Jultz, have a good trip and hope you enjoy the awards ceremony. I think we all know what you mean about distancing yourself, that's fine with all of us, you know where to find us!
carolyn, I have had my denosumab every 6 weeks for at least 18 months now, many hospitals are moving over to that timing, partly it fits in with other treatment cycles if you are on, say, Herceptin, but also I'm sure because of costs. I've not noticed any problems since changing from 4 weekly to 6 weekly (as in I used to think I got achey just coming up to the next injection but it must have been all in the mind!) so I hope it gives you a few extra weeks of not suffering as you do.
Hi to all other mets ladies, hope that treatments are being kind to you but absolutely horrible to the little uggers.
Hi Julie D and Helen
Thank you so much for your replies about Zometa, I have been drinking all morning in preparation. I must admit it threw me off balance a bit as I thought it was just an injection and not Iv ! Julie you also answered my other question about why Zometa as Helen had asked the same thing.
Helen I really hope you are starting to pick yourself up again and that this chemo gives the cancer a good kicking :).
Janette I am so pleased all that worry is over and whilst I never push for scans as I dread the results well done you, you can go on holiday without the headaches worrying you. Enjoy xxxx
Fab news Janette, I can just imagine your relief. All the headaches you should now be getting will be from the extra cocktails you can enjoy on holiday 🍹😉. Have a great time.
Corey, I had no pain or pain meds with mine. Just a little pressure when they took samples. FF
Oh Janette, I am so very happy for you. Now you can go and really have a great time! Your news has made my day and I'm sitting with a daft grin, great big hugs xx
Oh Janette, that is such wonderful news! You can go on holiday with no worries now! Do enjoy yourselves - I'm sure you will.
Hugs and best wishes. Barton.x
Hello Corey. That sounds like a horrendous day!
Re the hysteroscopy - yes, unfornately it was a bit painful. The doc tried without injecting local anaesthetic first though. It was much better after I had the local. It was still a bit uncomfortable (like a very painful period), but of course everyone is different, and you might not feel pain. I hope not. It will probably mean another long day for you, what with all the travelling asxwell as the wait at the hospital.
Wishing you all the best.
Yipppee!!!!!! MRI on head is clear! All is fine 😁 omg I can't tell you all how relieved I am, I had totally convinced myself there was something wrong.
Thank you to you all for "holding my hand" I can now start to look forward to my holiday!
Hugs Janette xxxx
Hi Corey I was sorry to hear about your blood clot and that you have to have a hysteroscopy. Hope it's not too uncomfortable and that the chemo goes well. Not much comfort but at least the traffic has died down a bit now. xx
ive been on Zometa about 4 months. I have it every 4 weeks at the same time as I have a chemo blast. Because of this I never can tell if side effects are due to Zom or chemo! Always assumed it was the chemo as don't notice anything particularly worse every 4 weeks....
I'm one of the other ladies just started on Eribulim. I'm cold capping but they said the same to me re no real evidence if it works but having done 4 months on paclitaxel and managing to keep hair with CC I'm just gonna keep going till it falls out. It is thinning on top and the session last week was extra agonising in the first 15 mins perhaps because it is on direct skin...almost unbearable but i managed.
I'm sitting in the waiting room right now for my second blast of Erib.. . Have been here 1.5 hrs waiting already. Brought my cushion with me so gonna take a nap soon!
Good luck on it and fingers crossed the CC works if you go for it.
Oops pressed wrong button!
Janette, I do hope you get those results quickly, it's bad enough waiting for any of our rsults but even more anxioius when brain involved. Do let us know when you hear anything. Sending positive energy your way
Hi Maria Louise,
I,ve been on Zometa for six years now. As long as your veins are ok or you have a line or port it's quite easy and doesn't take too long to administer, I often have to wait longer to be seen than the treatment takes to give! Basically they will cannulate you then hook you up to the bag on the machine, they normally do mine over 15 -20 minutes, then they flush and unhook me.
Some people find after the first dose or two that they get flu like symptoms for a few days - I never did. I do find I get a bit more tired and ache a bit more just before zometa is due and maybe a day or two after, but not everytime and nothing major. I would encourage you to drink plenty of water on treatment day to flush your kidneys. Hope all goes well.
Corey, try not to worry too much, as FF says there are all sorts of things that can affect u, lots of them quite simple and nothing to worry about. I've had a few histeroscopy procedures over the years ( for things like polyps )and have found them uncomfortable rather than painful. Good luck.
Janice, there does seem to be a reluctance to use the coldcap with Eribulin, I think it's often because the treatment time is short and the cold cap has to be on for so long, but try not to pressured into not having it if you want it, there are several women here, including Helen and Sharon who do have cold cap with it.
Corey, I've never had a pic line would a port be better? My mom had a line that was in the center of her chest and hung out. It always gave her a rough time. I don't think they had ports back then. Are ports prone to clots? I just know my port has been easy and I hate seeing others suffer with hunt the veins or problems with the pic line. I wouldn't get one at first and then my oncologist said I had too. I was furious at the time. Now, I can't say enough good things about it!
Corey, what a pain. I didnt get a blood c;lot through my line but did have a pulmonary embolism and had to inject for 6 months. As with everything else i just had to get on with it and you will too. It always seems that just as you cope with one thing, something else comes along..we never seem to get a bteak do we? At least your team are on the ball and getting tests done quickly. Fingers crossed for favorable results. xx
Oh, Corey, that is such a shame! Just what you don't need! Sorry to hear about the blood clot, too! I have had a hysteroscopy, so know what it's like - not pleasant, but if it can put your mind at rest afterwards it will be worth it. When you say you spent 5 hrs in hospital, I hope you meant your local one, and didn't have to travel all the way down here?
Hugs, and thinking of you. Barton.x
I am starting Eribulin on Wednesday after 6 months of Paclitaxel which has stopped working. I cold capped during the latter as I was told it worked really well with that particular chemo and it did although my hair was in terrible condition and still is 4 months on. Found it a very uncomfortable experience but if it works worth it.
The nurses at hospital say that patients on Eribulin don't use it as it is such a quick chemo and no evidence the cold cap works with it. How long do you have it on before and after?
I had a port fitted under my skin as my vains are worn out, not a particularly nice procedure but saves a lot of time and anxiety.
Corey, It could just be something hormonal .Our natural hormones, chemo and any hormone therapy we are on can make our bodies do crazy things. Try not to panic! I had an unexpected period in the middle of chemos one time. My oncologist was the one freaked out. I asked for a blood test to see where my hormone level was. If came back that I wasnt even in pre menopause yet. I was 52! He still wasn't satisfied and made me go for more tests. Everything was fine. Never had a problem again. I was sorry I even told him!! FF
I am due to have my first "bone juice" injection on Wednesday and wondered if you could just give me a quick idea of what to expect ?. I will be having Zometa, not sure if anyone has any experience of this.
Hope everyone else is ok. Janette, I can't concentrate on anything for days before I have results due and get quite snappy so I hope yours come through soon and that you can have a big sigh of relief before your holiday. xxx
Janette, Sorry you have to wait for those results! I really think when it's our head they should have them right away. They know when it involves anything with the brain people are frantic. May I ask are if you are ER +? Your vacation is going to be wonderful. I like to go anywhere the car goes. I don't like really long vacations. Two weeks is long for me. How long are you going for? Hugs, FF
Great news, Carolyn - you're a right little bleeder! Sorry folks! Just couldn't resist. Glad it went well for you, though. Good luck for the bone juice and clinic meeting on Wednesday. Will be thinking of you.