imagine what they must look like. I always dress with clothes that do not have metal on not even bras. They let me go in without undressing and putting a gown on. I hate them you always feel your bum is on show for all to see. What does annoy me is waiting ages because you always get there early and then a patient gets wheeled in from A+E and they get seen first. I also look at the faces as I am leaving some they seem to look at you with pity one even said good luck made me wonder if they saw something bad.

 

Well I've got it all to go through on Thursday not as late as it usually is 6.10p.m normally get one for 8.pm or Sunday at a hospital a few miles away.

 

Good luck to julzd and anyone els having scan results.

 

Love and (((hugs)))  xxx

 

 

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Oh Jultz 

Go for it properly .. run to the corner shop and get a bar of Cadburys .. rather than that pretend stuff !!!!

 

Note to self .... stop posting such rubbsh here as I notice some of the postings get 400 views !! and I must be labeled as some sort of idiot !!

 

xxxx